Best Abby Klein Podcasts (2024)

1
Rare Disease Research - Insights from Charles River Labs with Roxana Redis and David Fischer 30:40

8h ago30:40

30:40

ONCE UPON A GENE - EPISODE 236 Rare Disease Research - Insights from Charles River Labs with Roxana Redis and David Fischer Charles River Labs is a rare disease research and drug development powerhouse and their work leads to life-changing treatments. I'm joined by Roxana Redis and David Fischer to talk about Charles River Labs’ support, rare disea…

1
Mandy Moore's Late-Night Panic Google 10:21

2h ago10:21

10:21

Actress and singer Mandy Moore contemplates croup, toddler beds, and Bayesian statistics. Subscribe to ParentData.org for free access to new articles every week on data-driven pregnancy and parenting.By ParentData

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Rare Connections in NMOSD (Neuromyelitis Optics) - Finding Strength in Community and the Power in Asking for Help with Craig Klein 37:15

11h ago37:15

37:15

ONCE UPON A GENE - EPISODE 235 Rare Connections in NMOSD (Neuromyelitis Optics) - Finding Strength in Community and the Power in Asking for Help with Craig Klein My guest, Craig Klein, has been living with Neuromyelitis Optics Spectrum Disorder (NMOSD) for 8 years. He shares his challenges, strengths and about his journey of resilience. EPISODE HIG…

1
Ozempic 101: A doctor explains the data and science behind weight-loss drugs 52:23

7d ago52:23

52:23

News about weight-loss drugs is hard to miss. A new generation of drugs — Ozempic, Wegovy, Mounjaro, Zepbound — are on television, on billboards, and in many of our homes. There is little debate about the efficacy of the drugs for weight loss (they work, at least for most people) but lots of discussion about everything else surrounding them. But wh…

1
Chasing Glimmers - Illuminating Hope and Lessons in the Rare Disease Journey - Finding Glimmers for a Happier, Healthier Life with Katie Lloyd 44:52

2d ago44:52

44:52

ONCE UPON A GENE - EPISODE 234 Chasing Glimmers - Illuminating Hope and Lessons in the Rare Disease Journey - Finding Glimmers for a Happier, Healthier Life with Katie Lloyd This new series, Chasing Glimmers, is all about finding the small, hopeful moments that shine through the darkest of times. Like you, Katie and I know how challenging the rare …

1
Ezra Klein’s Late-Night Panic Google 10:25

2d ago10:25

10:25

The New York Times’ Ezra Klein asks how we can trust anything we read about parenting. Subscribe to ParentData.org for free access to new articles every week on data-driven pregnancy and parenting.By ParentData

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Are You Worried About Your Baby's Development - Enroll in Project FIND-OUT - You May Qualify for Free Whole Genome Sequencing 8:42

9d ago8:42

8:42

ONCE UPON A GENE - EPISODE 233 Are You Worried About Your Baby's Development - Enroll in Project FIND-OUT - You May Qualify for Free Whole Genome Sequencing LINKS AND RESOURCES MENTIONED Project Findout https://projectfindout.org/ CONNECT WITH EFFIE PARKS Website https://effieparks.com/ Twitter https://twitter.com/OnceUponAGene Instagram https://ww…

1
The Value of Camp: What a tech-free summer teaches kids 41:33

9d ago41:33

41:33

Color War. Underwear on the outside of your clothes. Sailing badges. Friendship bracelets. It is difficult to overstate how attached some people get to their sleepaway camp experiences - they don't explain, they proselytize. And right now, camp is having a moment in our popular culture as we debate what Jon Haidt has deemed the “phone-based childho…

1
S5 E6 - Katie Pritchard 39:31

13d ago39:31

39:31

Ali and Andrew are joined by musical comedian Katie Pritchard, as well as Showstopper Musical Supervisor Duncan Walsh Atkins. Ali ups the difficult with a guess-the-lyric game and they sing about realising your dreams. Watch Katie's Disco Ball on ITVX here - https://www.itv.com/watch/katie-pritchard-disco-ball/10a3844 Tickets for Showstopper! here …

1
Jackie Oshry’s Late-Night Panic Google 12:30

16d ago12:30

12:30

The Toast’s Jackie Oshry asks about babies and honey, the efficacy of Baby Mozart, and what you can’t put down the garbage disposal. Subscribe to ParentData.org for free access to new articles every week on data-driven pregnancy and parenting.By ParentData

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Raising Boys: Another side of gender equality 44:32

23d ago44:32

44:32

There are many, many wonderful things about parenting boys. There are also challenges that seem disproportionate. Boys often develop language later than girls. More boys than girls are held back in school entry. Girls do better in school at nearly all levels, and are significantly more likely to attend college. Yet this doesn’t get the kind of atte…

1
Abby Phillip's Late-Night Panic Google 12:10

1M ago12:10

12:10

CNN anchor Abby Philip asks how to keep her kid in bed all night. Subscribe to ParentData.org for free access to new articles every week on data-driven pregnancy and parenting.By ParentData

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Understanding Genetic Counseling - Essential Insights for Parents – Navigating Appointments, Referrals, Testing, and Insurance with Expert Abby Turnwald MS CGC 27:36

1M ago27:36

27:36

ONCE UPON A GENE - EPISODE 232 Understanding Genetic Counseling - Essential Insights for Parents – Navigating Appointments, Referrals, Testing, and Insurance with Expert Abby Turnwald MS CGC Abby Turnwald is a genetic counselor here to talk about genetic testing and the crucial role genetic counselors play in guiding families through the complexity…

1
The Power of Genetic Diagnosis - More Than Just a Label 11:48

1M ago11:48

11:48

By Effie Parks

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Why Kids Can't Read: How we missed the mark on literacy education 51:21

2M ago51:21

51:21

Reading Rainbow. Reading is FUNdamental! Hooked on Phonics. We grew up steeped in a culture that encouraged reading. And in the past couple of years many U.S. states have embraced legislation about how kids are taught to read in school. The phrase that you may have heard is “science of reading,” as in “let’s make sure schools are using reading curr…

1
Ophira Eisenberg’s Late-Night Panic Google 13:03

2M ago13:03

13:03

Comedian and NPR mainstay Ophira Eisenberg wrestles with changing her kid’s school, and how to clean slime. Subscribe to ParentData.org for free access to new articles every week on data-driven pregnancy and parenting.By ParentData

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Balancing Rare Disease Advocacy and Family - Navigating the Complexities and Embracing Imperfections with Nikki Stusick 36:55

2M ago36:55

36:55

ONCE UPON A GENE - EPISODE 230 Balancing Rare Disease Advocacy and Family - Navigating the Complexities and Embracing Imperfections with Nikki Stusick Nikki Stusick is the mom of a child with an initial VUS diagnosis and then a different pathogenic diagnosis. We talk about the complexities of balancing advocacy work, family life, when to choose one…

1
The Kids Are Actually Alright: Is parental anxiety too high? 44:57

2M ago44:57

44:57

We’ve been hearing a lot about the teen mental health crisis — and there is no question that on a number of metrics, teens do seem to be struggling more than they have in the past. But is it really that bad? Is there a chance we’re overreacting to normal teenage feelings? Today on ParentData, we’re joined by Dr. Mathilde Ross, a psychiatrist at Bos…

1
Uniting Strengths - Rare Disease Collaboration on a Shared Patient Registry Through Sanford Cords with Cure Mito and Hope for PDCD Leaders Frances Muenzer Pimentel and Sophia Zilber 35:10

2M ago35:10

35:10

ONCE UPON A GENE - EPISODE 229 Uniting Strengths - Rare Disease Collaboration on a Shared Patient Registry Through Sanford Cords with Cure Mito and Hope for PDCD Leaders Frances Muenzer Pimentel and Sophia Zilber Frances Muenzer Pimentel and Sophia Zilber have united the Hope for PDCD Foundation and the Cure Mito Foundation to launch a global joint…

1
Claire Holt's Late-Night Panic Google 10:43

2M ago10:43

10:43

Have you ever panic-Googled a parenting question late at night? If so, you’re not alone. Most of us turn to that little search bar whenever fear or confusion strikes. On these ParentData mini-episodes, starting today, you’ll hear from some familiar names about the questions keeping them up at night, and how data can help. First up: actress Claire H…

1
Episode 228 - Strength In Unity - The Power of Consolidated Rare Disease Advocacy, Collaborative Breakthroughs, and the Every Cure Initiative with Dr. David Fajgenbaum 51:51

2M ago51:51

51:51

ONCE UPON A GENE - EPISODE 228 Strength In Unity - The Power of Consolidated Rare Disease Advocacy, Collaborative Breathroughs, and the Every Cure Initiative with Dr. David Fajgenbaum Dr. David Fajgenbaum is is a groundbreaking physician-scientist, disease hunter, speaker, and national bestselling author of Chasing My Cure: A Doctor's Race to Turn …

1
Better Sleep for Older Kids—And Their Parents: Making a plan, post-crib 45:15

2M ago45:15

45:15

Our kids need a glass of water. Or an extra hug. How do we get them to sleep? So much has been written about this with advice for exhausted parents. But it’s usually in the context of babies. Toddlers and older kids are a whole other ballgame. Today on ParentData, we’re joined by perhaps our most practical guest ever. Jessica Berk is a toddler and …

1
S5 E5 - Abbie Budden 44:55

3M ago44:55

44:55

Ali, Andrew and Chris talk to Abbie Budden about influencing, revolving and storytelling. Chris Ash on keys. Andrew was still suffering a little from tonsilitis when this was recorded. He's better now. showstopperthemusical.comBy Showstopperpod

1
Bringing Balance Back to the Language of Disability from The Special Needs Mom Podcast with Kara Ryska 51:53

3M ago51:53

51:53

Connect with Kara, host of The Special Needs Mom Podcast: Instagram: https://www.instagram.com/thespecialneedsmompodcast/ Website: https://www.kararyska.com/ Coaching Opportunities Pathway to Peace {Group Coaching Program}: Schedule a Consult or Contact Me Join The Special Needs Mom Podcast Community FaceBook Group!! Click here to Request to Join…

1
How to Talk to Your Doctor About Risk: Lessons from our book, “The Unexpected” 53:36

3M ago53:36

53:36

Book launch alert! We’re so proud to announce that “The Unexpected: Navigating Pregnancy During and After Complications” is hitting the shelves April 30! Today on ParentData, Emily’s co-author, OB/GYN Dr. Nate Fox, returns to discuss the process of co-writing between two self-professed people-who-hate-group-projects, as well as how to have conversa…

1
From Classrooms to Communities - Parents Visionary Journey in Education, Living, and Advocacy for Inclusion and Epilepsy Funding with Jillian and Scott Copeland 45:12

3M ago45:12

45:12

ONCE UPON A GENE - EPISODE 226 From Classrooms to Communities - Parents Visionary Journey in Education, Living, and Advocacy for Inclusion and Epilepsy Funding with Jillian and Scott Copeland Jillian and Scott Copeland are husband and wife, advocates and pioneers who have transformed their personal journey of having a child diagnosed with epilepsy.…

1
The Bravery of the Brokenhearted - A Big Brothers Perspective on Grief From the Loss of a Sibling with Sanfilippo Syndrome with Noah Siedman 46:33

4M ago46:33

46:33

ONCE UPON A GENE - EPISODE 225 The Bravery of the Brokenhearted - A Big Brothers Perspective on Grief From the Loss of a Sibling with Sanfilippo Syndrome with Noah Siedman Noah Siedman was a big brother to Ben who had Sanfilippo Syndrome, a devastating disease that leads to childhood dementia and premature death. He joins me to talk about his sibli…

1
Doulas For All: How Senator Samra Brouk is changing birth in New York 40:40

3M ago40:40

40:40

Hiring a doula for your birth is, quite simply, a great idea. They’re non-clinical, cost-effective, and, as many mothers will attest, one of the most valuable parts of the experience - a value that is supported by data. The decision to have one should be pretty easy. But actually crafting policy that captures that value is hard. Today on ParentData…

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Bonus Episode: Dr. Becky and the Bad Therapy Conversation 50:46

3M ago50:46

50:46

American kids are struggling. And there's a lot of discussion around the reasons why. Is it smartphones? Is it social media? Is it a hyper fixation on feelings and therapy? Today on ParentData, we’re releasing an episode of Good Inside with Dr. Becky, which Emily joined to discuss the latest book making the rounds in parenting circles, Abigail Shri…

1
The Complicated World of ICD10 Codes with CEO and Co-Founder of SLC6A1 Connect - Amber Freed 28:47

3M ago28:47

28:47

ONCE UPON A GENE - EPISODE 224 The Complicated World of ICD10 Codes with CEO and Co-Founder of SLC6A1 Connect - Amber Freed Advocate, rare mom and Founder of SLC6A1 Connect, Amber Freed joins me to talk about ICD-10 codes— the frustrations, the battles, and the common-sense changes we're fighting for in the rare disease community that are pivotal t…

1
S5 E4 - Andrew Pepper 39:23

4M ago39:23

39:23

Andrew, Ali and Chris talk to a second Andrew about Funny Things that might happen on the way to a forum, and about how life is a Cabaret. Chris Ash on keys!By Showstopper

1
Rare Epilepsy Network with Ilene Penn Miller and Christina Sanlnocencio 51:20

4M ago51:20

51:20

ONCE UPON A GENE - EPISODE 223 Rare Epilepsy Network with Ilene Penn Miller and Christina Sanlnocencio Ilene Miller and Christina SanInocencio are advocates doing groundbreaking work at the Rare Epilepsy Network (REN), a volunteer network of epilepsy organizations banding together, sharing research efforts, and improving the lives of rare epilepsy …

1
Parenting Trends Throughout History: We’ve always done it wrong … and also right 39:16

4M ago39:16

39:16

As a parent, it’s extremely easy to get very focused on “doing it right.” Which means, usually, doing what is considered “right” in your particular time and cultural context. And sometimes, amid this pressure, we need a little perspective. Human history is long, and what is considered right has changed a lot. Today on ParentData, we’re joined by au…

1
Krabbe Disease with Kasey Feldt 29:20

4M ago29:20

29:20

ONCE UPON A GENE - EPISODE 222 Krabbe Disease with Kasey Feldt Kasey Feldt is the mom of two- one year old Lukas and Dawson, who passed away from Krabbe disease. Kasey has become a passionate and unstoppable advocate, not only advocating for Krabbe disease, but also the newborn screening system so kids have a better chance at early detection. EPISO…

1
Heading to the Big Dance with Georgia Schiff '26 26:10

5M ago26:10

26:10

Welcome to Episode 12 of the Big Red HockeyCast! Hosts Amanda Petersen '25 and Emily Klein '27 recap the ECAC Championship weekend and speak to sophomore forward Georgia Schiff about the team's spot in the NCAA tournament, her beginnings in hockey, and much more! And as always, LET'S GO RED! Recap (0:11) Sin Bin: (02:29) Slapshot (16:48) [Released …

1
BeginNGS - Newborn Genomic Sequencing to End the Diagnostic Odyssey with Dr. Stephen Kingsmore, Wendy Erler and Tom DeFay 38:03

4M ago38:03

38:03

ONCE UPON A GENE - EPISODE 221 BeginNGS - Newborn Genomic Sequencing to End the Diagnostic Odyssey with Dr. Stephen Kingsmore, Wendy Erler and Tom DeFay I'm joined by Dr. Stephen Kingsmore, Wendy Erler and Tom DeFay to discuss BeginNGS, a ground-breaking initiative that stands at the forefront of genetic sequencing and rare disease diagnosis. EPISO…

1
How to Create Community: Showing up for each other in a spiritual and secular world 52:06

4M ago52:06

52:06

We have all heard it takes a village to raise a child, but the reality is that many of us in the modern world, especially after the pandemic, are asking …well, where’s my village?! Where’s my community of people who will show up for me in joy, and in grief, and help me introduce my kids to a world that’s bigger than themselves? Today on ParentData,…

1
Finding Playoff Success with the Big Red 7:45

5M ago7:45

7:45

Welcome to Episode 11 of the Big Red HockeyCast! Hosts Anthony Cespe '26 and newcomer Emily Klein '27 recap the Big Red's series win against Quinnipiac. Tune in to hear about how the team did and the games they have this weekend for the ECAC Championships. And as always, LET'S GO RED! Recap (0:43) [Released March 8th, 2024] Connect with Big Red Spo…

1
A Rare Collection - From Financial Strain to Supportive Gain - A Call For Action 17:01

4M ago17:01

17:01

ONCE UPON A GENE - EPISODE 220 A Rare Collection - From Financial Strain to Supportive Gain - A Call For Action There's power in storytelling- for the listener and the storyteller. A Rare Collection is a monthly series featuring people from the rare disease community, sharing a story with a common theme. EPISODE HIGHLIGHTS Katie Scheid The beginnin…

1
S5 E3 - Beverley Klein 45:56

5M ago45:56

45:56

Ali, Andrew and Matt chat to Beverley Klein about her intimidating CV! Duncan Walsh Atkins on keys! showstopperthemusical.comBy Showstopper

1
Genomics England Clinical Lead for Genetic Counseling - Amanda Pichini 43:25

5M ago43:25

43:25

ONCE UPON A GENE - EPISODE 219 Genomics England Clinical Lead for Genetic Counseling - Amanda Pichini Amanda Pichini is a genetic counselor from Genomics England, here to share their initiatives and mission. EPISODE HIGHLIGHTS What is your role at Genomics England and how did your career develop? I work at Genomics England as the Director of Clinic…

1
Birth Control After Kids: IUDs and vasectomies and tubal ligation, oh my! 39:11

5M ago39:11

39:11

In January, ParentData launched a new newsletter — Hot Flash — authored by Dr. Gillian Goddard. Hot Flash covers women’s health in the post-reproductive years. Think perimenopause and menopause, but also the late reproductive years, when you’re done having children but still, technically, might be able to do so. This week in Hot Flash, Gillian wrot…

1
One Last Ride with the 2024 Senior Class 36:32

5M ago36:32

36:32

Welcome to Episode 10 of the Big Red HockeyCast! Hosts Anthony Cespe '26 and Amanda Petersen '25 interview seniors Izzy Daniel '24, Deanna Fraser '24, and Abby Ruggerio to honor all that they have done for this program. Tune in to hear about the impact the team has had on them, how they've grown in their time at Cornell, and how the team is feeling…

1
James G Robinson - More Than We Expected Author - Five Years with a Remarkable Child 53:26

5M ago53:26

53:26

ONCE UPON A GENE - EPISODE 218 James G Robinson - More Than We Expected Author - Five Years with a Remarkable Child James Robinson is a dad and the author of More Than We Expected: Five Years With a Remarkable Child, a deeply moving book and a testament to the strength found in vulnerability, the importance of community and the boundless love that …

1
More of Everything - How I Became a Better Parent to My Child With Extreme Special Needs By Lifting My Emotional Burdens With SYNGAP1 Mom - Janie Reade 51:07

5M ago51:07

51:07

ONCE UPON A GENE - EPISODE 184 More of Everything - How I Became a Better Parent to My Child With Extreme Special Needs By Lifting My Emotional Burdens With SYNGAP1 Mom - Janie Reade Janie Reade is an author and mom to three adult sons, one with a severe neurodevelopmental disorder caused by a mutation in the SYNGAP1 gene. We'll talk about her uniq…

1
Household Division of Labor: Making the invisible work fair, if not equal 53:36

5M ago53:36

53:36

Invisible labor. It’s the work — in our households especially — that has to happen but that no one sees. It’s making the doctor’s appointment, ensuring the Valentine’s cards are purchased, remembering the milk. When we think about equity in household labor, we often find that there are already inequities in the visible work, and they can become ins…

1
The New York Rivalry Weekend with Avi Adam '26 25:28

6M ago25:28

25:28

Welcome to Episode 9 of the Big Red HockeyCast! Hosts Aakshay Gupta '26 and Amanda Petersen '25 interview sophomore forward Avi Adam '26 and discuss her hockey beginnings, her time in juniors, and much more! And as always, GO BIG RED! Sin Bin (3:45) Slapshot (19:18) [Released February 8th, 2024] Connect with Big Red Sports Network: ⁠⁠⁠⁠⁠⁠⁠⁠https://…

1
Uniting Science and Hope - COMBINEDBrain and it's Quest to Transform Research and Treatment for Rare Genetic Neurodevelopmental Disorders with Terry Jo Bichell 55:26

5M ago55:26

55:26

ONCE UPON A GENE - EPISODE 217 Uniting Science and Hope - COMBINEDBrain and its Quest to Transform Research and Treatment for Rare Genetic Neurodevelopmental Disorders with Terry Jo Bichell Terry Jo Bichell is a rare mom, neuroscientist and the founder of COMBINEDBrain, a nonprofit organization revolutionizing the approach to clinical treatments fo…

1
On a Heater with ECAC Rookie of the Week Karel Prefontaine ’27 24:52

6M ago24:52

24:52

Welcome to Episode 8 of the Big Red HockeyCast! Hosts Aakshay Gupta '26 and Amanda Petersen '25 interview freshman forward Karel Prefontaine '27 and discuss her recent success on the team, her time on Team Canada, and much more! And as always, GO BIG RED! Sin Bin (3:18) Slapshot (18:45) [Released February 1st, 2024] Connect with Big Red Sports Netw…

1
A Rare Collection - Five Advocacy Aces Share Their Conference Commandments 39:56

6M ago39:56

39:56

ONCE UPON A GENE - EPISODE 201 A Rare Collection - Five Advocacy Aces Share Their Conference Commandments EPISODE HIGHLIGHTS Melissa Hioco, STXBP1 DO: Offer a family hospitality room where parents can see the broadcast and stay involved in the conference. Provide sibling spaces and make them feel special. Spend the extra money to provide a buffet d…

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Abby Klein Podcasts

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