Connective tissue disorders, like Ehlers-Danlos Syndromes (EDS), have far-reaching consequences. Multi-systemic symptoms affect quality of life -- with pain, frequent injury, joints “giving way," fatigue, headache, gastrointestinal problems, and insomnia being common. Welcome to Bendy Bodies with the Hypermobility MD, with your host and founder, Linda Bluestein, MD. Learn from specialists with diverse areas of medical and scientific expertise. Conversations cover topics relevant to everyone ...
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Dr Libby Hinsley and guests help people with hypermobility live their best bendy lives.
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Listen to LDN Prescribers, Researchers, Pharmacists from around the world discuss Low Dose Naltrexone. This is your chance to ask your questions to the experts, please email linda@ldnrt.org with your questions. The LDN Radio Show is FREE if you would like to make a donation please visit www.ldnresearchtrust.org/donate
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Hypermobility Happy Hour is the first podcast exclusively dedicated to discussing hypermobility conditions including hypermobile Ehlers-Danlos Syndrome. Guests on the Hypermobility Happy Hour have included world renowned physicians, patient advocates, researchers, and individuals living with hypermobility. Listen in as we examine a wide range of topics, including treatment options for hypermobility disorders and ways to improve the doctor-patient relationship. The information provided on thi ...
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Genetics isn’t always black and white. And the emotions and decisions surrounding genetic testing can be even more complex. Hosted by genetic counselor Eleanor Griffith, the show brings you the personal experiences of patients and genetic counselors.
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Welcome to Gasbagging. If you ever feel like you watch too much reality TV, you're in good company. Each week Professor of Unscripted and resident Lydia Schiavello-apologist, Dan Morrison, sits down with a close friend and recaps the week that was. This is a safe place to talk about the ex-housewives' Instagram accounts you still follow and unfairly compare yourself to the entrepreneurial risks these reality stars are taking. This podcast was personally responsible for the revival of The Rea ...
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75 - Whealth - Hypermobile Couple Katie Goss and Andrew Dettelbach
1:00:23
1:00:23
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On this episode, hypermobile couple Katie Goss and Andrew Dettelbach discuss their experiences living with hypermobility as well as their insights from working with hypermobile people through their practice and the organization they founded: Whealth.Links:https://spreadwhealth.com/overcome-painhttps://www.instagram.com/whealthhttps://www.facebook.c…
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Natalie shares her Eds (hypermobile syndrome), pots, monoclonal mast disease experience.
20:35
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Natalie from the US shares her Eds (hypermobile syndrome), pots, monoclonal mast disease experience with us.By Linda Elsegood
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The Hidden Connection: Doreena's Discovery of MCAS Alongside Lyme Disease
25:49
25:49
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In this poignant narrative, Doreena delves into the hidden connection between her struggles with Lyme disease and MCAS. She takes us through her emotional journey from childhood to the present day, recounting the trials and tribulations she faced. With a deep sense of empathy, she shares how she turned her experiences into a tool to unravel the mys…
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Understanding Upper Cervical Instability with Taylor Goldberg
41:32
41:32
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If you have a bendy neck, this one's for you! For this week's episode of Zebra Talks, Libby has a fascinating conversation with Taylor Goldberg, a chiropractor turned virtual hypermobility coach. Taylor shares a bit about her personal journey with hypermobility and her shift to a virtual coaching model, and then helps us understand all things upper…
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Brandi talks about MCAS, EDS and Dysautonomia
19:32
19:32
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Brandi from the US shares her life with Ehlers-Danlos, MCAS, and Dysautonomia.By Linda Elsegood
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Bendy Belly Trouble with Lisa Sherman
1:11:05
1:11:05
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In this episode of Zebra Talks, Dr. Libby Hinsley welcomes Lisa Sherman, a licensed acupuncturist with expertise in functional medicine and molecular biology, to discuss digestive issues among people with hypermobility syndromes. They delve into the prevalence of gastrointestinal problems like dysmotility, microbial dysbiosis, and structural droopi…
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74 - Dr. Brian Cunningham, DPT (The Swim Doc) on Swimming & Hypermobility
1:17:17
1:17:17
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In this episode, Dr. Brian Cunningham (The Swim Doc) talks about coaching and working with swimmers of all ages, strengths, and abilities (including hypermobile swimmers). Dr. Cunningham is an experienced physical therapist and swimmer who teaches swimmers about the specific muscles they need to engage as well as the habits and strategies of elite …
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Welcome back, every Bendy Body! In this special episode, I wrap up season four and share exciting plans for season five. Join me as I reflect on our journey, from focusing on high-risk populations like dancers and gymnasts to diving deep into medical topics. Listen in for gratitude-filled shoutouts from our wonderful listeners as I read their heart…
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Katie talks about LDN, MCAS, POTS and EDS
19:00
19:00
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Katie from the US shares her LDN, MCAS, POTS and EDS (type 4 molecular diagnosis) Journey with us.By Linda Elsegood
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The Science of Stretching with Jules Mitchell
41:21
41:21
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In this episode of Zebra Talks, Libby welcomes biomechanics expert Jules Mitchell to discuss the science of stretching and connective tissue behavior, particularly in the context of hypermobility syndromes. Jules provides insights from her extensive research and professional experience, addressing common misconceptions about stretching, the adaptiv…
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Anno's journey with Health Challenges: A Story of Resilience and Diagnosis
16:33
16:33
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Anno, from the United States, has been dealing with health issues including mast cell activation syndrome (MCAS), Ehlers-Danlos Syndrome (EDS), postural orthostatic tachycardia syndrome (POTS), and small intestinal bacterial overgrowth (SIBO). The journey with these health issues started after the birth of the guest's son in 2016, with severe diges…
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101. Breaking the Vicious Cycle of Chronic Illness with Ashok Gupta
1:00:10
1:00:10
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In this conversation, Dr. Linda Bluestein interviews Ashok Gupta about his experience breaking the vicious cycle of chronic illness when he had ME-CFS. They discuss the impact of chronic conditions, the brain's priority of survival, and the vicious cycle of symptoms. Ashok explains the Gupta Program, which aims to make patients aware of subtle dang…
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Caroline shares her story of MCAS, Dysautonomia, PTSD and LDN.
19:13
19:13
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Caroline from Canada shares her struggles with MCAS, Dysautonomia, PTSD and LDN.By Linda Elsegood
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Unraveling Endometriosis and Hypermobility with Alanna Trzcinski
42:54
42:54
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In this Zebra Talks episode, host Dr. Libby Hinsley interviews Alanna Trzcinski, host of the Endo Battery Podcast and president of EndoVillage. The episode delves into Alanna's journey with endometriosis, advocacy work, and the surprising intersections with hypermobility syndromes. Alanna sheds light on the challenges of living with both conditions…
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Milestones and Reflections: 100 Episodes of Bendy Bodies with Linda Bluestein, MD
1:18:43
1:18:43
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Dr. Linda Bluestein celebrates 100 episodes of Bendy Bodies discussing the most rewarding part of hosting the podcast and the challenges of podcasting. She emphasizes the importance of balancing the complexity of EDS and the need for healthcare professionals to understand and empathize with the struggles of patients with hypermobility conditions. D…
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Anne shares her LDN, MCAS, EDS story with us.
19:42
19:42
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Anne from the US shares her unique LDN, MCAS and EDS story with us.By Linda Elsegood
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GRIN2B: An Odyssey from Diagnosis to Evacuation
29:43
29:43
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Nadia Billous is a mother of two young sons, including 9-year-old Andryusha who was diagnosed with GRIN2B-related neurodevelopmental disorder. Nadia and her family are Ukrainian and lived in Kyiv at the time of Andryusha’s birth. At first, he was a typical, healthy baby but began to have some alarming symptoms around 3 months of age which led to a …
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Managing Long COVID and Dysautonomia in the Hypermobile Community with Naomi Bauer
43:44
43:44
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This episode of Zebra Talks features a discussion with Naomi Bauer, a Doctor of Physical Therapy with personal and professional experience in treating dysautonomia and Long COVID. Hosted by Dr. Libby Hinsley, they explore the challenges and management strategies for those living with hypermobility syndromes, focusing on the overlap between long COV…
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An LDN Prescriber's Experience- Dr. Cory Tichauer
50:02
50:02
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Dr. Cory Tichauer has 15 years experience and runs his naturopathic “Bear Creek Clinic” in Oregon. He majored in Neurobiology and also studied in Nepal. He has prescribed LDN for 10 years for 30 to 40 % of his patients because it controls the inflammation and pain so well. He also does lab work to check for viruses, infection, parasites, heavy meta…
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99. From News Anchor to Advocate: A POTS and EDS Journey with Summer Dashe
58:18
58:18
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Summer Dashe, a former news anchor and advocate for the chronically ill, shares her POTS and EDS journey. She covers how she manages her symptoms in everyday life and the challenges of getting diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) and EDS (Ehlers-Danlos Syndrome). #dysautonomia #ChronicIllness #POTSAwareness Takeaways Gett…
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Alissa talks us about her journey with MCAS, POTS and LDN.
20:03
20:03
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Alissa from the US tells us about her journey with MCAS, POTS and LDN.By Linda Elsegood
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Navigating Hypermobility and Perinatal Health with Megan Beach Gomes
35:50
35:50
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In this episode of the Zebra Talks podcast, host Libby Hinsley interviews Megan Beach Gomes, a specialized pelvic health physical therapist focusing on pelvic pain and perinatal care. She discusses her journey into specializing in pelvic health and the importance of physical therapy for pregnant and postpartum individuals, especially those dealing …
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98. Environmental Triggers of Mast Cell Disease with Tania Dempsey, MD
1:15:16
1:15:16
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Summary Dr. Tania Dempsey discusses mast cell activation syndrome (MCAS) with a focus on environmental triggers of mast cell disease. Takeaways Infections can trigger mast cell reactions and people with MCAS may react differently than those without. Identifying and addressing environmental triggers, such as mold and plastics, is important in managi…
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Michelle tells of her quest to finally get an MCAS diagnosis.
23:49
23:49
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Michelle and her husband Matt from the US share with us her quest of many years to finally get an MCAS diagnosis and then to have the correct treatment to help her, which included LDN.By Linda Elsegood
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Gender Affirming Care and Hypermobility with Dr. Laura Ross
37:18
37:18
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In this episode of Zebra Talks, host Dr. Libby Hinsley discusses the intersection of hypermobility syndromes and gender affirming care with Dr. Laura Ross, a pelvic health physical therapist and sex counselor. Dr. Ross, based in Decatur, Georgia, shares her journey and passion for providing inclusive care for all genders, focusing on pelvic pain, s…
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97. Learning to Spot the Signs of Ehlers-Danlos Syndromes with Guest Host, Kate Colbert
1:04:48
1:04:48
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In this special “EDS Awareness Month” episode of the Bendy Bodies Podcast, founder Dr. Linda Bluestein and guest host Kate Colbert discuss how everyone can learn to spot the signs of Ehlers-Danlos Syndromes. Dr. Bluestein emphasizes the importance of EDS awareness, as many people are still not getting the evaluations and care they need. She also de…
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Laura from the US shares her LDN, SIBO and MCAS journey with all the struggles that went along the way until she had better quality of life.By Linda Elsegood
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Pelvic Health Challenges in the Hypermobility Community
38:35
38:35
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In this episode of Zebra Talks, host Dr. Libby Hinsley delves into the complexities of pelvic health in individuals with hypermobility syndromes with special guest Beth Kemper. Beth is a seasoned physical therapist with dual certification in Women's Health and Pelvic Health. She discusses the prevalence of hypermobility among her pelvic PT patients…
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Darren talks about how difficult it was to get an MCAS Diagnosis.
18:43
18:43
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Darren from the UK talks about how difficult it was to get an MCAS Diagnosis. What treatments was he offered, and how did he find a private doctor to listen to him and prescribe LDN, among other treatments, which helped him tremendously.By Linda Elsegood
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Drop it Like it's POTS with Emily Rich, OT
43:38
43:38
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This episode of Zebra Talks features Dr. Libby Hinsley, physical therapist and author, hosting Emily Rich, an occupational therapist with a focus on treating Ehlers Danlos syndromes, dysautonomia, and related conditions. The discussion begins with Emily sharing her personal journey with Hypermobile Ehlers Danlos Syndrome and her motivation for spec…
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96. Coping with Dance Injuries and Career Transitions with Chelsea Pierotti, PhD and Guest Cohost, Jennifer Milner
42:20
42:20
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In this episode, Dr. Chelsea Pierotti discusses coping with dance injuries and transitions, both from a physical and psychological perspective. She explains that the way dancers appraise their injuries and their emotional response to them can greatly impact their coping mechanisms. Dr. Pierotti emphasizes the importance of shifting the mindset from…
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Catherine share her LDN, MCAS, gastroparesis, MALS, RLS, journey.
20:42
20:42
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Catherine from the US share her LDN, MCAS, gastroparesis, MALS, RLS,journey and struggles with us.By Linda Elsegood
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Linda Elsegood and Dr Jill Carnahan talk about her new documentary Doctor/Patient.
15:08
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Dr Jill Carnahan's new documentary, Doctor/Patient, is a must-watch for anyone dealing with or treating chronic diseases. In the documentary, Dr Carnahan shares her expertise and insights on chronic diseases, providing valuable information for patients and healthcare providers alike. Don't miss out on this informative and eye-opening film. Check ou…
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Defying Cystic Fibrosis One Mountain at a Time [Rebroadcast]
36:15
36:15
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Claudia from the US shares her experience of MCAS and POTS symptoms, how long it took her to be diagnosed and the treatments she's having.By Linda Elsegood
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Rebecca Mass-Krajewski NP, talks about the trifecta of HEDS, POTS, MCAS
29:58
29:58
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Rebecca Mass-Krajewski, NP, talks about how LDN can help patients with the trifecta of HEDS, POTS, and MCAS, along with the percentiles of improvement she sees in her clients.By Linda Elsegood
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95. Pain Care Redefined: Non-Drug Therapies for Pain Relief with Heather Tick, MD
1:40:11
1:40:11
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Dr. Heather Tick, a renowned pain expert, discusses non-drug therapies for pain relief; applying the principles of integrative medicine for comprehensive pain care. She emphasizes the need for education and understanding of pain neuroscience to empower patients. Dr. Tick also highlights the significance of nutrition in reducing chronic pain and inf…
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Navigating Genetic Testing in Pregnancy & the Path to FiND Genetics
52:02
52:02
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When Ushta was pregnant with her third child, she found herself being told which tests she would be having done—rather than being offered options and having them explained to her. As a genetic counselor working in reproductive genetics, she had also started fielding many questions from individuals looking for more insight and direction in a time of…
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94. Support and Bracing for Hypermobile Joints with Susan Chalela, MPT, and Guest Cohost, Scott Borjeson
1:05:28
1:05:28
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In this Bendy Bodies with the Hypermobility MD podcast, Susan Chalela, MPT discusses support and bracing for hypermobile joints. She shares how her personal and professional experience with joint hypermobility led her to develop the Finding Functional Foundations approach which is being taught as part of The Ehlers-Danlos Society EDS ECHO program. …
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Miriam Martinez Callejas from Rosewaylabs talks about LDN - Low Dose Naltrexone
24:22
24:22
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Miriam Martinez Callejas is the Superintendent Pharmacist and co-founder of Roseway Labs. During her master’s degree in Pharmacy, she trained in formulating medication and her first job was in a compounding pharmacy in Spain. There, she developed a passion for helping others using her experience and knowledge of medicine. At Roseway Labs, both pres…
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Next Chapter: Losing My Mother, Previving For My Children
55:58
55:58
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Eleanor first interviewed Heather in 2018. At that time, Heather was several years out from completing a prophylactic mastectomy and oophorectomy related to her BRCA1 mutation and was living in Singapore. Her children were ages 10, 12, and 13. Heather shared her story of losing her mother to BRCA1-related breast cancer when she was only 13 and her …
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