Brain Health & The Frustration Of Getting A Diagnosis Experiences In Caregiving podcast

59:06

In this episode we discuss how caregivers can ‘prepare themselves’ for the more advanced phases of their caregiving journey, how to communicate next steps with family and support systems, and how to take care of yourself throughout this process. We also discuss how to make talking about next steps and “the end” more comfortable and less taboo. For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/…

Experiences in Caregiving

1
Exercise, Movement & Caregiving 55:03

1 year ago55:03

55:03

In this episode, we discuss the importance of exercise and movement for our loved ones. We explore how to motivate them to exercise, various types of activities and exercises to try, and equally important, the significance of movement and exercise for the caregivers themselves. For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/…

Experiences in Caregiving

1
Having the Difficult Discussions about Caregiving 1:06:58

1 year ago1:06:58

1:06:58

This month we discuss how we approach the difficult discussions of caregiving (i.e. Power of Attorney (POA) considerations, live-saving measures, care facility, in-home care etc) with our elderly loved ones, our families, and others on our care team. Sometimes these conversations are meant with anger, sadness, suspicion, or an outright refusal to have the discussion all together. We discuss ways to break through and put a care plan in place to hopefully avoid chaos later. For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/…

Experiences in Caregiving

1
How to be an Ally 1:09:36

2 years ago1:09:36

1:09:36

In this episode we discuss the complex nature of relationships between caregivers and those around them who may or may not also be grieving. We discuss communication styles, how best to support a caregiver, and how caregivers can compensate when their allies can’t or won’t support them. For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/…

Experiences in Caregiving

1
The Impact of Caregiving on the Black Community - Part 2 52:18

2 years ago52:18

52:18

With the overwhelming response to our “ The Impact of Caregiving on the Black Community ” episode, we’ve come back with a part 2 to further discuss the challenges of caregiving in the African American/Black community, the racial disparities in care for loved ones, support for caregivers, and access to resources. For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/…

Experiences in Caregiving

1
Special Episode - The Longest Day 2023 42:02

2 years ago42:02

42:02

In our newest episode we are celebrating Alzheimer’s & Brain Awareness Month so we are talking all things brain health, the Alzheimer’s Association’s “The Longest Day” fundraising initiatives, and how “The Longest Day” impacts our caregiving community. For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/…

Experiences in Caregiving

1
Brain Health & The Frustration of Getting a Diagnosis 56:08

2 years ago56:08

56:08

This month we discuss the upcoming “era of treatment” in relation to brain health and the frustration caregivers feel when trying to get a diagnosis, in particular the correct diagnosis, so that they can make plans and get out in front of dementia with treatments, medications, etc. We also discuss ways caregivers can approach primary doctors and neurologists in hopes of getting heard and getting the info they need. For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/…

Experiences in Caregiving

1
The Impact of Caregiving on the Black Community - Part 1 55:29

2 years ago55:29

55:29

This month we are discussing the impact of caregiving on the African American/Black community, the racial disparities in care for loved ones, support for caregivers, and access to resources. In addition, we will discuss the unique challenges the Black community is navigating and potential ways to overcome them. For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/ Related Links: Jessica Guthrie: Instagram @CareerCaregivingCollide Andrea Krystal: Instagram @itsandreakrystal | Website: https://www.andreakrystal.com/ Ty Lewis: Instagram and Tik Tok @iamgertrude | Website: https://www.incaseiforgetconsulting.com/ Jacquelyn Revere: Instagram and TikTok @momofmymom | Website: https://momofmymom.com/…

Experiences in Caregiving

1
All About Support Groups 53:19

2 years ago53:19

53:19

In this episode we’re talking about why caregivers need support groups, their benefits, what made us finally say yes to this type of support, and how to overcome some of the obstacles to support. For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/…

Experiences in Caregiving

1
Holiday Time Caregiving 57:02

2 years ago57:02

57:02

This month we tackle the holiday time blues, mainly how to handle our grief and how to set boundaries and expectations with family and friends during the holidays. For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/…

Experiences in Caregiving

1
Resources for Caregivers 54:35

2 years ago54:35

54:35

In honor of National Family Caregivers Month, we are bringing awareness to resources in our caregiving community. In this episode we talk about three organizations / projects / communities that are doing amazing work to help caregivers on their journeys. We discuss what resources they provide and how our listeners can access these much needed resources. A lot of our feedback from listeners is that they didn’t even know our resource and others existed so we will continue to highlight organizations, projects, and communities that are doing great work in this space. Cheers to all the caregivers out there! For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/ Links: Care Virtue - Built for Family Caregivers Comfort Homesake - Caregiver, Non Profit, Long Term Care Hope Loves Company Sarah Trott’s Caregiver Community Aidaly - Aidaly helps you get paid to be a caregiver for family…

Experiences in Caregiving

1
Lewy Body Dementia 1:10:40

2 years ago1:10:40

1:10:40

October is Lewy Body Dementia Awareness month so we are talking all things Lewy Body - what it is, how it differs from other more common forms of dementia, how caregivers approach Lewy Body in light of those differences, and potential resources and support for caregivers struggling with how to manage Lewy Body. For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/…

Experiences in Caregiving

1
New Relationships & Moving On While Caregiving 1:02:27

3 years ago1:02:27

1:02:27

In this episode we discuss the somewhat taboo topic of caregivers who decide to go into a new relationship while caring for their spouse. We work our way through this delicate subject by exploring the potential feelings that a caregiver goes through. We also explore how these feelings can affect their families and society as a whole. For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/…

Experiences in Caregiving

1
Bridging the Gap between Caregiving & Research 49:32

3 years ago49:32

49:32

In this month's episode we are discussing the potential overlaps between caregiving and science/research, ways that caregivers can utilize research/scientific advancements now or in the recent future to help them on their caregiving journey, and the major takeaways from this year's Alzheimer's Association's International Conference which happened earlier this month. For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/…

Experiences in Caregiving

1
Complicated Relationships and Caregiving 1:09:43

3 years ago1:09:43