show episodes
 
Made Visible is a podcast that gives a voice to people with invisible illnesses. This podcast aims to change the conversation around invisible illnesses, helping those who experience them —whether as patients, caregivers, or friends or family members — feel more seen and heard.
 
Caregivers Speak! Is the first LIVE online support group created by and for caregivers. Moderated by Margery Pabst, eCareDiary’s caregiving expert and author of Enrich Your Caregiving Journey, it airs live on the 2nd Tuesday of every month at 2:00pm EST. Each month three caregivers share personal perspectives and what worked for them during a specific challenge. During the last 10 minutes of the program, you are invited to participate with questions or comments. Empowering Family Caregivers ...
 
Launching Your Daughter podcast was created to support parents and caregivers in empowering their tween and teen girls as they prepare for young adulthood. Guests will be interviewed to discuss topics such as anxiety, perfectionism, depression, trauma, relationship struggles, budgeting time and money, nutrition and self-care. Conversations about mindfulness, self compassion, mind, body and spirit connections, holistic and alternative approaches used in psychotherapy and counseling will also ...
 
Get ready to laugh, cry, and be inspired with the resilience of the human spirit. The Heart Of Senior Care podcast shares years of industry knowledge in a real way, designed for real people like you, while celebrating elders every day. By joining our community, you gain access to elder care consultant Kelly O'Connor on a personal level, enjoy weekly interviews with senior care professionals and caregivers, and ask questions in a safe space that reminds us all, we are not alone on the elder c ...
 
The Inspired Parenting Radio Show features cutting edge interviews with leaders in the fields of progressive education, medicine, complementary and alternative health, nutrition, science, neurodiversity, emotional intelligence, learning, parenting and more, covering everything you need to know to parent holistically, compassionately, empathetically, and with respect for the brilliant, amazing and continually evolving beings that all children are. Listen Live to Inspired Parenting every Thurs ...
 
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show series
 
In this episode, we're picking up where we left off in episode 148: “I felt I had been harmed” with guest Jamie Tyrone. Jamie is the author of Fighting for My Life: How to thrive in the shadow of Alzheimer's. She unexpectedly found out about her risk of developing Alzheimer's disease in the course of genetic testing for something else. As you can i…
 
In Fall 2020, when I launched the Made Visible Writing Class, the editors at Health Magazine held a contest for my class participants. At the end of class, they selected one essay to publish on their website. Today's episode features the winner of the contest, Rita Maureen Thompson and her essay, “POTS Is an Illness Causing Fatigue, Rapid Heartbeat…
 
We originally introduced you to our guest today, Jamie Tyrone, in episode 100: Enjoy Us in the Moment. In that episode, Jamie starts walking us through her experience of finding out (by accident!) she has two copies of the ApoE-4 gene, which puts her at a 91% lifetime risk of getting Alzheimer's disease. In addition to having a great-grandmother, g…
 
Subscribe to receive Made Visible writing prompts directly to your inbox every Sunday. Click here to subscribe. Want to be the first to be notified when we launch a new Made Visible Writing Class? Click here. Email hello@madevisiblepodcast.com with any questions. Follow @harper_spero on Twitter and Instagram for all updates in real time.…
 
This episode is part two of our conversation with Dr. Jason Karlawish, author of the new book The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It. The book is out today (February 23, 2021) and is available as both an audio book on audiobooks.com, as well as hardback at your …
 
Phil Gutis, former New York Times reporter and our Assistant Sherpa, interviews Dr. Jason Karlawish, author of the new book (available 2/23/21) The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It. Dr. Karlawish was very generous with his time, so this episode is part one of …
 
#002- Your luck continues! In this episode join the conversation as Kelly welcomes her first guest Nadine Roberts Cornish - founder of The Caregiver`s Guardian and author of both: “Tears in My Gumbo – The Caregiver’s Recipe for Resilience,” and "Prayers in My Gumbo, The Caregiver’s Recipe for Peace". Just when you thought your luck was running out,…
 
#001- It's your lucky day! We hope you've had your coffee this morning and brought some optimism to the table today, because we are going to get real. Become enlightened today and experience the true nature of our show. We promise that 30 minutes from now, you will be anxiously awaiting future episodes to continue to spark new channels of thinking,…
 
Mikaela Wilson and Spencer Coombe both started out working as direct care staff in long-term care as teenagers. While working as direct carers, they had very different experiences. Comparing notes, they came to believe they could create something that would give clients the best experience possible. But they didn't stop there. After co-founding Sen…
 
After reporting on the FDA Advisory Committee meeting for Biogen's phase 3 trial drug aducanumab, Phil started wrestling with two parts of himself: should the guy who believes in science prevail, or the guy living with the diagnosis? This week, picking up where we left off in Episode 143: "We have a friend," Christy throws in her emotional thinking…
 
This episode was recorded November 9, 2020. Phil and Christy discuss President-Elect Biden and Vice President-Elect Harris's victory and the ongoing impact of COVID-19 within our community. But mostly, Phil wrestles with two parts of himself about what happened last week at the FDA Advisory Committee: should the guy who believes in science prevail,…
 
I’m excited to be talking with my dad, Harry Spero, for this final episode of the podcast. We talk about how Job’s syndrome has impacted my life from childhood to the present, how he and my mom have supported me in different ways throughout my life, and his impression of me as a person who is resilient and determined. My dad told me between Episode…
 
It was only a couple years after Trish Gauthier’s son had been diagnosed with leukemia that she received her own diagnosis: breast cancer. Even though she had just had her physical and everything had looked great, Trish knew that something was off in her body. On today’s episode, Trish talks to me about how she’s advocated for herself and her son t…
 
As founder of #HalftheStory, Larissa "Larz" May is focused on an invisible struggle we’re all facing: our relationship with technology. Larz became aware of her own unhealthy relationship with social media during college, when she was experiencing challenging symptoms of depression and anxiety. On today’s episode, Larz and I talk about her mental h…
 
When Felicia Stingone talks about her brother, who has bipolar disorder, it’s clear how important this relationship is to her. She sees her brother as a person, not as his illness. As she starts to write a book about her experience as a “caring sibling” to her brother, she embraces that her story is both of their stories. On today’s episode, we tal…
 
Elizabeth Tikoyan didn’t always share her health story the way she does now. Diagnosed with Lyme disease in high school, she was very aware of the stigma around having a health condition. On today’s episode, Elizabeth tells me about her journey to get diagnosed, and how misdiagnosis after misdiagnosis led to her symptoms reaching a chronic stage. W…
 
For creative arts therapist Stephanie Omens, it’s all about storytelling--even in the most challenging of circumstances. She works with children who have illnesses or who have parents or siblings who are ill, and it’s her job to help them understand what they’re experiencing. On today’s episode, Stephanie talks about why white lies don’t serve kids…
 
When she was 15, Tricia Huffman made a big decision--she wanted to move through life in a different way. On today’s episode, Tricia and I talk about this choice, which was wrapped up in the emotional and physical pain of her then-undiagnosed invisible illness. We also discuss her eventual diagnosis of fibromyalgia, and how she managed her condition…
 
Since Pamela Hunter’s daughter Ransom was diagnosed with sensory processing disorder at age two-and-a-half, Pamela has done everything she can to get her daughter the help she needs. On today’s episode, we talk about what it means to be a parent to a child with this condition. We also talk about how difficult moments have given Pamela the convictio…
 
Fans know Este Haim for her ability to hold a killer baseline as part of HAIM, a band she formed with her two sisters, Danielle and Alana. Less well-known is the fact that Este was diagnosed with Type 1 diabetes in high school. On today’s episode, Este talks about how having a supportive family has meant that diabetes and music can always coexist i…
 
Jen Pastiloff has built her identity and career around connecting with people. She also has profound hearing loss and tinnitus and is deaf without her hearing aids. As a result, she’s had to cultivate other ways of understanding and hearing. On today’s episode, Jen and I talk about the specific challenges that come with tinnitus and hearing loss, t…
 
After Sonali Gupta was diagnosed with limb-girdle muscular dystrophy in 2008, she went on a trip to India with her dad to explore options for healing. As an NYU grad, Sonali had been eyeing a career in the music industry, but she found a health journey in India instead. She now lives in Mumbai, and is writing a memoir about this experience. On toda…
 
Mira Mariah thinks tattoos are rock 'n' roll, and so are disabled people. As she says, disabled people have to be really “innovative and creative”--and what’s more rock 'n' roll than that? Though Mira didn’t always associate with the word “disabled,” that sense of herself shifted once she had amputation surgery and got a prosthetic leg. On today’s …
 
In This Episode We've got two top-notch guests on the show today, Alexandra Jamieson and Bob Gower. They're co-authors of the new book, Radical Alignment: How to Have Game-Changing Conversations That Will Transform Your Business and Your Life. You won't be surprised to hear we're going to focus on the "your life” aspect today. Be sure to listen all…
 
This episode is part two of my conversation with Mikaela Wilson and Spencer Coombe, co-founders of Senior Support Services of Southern Ontario and co-authors of Any Game for Any Brain. Last episode, we talked about the Canadian military's report on five nursing homes in Ontario and the awful conditions they found there. As Spencer said, it was shoc…
 
For Quentin Vennie, despite having been diagnosed with acute anxiety and depression at 14, this wasn’t the focus as he grew up. The focus was on surviving, given that he lived in one of the most dangerous cities in America, had to contend with racism and prejudice, and lived in communities with limited resources. On today’s episode, I talk with Que…
 
When Devri Velazquez was diagnosed with Takayasu's arteritis at 20 years old, the prognosis was devastating. Doctors didn’t think she would live to age 21. On today’s episode, we talk about what Devri’s life looks like now, ten years after her diagnosis, and what it was like to hear such a scary prognosis when she was first diagnosed. We also talk …
 
Nikki Boyer put it best, when talking about her relationship with her best friend Molly: “We’re going to say the things that people don’t say.” On today’s episode, Nikki and I talk about “Dying for Sex,” the podcast she and Molly created to tell Molly’s story of navigating terminal cancer while also embracing sexual adventures. We also dig into the…
 
This episode was recorded May 19, 2020. Phil and Christy discuss what's happening in long-term care in the US and Canada during the pandemic and posit why it's so abysmal. Plus, they manage to work into the conversation Michael Jordan, Wayne Gretzky, Jerry Rice, Jeff Bezos, Kathy Bates, and Adam and Eve. Full transcript at DementiaSherpa.com/episod…
 
Jenn Donohue and her husband’s twins were born at 24 weeks, making them four months premature. On today’s episode, Jenn and I talk about how she and her husband navigated the “start and stop” feeling as they navigated their son’s health while also coping with the loss of their daughter, who passed away at one week old. We also talk about what the r…
 
Dr. Alexandra Freeman is an infectious diseases physician at the National Institutes of Health, and as she explains, there are still a lot of unanswered questions about COVID-19. Dr. Freeman first spoke on Episode #24, and I wanted to have her back to talk about what the pandemic has been like for her and her patients, who are people with primary i…
 
We're fast-forwarding through the editing queue to bring you this episode recorded June 23, 2020. We wanted to make this episode as timely as possible for a few reasons: Phil Gutis (our Assistant Sherpa on The Alzheimer’s Podcast) and his husband Tim Weaver once again did a Longest Day event on behalf of The Alzheimer's Association. The Longest Day…
 
This episode was recorded April 27, 2020. Just like last week’s episode, we again talk about the value of a human life. It’s a recurring theme on The Alzheimer’s Podcast, because we believe that when others don’t see people living with a dementia diagnosis as having value simply because they’re our fellow humans, then every human life can be devalu…
 
This episode was recorded April 20th, 2020. At one point, Phil refers to protesters, and who he’s talking about are the armed white people who showed up at statehouses wanting to get a haircut, go to the movies, open up the economy, that sort of thing. So, I don’t want there to be any confusion because of when this episode is being released (in ear…
 
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