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Perspective from a Duchenne Mom and Healthcare (Spanish Episode)

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Manage episode 356771203 series 3406993
Content provided by PTC Therapeutics. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by PTC Therapeutics or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Welcome back to another episode of Insightful Moments: My VIBE, presented by PTC Therapeutics. On this episode, Aurora Flores, Patient Engagement Liaison at PTC, is attending the Akari Foundation workshop in Dallas, which was the foundation’s first hybrid workshop fully in Spanish for families affected by Duchenne Muscular Dystrophy. She is joined by Fabiola, a DMD mother and Psychotherapist. Fabiola found her calling in helping others after her son was diagnosed with DMD. She was motivated to pursue a degree in psychology and thanatology, which is a multidisciplinary field dedicated to better understanding of death, grief and loss, to help others cope with the pain of a terminal diagnosis. She joins Aurora to share her perspective as a mom and therapist for the DMD community. So join us for another thoughtful episode of Insightful Moments: My VIBE, brought to you by PTC Therapeutics.

For more information, visit the Insightful Moments website at www.PTCinsightfulmoments.com.

Follow Us

Twitter @PTCBio

Facebook @PTC Therapeutics

Instagram @PTCTherapeutics

Presented by PTC Therapeutics

www.ptcbio.com

  continue reading

17 episodes

Artwork
iconShare
 
Manage episode 356771203 series 3406993
Content provided by PTC Therapeutics. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by PTC Therapeutics or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Welcome back to another episode of Insightful Moments: My VIBE, presented by PTC Therapeutics. On this episode, Aurora Flores, Patient Engagement Liaison at PTC, is attending the Akari Foundation workshop in Dallas, which was the foundation’s first hybrid workshop fully in Spanish for families affected by Duchenne Muscular Dystrophy. She is joined by Fabiola, a DMD mother and Psychotherapist. Fabiola found her calling in helping others after her son was diagnosed with DMD. She was motivated to pursue a degree in psychology and thanatology, which is a multidisciplinary field dedicated to better understanding of death, grief and loss, to help others cope with the pain of a terminal diagnosis. She joins Aurora to share her perspective as a mom and therapist for the DMD community. So join us for another thoughtful episode of Insightful Moments: My VIBE, brought to you by PTC Therapeutics.

For more information, visit the Insightful Moments website at www.PTCinsightfulmoments.com.

Follow Us

Twitter @PTCBio

Facebook @PTC Therapeutics

Instagram @PTCTherapeutics

Presented by PTC Therapeutics

www.ptcbio.com

  continue reading

17 episodes

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