Best Edwards Syndrome Podcasts (2024)

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Episode 208: Mia Polacek and Edwards Syndrome Association (Trisomy 18) 50:48

8d ago50:48

50:48

Jeanna Polacek, mom to 5 year old Mia who has full Trisomy 18 and co founder of Edwards’ Syndrome Association joins Extra To Love: A Trisomy Podcast to discuss their surprising birth diagnosis, the milestones Mia has reached, the relationship Mia has with her baby sister, as well as the heart and mission of Edwards’ Syndrome Association. We also di…

1
The Path of Recovery From Trauma, Abuse & Boarding School Syndrome | AEM #99 Bryn Edwards 1:29:50

8d ago1:29:50

1:29:50

What is the path of recovery from childhood trauma, abuse and boarding school syndrome? What does it look like? Today I am talking with Bryn Edwards about his journey of recovery. Bryn went to boarding school from age 8-18. He was a complier. 1st XV Rugby, and sportsman. He also talks about colonisation and how that links to boarding school. He tal…

1
Review and Reflections of James Blunt & One Brit Wonder | Boarding School Syndrome | Piers Cross 11:26

12h ago11:26

11:26

James Blunt has a new documentary out on Netflix at the moment called, One Brit Wonder. It is excellent. I was really touched by some of his reflections about his boarding school experiences. There is footage of James' sister being driven to meet him to play a gig. She says, "I've never really met him before." She's asked, "Is that because of board…

1
Ministry Moment: Created For Community 5:37

2h ago5:37

5:37

In this Ministry Moment, Julie encourages listeners to lean into community with the reminder that scripture repeatedly demonstrates the power of joining with others, especially in challenging times. Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Throug…

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How To Resolve Conflict In Relationships & With Parents | AEM #100 Kimberly Best | Piers Cross 1:04:26

1d ago1:04:26

1:04:26

Conflict often shows up in relationships. Especially for those who have been through some form of childhood trauma or been at boarding school. We weren't taught how to resolve conflict in a heart-centred way. Instead we learned to avoid conflict at all costs. For many it was seen as dangerous. But there is a positive and life affirming way to resol…

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"Love Is More Important Than Food" | And The Lack of Love At Boarding School | Piers Cross 7:22

10d ago7:22

7:22

"Love Is More Important Than Food" | And The Lack of Love At Boarding School | Piers Cross Drawing upon the ideas of Julia Samuel in her interview with Charles Spencer from minute 13.30: https://youtu.be/R7YZHcLhrF8?si=GSoMoLqMKjBYPEvO&t=780 And from this article from George Monbiot about boarding schools: https://www.theguardian.com/commentisfree/…

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Ministry Moment: Gratitude In All Circumstances 7:16

18d ago7:16

7:16

This week Julie discusses nurturing a spirit of gratitude and choosing to see God's hand in the midst of difficulties. If you are struggling to feel gratitude, let your challenge this week to be acknowledging your blessings. When you notice the good things in your life, even something like air conditioning in the summer heat, write it down or say t…

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Clinical Psychologist: What Is My Opinion of Boarding School? | Compassion | AEM #98 Prof Paul Gilbert 53:02

16d ago53:02

53:02

A leading clinical psychologist shares his thoughts about boarding school and compassion. Some of the words Prof Paul Gilbert uses for boarding school are “nonsense”, “a ridiculous psychology”. Professor Gilbert attended boarding school from age 11 through to 18 and shares what his experiences were like. He also talks about his main work – Compassi…

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Complex PTSD - What Is The Outer Critic? How Does It Differ From The Inner Critic? | Piers Cross 10:34

17d ago10:34

10:34

What is the outer critic especially in terms of childhood trauma, complex PTSD and boarding school syndrome? How does the outer critic come to the fore? And what is the outer critic's link to the inner aspect? Today I wanted to offer some reflections about how this part of our psyche plays out. I quote from Pete Walker and his book, Complex PTSD an…

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Episode 207: Let's Talk Home Nursing 1:04:10

24d ago1:04:10

1:04:10

Home Health Nurse of 15 years and medical mom Tomi Moe joins Extra To Love: A Trisomy Podcast to share her perspective on how to identify and keep great nurses, realistic expectations for parents and more. Her experience being in many home as a nurse and also having nursing in her home for her child gives her unique and valuable insight to share. W…

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Clinical Psychologist: Emotional Repression Is Abuse |AEM #97 Nathan Baumann, PhD 1:11:19

23d ago1:11:19

1:11:19

Repressing emotions is abuse. Speaking with clinical psychologist Dr Nathan Baumann today we have a fascinating conversation about the psychology of emotions especially with men and boys. He talks about how most emotions are not allowed and how that impacts society. He also talks about what he feels about having no space for emotions like in a lot …

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Win Kelly-Charles' Inspiring Journey: Overcoming Cerebral Palsy, Advocacy, and Resilience Through Life's Challenges 55:30

24d ago55:30

55:30

Send us a Text Message. How do you navigate life when it feels like every challenge is stacked against you? Join us on this eye-opening episode of "Glass Half Full" as we sit down with Win Kelly-Charles, a podcast host living with Cerebral Palsy. Win opens up about her journey from her idyllic upbringing in Aspen, Colorado, to facing significant hu…

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"The Principal Effect of Boarding School Is A Problem With Emotions" | Piers Cross 12:12

25d ago12:12

12:12

Today I talk about our relationships to emotions at boarding school. I talk about how we repress them. And the cost of this on our psyches. I quote from the interview I did a couple of days ago with a clinical psychologist and Nick Duffell. I also quote from Daniel Kupfermann's book Don't Be So Senstive. The Emotion Feeling Wheel: https://www.david…

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The Reality of Competing Ft. Molly Edwards

28d ago

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In this Episode I sit down with one of my KOMPAK athletes Molly Edwards. We discuss alot of things including how she became a KOMPAK athlete! We hope you enjoy this episode! - Content includes: Winning the KOMPAK classic overall and winning the sponsorship - First show Reality of getting real stage condition Getting stage nerves Being a gymnast bef…

1
Ministry Moment: Considering Joseph on This Father's Day 6:47

1M ago6:47

6:47

In this Ministry Moment, Julie considers Joseph's role in our saviors life, and how we can glean the importance of an earthly father from what we know about him. Like Joseph, man trisomy fathers are thrown into situations they never could have predicted. Faith in God empowered Joseph to not only accept the situation, but to be the husband Mary need…

1
What Are Emotional Flashbacks & How Might They Show Up in My Life? | Piers Cross 10:07

1M ago10:07

10:07

Today I wanted to offer some reflections about emotional flashbacks. Pete Walker talks about how these emotional triggers and reactions are a symptom of complext PTSD. I used to struggle with emotional flashbacks regularly. Today I talk about some of the examples from my own life. I also talk about how to deal with these flashbacks and I link it to…

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Ep 206: Kora, The Kindergarten Graduate! (Trisomy 13) 50:23

1M ago50:23

50:23

Kelly, mom of 5 year old Kora, who has Trisomy 13 (Patau Syndrome) joins us to share their story of ups and downs, and the beautiful life that Kora now leads as a big sister and almost-first-grader. Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Throug…

1
Discovering True Fulfillment through Energy, Gratitude, and Meditation with Lucie Ptasznik 1:07:19

1M ago1:07:19

1:07:19

Send us a Text Message. Ever wondered how embodying energy and vibrational frequency could transform your life? Join us for a captivating episode of "Glass Half Full," where we host the incredible Lucie Ptasznik. From her humble beginnings in suburban Detroit to building a thriving seven-figure business in the horse industry, Lucie's story is a tes…

1
Boarding School & "I've Got To Be Liked" | People Pleaser | Complier | Piers Cross 13:34

1M ago13:34

13:34

In today's video I talk about how important it was for us to be liked at boarding school. If we weren't liked, we were often sent to coventry. We were banished. Richard Beard in his book Sad Little Men, talks about how on any given year group there was alway one 'custos' - the outcast. If you couldn't see the 'custos' then it was you. I talk about …

1
Our FAVOURITE Acoustic Songs - Guitar Smarts #97 1:01:30

1M ago1:01:30

1:01:30

Love Guitar Smarts and want to get in touch with us? Send us a Text HERE! Summer is here! And what could be better on a sweet summers day, thank grabbing your acoustic and sitting outside to serenade the world with your favourite tunes. But, which tunes? This week Kiran and Matt reel off their go to acoustic hits to listen to and to play when the t…

1
Ministry Moment: Doing God's Work 6:29

2M ago6:29

6:29

In this week's Ministry Moment, Julie encourages listeners to remember that we are doing the Lord's work every day, and reminds listeners to consider Colossians 3:23-24 - in whatever you do, work as if you are working for the Lord. Caring for a child with disabilities such as those associated with Trisomy 13 and Trisomy 18 can be taxing and can lea…

1
Fear and Boarding School | "When I hit (boarding) school all I felt was fear" Bear Grylls 11:44

2M ago11:44

11:44

In today's episode I talk about fear and boarding school. I talk about some of my own experiences of school and how I felt that I was in fear a lot of my time. I talk about some of the fear-based beliefs I left boarding school with: - Fear of making mistakes - Fear of getting close to others - Fear of being ostacized - Fear of failure I share some …

1
Ep 205: Trisomy Grandmother; It Starts With Yes 45:22

2M ago45:22

45:22

On this episode of Extra To Love: A Trisomy Podcast , we're talking to Jennifer Springer, Director of Operations for ETL. Jennifer is connected to the trisomy community through her granddaughter, Sage, who had trisomy 18. Jennifer talks about the choice to be the "village" that is needed to raise a child with disabilities, her love for the trisomy …

1
AEM #96 Keith Day | Trauma, Physical Illness, Neuropathy & Developing Mental Strength | Piers Cross 53:07

2M ago53:07

53:07

Today's fascinating episode is with Keith Day exploring trauma and how trauma can impact us physically. Keith struggled with trauma as a child and got a diagnosis of neuropathy as an adult after suffering painful symptoms. In this podcast Keith explores some of his journey through these physical illnesses and how he started to recover. We also talk…

1
The Blood Scandal | The British Legacy of Coverups | Piers Cross 15:09

2M ago15:09

15:09

I have felt pretty shocked listening to reports about the Blood Scandal. I was horrified to hear what had happened at the boarding school, Treloar's where many people died. It is another cover up. Grenfell Tower, Windrush, Post Office Enquiry, Hillsborough... Repeated calls for justice and recognition were ignored for years. In today's podcast I ta…

1
Kiran's Guitar Safari Part 2 - Guitar Smarts #96 54:51

2M ago54:51

54:51

Love Guitar Smarts and want to get in touch with us? Send us a Text HERE! Welcome back! This week we are looking at a couple of things, the most popular songs googled by guitarists around the world, and also Kiran takes us through the second part of his recent London Guitar Safari, where he falls for another Strat! Will he buy it? Find out in this …

1
Ministry Moment: Starting Your Prayer Life 8:12

2M ago8:12

8:12

Julie Hawkins, Extra To Love Board Member and a Director of Children's and Family Ministry, begins a new feature on the ETL Podcast, Ministry Moments. It is our hope that each Ministry Moment provides the uplifting encouragement you need to continue seeking God's face through uncertainty. Extra To Love is a non-profit organization that aims to impr…

1
Help! What jewellery should I choose?

2M ago

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Helping competitors style their show day looks is something that we do on a daily basis. So, let’s talk all things jewellery & let you in on our styling ‘secrets’. Of course, if you need any help though, please feel free to reach out to us via DM on Instagram. We are always happy to help! xBy Not Just A Bikini Girl

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Tara Halliday's Guide: Conquering Imposter Syndrome, Embracing Unconditional Worth, and Fostering Leadership Growth 59:07

2M ago59:07

59:07

Send us a Text Message. This week on "Glass Half Full" Chris talks with Dr. Tara Halliday. Have you ever been plagued by that nagging doubt that you're just not as competent as people think? You're not alone. Join me for an intimate conversation with Tara Halliday, the exceptional imposter syndrome coach who transitioned from engineering to guiding…

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Child Sexual Abuse: Mandatory Reporting & How We Still Don't Have it | Alex Renton | Dino Nocivelli | AEM #95 49:50

2M ago49:50

49:50

What is the government doing regarding mandatory sexual reporting? After £200 million spent on IICSA, Independent Inquiry into Child Sexual Abuse, what has been the outcome? Today's conversation is with two of the leading voices campaigning against child sexual abuse. Lawyer and partner, Dino Nocivelli and author, Alex Renton. What does this new am…

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What Does Trauma-Informed Healthcare Look Like? | Dissociation | Boarding School Trauma |AEM #94 Dr Karen Treisman 58:10

2M ago58:10

58:10

What does a trauma-informed healthcare system look like? Do we currently have that in the UK? And if not what can we do to start to implement this? Today I am speaking with award winning clinical psychologist, Dr Karen Treisman about becoming trauma-informed not just in healthcare but also in the education system. We talk candidly about her work wi…

1
The Reality of Turning Pro Ft. Liliana Sakhanova 1:24:30

2M ago1:24:30

1:24:30

Who was Liliana before competing and started? Figure skating Having to let go of being an athlete being injured Turning pro Being a security guard before turning pro The realities of turning pro now How to decompress after a show when it doesn’t go to plan Therapy and mental health during prep Shoe designer?! Shoe talk: gala 01, platform Top 3 thin…

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Ep 204: Speaking Life Over Eloise (Trisomy 18) 1:04:54

2M ago1:04:54

1:04:54

Lacey Ponder, mom of Eloise who lived 14 months and had Trisomy 18, discusses the shock of their birth diagnosis, the decision to focus on speaking life over her daughter, and how she finds comfort in the truths of the gospel as a bereaved mother. Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 an…

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AEM #93 Zena Me - Leadership, Trauma, Eldership and Boarding School 1:23:13

2M ago1:23:13

1:23:13

What is good leadership? What makes a great leader? What is a servant leader? And how does boarding school impact our leaders? Today I am speaking with leadership expert, Zena Me who has worked for decades with CEOs and senior leaders. She talks about the keys of great leadership: the importance of emotional and spiritual intelligence, humility and…

1
"The Unexamined Life is Not Worth Living" | The Importance of Exploring Our Childhood Trauma 10:43

2M ago10:43

10:43

A video exploring why it is so important to explore our inner world. What happens when we explore this unexamined life? I talk about Pete Walker and his book Complex PTSD, and Robert Bly's Iron John. Our wound becomes our gift. Warm regards, Piers --- Piers is an author and a men's transformational coach and therapist who works mainly with trauma, …

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Childhood Trauma & Joy | The Things That Bring Me Joy | Piers Cross 8:28

3M ago8:28

8:28

Following on from last week's video I thought that I would share some of the practices and exercises that bring me joy. A subscriber commented on my last podcast: https://youtu.be/NGa-UoRhHWg They mentioned that for some people thinking about what makes them joyful is stressful. So today I share some of the practices that I have learned that have h…

1
"It Doesn't Matter, It's Just a Regional" 12:40

3M ago12:40

12:40

How often do you hear this sentence these days? “It doesn’t matter, it’s only a regional anyway, it doesn’t count or mean anything.”.. Yes, we often look better after that first show where cortisol has worn off...But is this a good way to approach it? Looking to work with me? Message me @notjustabikinigirl or @jasminjuliajeffery In collaboration wi…

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Childhood Trauma Healing | I Forgot The Joy of Life | Piers Cross 5:57

3M ago5:57

5:57

Today I talk about the importance of joy. When we begin on the journey of childhood trauma healing it can become all consuming. Life can become really hard - lots of tears, feeling pain. It can feel overwhelming. But part of the healing is to remember the joy. So today I talk about the importance of remembering happiness, gratitude and joy. Warm re…

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The Importance of Ear Training With Damo Lodrick - Guitar Smarts #95 1:00:36

3M ago1:00:36

1:00:36

Love Guitar Smarts and want to get in touch with us? Send us a Text HERE! Welcome back! On this episode of the Guitar Smarts podcast, Kiran has tagged in our good friend and previous guest Mr Damo Lodrick to provide some valuable insight on the importance of training your ears. Music is something we experience in many ways, and often we find oursel…

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Why Can't I Stop? | Workaholism & Childhood Trauma | Boarding School Syndrome | Piers Cross 11:36

3M ago11:36

11:36

Today I talk about workaholism and childhood trauma. Why can't you stop working? Especially if you had experiences of childhood trauma? I also talk about the link to boarding school. Why is that many who have been to boarding school are workaholics? I talk about some of the techniques that we can use to start stopping. Now. Take care, Piers --- Pie…

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Grief and Trauma | The Power of Tears and Crying for Healing | Childhood Trauma | Complex PTSD 13:48

3M ago13:48

13:48

What is the power of grief? What if you can't stop crying? Is this normal? How important is grief on the path to healing? Today I talk about tears and the importance of crying as we start to heal on the recovery journey. I share from the work of Pete Walker and Complex PTSD and from Dr Judith Herman and her book, Trauma and Recovery. Is it importan…

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Suicide | Suicidal Ideation | Boarding School | Richard Branson | Roald Dahl | Piers Cross 11:02

4M ago11:02

11:02

Is it common for people who have been to boarding school to have suicidal ideation? And how many people have actually attempted suicide or taken their own life while at boarding school? Today I share stories from Richard Branson's autobiography Losing My Virginity, Sir Ranulph Fiennes' Mad, Bad and Dangerous to Know and Roald Dahl' biography. I als…

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Charles Spencer | A Very Private School | Boarding School | Sexual Abuse | AEM Podcast #92 59:36

4M ago59:36

59:36

PLEASE NOTE: We talk about sexual abuse in this episode which some viewers may find triggering. Today's episode is with author Charles Spencer. As I was preparing for the interview a line in his book really jumped out: "many of us left Maidwell with demons sewn into the seams of our souls." What a heart-breaking and powerful turn of phrase. One tha…

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Review of Charles Spencer's Book | A Very Private School | Speaking on Podcast | Piers Cross 6:12

4M ago6:12

6:12

Today I wanted to offer a review of Charles Spencer's new book, A Very Private School. I spoke to Charles on Monday on my podcast which will be going live here on Friday: https://youtu.be/NJBGrRdgKm8 It was a really great conversation where Charles was very open about his boarding school experiences talking about sexual abuse, bullying, corporal pu…

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NEW GEAR From Keeley, Line 6 and GIBSON - Guitar Smarts #94 56:32

4M ago56:32

56:32

Love Guitar Smarts and want to get in touch with us? Send us a Text HERE! Greetings! This week we take a look at some of the finest new gear released by some of the biggest names in the industry. Line6 has released a new version of the POD, Keeley have once again innovated with their new drive pedals and Gibson have done exactly what Gibson do, rev…

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Consultant Paediatrician: I Went To School With Piers: Suicide, Sexual Abuse, Safeguarding AEM #91 Dr William Verling 1:13:23

4M ago1:13:23

1:13:23

PLEASE NOTE: We talk about suicide and sexual abuse in this episode which some viewers may find triggering. What was it like at Piers' boarding school? Today we talk to a man who lived in the same boarding house as Piers, the host of this podcast, for 7 years. Today Dr William Verling, who is a consultant paediatrician, talks about what boarding sc…

1
Charles Spencer | A Very Private School | Interviewing Charles Next Week | Piers Cross 6:44

4M ago6:44

6:44

Next week I am interviewing Charles Spencer on my podcast which I am really excited about. Today I talk about the interview and his excellent new book, A Very Private School. To purchase a copy please visit: https://www.amazon.co.uk/Audible-A-Very-Private-School/dp/B0CKWD9Z6M/ref=sr_1_1?crid=3V69A41C2I6FX&dib=eyJ2IjoiMSJ9.KaA-g5hp1wccFRcaTahrVm0Pzj…

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Ep 203: Siblings of Children with Trisomy 48:38

4M ago48:38

48:38

Families are often told to consider the burden their child with special needs will have on their neurotypical children. What better way to remove the stigma than to allow the opportunity for their siblings to speak on their experience! Five children ranging in ages 13 to 17 joined the Extra to Love podcast to discuss their prospective of having a s…

1
June Edward's Insightful Voyage: Unveiling Love's Psychic Landscape and the Power of Spirit Connections 1:03:11

4M ago1:03:11

1:03:11

Send us a Text Message. In this weeks episode Chris Levens talks with June Edward. Ever been at a crossroads in your heart, wondering if there's more to your relationships than meets the eye? June Edward, a psychic medium and relationship mastery expert, joins us for an intimate exploration of the spiritual dimensions that influence our lives and l…

1
"I Loved Boarding School" | The Psychology of Truth, Denial or Betrayal Trauma | Piers Cross 13:05

4M ago13:05

13:05

Charles Spencer's new book about his boarding school experiences has now been released. You can find it here: https://www.amazon.co.uk/Audible-A-Very-Private-School/dp/B0CKWD9Z6M/ref=sr_1_1?crid=320MHELEHEKLN&dib=eyJ2IjoiMSJ9.81PdazFBg3A7AleHD-lYQrr8QZXqwIxFOeUQIONnMvaAHp1OOHjwnFPEdjHXdQsGwITpT_DRzoK2CZeOTQBf6pju9k8AlNsIdXDgeRRo2A2zAGIM2OTF9_Yos8wd…

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Edwards Syndrome Podcasts

Podcasts Worth a Listen

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