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Man Turning Into Stone - My Conversation with Joe Sooch
MP3•Episode home
Manage episode 337513793 series 2926413
Content provided by MHNR Network, LLC, MHNR Network, and LLC. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by MHNR Network, LLC, MHNR Network, and LLC or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
Joe Sooch is 29 years old and has been living with Fibrodysplasia ossificans progressiva (FOP) is a very rare genetic connective tissue disorder characterized by the abnormal development of bone in areas of the body where bone is not normally present such as the ligaments, tendons, and skeletal muscles. He has lost 95% of his mobility and relies on others to help him with daily functions. But, talking to him, you wouldn't know it. He has a way of living with this disease that puts it in the background which is impressive given how this has physically shaped his life. And, this is not living in denial. He very much lives in his reality. He just doesn't let the illness overshadow what's important to him. We talk about relationships, sex, podcasting and living a full and big life. Joe left a huge impression on me. I'm a better person for it.
…
continue reading
99 episodes
MP3•Episode home
Manage episode 337513793 series 2926413
Content provided by MHNR Network, LLC, MHNR Network, and LLC. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by MHNR Network, LLC, MHNR Network, and LLC or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
Joe Sooch is 29 years old and has been living with Fibrodysplasia ossificans progressiva (FOP) is a very rare genetic connective tissue disorder characterized by the abnormal development of bone in areas of the body where bone is not normally present such as the ligaments, tendons, and skeletal muscles. He has lost 95% of his mobility and relies on others to help him with daily functions. But, talking to him, you wouldn't know it. He has a way of living with this disease that puts it in the background which is impressive given how this has physically shaped his life. And, this is not living in denial. He very much lives in his reality. He just doesn't let the illness overshadow what's important to him. We talk about relationships, sex, podcasting and living a full and big life. Joe left a huge impression on me. I'm a better person for it.
…
continue reading
99 episodes
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