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Sparking conversations, sharing real life issues, events, topics as well as achievements.
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SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about pyruvate kinase deficiency (PK Deficiency) and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PKD. Each episode, Just Listen: Voices of PK Deficiency strives to provide listeners with critical education, the latest scientific updates, and voices from the PKD community. Learn more about PKD by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency’s on Fac ...
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Worldmusicnight 2021 La puoi ascoltare sulle radio che aderiscono al circuito e su Itunes podcast Worldmusicnight sound designer by Miki Dj un viaggio appassionante alla scoperta della musica lounge più glamour del momento. World Music Night vi accompagnerà alla scopertà della musica lounge prodotto da Digital Media Video.com È un viaggio appassionante di un’ora alla scoperta della musica lounge più glamour del momento con brani di musica lounge, chillout, ethno beat acid jazz e ambiente, po ...
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Life Science Today is your source for stories, insights, and trends across the life science industry. Expect weekly highlights about new technologies, pharmaceutical mergers and acquisitions, news about the moves of venture capital and private equity, and how the stock market responds to biotech IPOs. Life Science Today also explores trends around clinical research, including the evolving patterns that determine how drugs and therapies are developed and approved. It’s news, with a dash of pe ...
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Join us for in-depth conversations with product leaders that are focused on creating great digital products for their customers. We empower leaders that want to produce useful products and make lives easier. In each episode, we discover which tactics digital product leaders use to help the end user. Product Leaders Podcast is a podcast by Fireart, hosted by Dima Venglinski and Tolik Nguyen.
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On this episode, Dr. Rachael Grace talks with the King family. Jennifer and Jerry King have been raising William and Lily. Both have pyruvate kinase deficiency and we discuss how they’ve managed the disease with their two children.. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficiency and is intended f…
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Raising & Being a Teen with PK Deficiency
32:47
32:47
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On this episode, Dr. Rachael Grace talks with Jessica Kellar and her teenage son Travis. They discuss Travis’ diagnosis, actively involving him in his own care and how to navigate life as a teenager with pyruvate kinase deficiency. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficiency and is intended fo…
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What does it mean when a parent has pyruvate kinase deficiency? On today’s episode we welcome back Nathan Thompson, a father with PK Deficiency. He has two daughters. He’s joined today by his daughter Zoe. Here, we learn about parenting with PKD and all of the challenges associated with it. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a…
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On this episode, Dr. Rachael Grace is in conversation with Carl Lander, Chair of the Steering Committee for the Peak Registry and International Collaboration Director of Thrive with Pyruvate Kinase Deficiency. Here they discuss the latest with the Peak Registry. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinas…
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On this episode, Dr. Rachael Grace is in conversation with Claire Egan, Senior Genetic Counselor with InformedDNA, to talk all about genetics. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted b…
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REPLAY: MythBusters Part 1 - Pyruvate Kinase Deficiency Edition
24:40
24:40
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Dr. Rachael Grace returns with patient advocate (and PK Deficiency TikTok influencer) Karla Chichester. On this episode, Dr. Grace and Karla dispel some of the biggest myths surrounding Pyruvate Kinase Deficiency. Originally aired on September 29, 2022. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficie…
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On this episode, Dr. Rachael Grace is in conversation with Dr. Sujit Sheth about iron overload. You’ll learn about iron overload and why it occurs in pyruvate kinase deficiency, explain the potential complications as well as the importance of managing and monitoring iron overload. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast a…
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Our guest today is Dolores Dumas. Dolores is a 73-year-old living with PK deficiency, and was diagnosed as a teen with nonspherocytic hemolytic anemia. During a visit with a new hematologist, she received a definitive diagnosis of PK deficiency. Dolores feels grateful that she finally has a name for her condition. SHOW DESCRIPTION Just Listen: Voic…
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What does it mean when a parent has pyruvate kinase deficiency? On today’s episode we welcome back Nathan Thompson, a father with PK Deficiency. He has two daughters. He’s joined today by his daughter Zoe. Here, we learn about parenting with PKD and all of the challenges associated with it. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a…
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On today’s episode, we travel to New Orleans for a discussion about aging with pyruvate kinase deficiency (PKD) with returning guests Jill Welle and Tamara Schryver. Janie Davis, Associate Director Patient Advocacy at Agios Pharmaceuticals, leads the conversation. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kin…
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REPLAY: Pyruvate Kinase Deficiency Foundation
27:17
27:17
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On this episode, we interview Alejandra Watson and Laura Miller D'Angelo of Pyruvate Kinase Deficiency Foundation. We learn more about the organization as well as Alejandra’s experience as a caregiver for a child with PKD as well as Laura’s experience living with PKD. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about pyruvate…
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Product Leaders Should be Good People Managers with Jean McCabe, Chief Innovation Officer and Chief Product Officer at Agio
36:58
36:58
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A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Tolik is joined by Jean McCabe, Chief Innovation Officer and Chief Product Officer …
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Setting the Standard for Responsible and Sustainable Growth in the iGaming Industry with Chetan Pandya, Chief Product Officer at Pragmatic Solutions
35:57
35:57
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A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Dima is joined by Chetan Pandya, Chief Product Officer at Pragmatic Solutions, an i…
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Product Development with Purpose: Building a Winning Mindset and Core Principles for Success with Eric Leach, Co-founder and Chief Product Officer of Strata Identity
40:25
40:25
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40:25
A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Tolik is joined by Eric Leach, Co-founder Strata Identity, a provider of identity o…
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The Core Elements of Products that Connect People with Yasmin Kothari, Director of Product at Bumble
13:17
13:17
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A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Tolik is joined by Yasmin Kothari, Director of Product at Bumble, an online platfor…
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On today’s episode, your host, Dr. Rachael Grace is in conversation with Dr. Matthew Heeney. Dr. Heeney's research is focused on the management of patients with sickle cell disease and rare iron disorders. Today's podcast is focused on understanding clinical trials, particularly for rare disorders. SHOW DESCRIPTION Just Listen: Voices of PK Deficie…
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Building a High-Performance Culture in Product Teams with Abraham Alappat, Product Manager at Georgian
36:03
36:03
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36:03
A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Tolik is joined by Abraham Alappat, Product Manager at Georgian, a fintech accelera…
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Customer Centricity is at the Core of Product Development with Sylvain Grande, CPO at PayFit France
44:28
44:28
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A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Dima is joined by Sylvain Grande, CPO at PayFit France, a software platform for dig…
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Bootstrapping Your Way to Thirty Million Dollars with Vivek Bhaskaran, Founder and CEO at QuestionPro
46:00
46:00
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46:00
A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Tolik is joined by Vivek Bhaskaran, Founder and CEO at QuestionPro, a leading provi…
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Product Management and the Discovery to GTM Cycle with Sohaib Thiab, CPO at Foodics
48:07
48:07
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48:07
A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Dima is joined by Sohaib Thaib, Chief Product Officer at Foodics, a cloud-based POS…
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The Future of AI and the Benefits of an Empowering Work Culture with Abhishek Jain, Chief Product Officer at Devtorium
44:23
44:23
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44:23
A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Tolik is joined by Abhishek Jain, Chief Product Officer at Devtorium, an artificial…
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LIVE in New Orleans: A Red Cell Revolution
48:33
48:33
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We're LIVE from New Orleans, Louisiana! Listen to our live podcast panel featuring members of the sickle cell, pyruvate kinase deficiency, and thalassemia communities and leading KOL's in each field. We are proud to introduce the Red Cell Revolution! The Red Cell Revolution is an Agios patient advocacy movement that is driven by a relentless desire…
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Building Products for Multiple User Types with Aniket Naravanekar, Chief Product Officer at Cheq
26:58
26:58
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26:58
A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Tolik is joined by Aniket Naravanekar, Chief Product Officer at CHEQ, a social paym…
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An Engineer’s Take on Product Management with Aniket Naravanekar, Chief Product Officer at Cheq
34:49
34:49
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A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Tolik is joined by Aniket Naravanekar, Chief Product Officer at CHEQ, a social paym…
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Transforming Mindsets to Outcome-Based Solutions with Maxim Kalinovich, Senior Product Manager at EZ Texting
38:17
38:17
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38:17
A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Tolik is joined by Maxim Kalinovich, Senior Product Manager at EZ Texting. Maxim un…
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Product-led vs Sales-led Growth with Alejandro Carrillo, Senior Product Manager at Oyster
51:33
51:33
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51:33
A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Dima is joined by Alejandro Carrillo, Senior Product Manager at Oyster. Alejandro s…
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Caregiver Series: Transitioning to Adult Care
38:14
38:14
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Dr. Rachael Grace welcomes back Alejandra Watson of the Pyruvate Kinase Deficiency Foundation as well as her son Jonathan to discuss transitioning from childhood to adulthood. We’ll learn about how Jonathan took over some responsibility of his care as he grew older and went off to college. Learn more about the Pyruvate Kinase Deficiency Foundation …
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Overcoming the Imposter Syndrome in Product Management with Andrea Ho, Senior Growth Product Manager at Atlassian
32:35
32:35
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32:35
A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Tolik is joined by Andrea Ho, Senior Growth Product manager at Atlassian. Andrea un…
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The Playbook to Become an ACE Product Leader with Satnam Singh, CPO of Tax and Trade, Global API, and Cloud Leader at Thomson Reuters
38:08
38:08
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38:08
A big shoutout to all product leaders. Welcome to the Product Leaders Podcast by Fireart with your hosts, Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Dima is joined by Satnam Singh, CPO of Tax and Trade, Global API, and Cloud Leader …
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The Nuts and Bolts of Customer-Led Product Growth with Jamin Brazil, Chairman of HubUX
40:59
40:59
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A big shoutout and hi to all product leaders. Welcome to the inaugural episode of the Product Leaders Podcast by Fireart with your host Dima Venglinski and Tolik Nguyen. Every episode is a deep dive into different aspects of product leadership to enhance the end-user experience. In this episode, Dima is joined by Jamin Brazil, Chairman of HubUX, a …
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Product Leaders Podcast is handcrafted by our friends over at: fame.soBy Fireart Studio
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This week, I have an announcement to make. Find out more at https://LifeScienceTodayPodcast.com About the Show Life Science Today is your source for stories, insights, and trends across the life science industry. Expect weekly highlights about new technologies, pharmaceutical mergers and acquisitions, news about the moves of venture capital and pri…
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On this episode, Dr. Rachel Grace, a pediatric hematologist, clinical researcher at the Dana-Farber/Boston Children's Cancer and Blood Disorders Center and previous guest on the podcast fills in as guest host. She interviews Dr. David Nathan, a pioneer in the field of hematology and pyruvate kinase deficiency. She also interviews Jill Welle, a pati…
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Sanofi/Takeda, UniQure & CSL, Fog Pharma, Merck + Imago
8:47
8:47
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Vaccine hesitancy, the most expensive gene therapy in the world, a $178M series D, and a $1.3B buyout Find out more at https://LifeScienceTodayPodcast.com Story References Sanofi/Takeda UniQure & CSL Fog Pharma Merck + Imago About the Show Life Science Today is your source for stories, insights, and trends across the life science industry. Expect w…
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Indivior + Opiant, Regeneron + CytomX, Rezo, Provention
6:07
6:07
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A $145M opioid acquisition, biobucks for the holidays, a series A, and diabetes approvals Find out more at https://LifeScienceTodayPodcast.com Story References Indivior + Opiant Regeneron + CytomX Rezo Provention About the Show Life Science Today is your source for stories, insights, and trends across the life science industry. Expect weekly highli…
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