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Not just a ‘royal disease’: Hemophilia’s devastating past to recent advances
Manage episode 469755077 series 3312054
Hemophilia is a rare bleeding disorder caused by a deficiency in clotting factors in the blood, which can cause permanent damage to joints and, in some cases, life threatening bleeding, both externally and internally. Today, people with hemophilia can live generally long, healthy lives, but in previous generations, the future wasn’t so bright. In fact, less than a century ago the life expectancy for someone with hemophilia hovered around just 10 years. It doesn’t receive much attention, and when it does, what you hear might not be all that accurate. In today’s episode, we cover the history of hemophilia and the science behind treatments over the decades, including the devastating impact of the HIV/AIDS epidemic on hemophilia patients. We’ll also clear up several misconceptions, including one that seems to show up a lot in popular culture: that hemophilia is a "royal disease.”
Send us your science facts, news, or other stories for a chance to be featured on an upcoming Tiny Show and Tell Us bonus episode. And, while you're at it, subscribe to our newsletter!
Links to the Tiny Show and Tell stories are here and here. All Tiny Matters transcripts and references are available here.
See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
122 episodes
Manage episode 469755077 series 3312054
Hemophilia is a rare bleeding disorder caused by a deficiency in clotting factors in the blood, which can cause permanent damage to joints and, in some cases, life threatening bleeding, both externally and internally. Today, people with hemophilia can live generally long, healthy lives, but in previous generations, the future wasn’t so bright. In fact, less than a century ago the life expectancy for someone with hemophilia hovered around just 10 years. It doesn’t receive much attention, and when it does, what you hear might not be all that accurate. In today’s episode, we cover the history of hemophilia and the science behind treatments over the decades, including the devastating impact of the HIV/AIDS epidemic on hemophilia patients. We’ll also clear up several misconceptions, including one that seems to show up a lot in popular culture: that hemophilia is a "royal disease.”
Send us your science facts, news, or other stories for a chance to be featured on an upcoming Tiny Show and Tell Us bonus episode. And, while you're at it, subscribe to our newsletter!
Links to the Tiny Show and Tell stories are here and here. All Tiny Matters transcripts and references are available here.
See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
122 episodes
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