#001: My personal journey with MS

MS-Perspektive - The Multiple Sclerosis Podcast

Before I'm going to ask other people living with MS about their way I'm sharing my personal journey with the disease so far. You can read the complete blog article here: https://ms-perspektive.com/001-my-journey

Welcome to episode one of the podcast and correspondent blog article where I speak about my personal journey with MS so far. I have choosen all the questions that I’m going to ask my upcomoning interview partners about their life with multiple sclerosis. I think that is fair and maybe answers some questions you might have.

Table of Content

• Introduction Nele Handwerker
• Diagnosis and status
• Wishes and goals
• Quickfire Q&A
• Fare well

Introduction Nele Handwerker

I’m 42 years old and live in Pirna, near my hometown Dresden together with my husband, our daughter and two gerbils as pets. I love to be close to the elbriver, which I can see from our apartment and enjoy when going for a lunch walk. When I got married I took on my husbands surname. But I had started the German MS-Perspektive podcast already and so I decided to stay officially with my birth name. So nevermind if you see my picture and it says Nele von Horsten instead of Nele Handwerker.

I love reading and am a loyal subscriber of the National Geographic Magazine since 2002. My garden is a mix of wild nature with a few berries and vegetables to eat and some flowers. I ride my bike every weekday to bring my daughter to kindergarten. I’m interested in many things and keep asking questions to learn and grow.

Is there anything else you would like to share with listeners?

Please never give up. There are lots of supporting structures. Of course that varies and depends on the part of the world you are living. But the MS-community is large. Many very intelligent and enthusiastic people are working on the whole globe to improve the life of people with MS. Please try to bring up the energy to make active healthy decisions and think of MS as a full circle, where good lifestyle and treating all your health issues are important. If you have depressions or other mental challenges try to improve them in order to have enough energy for all the other aspects. Each puzzle piece helps with the outcome. And forget about the question “why me?” This doesn’t help at all and only burns energy for nothing.

Where can you be found on the Internet?

Most of my time I spent on learning about MS and the adjustments to improve life with MS and my podcasts and blog articles are the extract of that. You can find everything I do and publish on my website in my shop and my newsletter. And I will share a bit of my private life on Instagram, but not too much. As it is very important for me to protect the privacy of my family.

Instagram: https://www.instagram.com/ms.perspektive/

YouTube: https://www.youtube.com/@ms-perspektive-dermultiple8807/

LinkedIn: https://www.linkedin.com/in/nele-von-horsten-bb59ba92/

Twitter/X: https://twitter.com/NeleHandwerker

Facebook: https://www.facebook.com/msperspektive

Pinterest: https://www.pinterest.de/MSPerspektive/

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I hope this overview gave you enough insight into my life with MS. Because I am not heavily affected by MS, I can put my energy into the two language versions of the podcast and other activities around MS.

See you soon and try to make the best out of your life, Nele

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Click here for an overview of all podcast episodes published so far.