Best Sicklecell Podcasts (2024)

1
The Marilyn Jackson Story 25:09

4d ago25:09

25:09

Host: Dwayne Golden Guest: Marilyn Jackson, grandmother, vegan chef, and sickle cell disease advocate Discussion on the prevalence of sickle cell disease globally and its limited awareness in the United States Marilyn’s experience after her grandson's sickle cell diagnosis, and the medical journey that followed The need for increased education and …

1
Tabatha McGee Means Business 39:23

24d ago39:23

39:23

On this episode of Cheat Codes, Dr. Z and Dr. C are joined by Tabatha McGee, Executive Director of the Sickle Cell Foundation of Georgia. Tabatha shares her remarkable journey from systems engineer to leading the foundation, driven by a personal mission to enhance the lives of sickle cell warriors. The discussion delves into innovative programs lik…

1
From Omaha to Global Health: Dr. Xu's Path in Hematology 48:16

2M ago48:16

48:16

On this episode, Dr. Z and Dr. C welcome Dr. Julia Xu, a rising star in the field of sickle cell disease. Dr. Xu shares her inspiring journey from Omaha, Nebraska, to her current role at the University of Pittsburgh. The discussion covers her extensive background in global health, her research on anemia in sickle cell disease, and the impactful men…

1
Empowering Lives: Dr. Simone Uwan’s Journey with Sickle Cell Disease 41:55

3M ago41:55

41:55

In this special “Lunch and Learn” session sponsored by the Agios Diversity Council, Dr. Simone Uwan shares her inspiring journey living with and advocating for sickle cell disease. Dr. Uwan discusses her background, achievements in medicine and advocacy, and her personal experiences with misdiagnosis and the challenges faced by sickle cell patients…

1
Janie Davis, Director of Patient Advocacy at Agios 14:29

4M ago14:29

14:29

Holly John, Agios’ Senior Director of Patient Advocacy, has a partner working with her on sickle cell disease patient advocacy! On this episode of Cheat Codes: A Sickle Cell Podcast, Dr. Z and Dr. C Janie Davis. Janie is the Director of Patient Advocacy at Agios Pharmaceuticals and is excited to work with the sickle cell community. SHOW DESCRIPTION…

1
The Importance of Community-Based Organizations for the SCD Community 45:48

5M ago45:48

45:48

Join Dr. Z and Dr. C as they host a live panel from Florida with key figures from various community-based organizations (CBOs) dedicated to supporting those affected by sickle cell disease. Panelists share insights on the vital roles CBOs play, their unique challenges, successes, and the importance of collaborations with healthcare providers, pharm…

1
Hope and Healing: Conquering Sickle Cell with BMT 28:41

6M ago28:41

28:41

Discover the incredible story of a young man and his bone marrow transplant experience. In this episode, we hear from a courageous young man and his supportive father as they recount their transformative journey through a bone marrow transplant that cured his sickle cell disease. Despite facing numerous obstacles and enduring many hardships, their …

1
The Warrior Poet: A Rising Star: Dr. Alex Glaros 27:44

6M ago27:44

27:44

On this episode of Cheat Codes: A Sickle Cell Podcast, we’re coming to you again from Detroit, Michigan. Here, the docs sit down with Dr. Alex Glaros. Dr. Glaros is a Pediatric Hematologist-Oncologist at Children’s Hospital of Michigan. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people…

1
Revving Up for Clinical Trial Awareness in the Motor City 46:54

7M ago46:54

46:54

On this episode of Cheat Codes: A Sickle Cell Podcast, we’re live in the Motor City: Detroit, Michigan. This live event featured Dr. Z and Dr. C interviewing a panel of esteemed guests including Davinna Christian, Dr. Alex Glaros and Clifton Kirkman, II discussing clinical trial awareness. We also hear from Dr. Wanda Whitten-Shurney at the end of t…

1
Women and Sickle Cell Disease 11:31

11M ago11:31

11:31

On this edition of Blood, Sweat and Cells: Real Talk About Sickle Cell Disease, We delve into the unique challenges women face when managing sickle cell disease, from menstrual issues to fertility concerns. Join us as we have a candid conversation with Dr. Sheinei Alan, an expert in sickle cell disease and its impact on women's health. Discover wha…

1
Sickle Cell Advocacy with Miss Teen Virginia, Ayana Johnson 32:09

11M ago32:09

32:09

On this episode of Cheat Codes: A Sickle Cell Podcast, we speak with Ayana Johnson. In addition to being a sickle cell warrior, Ayana is also Miss Teen Virginia ‘22, a teen ambassador of the SCDAA and founder of Ay’s Hope Cells. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are…

1
Replay: International Legends of Sickle Cell: Professor Clarisse Lobo & Dr. Kleber Fertrin 32:05

1y ago32:05

32:05

This episode of Cheat Codes is our first bilingual podcasting experience. In the first half of the episode, Dr. Z and Dr. C speak with Professor Clarisse Lobo and Dr. Kleber Fertrin in English about their experience with sickle cell in Brazil. In the second half, we hear from them in their native Portuguese language. SHOW DESCRIPTION Cheat Codes is…

1
Regina Hartfield of the SCDAA 29:24

1y ago29:24

29:24

hhttp://On this episode of Cheat Codes: A Sickle Cell Podcast, we speak with Regina Hartfield, CEO of the Sickle Cell Disease Association of America, Inc (SCDAA). SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strive…

1
Blood, Sweat and Cells: Understanding The Sickle Cell Trait 12:22

1y ago12:22

12:22

This sickle cell awareness month, the Heart of Gold Sickle Cell Foundation of Northern Virginia invites you to discover the significance of knowing your sickle cell status. Our guest, Dr. Sheinei Alan, sheds a light on understanding the distinction between sickle cell disease and the sickle cell trait. We'll explore family planning for couples who …

1
REPLAY: RISE UP for Sickle Cell Disease - A Warrior Panel 47:16

1y ago47:16

47:16

http://On this episode, Dr. Z and Dr. C talk to a panel of Sickle Cell warriors who were part of the RISE UP campaign. RISE UP is the name of Agios’ phase two and phase three clinical trial for Sickle Cell Disease. The campaign itself was directed by the warriors to help the community know about the trial, to help educate, to help answer any questi…

1
Strength and Resiliency: Parenting A Child with Sickle Cell Disease 16:48

1+ y ago16:48

16:48

In this heartfelt episode, join host Valerie Bey and her guest Dr. Clarence Pearson as they dive into a deeply moving conversation with a courageous father who opens up about his journey of raising a daughter with sickle cell disease. Through his candid storytelling, listeners gain valuable insights into the profound challenges and triumphs faced b…

1
Cayenne Wellness 36:34

1+ y ago36:34

36:34

On this episode, Dr. Z and Dr. C talk to Dr. Carolyn Rowley and Elle Colle about Cayenne Wellness. Their mission is to increase the quality of life for individuals diagnosed with sickle cell disease in California by ensuring expert, unbiased, and comprehensive care.” Learn more about Cayenne Wellness at https://cayennewellness.org SHOW DESCRIPTION …

1
Reproductive Health in Sickle Cell 23:17

1+ y ago23:17

23:17

On this episode, Dr. Z and Dr. C talk to “The Avengers” of Sickle Cell Disease aka Teonna Woolford, Cassandra Trimnell and Rae Blaylark about reproductive health in sickle cell disease. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each epis…

1
Juneteenth and World Sickle Cell Day 10:03

1+ y ago10:03

10:03

In this podcast we delve into the intersections of Juneteenth and World Sickle Cell Day in highlighting health disparities and promoting equity in our community. In addition, we'll take you on a fascinating audio tour of the high-tech and innovative Adult Sickle Cell Center at Inova Hospital, providing you with an exciting glimpse into the latest a…

1
International Legends of Sickle Cell: Professor Clarisse Lobo & Dr. Kleber Fertrin 32:05

1+ y ago32:05

32:05

This episode of Cheat Codes is our first bilingual podcasting experience. In the first half of the episode, Dr. Z and Dr. C speak with Professor Clarisse Lobo and Dr. Kleber Fertrin in English about their experience with sickle cell in Brazil. In the second half, we hear from them in their native Portuguese language. SHOW DESCRIPTION Cheat Codes is…

1
Maria Mendoza's Story 37:10

1+ y ago37:10

37:10

Guest: Maria Mendoza, a parent and sickle cell disease advocate for her children and other families with SCD children. Maria has 2 children with SCD (Luis, 11 years old, and Andrea, 7 years old) and 1 with SCT. Maria stresses the importance of communicating with her children's teachers about their SCD condition and advocating for their needs. Lack …

1
Hope & Destiny With Dr. Allan Platt 32:45

1+ y ago32:45

32:45

Allan Pratt is the author of "Hope and Destiny," a book about sickle cell disease that aims to educate patients, families, and clinicians about the disease. The book was inspired by a lack of services for sickle cell patients in 1985 and was started by a mother who wanted to get a clinic started at Grady Hospital. The lack of education about sickle…

1
Hope And Destiny With Dr. Lewis L. Hsu 35:13

1+ y ago35:13

35:13

Hope and Destiny is available at: https://www.amazon.com/ https://hpcinternationalinc.com/bookstore Lewis Hsu co-authored "Hope & Destiny" with Allan Platt Jr. and James Eckman. The book aims to provide comprehensive education about sickle cell disease and accurate information about treatment regimens, medications, and medical insights to help pati…

1
Rising Stars in Sickle Cell: Dr. Oladipo Cole 33:43

1+ y ago33:43

33:43

On this episode, Dr. Z and Dr. C talk shop with a rising star in sickle cell disease. Dr. Oladipo Cole is a fellow at Washington University in St. Louis, MO. He also has sickle cell disease. Here he talks about his journey from child living with sickle cell disease to physician working in the disease state. SHOW DESCRIPTION Cheat Codes is a podcast…

1
Destiny Van Sciver 37:44

1+ y ago37:44

37:44

Destiny Van Sciver is the author of "Sickle Cell Superheroes" and a mother of a child with Sickle Cell Disease. She wants her book to empower people with the disease to live a good quality life and be the superhero of their own story. After her child had a negative experience at school, she donated books to the school. Her book is available on Amaz…

1
Megan Lippert 36:12

1+ y ago36:12

36:12

Hilton Publishing Co. specializes in health-related content. They collaborated with doctors to publish their first book on Sickle Cell Disease called "Hope & Destiny." The company has since published several other books on Sickle Cell Disease. Their mission is to make these books available to patients through medical providers and hospitals. Intere…

1
Shyala Pelmon, Living Well With Sickle Cell 8:52

1+ y ago8:52

8:52

Synopsis: In this episode, host Dwayne Golden speaks with sickle cell warrior and advocate Shyala Pelmon about what it means to live well with sickle cell disease. Charlotte shares her perspective on the importance of taking care of oneself through regular doctor visits, medication, and self-care practices, while also accepting and being at peace w…

1
Legends of Sickle Cell - Dr. Obiageli Nnodu 37:19

1+ y ago37:19

37:19

Dr. Z and Dr. C welcome “Sickle Cell Legend” Dr. Obiageli Nnodu to the program. Dr. Nnodu is the Director of Centre For Sickle Cell Disease Research & Training at the (CESRTA) University of Abuja in Nigeria. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with …

1
Michelle Parr Story 9:58

1+ y ago9:58

9:58

Dwayne Golden interviews Sickle Cell Disease advocate and patient, Michelle Par Michelle shares her experiences growing up with Sickle Cell Disease and feeling different from her peers The difficulty of getting others to understand the severity of her pain and the importance of having a support system in place Michelle emphasizes the need to mainta…

1
Erica Whiterspoon Story 41:11

1+ y ago41:11

41:11

Erica Whitherspoon talks about her experience living with Sickle Cell on the SCD Stories podcast. Her parents didn't know much about the illness She was not able to do things like swimming in a cold pool and was always labeled as "the sick one." With the help of three supportive friends, she got through her teenage years. Erica feared being misjudg…

1
LIVE in New Orleans: A Red Cell Revolution 48:26

1+ y ago48:26

48:26

We're LIVE from New Orleans, Louisiana! Listen to our live podcast panel featuring members of the sickle cell, pyruvate kinase deficiency, and thalassemia communities and leading KOL's in each field. We are proud to introduce the Red Cell Revolution! The Red Cell Revolution is an Agios patient advocacy movement that is driven by a relentless desire…

1
Replay: Legends of Sickle Cell. The Momma Bears 1:01:46

2y ago1:01:46

1:01:46

On this episode, Dr. Z and Dr. C talk to some very important advocates in the Sickle Cell community: “The Momma Bears”. Yvonne Carroll, Adrienne Shapiro and Pat Corley. Later in the episode we hear from Teonna Woolford, CEO of the Sickle Cell Reproductive Health Organization. Originally aired September 6, 2022. SHOW DESCRIPTION Cheat Codes is a pod…

1
Getting to Know Doctors Ahmar Zaidi & Mike Callaghan 37:14

2y ago37:14

37:14

On this episode, we’re turning our attention to our hosts: Dr. Ahmar Zaidi and Dr. Mike Callaghan. We’ll get to know them a little better and learn about their journey into medicine and sickle cell disease. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with c…

1
Biba Tinga, Sickle Cell Disease Association of Canada 32:28

2y ago32:28

32:28

Dr. Z and Dr. C are back! On this episode they speak with Biba Tinga, President & Executive Director of the Sickle Cell Disease Association of Canada. They also discuss the care of her son Ismaël who was diagnosed with the rare disease. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segment…

1
A What Just Happened Episode of Cheat Codes with the Sickle Cell Consortium - Part 2 1:00:23

2y ago1:00:23

1:00:23

Sharonda Sikes of the Sickle Cell Consortium will provide a recap of The Sickle Cell Warriors Convention with guests Dr. Lametra Scott, Dr. Simone Uwan and Francine Baker. The Sickle Cell Warriors Convention is a national community gathering, created and organized entirely by sickle cell patients and caregivers. Each year the Convention is hosted b…

1
A What Just Happened Episode of Cheat Codes with the Sickle Cell Consortium 39:21

2y ago39:21

39:21

Sharonda Sikes of the Sickle Cell Consortium will provide a recap of The Sickle Cell Warriors Convention with guests Dr. Tomia Austin and Mia Robinson. The Sickle Cell Warriors Convention is a national community gathering, created and organized entirely by sickle cell patients and caregivers. Each year the Convention is hosted by a partnership of s…

1
Legends of Sickle Cell. The Momma Bears 1:01:46

2y ago1:01:46

1:01:46

On this episode, Dr. Z and Dr. C talk to some very important advocates in the Sickle Cell community: “The Momma Bears”. Yvonne Carroll, Adrienne Shapiro and Pat Corley. Later in the episode we hear from Teonna Woolford, CEO of the Sickle Cell Reproductive Health Organization. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community t…

1
Legends of Sickle Cell - Dr. Charles Jonassaint, Jude Jonassaint & Cassandra Trimnell 41:10

2+ y ago41:10

41:10

On this episode, Dr. Z and Dr. C speak with Cassandra Trimnell of Sickle Cell 101, Dr. Charles Jonassaint & Jude Jonassaint. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and …

1
Legends of Sickle Cell - Russell Ware, MD, PhD 44:18

2+ y ago44:18

44:18

On this episode, Dr. Z and Dr. C talk to Sickle Cell Legend Russell Ware, MD, PhD SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, an…

1
RISE UP for Sickle Cell Disease - A Warrior Panel 47:16

2+ y ago47:16

47:16

On this episode, Dr. Z and Dr. C talk to a panel of Sickle Cell warriors who were part of the RISE UP campaign. RISE UP is the name of Agios’ phase two and phase three clinical trial for Sickle Cell Disease. The campaign itself was directed by the warriors to help the community know about the trial, to help educate, to help answer any questions the…

1
Legends of Sickle Cell - Dr. Michael DeBaun & Shamonica Wiggins 1:00:13

2+ y ago1:00:13

1:00:13

On this episode, Dr. Z and Dr. C debut a series about the “Legends of Sickle Cell”. They interview Dr. Michael DeBaun and patient legend Shamonica Wiggins. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need t…

1
#48 - “Soaring to the Sky” How Patient Navigators are Changing Sickle Cell with Dr. Wally Smith 44:20

3y ago44:20

44:20

Dr. Z and Dr. C talk shop with Dr. Wally Smith on how Patient Navigators are changing sickle cell disease. Show Notes: Episode Sponsor: Novartis, For 40 years Novartis has been committed to helping individuals living with sickle cell disease. Through research, educational resources and access programs, we will continue our efforts to support patien…

1
#47 - “Reproductive Health in Sickle Cell” with Dr. Lydia Pecker 57:04

3y ago57:04

57:04

Dr. C and guest host Amy Board of BloodStream Media talk to Dr. Lydia Pecker about Reproductive Health in Sickle Cell. Hear Dr. Pecker’s thoughts on menstrual cycles with sickle cell, fertility, contraception and more on this important, little discussed topic. A must listen! Show Notes: Episode Sponsor: Novartis. For 40 years Novartis has been comm…

1
#46 - Fueled by Connections: Agios and the Sickle Cell Community with special guest host, Blaze Eppinger and guest Sarah Gheuens, Chief Medical Officer at Agios Pharmaceuticals. 22:16

3y ago22:16

22:16

With the goal of getting a better understanding of Agios and their vision for partnering with the sickle cell community and being “fueled by connections,” join us as guest host, with special guest host, and patient advocate Blaze Eppinger returns to the show for a discussion with Agios’ and guest Sarah Gheuens, Chief Medical Officer, at Agios Pharm…

1
#45 - “Man in the Arena” A Conversation with Dr. Mark T. Gladwin 48:02

3y ago48:02

48:02

Cheat Codes welcomes Dr. Mark T. Gladwin to talk about Pulmonary hypertension in sickle cell disease with Dr. Z and Dr. C. Show Notes: Episode Sponsor: Novartis. For 40 years Novartis has been committed to helping individuals living with sickle cell disease. Through research, educational resources and access programs, we will continue our efforts t…

1
In Remembrance of Hertz Nazaire 1:02:47

3y ago1:02:47

1:02:47

On October 29th, 2021, Hertz Nazaire, a prominent sickle cell warrior and prolific artist, passed away at age 48. In honor of Hertz, we’re re-airing Dr. Z’s interview with him for Cheat Codes, originally published in December of 2020. Show Notes: Homegoing Expenses for Hertz Sickle Cell Disease: a battle for equality, justice and respect | Ahmar Za…

1
#44 - Fueled by Connections: Agios and the Sickle Cell Community with special guest host, Blaze Eppinger and guests Darrin Miles, Agios Chief Commercial Officer and Agios Head of Patient Advocacy, Holly ... 28:28

3y ago28:28

28:28

With the goal of getting a better understanding of Agios and their vision for partnering with the sickle cell community, join us as guest host, Blaze Eppinger speaks with Darrin Miles, the Chief Commercial Officer and Holly John, the Head of Patient Advocacy both of Agios Pharmaceuticals. Show Notes: Guest Host Blaze Eppinger on Instagram Dr. Ahmar…

1
#43 - “Can Gene Therapy Live Long and Prosper?” A Conversation with Dr. Mitch Weiss and Dr. Vijay Sankaran 51:57

3y ago51:57

51:57

Dr. Z and Dr. C chop it up with two of the foremost experts (Mitch and Vijay) on the science of gene therapy in sickle cell disease. Show Notes: Episode Sponsor: Novartis, For 40 years Novartis has been committed to helping individuals living with sickle cell disease. Through research, educational resources and access programs, we will continue our…

1
#42 - Pediatric to Adult Care - Transitioning with Sickle Cell Disease w/ Dr. Nirmish Shah 43:05

3y ago43:05

43:05

Dr. Nirmish Shah, the Director of Duke University’s sickle cell transition program, joins Cheat Codes to discuss the numerous challenges associated with helping patients with sickle cell disease successfully transition from pediatric to adult care. Show Notes: Episode Sponsor: Novartis, For 40 years Novartis has been committed to helping individual…

1
#41 - Sickle Cell in Jamaica and Around the World w/ Graham Serjeant 42:14

3y ago42:14

42:14

Graham Serjeant, a British-born medical researcher best known for his multi-decade study of sickle cell disease in Jamaica, joins Cheat Codes to share stories and learnings from across his storied career. Show Notes: Episode Sponsor: Novartis, For 40 years Novartis has been committed to helping individuals living with sickle cell disease. Through r…

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Sicklecell Podcasts

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