What Now? Survivor-ship Post Transplant

The Straight and Marrow

#Fitness #Ming - Bone Marrow Transplant nursing specialists

22:49

Jonathan Jones is an NFL cornerback for the Washington Commanders who rose from the undrafted ranks to become two-time Super Bowl champion with the New England Patriots, a businessman, philanthropist, and licensed pilot. In 2019, Jonathan founded the Jonathan Jones Next Step Foundation in 2019, a platform dedicated to empowering youth through education, professional development, and mentorship. The foundation works to alleviate food insecurity, promote women in stem and sports, and to promote professional development in the communities where he lives. Jay and Jonathan talk about investing in the communities they live in, acknowledging the people who helped you become the person you are, and paying that same investment forward to the next generation. Episode Chapters 0:00 intro 1:24 Building local connections 4:25 Jonathan’s mentors and mentees 10:54 Jonathan’s pride in his mentees’ successes 13:04 how Jonathan chooses his causes 14:08 Jonathan’s support for girls and young women 17:19: Jonathan’s passion for flying 19:40 The Next Step Foundation 20:29 Goodbye For video episodes, watch on www.youtube.com/@therudermanfamilyfoundation Stay in touch: X: @JayRuderman | @RudermanFdn LinkedIn: Jay Ruderman | Ruderman Family Foundation Instagram: All About Change Podcast | Ruderman Family Foundation To learn more about the podcast, visit https://allaboutchangepodcast.com/ Looking for more insights into the world of activism? Be sure to check out Jay’s brand new book, Find Your Fight , in which Jay teaches the next generation of activists and advocates how to step up and bring about lasting change. You can find Find Your Fight wherever you buy your books, and you can learn more about it at www.jayruderman.com .…

3 years ago 29:42

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Bianca Cirone is a Bone Marrow Transplant Nurse Practitioner at the Alfred Hospital in Melbourne. Bianca talks with Yvonne and Alex about survivorship and management of the late effects of transplantation - from hormones to sexual health to secondary cancers.

33 episodes

What Now? Survivor-ship Post Transplant

The Straight and Marrow

published 3 years ago

MP3•Episode home

33 episodes

#Fitness #Ming - Bone Marrow Transplant nursing specialists

All episodes

1
CRS, Neurotoxicity & More: Understanding CAR T Side effects 25:26

12 days ago25:26

25:26

CAR T-cell therapy is revolutionising cancer treatment, but it comes with unique side effects that every patient and caregiver should understand. In this episode, Dr Hamish Scott joins Alex and Hannah to break down the most common side effects, including cytokine release syndrome (CRS) and neurological toxicities, explaining how they present, how they’re monitored, and what can be done to manage them. Whether you're a patient, caregiver, or healthcare professional, this episode offers crucial insights into the challenges—and hope—of life after CAR T. Episode Notes CARTOX - Apps on Google Play CARTOX on the App Store…

1
Bioengineering CAR T: From Bench to Bedside 27:41

22 days ago27:41

27:41

Have you ever wondered how CAR T Cells are made? Join us for a look behind the curtain of CAR T manufacturing with esteemed scientist Associate Professor Dominic Wall, an acknowledged expert in the field and Chief Scientific Officer of Cell Therapies Pty Ltd.

1
CarT Cell Collections: From the Centrifuge, across the Ocean and Back 21:12

10 weeks ago21:12

21:12

Shae Disney - an expert Apheresis nurse - talks to Hannah and Alex about what to expect when your cells are being collected, from vein assessments to buffy coat and citrate toxicity as she maps out the journey of the cells from collection to infusion.

1
Harnessing Immunity: The CAR T Story 26:48

13 weeks ago26:48

26:48

Harnessing Immunity: The CAR T Story is your guide to one of the most ground breaking cancer treatments of our time. This podcast season unpacks how CAR-T therapy is revolutionizing immunotherapy, giving T-cells the power to seek and destroy cancer like never before. From the science behind it to real patient experiences, expert insights, and the latest research; Hannah, Alex and Yvonne break down what you need to know about this cutting-edge treatment. Whether you're a patient, caregiver, or just curious about the future of medicine, join us as we explore the science, challenges, and hope behind CAR T. Join Professor Simon Harrison as he kicks off this new season of the Straight and Marrow with an in depth explanation of what this new therapy actually is.…

1
More than Skin Deep: Discussing Cutaneous Graft vs Host Disease 29:19

14 weeks ago29:19

29:19

When it comes to skin/cutaneous GVHD, it takes more than thick skin to face the challenges. In this episode, we uncover the layers of this condition—its causes, treatments, and the impact on daily life. With insights from medical experts with a wealth of experience, we peel back the complexities to help you navigate life with skin GVHD, one step at a time.…

1
Catch Your Breath: Pulmonary Graft Versus Host Disease Explained 27:06

17 weeks ago27:06

27:06

In this episode, we take a deep dive into pulmonary graft-versus-host disease (GVHD), a complex and potentially life-altering complication of Allogeneic Stem Cell Transplantation. Discover how GVHD impacts the lungs, leading to symptoms like chronic cough, breathlessness, and reduced lung function. Featuring expert interviews with pulmonologists and transplant specialists, we explore the latest diagnostic tools, treatment strategies, and coping mechanisms to improve quality of life.…

1
Beneath the Surface: Understanding Vaginal GVHD 20:09

22 weeks ago20:09

20:09

Join us as we explore the intimate and often overlooked topic of vaginal graft-versus-host disease (GVHD). This episode delves into the physical, emotional, and medical challenges faced by individuals experiencing this condition after a stem cell transplant. With insights from Dr Jennifer Bradford (Gynaecologist), we’ll discuss the symptoms, treatment options, and strategies for improving quality of life. Whether you're a patient, caregiver, or healthcare provider, this conversation sheds light on a critical aspect of GVHD that deserves more attention and understanding.…

1
Stephanie Lee on Chronic Graft vs Host Disease “It Takes a Village” 18:36

25 weeks ago18:36

18:36

Join us for an insightful episode as we welcome Professor Stephanie Lee, a leading expert in chronic graft-versus-host disease (GVHD). With years of experience as a researcher and clinician, Dr. Lee sheds light on the challenges and breakthroughs in managing chronic GVHD, a complex condition affecting many organs. Stephanie provides an overview on chronic GVHD, the latest treatment advancements, and practical strategies for improving quality of life. Whether you’re a patient, caregiver, or healthcare professional, this episode provides valuable knowledge and hope. Don’t miss this opportunity to learn from one of the field’s most knowledgeable voices…

1
Getting Back to the Daily Grind 31:28

1 year ago31:28

31:28

The decision and planning about when and how to return to work or study after an allogeneic BMT can be really stressful. Sometimes you really want to get back into it but you wonder what to tell your employer and colleagues. Then there's the decision about how many hours a day you can manage and how to juggle work, study, medical appointments and how you are feeling physically and emotionally. In this podcast episode Jacinta shares her transplant experience and personal insights into returning to work after her BMT including some excellent advice on your rights and responsibilities.…

1
Head, Shoulders, Knees & Toes 36:13

1 year ago36:13

36:13

Be Alert- Not Alarmed. In this episode, Yvonne and Alex talk you through a head to toe chronic Graft vs Host Disease Self Assessment. From prayer pose to fingernails to the digestive system we walk you through possible signs of GvHD and when to escalate to your transplant team. https://www.semanticscholar.org/paper/How-I-conduct-a-comprehensive-chronic-disease-Carpenter/ad3ab95cc54e7156fa840b6a89d0453783482c18/figure/3…

1
Meet Josh and Hazel : How a mother and son navigated their way through a bone marrow transplant 30:17

1 year ago30:17

30:17

Josh and his mum Hazel talk with the Straight and Marrow team about Josh’s bone marrow transplant for lymphoma. They discuss tips, hope, count recovery and post transplant complications to help other people no matter what their role is. From the tricky and rewarding patient and carer relationship to the differences between a CAR T transplant and an allogeneic stem cell transplant, Josh and Hazel discuss it all…

1
Navigating Diet, Nutrition, and Bone Marrow Transplants 28:14

2 years ago28:14

28:14

We go straight to the expert on what to eat and why post transplant. Danika Carty, an experienced haematology dietician, dispels the myths of a neutropenic diet and shares strategies on how to manage taste changes, high protein diets and food supplementation.

1
To Day 100 and Beyond - Part Two 21:45

2 years ago21:45

21:45

Our most popular guest returns to discuss the nuts and bolts of the post transplant course after discharge from hospital. Dr Ashvind Prabahran talks about CMV/EBV, GVHD –every acronym in BMT including the risk of infections and medication management.

1
To Day 100 and Beyond - Part One 19:10

2 years ago19:10

19:10

1
One Step Forward 29:01

2 years ago29:01

29:01

Dr Shaza Abo talks to the Straight and Marrow team to discuss the benefits of exercise pre, during and post AlloBMT. From ensuring safety to recommended guidelines, Shaza has a wealth of knowledge, resources and experience as a clinical and research physiotherapist.

The Straight and Marrow

1
Arrow - The Bone Marrow Transplant Foundation 5:08

2 years ago5:08

5:08

Richelle and Chris from Arrow the Bone Marrow Transplant Foundation join the Straight and Marrow team to discuss what the charity offers, from financial support, information booklets to scholarships for healthcare professionals – they are here to support all people affected by bone marrow transplants https://arrow.org.au/…

The Straight and Marrow

1
Tricky Concepts; HLA Matching, Chimerisms and DLI 33:36

2 years ago33:36

33:36

Why aren’t all siblings a match for transplant? What do we mean by double organ transplant? How does the unrelated donor search work? What does this have to do with online dating? What happens if my chimerism is mixed? What is a donor lymphocyte infusion…. We take these questions to the head of transplant at Royal Melbourne Hospital and Peter MacCallum Cancer Centre to help us understand these tricky concepts.…

The Straight and Marrow

1
From Cannabis to Supplements – A Guide to Complementary Therapies 25:12

2 years ago25:12

25:12

Ever been asked or wanted to ask a question about alternative medicine? Gail Rowan is a senior pharmacist at Peter MacCallum Cancer Centre, she talks to the Straight and Marrow team about complementary therapies and their place in cancer treatment, provides tips on how to evaluate the evidence and where to go if you have questions. The language is confusing - we break it down and we delve into the history of apricot kernels and the alkaline diet in cancer therapy. Recommended Links: https://www.mskcc.org/cancer-care/diagnosis-treatment/symptom-management/integrative-medicine/herbs https://www.cancer.gov/about-cancer/treatment/cam#:~:text=Complementary%20and%20alternative%20medicine%20includes,chi%2C%20and%20drinking%20green%20tea.&text=Integrative%20medicine%20is%20an%20approach,to%20be%20safe%20and%20effective. Edited with thanks by Dave Machine…

The Straight and Marrow

1
It’s All In Your Head: “Brain Fog”, “Chemo Brain” and Cognitive Dysfunction post cancer diagnosis 26:59

2 years ago26:59

26:59

Dr Priscilla Gates (Post Doctoral researcher) talks to the Straight and Marrow team about a challenging symptom that most people will tackle throughout their diagnosis and journey. We discuss potential causes, the impacts and what to do about it. Recommended Links: https://www.cancer.org.au/cancer-information/cancer-side-effects/changes-in-thinking-and-memory https://insighttimer.com/en-au https://www.brainhq.com/?utm_source=google&utm_medium=cpc&utm_campaign=brand&utm_content=46467711%2B327060831330&utm_term=brainhq&gad=1&gclid=EAIaIQobChMIvMzIjcHa_gIVxZlmAh1xhg0ZEAAYASAAEgIjgPD_BwE&v4=true&fr=y Home - Arrow Bone Marrow Transplant Foundation Edited with thanks by Dave Machine…

The Straight and Marrow

1
Turning It On – A frank discussion about sex and intimacy post treatment 33:06

2 years ago33:06

33:06

Simone Sheridan, a sexual health nurse consultant at the Austin Hospital in Melbourne talks to the Straight and Marrow team about a wide spectrum of ideas, questions, concerns and strategies in regards to sex and intimacy post or during treatment. Recommended Links: Call 1800 RESPECT or visit the website https://www.1800respect.org.au/ https://playyum.com/ Home - Arrow Bone Marrow Transplant Foundation https://www.cancer.org.au/cancer-information/cancer-side-effects/sexuality-and-intimacy https://bettymartin.org/how-to-play-the-3-minute-game/ Edited with thanks by Dave Machine…

The Straight and Marrow

1
Fevers, Fungus and Fear of Infection 26:07

3 years ago26:07

26:07

Dr Michelle Yong, an infectious diseases expert, answers all of our questions about infectious diseases in bone marrow transplant patients. We discuss neutrophils, cytomegalovirus, preventative measures and discuss what is the real 'f' word in transplantation.

The Straight and Marrow

1
How I survived acute leukaemia and a bone marrow transplant - Kate's Story 31:50

3 years ago31:50

31:50

In this episode, Alex and Ming talk with one of their patients Kate. Kate was diagnosed with AML in 2020 and she shares with us candidly what her experience was like; from ICU admissions to struggling with graft versus host disease and balancing her recovery with family life - Kate's frank and open insight into her illness and recovery is inspiring to hear.…

The Straight and Marrow

1
Graft vs Host Disease - A Balancing Act 28:12

3 years ago28:12

28:12

Dr Ray Koo, a haematologist specialising in allogeneic bone marrow transplants, joins Alex & Yvonne to discuss Graft vs Host Disease. From understanding the paradox of graft versus host disease and graft versus tumour effect,through to general treatment guidelines and take home messages.

The Straight and Marrow

1
What Now? Survivor-ship Post Transplant 29:42

3 years ago29:42

29:42

The Straight and Marrow

1
Young People & a Cancer Diagnosis 34:50

3 years ago34:50

34:50

Have you ever wondered what it is like to be a young person having a bone marrow transplant or dealing with a cancer diagnosis? Kate Thompson is the program manager of ONTrac at Peter Mac Victorian Adolescent & Young Adult Cancer Service. In this episode she talks about the broader aspects of care for young people with cancer from changing family dynamics, how to talk to your parents and to how to get a job or go to uni post transplant.…

The Straight and Marrow

1
Mind Games - Mental Well being Post Transplant 31:45

4 years ago31:45

31:45

Dr Brindha Pillay is a clinical psychologist at Peter MacCallum Cancer Centre and Royal Melbourne Hospital. She is particularly interested in providing therapeutic interventions to patients and their families as they navigate the cancer experience, from diagnosis through to treatment and rehabilitation. In this episode she talks with Alex and Yvonne about a broad range of topics from management techniques through to relationship troubles and the fear of relapse…

The Straight and Marrow

1
How do I Take All These Tablets? 22:42

4 years ago22:42

22:42

Mr Shevon Fernando works as a senior haematology pharmacist at the Alfred Hospital in Melbourne. In this episode Shevon talks with Alex about all things medication management and allograft – from the purposes behind the medications that we use, nausea management and how to manage the sheer volume of tablets.…

The Straight and Marrow

1
Donating Stem Cells and the Gift of Life 29:45

4 years ago29:45

29:45

Aaron Hill is an apheresis clinical nurse specialist at the VCCC service with a 20 year background in Haematology, Bone Marrow Transplant and Apheresis. Aaron talks with the team about the process of donating stem cells and the incredible role of the donor.

The Straight and Marrow

1
The Risks of a Bone Marrow Transplant 27:44

4 years ago27:44

27:44

Professor David Ritchie and Ming discuss a frequently asked question from patients “what are my chances”. In this episode we look at factors that impact decision making in transplantation and what patients can expect throughout different stages of their transplant – from a pre-transplant work up to mucositis and engraftment.…

The Straight and Marrow

1
The Nuts and Bolts of a Bone Marrow Transplant 21:20

4 years ago21:20