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The Economic Burden of Rare Disease
Manage episode 286000315 series 2655724
Content provided by Patient Worthy. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Patient Worthy or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
This week, we speak with Annie Kennedy from the EveryLife Foundation about their groundbreaking study examining the economic burden of rare disease. We're joined by Marissa Penrod from Team Joseph, a Duchenne muscular dystrophy nonprofit to discuss how these numbers assist in rare disease advocacy. Read the full study here: www.everylifefoundation.org/burden-study
Learn more about the EveryLife Foundation for Rare Diseases here: www.everylifefoundation.org
Learn more about Team Joseph here: www.teamjoseph.org
70 episodes
Share
Manage episode 286000315 series 2655724
Content provided by Patient Worthy. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Patient Worthy or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
This week, we speak with Annie Kennedy from the EveryLife Foundation about their groundbreaking study examining the economic burden of rare disease. We're joined by Marissa Penrod from Team Joseph, a Duchenne muscular dystrophy nonprofit to discuss how these numbers assist in rare disease advocacy. Read the full study here: www.everylifefoundation.org/burden-study
Learn more about the EveryLife Foundation for Rare Diseases here: www.everylifefoundation.org
Learn more about Team Joseph here: www.teamjoseph.org
70 episodes
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Similar to Wait, How Do You Spell That? A Rare Disease Podcast
PT Inquest is an online journal club. Hosted by Jason Tuori, Megan Graham, and Chris Juneau, the show looks at an article every week and discusses how it applies to current physical therapy practice.
…
continue reading
Introducing the BODi® Partner Podcast, the official podcast channel devoted exclusively to BODi Partners. From archives of the BODi Wake-Up Call, I Am BODi stories, and What I Know Now success tips from seasoned Partners, this podcast is your one-stop source for personal development, business training and peer-to-peer inspiration. Ready to explode your business? Tune in regularly to our official podcast and join the ranks of those transforming their lives and the lives of others!
…
continue reading
Brilliant solutions to the world’s problems. We meet people with ideas to make the world a better place and investigate whether they work.
…
continue reading
I Tyngre Radio snackas det om styrketräning. Punkt. Värdar är Alex Danielsson och Andreas Guiance.
…
continue reading
Move more of your body more often and in more interesting ways with the Get-Fit Guy! If you want to begin an exercise routine and don't know where to start, or if you've been working out for a while and aren't getting the results you want, Kevin Don will give you the tips you need to reach your fitness and movement goals. Get expert information on the latest fitness trends and advice on everything from toning your arms to running a 5K or simply building more movement into your day. With his ...
…
continue reading
Learn the Spartan mindset. Founder & CEO of Spartan Race and NY Times best-selling author, travels the globe seeking and answers authors, academics, athletes, adventurers, entrepreneurs, CEOs and thought leaders. It will shift your thinking, make you laugh and and give you the tools you need. He’s on a mission to find the secrets to success in all aspects of life. Not only does Joe interview epic people, he has brought together an amazing panel to break down and analyze every aspect of these ...
…
continue reading
Starting Strength is the bestselling book on the most fundamental and effective approach to strength training ever written. Mark Rippetoe hosts Starting Strength Radio where he discusses topics of interest, primarily to him, but perhaps also to you.
…
continue reading
Most of us have gotten at least a little emotional at some point recently. It’s natural. But why do we have emotions and how much should we pay attention to them on any given day? Can we learn to skillfully choose which emotions to listen to and which ones to just let move on by? In More Than A Feeling, the latest podcast from Ten Percent Happier, host Saleem Reshamwala goes on a real life quest to find the answers to these questions. He’ll experiment with neuroscientists, dive into stories ...
…
continue reading
Revolution Health Radio debunks mainstream myths on nutrition and health and delivers cutting-edge, yet practical information on how to prevent and reverse disease naturally. This show is brought to you by Chris Kresser, health detective and creator of chriskresser.com.
…
continue reading
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continue reading
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