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The Intersection of Motherhood and Chronic Illness, Feat. aHUS Patient Advocate Taylor Coffman

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Manage episode 396331247 series 2655724
Content provided by Patient Worthy. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Patient Worthy or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

On this episode of the podcast, we discuss atypical hemolytic-uremic syndrome, also known as aHUS -- a rare disorder characterized by low levels of blood platelets and blood clotting in the small blood vessels of the body. We're joined by Taylor Coffman, whose diagnosis with aHUS during pregnancy inspired her to work as a patient advocate helping those with life-changing diagnoses to process their new reality. Topics Discussed: adapting to a new chronic illness, the intersection of disability and motherhood, learning to be a patient and more.

Connect With Taylor

Rare Disease Girl Substack
Instagram
TikTok

Editor’s Note: Chronic conditions and rare diseases don’t discriminate. Patient Worthy and its partners are interested in amplifying the voices of those from all identities and backgrounds. If you have an aHUS journey to share or want to connect with others about chronic illness, reach out here to learn more about how your voice can help spread awareness and inspire individuals from all walks of life.

  continue reading

70 episodes

Artwork
iconShare
 
Manage episode 396331247 series 2655724
Content provided by Patient Worthy. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Patient Worthy or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

On this episode of the podcast, we discuss atypical hemolytic-uremic syndrome, also known as aHUS -- a rare disorder characterized by low levels of blood platelets and blood clotting in the small blood vessels of the body. We're joined by Taylor Coffman, whose diagnosis with aHUS during pregnancy inspired her to work as a patient advocate helping those with life-changing diagnoses to process their new reality. Topics Discussed: adapting to a new chronic illness, the intersection of disability and motherhood, learning to be a patient and more.

Connect With Taylor

Rare Disease Girl Substack
Instagram
TikTok

Editor’s Note: Chronic conditions and rare diseases don’t discriminate. Patient Worthy and its partners are interested in amplifying the voices of those from all identities and backgrounds. If you have an aHUS journey to share or want to connect with others about chronic illness, reach out here to learn more about how your voice can help spread awareness and inspire individuals from all walks of life.

  continue reading

70 episodes

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