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Sparking conversations, sharing real life issues, events, topics as well as achievements.
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SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about pyruvate kinase deficiency (PK Deficiency) and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PKD. Each episode, Just Listen: Voices of PK Deficiency strives to provide listeners with critical education, the latest scientific updates, and voices from the PKD community. Learn more about PKD by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency’s on Fac ...
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Cheat Codes: A Sickle Cell Podcast, is led by expert hosts Dr. Ahmar Zaidi and Dr. Mike Callaghan from the Comprehensive Sickle Cell Center at the Children's Hospital of Michigan, and produced by BloodStream Media. Each episode of Cheat Codes: A Sickle Cell Podcast brings listeners a series of segments packed with critical education and research information that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Cheat Co ...
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Worldmusicnight 2021 La puoi ascoltare sulle radio che aderiscono al circuito e su Itunes podcast Worldmusicnight sound designer by Miki Dj un viaggio appassionante alla scoperta della musica lounge più glamour del momento. World Music Night vi accompagnerà alla scopertà della musica lounge prodotto da Digital Media Video.com È un viaggio appassionante di un’ora alla scoperta della musica lounge più glamour del momento con brani di musica lounge, chillout, ethno beat acid jazz e ambiente, po ...
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Life Science Today is your source for stories, insights, and trends across the life science industry. Expect weekly highlights about new technologies, pharmaceutical mergers and acquisitions, news about the moves of venture capital and private equity, and how the stock market responds to biotech IPOs. Life Science Today also explores trends around clinical research, including the evolving patterns that determine how drugs and therapies are developed and approved. It’s news, with a dash of pe ...
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Join us for in-depth conversations with product leaders that are focused on creating great digital products for their customers. We empower leaders that want to produce useful products and make lives easier. In each episode, we discover which tactics digital product leaders use to help the end user. Product Leaders Podcast is a podcast by Fireart, hosted by Dima Venglinski and Tolik Nguyen.
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Janie Davis, Director of Patient Advocacy at Agios
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14:29
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Holly John, Agios’ Senior Director of Patient Advocacy, has a partner working with her on sickle cell disease patient advocacy! On this episode of Cheat Codes: A Sickle Cell Podcast, Dr. Z and Dr. C Janie Davis. Janie is the Director of Patient Advocacy at Agios Pharmaceuticals and is excited to work with the sickle cell community. SHOW DESCRIPTION…
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The Importance of Community-Based Organizations for the SCD Community
45:48
45:48
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Join Dr. Z and Dr. C as they host a live panel from Florida with key figures from various community-based organizations (CBOs) dedicated to supporting those affected by sickle cell disease. Panelists share insights on the vital roles CBOs play, their unique challenges, successes, and the importance of collaborations with healthcare providers, pharm…
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On this episode, Dr. Rachael Grace talks with the King family. Jennifer and Jerry King have been raising William and Lily. Both have pyruvate kinase deficiency and we discuss how they’ve managed the disease with their two children.. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficiency and is intended f…
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The Warrior Poet: A Rising Star: Dr. Alex Glaros
27:44
27:44
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On this episode of Cheat Codes: A Sickle Cell Podcast, we’re coming to you again from Detroit, Michigan. Here, the docs sit down with Dr. Alex Glaros. Dr. Glaros is a Pediatric Hematologist-Oncologist at Children’s Hospital of Michigan. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people…
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Raising & Being a Teen with PK Deficiency
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32:47
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On this episode, Dr. Rachael Grace talks with Jessica Kellar and her teenage son Travis. They discuss Travis’ diagnosis, actively involving him in his own care and how to navigate life as a teenager with pyruvate kinase deficiency. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficiency and is intended fo…
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Revving Up for Clinical Trial Awareness in the Motor City
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46:54
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On this episode of Cheat Codes: A Sickle Cell Podcast, we’re live in the Motor City: Detroit, Michigan. This live event featured Dr. Z and Dr. C interviewing a panel of esteemed guests including Davinna Christian, Dr. Alex Glaros and Clifton Kirkman, II discussing clinical trial awareness. We also hear from Dr. Wanda Whitten-Shurney at the end of t…
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What does it mean when a parent has pyruvate kinase deficiency? On today’s episode we welcome back Nathan Thompson, a father with PK Deficiency. He has two daughters. He’s joined today by his daughter Zoe. Here, we learn about parenting with PKD and all of the challenges associated with it. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a…
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Sickle Cell Advocacy with Miss Teen Virginia, Ayana Johnson
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32:09
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On this episode of Cheat Codes: A Sickle Cell Podcast, we speak with Ayana Johnson. In addition to being a sickle cell warrior, Ayana is also Miss Teen Virginia ‘22, a teen ambassador of the SCDAA and founder of Ay’s Hope Cells. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are…
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On this episode, Dr. Rachael Grace is in conversation with Carl Lander, Chair of the Steering Committee for the Peak Registry and International Collaboration Director of Thrive with Pyruvate Kinase Deficiency. Here they discuss the latest with the Peak Registry. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinas…
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On this episode, Dr. Rachael Grace is in conversation with Claire Egan, Senior Genetic Counselor with InformedDNA, to talk all about genetics. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted b…
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Replay: International Legends of Sickle Cell: Professor Clarisse Lobo & Dr. Kleber Fertrin
32:05
32:05
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32:05
This episode of Cheat Codes is our first bilingual podcasting experience. In the first half of the episode, Dr. Z and Dr. C speak with Professor Clarisse Lobo and Dr. Kleber Fertrin in English about their experience with sickle cell in Brazil. In the second half, we hear from them in their native Portuguese language. SHOW DESCRIPTION Cheat Codes is…
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REPLAY: MythBusters Part 1 - Pyruvate Kinase Deficiency Edition
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24:40
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Dr. Rachael Grace returns with patient advocate (and PK Deficiency TikTok influencer) Karla Chichester. On this episode, Dr. Grace and Karla dispel some of the biggest myths surrounding Pyruvate Kinase Deficiency. Originally aired on September 29, 2022. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficie…
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hhttp://On this episode of Cheat Codes: A Sickle Cell Podcast, we speak with Regina Hartfield, CEO of the Sickle Cell Disease Association of America, Inc (SCDAA). SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strive…
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REPLAY: RISE UP for Sickle Cell Disease - A Warrior Panel
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47:16
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http://On this episode, Dr. Z and Dr. C talk to a panel of Sickle Cell warriors who were part of the RISE UP campaign. RISE UP is the name of Agios’ phase two and phase three clinical trial for Sickle Cell Disease. The campaign itself was directed by the warriors to help the community know about the trial, to help educate, to help answer any questi…
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On this episode, Dr. Rachael Grace is in conversation with Dr. Sujit Sheth about iron overload. You’ll learn about iron overload and why it occurs in pyruvate kinase deficiency, explain the potential complications as well as the importance of managing and monitoring iron overload. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast a…
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On this episode, Dr. Z and Dr. C talk to Dr. Carolyn Rowley and Elle Colle about Cayenne Wellness. Their mission is to increase the quality of life for individuals diagnosed with sickle cell disease in California by ensuring expert, unbiased, and comprehensive care.” Learn more about Cayenne Wellness at https://cayennewellness.org SHOW DESCRIPTION …
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Our guest today is Dolores Dumas. Dolores is a 73-year-old living with PK deficiency, and was diagnosed as a teen with nonspherocytic hemolytic anemia. During a visit with a new hematologist, she received a definitive diagnosis of PK deficiency. Dolores feels grateful that she finally has a name for her condition. SHOW DESCRIPTION Just Listen: Voic…
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On this episode, Dr. Z and Dr. C talk to “The Avengers” of Sickle Cell Disease aka Teonna Woolford, Cassandra Trimnell and Rae Blaylark about reproductive health in sickle cell disease. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each epis…
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What does it mean when a parent has pyruvate kinase deficiency? On today’s episode we welcome back Nathan Thompson, a father with PK Deficiency. He has two daughters. He’s joined today by his daughter Zoe. Here, we learn about parenting with PKD and all of the challenges associated with it. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a…
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On today’s episode, we travel to New Orleans for a discussion about aging with pyruvate kinase deficiency (PKD) with returning guests Jill Welle and Tamara Schryver. Janie Davis, Associate Director Patient Advocacy at Agios Pharmaceuticals, leads the conversation. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kin…
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International Legends of Sickle Cell: Professor Clarisse Lobo & Dr. Kleber Fertrin
32:05
32:05
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32:05
This episode of Cheat Codes is our first bilingual podcasting experience. In the first half of the episode, Dr. Z and Dr. C speak with Professor Clarisse Lobo and Dr. Kleber Fertrin in English about their experience with sickle cell in Brazil. In the second half, we hear from them in their native Portuguese language. SHOW DESCRIPTION Cheat Codes is…
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REPLAY: Pyruvate Kinase Deficiency Foundation
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27:17
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On this episode, we interview Alejandra Watson and Laura Miller D'Angelo of Pyruvate Kinase Deficiency Foundation. We learn more about the organization as well as Alejandra’s experience as a caregiver for a child with PKD as well as Laura’s experience living with PKD. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about pyruvate…
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Product Leaders Should be Good People Managers with Jean McCabe, Chief Innovation Officer and Chief Product Officer at Agio
36:58
36:58
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A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Tolik is joined by Jean McCabe, Chief Innovation Officer and Chief Product Officer …
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Rising Stars in Sickle Cell: Dr. Oladipo Cole
33:43
33:43
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On this episode, Dr. Z and Dr. C talk shop with a rising star in sickle cell disease. Dr. Oladipo Cole is a fellow at Washington University in St. Louis, MO. He also has sickle cell disease. Here he talks about his journey from child living with sickle cell disease to physician working in the disease state. SHOW DESCRIPTION Cheat Codes is a podcast…
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Setting the Standard for Responsible and Sustainable Growth in the iGaming Industry with Chetan Pandya, Chief Product Officer at Pragmatic Solutions
35:57
35:57
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A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Dima is joined by Chetan Pandya, Chief Product Officer at Pragmatic Solutions, an i…
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Product Development with Purpose: Building a Winning Mindset and Core Principles for Success with Eric Leach, Co-founder and Chief Product Officer of Strata Identity
40:25
40:25
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A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Tolik is joined by Eric Leach, Co-founder Strata Identity, a provider of identity o…
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The Core Elements of Products that Connect People with Yasmin Kothari, Director of Product at Bumble
13:17
13:17
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A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Tolik is joined by Yasmin Kothari, Director of Product at Bumble, an online platfor…
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On today’s episode, your host, Dr. Rachael Grace is in conversation with Dr. Matthew Heeney. Dr. Heeney's research is focused on the management of patients with sickle cell disease and rare iron disorders. Today's podcast is focused on understanding clinical trials, particularly for rare disorders. SHOW DESCRIPTION Just Listen: Voices of PK Deficie…
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Building a High-Performance Culture in Product Teams with Abraham Alappat, Product Manager at Georgian
36:03
36:03
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A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Tolik is joined by Abraham Alappat, Product Manager at Georgian, a fintech accelera…
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Customer Centricity is at the Core of Product Development with Sylvain Grande, CPO at PayFit France
44:28
44:28
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A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Dima is joined by Sylvain Grande, CPO at PayFit France, a software platform for dig…
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Legends of Sickle Cell - Dr. Obiageli Nnodu
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37:19
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Dr. Z and Dr. C welcome “Sickle Cell Legend” Dr. Obiageli Nnodu to the program. Dr. Nnodu is the Director of Centre For Sickle Cell Disease Research & Training at the (CESRTA) University of Abuja in Nigeria. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with …
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Bootstrapping Your Way to Thirty Million Dollars with Vivek Bhaskaran, Founder and CEO at QuestionPro
46:00
46:00
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46:00
A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Tolik is joined by Vivek Bhaskaran, Founder and CEO at QuestionPro, a leading provi…
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Product Management and the Discovery to GTM Cycle with Sohaib Thiab, CPO at Foodics
48:07
48:07
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A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Dima is joined by Sohaib Thaib, Chief Product Officer at Foodics, a cloud-based POS…
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The Future of AI and the Benefits of an Empowering Work Culture with Abhishek Jain, Chief Product Officer at Devtorium
44:23
44:23
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A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Tolik is joined by Abhishek Jain, Chief Product Officer at Devtorium, an artificial…
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LIVE in New Orleans: A Red Cell Revolution
48:26
48:26
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We're LIVE from New Orleans, Louisiana! Listen to our live podcast panel featuring members of the sickle cell, pyruvate kinase deficiency, and thalassemia communities and leading KOL's in each field. We are proud to introduce the Red Cell Revolution! The Red Cell Revolution is an Agios patient advocacy movement that is driven by a relentless desire…
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LIVE in New Orleans: A Red Cell Revolution
48:33
48:33
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We're LIVE from New Orleans, Louisiana! Listen to our live podcast panel featuring members of the sickle cell, pyruvate kinase deficiency, and thalassemia communities and leading KOL's in each field. We are proud to introduce the Red Cell Revolution! The Red Cell Revolution is an Agios patient advocacy movement that is driven by a relentless desire…
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Building Products for Multiple User Types with Aniket Naravanekar, Chief Product Officer at Cheq
26:58
26:58
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A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Tolik is joined by Aniket Naravanekar, Chief Product Officer at CHEQ, a social paym…
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