Artwork

Content provided by PTC Therapeutics. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by PTC Therapeutics or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
Player FM - Podcast App
Go offline with the Player FM app!

Navigating Independence with PKU with Maridith, Lauren, and Abigaill

58:48
 
Share
 

Manage episode 350195410 series 3406993
Content provided by PTC Therapeutics. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by PTC Therapeutics or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Welcome back to another episode of Insightful Moments: My VIBE, presented by PTC Therapeutics. In this episode, Paula Orandash attended the National PKU Alliance Challenge the Summit 2022 Conference in Vancouver where she spoke to many individuals affected by Phenylketonuria (PKU). PKU affects the body’s ability to metabolize proteins. It requires a strict monitoring of diet, but has many other challenges and nuances as well. You’ll hear from Maridith about how she navigates college and deals with her PKU symptoms. You’ll also hear from Lauren about how her definition and explanation of PKU has changed from when she was in college to today. And you’ll hear from Abigaill, who was diagnosed with PKU at birth, about how the information given to parents upon diagnosis has greatly improved over the years. Join us for another wonderful episode of Insightful Moments: My VIBE, brought to you by PTC Therapeutics.

For more information, visit the Insightful Moments website at www.PTCinsightfulmoments.com.

Follow Us

Presented by PTC Therapeutics

www.ptcbio.com

  continue reading

17 episodes

Artwork
iconShare
 
Manage episode 350195410 series 3406993
Content provided by PTC Therapeutics. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by PTC Therapeutics or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Welcome back to another episode of Insightful Moments: My VIBE, presented by PTC Therapeutics. In this episode, Paula Orandash attended the National PKU Alliance Challenge the Summit 2022 Conference in Vancouver where she spoke to many individuals affected by Phenylketonuria (PKU). PKU affects the body’s ability to metabolize proteins. It requires a strict monitoring of diet, but has many other challenges and nuances as well. You’ll hear from Maridith about how she navigates college and deals with her PKU symptoms. You’ll also hear from Lauren about how her definition and explanation of PKU has changed from when she was in college to today. And you’ll hear from Abigaill, who was diagnosed with PKU at birth, about how the information given to parents upon diagnosis has greatly improved over the years. Join us for another wonderful episode of Insightful Moments: My VIBE, brought to you by PTC Therapeutics.

For more information, visit the Insightful Moments website at www.PTCinsightfulmoments.com.

Follow Us

Presented by PTC Therapeutics

www.ptcbio.com

  continue reading

17 episodes

All episodes

×
 
Loading …

Welcome to Player FM!

Player FM is scanning the web for high-quality podcasts for you to enjoy right now. It's the best podcast app and works on Android, iPhone, and the web. Signup to sync subscriptions across devices.

 

Quick Reference Guide