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TAPS (Twin Anemia Polycythemia Sequence). What is it and why it really matters when pregnant with twins with Stephanie Ernst

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Manage episode 402062288 series 2301213
Content provided by Natalie Diaz. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Natalie Diaz or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

In this episode, we unravel the mysteries surrounding Twin Anemia Polycythemia Sequence (TAPS) alongside Stephanie Ernst, a dedicated twin mom whose journey propelled her to advocate for awareness and support for families affected by this rare condition.

Stephanie's personal narrative, fueled by her experience with identical twin daughters born with TAPS, serves as the driving force behind her mission to shed light on this often overlooked aspect of twin pregnancies. Stephanie underscores the vital role of researchers and advocates in amplifying awareness and understanding of TAPS. From founding the TAPS Support Facebook group to establishing a dedicated foundation for research funding, Stephanie's efforts have cultivated a supportive community where families can find solace, resources, and empowerment.

For more information:

https://www.tapssupport.com/

https://stephanieernst.nl/advocacy/

Subscribe to the Twiniversity Email Newsletter!

Expecting twins? Twiniversity has you COVERED with online classes on:

  • Breastfeeding Twins
  • Twins After Singletons
  • Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing)

Click here to sign up for a class!

Follow us on:

  continue reading

203 episodes

Artwork
iconShare
 
Manage episode 402062288 series 2301213
Content provided by Natalie Diaz. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Natalie Diaz or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

In this episode, we unravel the mysteries surrounding Twin Anemia Polycythemia Sequence (TAPS) alongside Stephanie Ernst, a dedicated twin mom whose journey propelled her to advocate for awareness and support for families affected by this rare condition.

Stephanie's personal narrative, fueled by her experience with identical twin daughters born with TAPS, serves as the driving force behind her mission to shed light on this often overlooked aspect of twin pregnancies. Stephanie underscores the vital role of researchers and advocates in amplifying awareness and understanding of TAPS. From founding the TAPS Support Facebook group to establishing a dedicated foundation for research funding, Stephanie's efforts have cultivated a supportive community where families can find solace, resources, and empowerment.

For more information:

https://www.tapssupport.com/

https://stephanieernst.nl/advocacy/

Subscribe to the Twiniversity Email Newsletter!

Expecting twins? Twiniversity has you COVERED with online classes on:

  • Breastfeeding Twins
  • Twins After Singletons
  • Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing)

Click here to sign up for a class!

Follow us on:

  continue reading

203 episodes

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