38. Sarah Land - founder of the Peeps H.I.E. Charity
Manage episode 424658330 series 2981270
Today I’m talking to Sarah Land, another wonderful person who is using her own lived experience to help others.
Until a short time ago, I hadn’t heard about Sarah, who is the founder of the Peeps H.I.E. Charity.
Now I seem to be hearing about her everywhere I go. Such is the nature of networking. And, very rewarding in the context of my strong belief that these inspirational stories need a much wider audience!
Thank you, Rachel Crook, (Episode 34) for introducing me to Sarah and to everyone driving positive change for young families.
Lemon lightbulbs 🍋💡🍋
- Sarah Land’s lived experience made her HIGHLY qualified to set up the Peeps H.I.E charity
- HIE - Hypoxic Ischemic Encephalopathy- what is it?
- Lived experience needs to be properly valued
- Healthcare professionals and parents need to work TOGETHER (the new professional panel will build on the successful parent panel
- Peer support is very important
- Each family’s experience is different - care needs to be personalised
- Some parents will be desperate to go home after a stay in neonatal unit; others will be terrified
- Going home with a new baby is tough at the test of times
- Parents can contact the charity when the time is right for them
- We need to ensure good work that relies strongly on individuals is sustainable
- Networking is strong – there are strong links to our Whose Shoes #FICare project
- The power of Twitter! Connect and join forces with other people with similar passions
- Getting the balance right - Family Integrated Care is the goal but make sure there is always proper support
- Prepare for going home, feeling empowered rather than under pressure
- Think differently – focus on improving lives rather than just measuring 'bed days' and financial outcomes
- Whose Shoes thinking - bring in more humanity!
- People need to feel free to laugh and enjoy life, even when things are difficult
- Listen to people and see them as individuals
- Let’s raise awareness of H.I.E!
Links and resources
Find out more about: Peeps H.I.E charity
Episode 13: Yvonne Newbold MBE – founder of Newbold Hope
Episode 34: Rachel Crook: caring for little ones, as a mum and a nurse!
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Chapters
1. 38. Sarah Land - founder of the Peeps H.I.E. Charity (00:00:00)
2. Sarah Land is the founder of the Peeps HIE charity (00:00:46)
3. How it all started – Heidi’s story (00:01:50)
4. Hearing from other parents really helped (00:05:23)
5. Who is ‘qualified’ to set up a charity? (00:08:10)
6. Desperate to go home – or scared to go home? (00:08:52)
7. Parents can contact the charity when the time is right for them (00:09:28)
8. Going home with a new baby is tough at the test of times (00:10:51)
9. Everyone’s experience is different (00:12:28)
10. Connecting and joining forces with other people helps (00:12:29)
11. Good stuff. Passionate stuff. How to make it sustainable? (00:13:28)
12. The connections are really growing. Strong links to our #FICare project (00:15:54)
13. Peeps HIE - new professional panel, in addition to the existing parent panel (00:17:49)
14. The power of Twitter! (00:20:35)
15. Whose Shoes work around services for children and families (00:21:55)
16. … and Family Integrated Care (00:22:41)
17. Getting the balance right - Family Integrated Care but making sure there is always proper support (00:24:06)
18. Each family is different – personalised care is so important (00:25:02)
19. Going home – with as much confidence and support as possible (00:25:31)
20. Thinking differently – improving lives rather than just measuring bed days and financial outcomes (00:26:36)
21. Whose Shoes thinking - bringing in more humanity (00:27:10)
22. Being able to laugh and enjoy life, even when things are difficult (00:28:12)
23. HIE - Hypoxic Ischemic Encephalopathy- what is it? (00:29:22)
24. Sarah’s top tips – listen to people and see them as individuals (00:30:01)
25. Please help Sarah raise awareness! (00:31:56)
58 episodes