Best Sicklecell Podcasts (2024)

1
PB PERS SickleCell Dr. Monica Walker EVERGREEN 33:14

27d ago33:14

33:14

Talked with Dr. Monica Walker, T. Leroy Jefferson Medical Society. As part of their community education/outreach Dr. Walker talked about mentoring students, collaberation with other medical professionals, serving underserverd populations, what she does as a Family Medicine Practioner. Primary care docs look at the entire person and get a complete h…

1
PB PERS Indian River Lagoon Science Festival24 31:45

7h ago31:45

31:45

Talked with Jasmine Fox, Smithsonian Marine Station in Ft. Pierce. They are one of the exhibitors at this year's Indian River Lagoon Science Festival. The festival is happening on Saturday October 26th from 10a to 3p and is free. There is free parking in the downtown Ft. Pierce Parking Gararge with a free shuttle service to the festival. They have …

1
PB PERS Kravis 24-25 Season 33:29

1d ago33:29

33:29

Talked with Phala and Oscar about the upcoming season at the Kravis Center. They have "something for everyone" this year. Lots of family fare, peak series shows, adults at leisure program, lunch and learn series, the writers academy with Julie Gilbert. Their Kravis on Broadway series includes: Mrs. Doubtfire, The Cher Show, Cleveland Union Depot, P…

1
PB PERS DR. K INFECTIOUS DISEASE EVERGREEN 32:59

6d ago32:59

32:59

Talked with Dr. Kiminyo, Vice President, T Leroy Jefferson Medical Society. As part of their community education/outreach program, he discussed what infectious disease doctors do. They treat a variety of diseases including urinary tract infections, covid, RSV, flu, west nile virus, monkey pox, shingles, etc. There are various treatments, vaccines f…

1
From Omaha to Global Health: Dr. Xu's Path in Hematology 48:16

9d ago48:16

48:16

On this episode, Dr. Z and Dr. C welcome Dr. Julia Xu, a rising star in the field of sickle cell disease. Dr. Xu shares her inspiring journey from Omaha, Nebraska, to her current role at the University of Pittsburgh. The discussion covers her extensive background in global health, her research on anemia in sickle cell disease, and the impactful men…

1
PB PERS West Gate Community Farm 32:12

18d ago32:12

32:12

Talked with Jetson and Adoni from Westgate Community Farm. "Westgate Community Farm is an urban education and production farm in the Westgate Neighborhood of West Palm Beach that offers neighbors fresh produce, education programs, and a lush green space." They were created with the CRA to address the food desert in the neighborhood. They have works…

1
PB PERS Clinics Can Help 31:33

1M ago31:33

31:33

Talked with Owen O'Neil, Chief Executive Officer and Jon Levy, Board Chair, from Clinics Can Help. "Clinics Can Help connects people to safe, low-cost medical equipment in a supportive circle of care. Our model of organized recycling advances health equity by ensuring every child and adult can access the supplies they need for healthy recovery, pro…

1
PB PERS Boca Helping Hands 31:58

1M ago31:58

31:58

Talked with Greg Hazle, Executive Director of Boca Helping Hands. They started as a soup kitchen in 1998. Now, Boca Helping Hands has become one of the largest nonprofit service providers in South Florida. They offer a variety of programs including Pantry Bag, Job Training, Volunteer Opportunities, Hot Meals, Financial Resources, Healthcare, and bu…

1
Empowering Lives: Dr. Simone Uwan’s Journey with Sickle Cell Disease 41:55

1M ago41:55

41:55

In this special “Lunch and Learn” session sponsored by the Agios Diversity Council, Dr. Simone Uwan shares her inspiring journey living with and advocating for sickle cell disease. Dr. Uwan discusses her background, achievements in medicine and advocacy, and her personal experiences with misdiagnosis and the challenges faced by sickle cell patients…

1
PB PERS DynamicDuoPT TLJ EVERGREEN 31:49

2M ago31:49

31:49

Talked with Angie Mason, DPT, OTR/L and Tyre Patterson, DPT from Dynamic Duo PT. They are members of the T Leroy Jefferson Medical Society and do educational outreach for them. We discussed what Phyical Therapy and Occupational Therapy disciplines do and some of the reasons folks may go to see a PT or OT. Some of which are sports injuries, hip/knee…

1
PB PERS Armory Art Center 30:54

2M ago30:54

30:54

Talked with Jill Brown, Chief Executive Officer and Abby Mathews, Education Director at Armory Art Center. The West Palm Beach Armory Art Center is a historic site in West Palm Beach, Florida, United States. It is located at 1703 South Lake Avenue. "The mission of the Armory Art Center is to inspire the creation and experience of art. The Armory’s …

1
PB PERS Recovery Hub of Palm Beach County 31:43

2M ago31:43

31:43

Talked with Dr. Anita Coocoves, Exec. Dir. and Michah Robbins, Dir. of Operations, Recovery HUB of Palm Beach County. The Recovery HUB's mission is to empower, connect and advocate for individuals and families in all stages of recoery. And their vision is to provide a safe space where people with substance use and related disorders will be met with…

1
PB PERS Cultural Council of Palm Beaches 30:20

2M ago30:20

30:20

Talked with David Lawrence, President and CEO, Cultural Council for Palm Beach County. David explained that the Cultural Council started back in 1978 and is like a chamber of commerce for the arts. They support and uplift professional artists and organizations in Palm Beach County. The council is located in Lake Worth Beach. They feature rotating e…

1
PB PERS St Lucie Events 30:28

3M ago30:28

30:28

Talked with Erick Gill, Director of Communications Division. They have a wide variety of programs for residents and listeners to participate in: Fenn Center 2nd annual PetCo Love Mega Adoption event, the Area Regional Transit expanded the ART on Demand services, they also have a new ride share app Free Bee. Lots of events happening at the pools. Fr…

1
PB PERS TLeroy Jefferson Medical Society 29:51

3M ago29:51

29:51

Talked with Dr. Kitonga Kiminyo, VP and Dr. FLora Bentsi-Enchill from the T. Leroy Jefferson Medical Society. They are gearing up to host their 23rd Annual Community Health Fair on July 27th from 9am to 2pm at the Max M. Fisher Boys & Girls Club in Riviera Beach, Florida. Their health fair is Free and open to everyone. They will provide children's …

1
Janie Davis, Director of Patient Advocacy at Agios 14:29

3M ago14:29

14:29

Holly John, Agios’ Senior Director of Patient Advocacy, has a partner working with her on sickle cell disease patient advocacy! On this episode of Cheat Codes: A Sickle Cell Podcast, Dr. Z and Dr. C Janie Davis. Janie is the Director of Patient Advocacy at Agios Pharmaceuticals and is excited to work with the sickle cell community. SHOW DESCRIPTION…

1
PB PERS PB Shakespeare Festival 28:42

3M ago28:42

28:42

Talked with Trent Stevens, Artistic Director and Elizabeth Dashiell from Palm Beach Shakespeare Festival (PBSF). This year PBSF and Palm Beach County Parks and Recreation are presenting FREE Shakespeare by the Sea XXXIV production of King Lear July 11-14 and 18-21. Presented by Gary and Katherine Parr the Production will happen at the Seabreeze Amp…

1
The Importance of Community-Based Organizations for the SCD Community 45:48

4M ago45:48

45:48

Join Dr. Z and Dr. C as they host a live panel from Florida with key figures from various community-based organizations (CBOs) dedicated to supporting those affected by sickle cell disease. Panelists share insights on the vital roles CBOs play, their unique challenges, successes, and the importance of collaborations with healthcare providers, pharm…

1
PB PERS Hibiscus Childrens Center 27:56

4M ago27:56

27:56

Talked with Rey Navarro, Chief Operating Officer and Susan Murphy, Clinical Services Director from Hibiscus Children's Center. Hibiscus Center has been serving children since 1985. They provide safe nights of care to abused children and teens. They offer a wide variety of programs and mental health services. They offer programs in these areas: Resi…

1
PB PERS Compass Stonewall Ball Pride 28:47

4M ago28:47

28:47

Talked with Michael Riordan, COO and Lety Gonzalez, Marketing Coordinator for Compass in Lake Worth. Compass Center has been "providing life-saving services to the residents of Palm Beach County and South Florida for 35 years. Their mission is to engage, empower and enrich the lives of lesbian, gay, bisexual, transgender and queer (LGBTQ) people an…

1
PB PERS Jupiter Tequesta Repeater Group 28:01

4M ago28:01

28:01

Talked with Burt Moresch, President, Field Day Coordinator and Laurence Grayhills, DMD from Jupiter Tequesta Repeater Group (JTRG). "JTRG is an ARRL-affiliated, Special Service Club and incorporated as a 501(c)(3) non-profit organization that’s committed to the promotion of Amateur Radio and providing community assistance and goodwill.With just ove…

1
PB PERS Spady Musuem Juneteenth 27:10

4M ago27:10

27:10

Talked with Edward Stinson, Museum Docent and Tracy Ann Simmonds, Museum Assistant from the Spady Cultural Heritage Museum in Delray Beach. The museum is located in the former home of Solomon D. Spady. Spady museum is a non-profit that "expands and preserves our cultural heritage, sharing local black history with Delray Beach Black archive, exhibit…

1
Hope and Healing: Conquering Sickle Cell with BMT 28:41

4M ago28:41

28:41

Discover the incredible story of a young man and his bone marrow transplant experience. In this episode, we hear from a courageous young man and his supportive father as they recount their transformative journey through a bone marrow transplant that cured his sickle cell disease. Despite facing numerous obstacles and enduring many hardships, their …

1
PB PERS Alpert Jewish Family Services 28:54

5M ago28:54

28:54

Talked with Courtney Marx, Director of Mental Health First Aid program at Alpert Jewish Family Services. Alpert JFS mission is to strengthen the entire community by empowering folks through the delivery of comprehensive human services. They have a wide variety of mental health services for all ages, mentoring, food delivery, elder care, elder plann…

1
The Warrior Poet: A Rising Star: Dr. Alex Glaros 27:44

5M ago27:44

27:44

On this episode of Cheat Codes: A Sickle Cell Podcast, we’re coming to you again from Detroit, Michigan. Here, the docs sit down with Dr. Alex Glaros. Dr. Glaros is a Pediatric Hematologist-Oncologist at Children’s Hospital of Michigan. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people…

1
PB PERS Norton Summer Programs 26:54

5M ago26:54

26:54

Talked with Jodi Sypher and Quincy Bruckerhoff from the Norton Museum of Art. Starting this weekend, Palm Beach County residents get free admission every Saturday until the end of the Summer. They have a great line up of programs including: Tai Chi on the Lawn, Drum Circles, Mindfulness moment practice with a piece of art and adult sketch classes. …

1
PB PERS Navy Seal Museum 27:37

5M ago27:37

27:37

Talked with CDR SEAL (Ret) Grant Mann, Executive Director Navy SEAL Museum in Ft. Pierce, Florida. Their mission is to "preserve the history and heritage of the U.S. Navy SEALS, honor our fallen and care for our families." The museum's vision "provides and educational environment for a diverse audiene of all ages via a world-class museum combining …

1
PB PERS Arts Garage Events 28:02

5M ago28:02

28:02

Talked with Marjorie Waldo, President and CEO, Arts Garage. Their mission is to "deliver innovative, diverse, meaningful and accessbile visual and performing arts experiences to Delray Beach and South Florida." Arts Garage offers Music, Visual Arts, Arts Education, Comedy, Theatre and opportunities to volunteer. Arts Garage had open mic nights for …

1
PB PERS PBC Youth Services Mental Health and PBC Parks Get Your Green On 29:06

6M ago29:06

29:06

Talked with Brittany Grimshaw Houghtlin, MS, Palm Beach County Youth Services and Oshane Lawrence, Palm Beach County Parks "Get Your Green On" about May's Mental Health and Trauma Informed Care awareness. Youth Services provides free therapy/counseling for children up to 22 years old. There are multiple locations in Palm Beach County, including a r…

1
PB PERS Mental Health America of the Palm Beaches 28:04

6M ago28:04

28:04

Talked with Andy McAusland, CEO and Jennifer Sellars, Chief Programs Officer, Mental Health America of the Palm Beaches. MHAPB, mission is to create a supportive community where all people can flourish. They offer programs including Clubhouses where members build skills, relationship and increase their confidence. At Peer Place Well Being Center th…

1
Revving Up for Clinical Trial Awareness in the Motor City 46:54

6M ago46:54

46:54

On this episode of Cheat Codes: A Sickle Cell Podcast, we’re live in the Motor City: Detroit, Michigan. This live event featured Dr. Z and Dr. C interviewing a panel of esteemed guests including Davinna Christian, Dr. Alex Glaros and Clifton Kirkman, II discussing clinical trial awareness. We also hear from Dr. Wanda Whitten-Shurney at the end of t…

1
PB PERS P.O.S.T. Fundraiser 29:36

6M ago29:36

29:36

Talked with Barbara Abernathy, CEO, Pediatric Oncology Support Team (P.O.S.T.). They have been providing support for families with children who are receiving cancer treatment for twenty-six years. "POST provides counseling services, case management, financial crisis stabilization, support groups, hospital visits, educational planning, services for …

1
PB PERS PBC Parks EarthDay 29:07

6M ago29:07

29:07

Talked with Emilie Travis, Okeeheelee Nature Center (ONC) and Alissa Koch, Daggerwing Nature Center about upcoming Earth Day events and programs they offer. Okeeheelee is having their Earth Day celebration on Saturday April 20th from 10am to 3pm. They are starting the day off with several walks. 10am Guided Bird Walk, ONC & Audobon Everglades, 10:3…

1
PB PERS Oxbow Eco Center 27:44

6M ago27:44

27:44

Talked with Lauren Jenkins, Environmental Education Coordinator and Tessa Roberts, Senior Environmental Community Outreach Coordinator, Volunteer Coordinator from Oxbow Eco Center. They are getting celebrating Earth Month and getting ready for their 20th St. Lucie Earth Day Festival. Admission is free and they have multiple locations for parking wi…

1
PB PERS Palm Beach Dramaworks 27:51

7M ago27:51

27:51

Talked with Bill Hayes, Producing Artistic Director of Palm Beach Dramaworks. "Palm Beach Dramaworks is a professional nonprofit theatre company that engages, entertains and educates audiences with provocative and timeless productions that personally impact each individual." Their Dramasworkshop is a lab for encouraging developing new plays and ass…

1
PB PERS Quantum House 28:04

7M ago28:04

28:04

Talked with Greg Quattlebaum, CEO, Quantum House. Their mission: "Quantum House is a caring and supportive home that lessens the burden for families whose children are receiving treatment in Palm Beach County for a serious medical condition." And for the month of March, Quantum House has teamed up with Jersey Mike's restaurants in Palm Beach County…

1
PB PERS Flagler Museum 27:06

7M ago27:06

27:06

Talked with Campbell Mobley, Curator, Flagler Museum and Elizabeth Dashiell about the Flagler Museum. The mission of the Henry Morrison Flagler Museum is to preserve and interpret Whitehall, Henry Flagler’s legacy, and America’s Gilded Age, in ways that inspire every generation to perpetuate and emulate the traditions and values that have made Amer…

1
PB PERS St Lucie County March Events 28:07

7M ago28:07

28:07

Talked with Erick Gill, Director Communications Division St. Lucie County Florida. They have a wide variety programs for residents and visitors to enjoy. These are available at the Fenn Center • Monday, March 11 @ 9 a.m. – Heart Health Walk • Monday, March 11 @ 9 a.m. – Open Recreation - Pickleball & Basketball • Monday, March 11 @ noon & 6 p.m. – …

1
PB PERS Mandel Library Herstory Month 28:08

8M ago28:08

28:08

Talked with Antoinette Giamalva, Library Supervisor, Adult Services, Mandel Public Library of West Palm Beach. Mandel is offering a wide variety of programs for the community during Women's "Herstory" month. Listeners can enjoy Women of Opera on Friday March 8th from 12:30-1:30pm, JASNA Presents Jane Austen and Being a Female Writer in Her TIme on …

1
PB PERS Boating Beach Bash 27:44

8M ago27:44

27:44

Talked with Lowell Van Vechten, Co-Founder and Michael Broday, volunteer working at the marina for the free boat rides, Boating and Beach Bash for People with Disabilities. "It's their 15th Annual Boating & Beach Bash for People with Disabilities – the nation’s largest, free, one-day event for people with disabilities, both seen and unseen – will a…

1
PB PERS Lake Worth Street Painting Festival 27:12

8M ago27:12

27:12

Talked with Jen Scott and Elizabeth Dashiell about the upcoming 30th Annual Lake Worth Streeet Festival. It's put on by the City of Lake Worth for community engagement. Artists sign up ahead of time and get approved by going to https://spf.lakeworthbeachfl.gov/. This year it's on February 24th and 25th . Over 600 artists use the pavement as their c…

1
PB PERS African American Film Festival Rinker Playhouse 29:47

8M ago29:47

29:47

Talked with Dana Munson, Marketing Dir., Kravis Center and Elizabeth Dashiell about the upcoming 18th African American Film Festival that happening at the Rinker Playhouse from February 15-18. The whole 6 show series is $70 (a savings of $30). The theme this year is Inventing Beauty, curated by Terri Francis and all films have a panel discussion fo…

1
PB PERS FAU Harbor Branch Aquaculture Workshops 26:51

9M ago26:51

26:51

Talked with Laura Issac Norton from Florida Atlantic University Harbor Branch Oceanographic Institute. FAU Harbor Branch has a wide variety of programs for the community including their newest addition, a life size humpback whale that listeners can actually walk inside and check out the inner workings. On Friday and Saturday they have the "Discover…

1
PB PERS Norton Museum 27:04

9M ago27:04

27:04

Talked with Scott Simmons, Public Relations Manager, Norton Museum of Art. The Norton has a wonderful variety of programs/exhibitions running now. Artists in Motion (Impressionist and Modern Masterpieces) is running now through February 18th. And Presence (the photography collection of Judy Glickman Lauder) is on view through March 10th. Coming up …

1
Women and Sickle Cell Disease 11:31

10M ago11:31

11:31

On this edition of Blood, Sweat and Cells: Real Talk About Sickle Cell Disease, We delve into the unique challenges women face when managing sickle cell disease, from menstrual issues to fertility concerns. Join us as we have a candid conversation with Dr. Sheinei Alan, an expert in sickle cell disease and its impact on women's health. Discover wha…

1
Sickle Cell Advocacy with Miss Teen Virginia, Ayana Johnson 32:09

10M ago32:09

32:09

On this episode of Cheat Codes: A Sickle Cell Podcast, we speak with Ayana Johnson. In addition to being a sickle cell warrior, Ayana is also Miss Teen Virginia ‘22, a teen ambassador of the SCDAA and founder of Ay’s Hope Cells. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are…

1
PB PERS Mounts Botanical Origami Sun 1-14-24 29:08

10M ago29:08

29:08

Talked with Misty Stoller, Assoc. Director of Marketing & Communications, Mounts Botanical Gardens and Kevin Box, Artist for Origami in the Garden. "Mounts Botanical Garden is Palm Beach County’s oldest and largest botanical garden. With a mission to inspire and educate through nature and a history spanning more than 40 years, Mounts Botanical is h…

1
PB PERS Cultural Roundup Sunday 12-24-23 28:51

10M ago28:51

28:51

Talked with Elizabeth Dashiell, Elizabeth@dashiellcommunications.com about all the holiday/new year events around Palm Beach and the Treasure coast including: Kravis Center, upcoming shows, Mounts Botanical - origami in the garden, LakeWorth Playhouse, Maltz Jupiter Theatre, The Flagler Museum and their exhibitions, The Wick, Armory Art Center, Lig…

1
PB PERS Lights 4 Hope Sunday 12-10-23 27:56

10M ago27:56

27:56

Talked with Meghan Buser, Community Relations & Event Planning Consultant for Lights4Hope. "Lights 4 Hope, Inc. is a 501(c)3 non-profit organization created to help bring happiness and hope to families in need.Their mission is to spread joy and to help local families whose child is suffering from terminal illness or from a life changing physical ch…

1
PB PERS Childrens Foundation of PBC 29:46

11M ago29:46

29:46

Talked with Pamela Weinthrop, Executive Director, Barbara Steller, Board Member and Linda Schaps, Board Member, Children's Founation of Palm Beach County. The Children's Foundation's mission is to identify and fund projects at charities in Palm Beach County to aid "at-risk" children and their families. They have worked with over 30 charities to hel…

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