Maria Mendoza's Story

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Manage episode 362501374 series 3276234
Content provided by Dwayne Golden | SCPASCC, South Central PA Sickle Cell Council, and Dwayne Golden. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Dwayne Golden | SCPASCC, South Central PA Sickle Cell Council, and Dwayne Golden or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
  • Guest: Maria Mendoza, a parent and sickle cell disease advocate for her children and other families with SCD children.
  • Maria has 2 children with SCD (Luis, 11 years old, and Andrea, 7 years old) and 1 with SCT.
  • Maria stresses the importance of communicating with her children's teachers about their SCD condition and advocating for their needs.
  • Lack of privacy, understanding from teachers, and potential bullying from classmates can all contribute to the loss of dignity for the child with SCD.
  • Education and awareness are crucial to ensure that employers, educators, and healthcare professionals are knowledgeable about the disease and can provide necessary support.
  • Sickle cell disease affects individuals from various ethnicities and backgrounds.
  continue reading

18 episodes

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iconShare
 
Manage episode 362501374 series 3276234
Content provided by Dwayne Golden | SCPASCC, South Central PA Sickle Cell Council, and Dwayne Golden. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Dwayne Golden | SCPASCC, South Central PA Sickle Cell Council, and Dwayne Golden or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
  • Guest: Maria Mendoza, a parent and sickle cell disease advocate for her children and other families with SCD children.
  • Maria has 2 children with SCD (Luis, 11 years old, and Andrea, 7 years old) and 1 with SCT.
  • Maria stresses the importance of communicating with her children's teachers about their SCD condition and advocating for their needs.
  • Lack of privacy, understanding from teachers, and potential bullying from classmates can all contribute to the loss of dignity for the child with SCD.
  • Education and awareness are crucial to ensure that employers, educators, and healthcare professionals are knowledgeable about the disease and can provide necessary support.
  • Sickle cell disease affects individuals from various ethnicities and backgrounds.
  continue reading

18 episodes

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