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Brought to you by the D.R.E.S.S. Syndrome Foundation and hosted by Connie Stevens. An educational podcast on the severe adverse drug reaction known as D.R.E.S.S. Syndrome. Drug Reaction with Eosinophilia and Systemic Symptoms is often under-recognized and misdiagnosed. We talk with patients who have been touched by this horrific condition and experts who are working to prevent it, treat it, and create better awareness.
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Episode 1: Izzy's Story: "Always Blame the Drug"
30:56
30:56
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For 16-year-old Izzy McKinney, a course of treatment with the antibiotic Bactrim first led to fevers and a bad rash. But that was just the beginning. What no one realized was that Izzy was suffering from a severe case of D.R.E.S.S: Drug Reaction with Eosinophilia and Systemic Symptoms. This introductory episode tells the tragic story of how DRESS s…
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Episode 2: How D.R.E.S.S. Got its Name. A Conversation with Dr. Vincent Descamps
13:00
13:00
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Medication-induced drug disorders have been evident for nearly a century and labeled with a variety of names. French dermatologist Dr. Vincent Descamps, who has been at the forefront of DRESS syndrome since the mid-1990s, joins us to review this historically misunderstood and under-reported illness. We'll also discuss the history of how an internat…
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Episode 3: Hannah Was Here: A Fatal Case of Minocycline-Induced D.R.E.S.S. Syndrome
16:02
16:02
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Hannah's mother and long-time DRESS advocate, Nancy Szakacsy tells of her daughter's struggle against a fatal case of DRESS syndrome that was triggered by the antibiotic Minocycline. The devastation of losing Hannah, and the obvious lack of information and resources for families like hers inspired Nancy to write a book about her daughter's illness.…
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Episode 4: The Link Between Viruses and Severe Adverse Drug Reactions: A Discussion with the Experts
23:18
23:18
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International severe adverse drug reaction experts, Dr. David Ostrov and Dr. Vincent Descamps, talk to us about the immune response that occurs in DRESS syndrome as well as how antiviral and steroid therapies are often indicated in fighting this condition. We also hear from Kent Van Donge about the importance of a team approach in the treatment of …
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Episode 5: Risk Factors and the First Signs: An Interview with Dr. Elizabeth Phillips
32:23
32:23
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In this episode, we talk with world-renowned DRESS Syndrome expert, Dr. Elizabeth Phillips. She and her colleagues at Vanderbilt University Medical Center are working to better understand the genetic factors that increase a patient's risk for developing life-threatening, immune-mediated drug reactions - with a focus on simple, inexpensive diagnosti…
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Theresa Stickney shares the story of her long and complicated course of illness with DRESS Syndrome, triggered by the drug Vancomycin. Since recovering, she has been inspired to share what she knows, both as a nurse and a patient - helping other patients, caregivers, doctors and researchers better understand this often misdiagnosed and difficult to…
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Episode 7: "A Lot of Parallels Between Our Lives"
24:19
24:19
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From opposite ends of the U.S., two mothers share a common bond. They both know what it’s like to sit at a child’s hospital bedside, desperately searching the world over for the medical information that could save their daughter’s life. When the resources they needed weren’t available, they took matters into their own hands to create them. While wo…
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Episode 8: "Is This DRESS?" An Interview with Dr. Arash Mostaghimi
30:05
30:05
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Life-threatening drug reactions often present with a rash, so dermatologists may be the first line of defense for treatment. Dr. Arash Mostaghimi, a dermatologist at Harvard Medical School’s Brigham & Women’s Hospital, draws on his experience with DRESS patients in teaching medical students about this complex and often misunderstood condition. Inte…
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Episode 9: Surviving DRESS: "You Really Need A Team"
29:31
29:31
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29:31
When Linda Wondrack was diagnosed with rheumatoid disease in 2015, she never imagined that her treatment with Sulfasalazine would end up leaving her even more severely ill. In the wake of a complicated recovery from DRESS, she shares the physical and psychological toll this delayed drug reaction can take... and the importance of self-advocacy and s…
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Episode 10: "Patients Need to Make A Lot of Noise...Demand an HHV-6 Test"
17:43
17:43
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Viruses from previous infection may stay dormant in our bodies for years - sleeping away the time, never causing any trouble. However, in immunosuppressed conditions like DRESS, the virus may awaken and wreak havoc. Viral reactivation of human herpesviruses, in particular HHV-6, are a known phenomenon of DRESS, occurring in up to 50% of patients. W…
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Episode 11: The Unique Nature of This Virus: HHV-6
28:50
28:50
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German virologist, Dr. Bhupesh Prusty, discusses his research on the human herpes virus, HHV-6, and its important role in many medical conditions including DRESS syndrome. We then hear from Japanese dermatologist and DRESS expert, Dr. Hideo Asada, about the long-term complications associated with HHV-6 and DRESS. Interview: Dr. Bhupesh Prusty (Mole…
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