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A Fathers Search For a Cure - Rare Genetic Disease - Casey Mcpherson

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Manage episode 347706867 series 2327329
Content provided by Rami Wehbi and DO. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Rami Wehbi and DO or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

To join our private health community. Check out https://www.beyondmedicinegroup.com/

Casey Mcpherson is a Musician and Artist on a mission to find a cure for his daughter Rose. Rose is a 6-year-old girl who was born with a rare genetic disease. Faced with a grim prognosis, Casey set out on a path to find a cure for his daughter by starting a lab a building a team to find a cure.

You can learn more about Rose here at the To Cure a Rose Foundation. To connect with Casey, you can find him on Linkedin here. https://www.linkedin.com/in/caseymcpherson/

Episode Notes:
1. What is the story of Casey and Rose.
2. The problem with rare genetic disease funding.
3. Running a genetic disease research company.
4. The moment of diagnosis. Facing denial. Grieving. Finding Purpose.
5. What is Rose like.
6. The problems of finding a cure for rare genetic diseases.
7. How does gene therapy work?
8. What Casey has learned in this process.

  continue reading

80 episodes

Artwork
iconShare
 
Manage episode 347706867 series 2327329
Content provided by Rami Wehbi and DO. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Rami Wehbi and DO or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

To join our private health community. Check out https://www.beyondmedicinegroup.com/

Casey Mcpherson is a Musician and Artist on a mission to find a cure for his daughter Rose. Rose is a 6-year-old girl who was born with a rare genetic disease. Faced with a grim prognosis, Casey set out on a path to find a cure for his daughter by starting a lab a building a team to find a cure.

You can learn more about Rose here at the To Cure a Rose Foundation. To connect with Casey, you can find him on Linkedin here. https://www.linkedin.com/in/caseymcpherson/

Episode Notes:
1. What is the story of Casey and Rose.
2. The problem with rare genetic disease funding.
3. Running a genetic disease research company.
4. The moment of diagnosis. Facing denial. Grieving. Finding Purpose.
5. What is Rose like.
6. The problems of finding a cure for rare genetic diseases.
7. How does gene therapy work?
8. What Casey has learned in this process.

  continue reading

80 episodes

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