A Fathers Search For a Cure - Rare Genetic Disease - Casey Mcpherson

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2y ago 44:18

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Casey Mcpherson is a Musician and Artist on a mission to find a cure for his daughter Rose. Rose is a 6-year-old girl who was born with a rare genetic disease. Faced with a grim prognosis, Casey set out on a path to find a cure for his daughter by starting a lab a building a team to find a cure.

You can learn more about Rose here at the To Cure a Rose Foundation. To connect with Casey, you can find him on Linkedin here. https://www.linkedin.com/in/caseymcpherson/

Episode Notes:
1. What is the story of Casey and Rose.
2. The problem with rare genetic disease funding.
3. Running a genetic disease research company.
4. The moment of diagnosis. Facing denial. Grieving. Finding Purpose.
5. What is Rose like.
6. The problems of finding a cure for rare genetic diseases.
7. How does gene therapy work?
8. What Casey has learned in this process.

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