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My Race Against the Clock - My Conversation with Seth Rotberg

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Manage episode 322399458 series 2926413
Content provided by MHNR Network, LLC, MHNR Network, and LLC. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by MHNR Network, LLC, MHNR Network, and LLC or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
After watching his mom succumb to Huntington's Disease, a rare genetic neurological disorder with no treatment and no cure, Seth, at age 20, decided to see if he carried the gene. The test results came back positive. He shares what it's like to live with this knowledge and how he tries to balance holding onto hope for a different future with accepting the brutal reality of his situation. In the meantime, he is not waiting around for treatment of a cure for HD. He is pushing the needle forward and advocating for others like himself. He is a gift to humans.
  continue reading

99 episodes

Artwork
iconShare
 
Manage episode 322399458 series 2926413
Content provided by MHNR Network, LLC, MHNR Network, and LLC. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by MHNR Network, LLC, MHNR Network, and LLC or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
After watching his mom succumb to Huntington's Disease, a rare genetic neurological disorder with no treatment and no cure, Seth, at age 20, decided to see if he carried the gene. The test results came back positive. He shares what it's like to live with this knowledge and how he tries to balance holding onto hope for a different future with accepting the brutal reality of his situation. In the meantime, he is not waiting around for treatment of a cure for HD. He is pushing the needle forward and advocating for others like himself. He is a gift to humans.
  continue reading

99 episodes

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