Best Hypermobile Podcasts (2024)

1
75 - Whealth - Hypermobile Couple Katie Goss and Andrew Dettelbach 1:00:23

10d ago1:00:23

1:00:23

On this episode, hypermobile couple Katie Goss and Andrew Dettelbach discuss their experiences living with hypermobility as well as their insights from working with hypermobile people through their practice and the organization they founded: Whealth.Links:https://spreadwhealth.com/overcome-painhttps://www.instagram.com/whealthhttps://www.facebook.c…

1
Linking Mast Cell Activation, Autoimmunity, and EDS with Kara Wada, MD 1:00:02

5h ago1:00:02

1:00:02

In this episode, Dr. Linda Bluestein, the Hypermobility MD, delves into the intricate connections between the immune system and hypermobility disorders with Dr. Kara Wada. A quadruple board-certified physician and Sjogren's patient, Dr. Wada shares her expertise on mast cell activation syndrome, autoimmunity, and the role of inflammation. Discover …

1
78 - Allysa Seely: USA Paralympian Gold Medalist on Medical Gaslighting and Advocacy Work 52:19

37m ago52:19

52:19

Today our guest is paralympic Gold Medalist Allysa Seely. Allysa is a paratriathlon athlete with Ehlers-Danlos Syndrome and related conditions like Chiari II. Beyond her gold medal award, Allysa is also a three-time world paratriathlon champion and a 17-time ITU World Paratriathlon Event medalist with 12 golds, 3 silvers, and 2 bronzes. In 2016 at …

1
77 - Movement Approaches, Nervous System Regulation & More (with Andy Hsieh, CPT-ACE) 53:30

2h ago53:30

53:30

On this episode, our guest is Andy Hsieh of Movement Reborn located in San Diego, CA. Andy is a certified personal trainer through the American Council of Exercise, as well as a specialist in neurokinetic training. Andy runs Movement Reborn, an in-person personal training practice that also has some helpful YouTube videos for those who are not in t…

1
Examining The Future of EDS Diagnosis and Care with EDS Society CEO Lara Bloom 1:04:27

4d ago1:04:27

1:04:27

In this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the Ehlers-Danlos Society. Lara shares her journey in advocating for rare diseases, the progress made in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and the upcoming updates in diagnostic c…

1
Living with MCAS, POTS, hEDS, PCOS, and Sjogren's: Lynsday's daily struggles and triumphs. 17:51

3h ago17:51

17:51

Living with the chronic conditions of Mast Cell Activation Syndrome (MCAS), Postural Orthostatic Tachycardia Syndrome (POTS), hypermobile Ehlers-Danlos Syndrome (hEDS), Polycystic Ovary Syndrome (PCOS), and Sjogren's Syndrome can be extremely challenging. Lindsay, who lives with these conditions, must face numerous daily struggles and triumphs. Des…

1
Understanding POTS, MCAS, and hEDS: Tracy's Personal Experience with these Complex Conditions 18:53

3d ago18:53

18:53

Tracy from the United States, has bravely shared her personal experience dealing with three intricate medical conditions: Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS), and Hypermobile Ehlers-Danlos Syndrome (hEDS). Her story is an eye-opener for many as these conditions are often misunderstood and difficult…

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76 - Nervous System Regulation, Pelvic Health & More (Dr. Rita White DPT) 49:24

3d ago49:24

49:24

On this episode, we are joined by Dr. Rita White, Doctor of Physical Therapy. Rita is a pelvic health physical therapist with over 10 years of experience helping people reconnect to their body so they can overcome pain. Her areas of expertise include pelvic health and pain conditions, especially hypermobile Ehlers-Danlos Syndrome (hEDS)/ Hypermobil…

1
The Hidden Connection: Doreena's Discovery of MCAS Alongside Lyme Disease 25:49

10d ago25:49

25:49

In this poignant narrative, Doreena delves into the hidden connection between her struggles with Lyme disease and MCAS. She takes us through her emotional journey from childhood to the present day, recounting the trials and tribulations she faced. With a deep sense of empathy, she shares how she turned her experiences into a tool to unravel the mys…

1
Understanding Upper Cervical Instability with Taylor Goldberg 41:32

12d ago41:32

41:32

If you have a bendy neck, this one's for you! For this week's episode of Zebra Talks, Libby has a fascinating conversation with Taylor Goldberg, a chiropractor turned virtual hypermobility coach. Taylor shares a bit about her personal journey with hypermobility and her shift to a virtual coaching model, and then helps us understand all things upper…

1
Brandi talks about MCAS, EDS and Dysautonomia 19:32

17d ago19:32

19:32

Brandi from the US shares her life with Ehlers-Danlos, MCAS, and Dysautonomia.By Linda Elsegood

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Bendy Belly Trouble with Lisa Sherman 1:11:05

20d ago1:11:05

1:11:05

In this episode of Zebra Talks, Dr. Libby Hinsley welcomes Lisa Sherman, a licensed acupuncturist with expertise in functional medicine and molecular biology, to discuss digestive issues among people with hypermobility syndromes. They delve into the prevalence of gastrointestinal problems like dysmotility, microbial dysbiosis, and structural droopi…

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74 - Dr. Brian Cunningham, DPT (The Swim Doc) on Swimming & Hypermobility 1:17:17

21d ago1:17:17

1:17:17

In this episode, Dr. Brian Cunningham (The Swim Doc) talks about coaching and working with swimmers of all ages, strengths, and abilities (including hypermobile swimmers). Dr. Cunningham is an experienced physical therapist and swimmer who teaches swimmers about the specific muscles they need to engage as well as the habits and strategies of elite …

1
Natalie shares her Eds (hypermobile syndrome), pots, monoclonal mast disease experience. 20:35

27d ago20:35

20:35

Natalie from the US shares her Eds (hypermobile syndrome), pots, monoclonal mast disease experience with us.By Linda Elsegood

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Season 4 Wrap: Reading Your Comments 6:58

1M ago6:58

6:58

Welcome back, every Bendy Body! In this special episode, I wrap up season four and share exciting plans for season five. Join me as I reflect on our journey, from focusing on high-risk populations like dancers and gymnasts to diving deep into medical topics. Listen in for gratitude-filled shoutouts from our wonderful listeners as I read their heart…

1
Katie talks about LDN, MCAS, POTS and EDS 19:00

1M ago19:00

19:00

Katie from the US shares her LDN, MCAS, POTS and EDS (type 4 molecular diagnosis) Journey with us.By Linda Elsegood

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The Science of Stretching with Jules Mitchell 41:21

1M ago41:21

41:21

In this episode of Zebra Talks, Libby welcomes biomechanics expert Jules Mitchell to discuss the science of stretching and connective tissue behavior, particularly in the context of hypermobility syndromes. Jules provides insights from her extensive research and professional experience, addressing common misconceptions about stretching, the adaptiv…

1
Anno's journey with Health Challenges: A Story of Resilience and Diagnosis 16:33

1M ago16:33

16:33

Anno, from the United States, has been dealing with health issues including mast cell activation syndrome (MCAS), Ehlers-Danlos Syndrome (EDS), postural orthostatic tachycardia syndrome (POTS), and small intestinal bacterial overgrowth (SIBO). The journey with these health issues started after the birth of the guest's son in 2016, with severe diges…

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101. Breaking the Vicious Cycle of Chronic Illness with Ashok Gupta 1:03:49

2M ago1:03:49

1:03:49

In this conversation, Dr. Linda Bluestein interviews Ashok Gupta about his experience breaking the vicious cycle of chronic illness when he had ME-CFS. They discuss the impact of chronic conditions, the brain's priority of survival, and the vicious cycle of symptoms. Ashok explains the Gupta Program, which aims to make patients aware of subtle dang…

1
Caroline shares her story of MCAS, Dysautonomia, PTSD and LDN. 19:13

1M ago19:13

19:13

Caroline from Canada shares her struggles with MCAS, Dysautonomia, PTSD and LDN.By Linda Elsegood

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Unraveling Endometriosis and Hypermobility with Alanna Trzcinski 42:54

1M ago42:54

42:54

In this Zebra Talks episode, host Dr. Libby Hinsley interviews Alanna Trzcinski, host of the Endo Battery Podcast and president of EndoVillage. The episode delves into Alanna's journey with endometriosis, advocacy work, and the surprising intersections with hypermobility syndromes. Alanna sheds light on the challenges of living with both conditions…

1
Milestones and Reflections: 100 Episodes of Bendy Bodies with Linda Bluestein, MD 1:20:42

2M ago1:20:42

1:20:42

Dr. Linda Bluestein celebrates 100 episodes of Bendy Bodies discussing the most rewarding part of hosting the podcast and the challenges of podcasting. She emphasizes the importance of balancing the complexity of EDS and the need for healthcare professionals to understand and empathize with the struggles of patients with hypermobility conditions. D…

1
Anne shares her LDN, MCAS, EDS story with us. 19:42

2M ago19:42

19:42

Anne from the US shares her unique LDN, MCAS and EDS story with us.By Linda Elsegood

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GRIN2B: An Odyssey from Diagnosis to Evacuation 29:43

2M ago29:43

29:43

Nadia Billous is a mother of two young sons, including 9-year-old Andryusha who was diagnosed with GRIN2B-related neurodevelopmental disorder. Nadia and her family are Ukrainian and lived in Kyiv at the time of Andryusha’s birth. At first, he was a typical, healthy baby but began to have some alarming symptoms around 3 months of age which led to a …

1
Managing Long COVID and Dysautonomia in the Hypermobile Community with Naomi Bauer 43:44

2M ago43:44

43:44

This episode of Zebra Talks features a discussion with Naomi Bauer, a Doctor of Physical Therapy with personal and professional experience in treating dysautonomia and Long COVID. Hosted by Dr. Libby Hinsley, they explore the challenges and management strategies for those living with hypermobility syndromes, focusing on the overlap between long COV…

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An LDN Prescriber's Experience- Dr. Cory Tichauer 50:02

2M ago50:02

50:02

Dr. Cory Tichauer has 15 years experience and runs his naturopathic “Bear Creek Clinic” in Oregon. He majored in Neurobiology and also studied in Nepal. He has prescribed LDN for 10 years for 30 to 40 % of his patients because it controls the inflammation and pain so well. He also does lab work to check for viruses, infection, parasites, heavy meta…

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99. From News Anchor to Advocate: A POTS and EDS Journey with Summer Dashe 1:02:17

2M ago1:02:17

1:02:17

Summer Dashe, a former news anchor and advocate for the chronically ill, shares her POTS and EDS journey. She covers how she manages her symptoms in everyday life and the challenges of getting diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) and EDS (Ehlers-Danlos Syndrome). #dysautonomia #ChronicIllness #POTSAwareness Takeaways Gett…

1
Alissa talks us about her journey with MCAS, POTS and LDN. 20:03

2M ago20:03

20:03

Alissa from the US tells us about her journey with MCAS, POTS and LDN.By Linda Elsegood

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Navigating Hypermobility and Perinatal Health with Megan Beach Gomes 35:50

2M ago35:50

35:50

In this episode of the Zebra Talks podcast, host Libby Hinsley interviews Megan Beach Gomes, a specialized pelvic health physical therapist focusing on pelvic pain and perinatal care. She discusses her journey into specializing in pelvic health and the importance of physical therapy for pregnant and postpartum individuals, especially those dealing …

1
98. Environmental Triggers of Mast Cell Disease with Tania Dempsey, MD 1:19:15

2M ago1:19:15

1:19:15

Summary Dr. Tania Dempsey discusses mast cell activation syndrome (MCAS) with a focus on environmental triggers of mast cell disease. Takeaways Infections can trigger mast cell reactions and people with MCAS may react differently than those without. Identifying and addressing environmental triggers, such as mold and plastics, is important in managi…

1
Michelle tells of her quest to finally get an MCAS diagnosis. 23:49

2M ago23:49

23:49

Michelle and her husband Matt from the US share with us her quest of many years to finally get an MCAS diagnosis and then to have the correct treatment to help her, which included LDN.By Linda Elsegood

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Gender Affirming Care and Hypermobility with Dr. Laura Ross 37:18

2M ago37:18

37:18

In this episode of Zebra Talks, host Dr. Libby Hinsley discusses the intersection of hypermobility syndromes and gender affirming care with Dr. Laura Ross, a pelvic health physical therapist and sex counselor. Dr. Ross, based in Decatur, Georgia, shares her journey and passion for providing inclusive care for all genders, focusing on pelvic pain, s…

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97. Learning to Spot the Signs of Ehlers-Danlos Syndromes with Guest Host, Kate Colbert 1:08:47

2M ago1:08:47

1:08:47

In this special “EDS Awareness Month” episode of the Bendy Bodies Podcast, founder Dr. Linda Bluestein and guest host Kate Colbert discuss how everyone can learn to spot the signs of Ehlers-Danlos Syndromes. Dr. Bluestein emphasizes the importance of EDS awareness, as many people are still not getting the evaluations and care they need. She also de…

1
Laura talks about LDN, SIBO and MCAS. 19:42

2M ago19:42

19:42

Laura from the US shares her LDN, SIBO and MCAS journey with all the struggles that went along the way until she had better quality of life.By Linda Elsegood

1
Pelvic Health Challenges in the Hypermobility Community 38:35

2M ago38:35

38:35

In this episode of Zebra Talks, host Dr. Libby Hinsley delves into the complexities of pelvic health in individuals with hypermobility syndromes with special guest Beth Kemper. Beth is a seasoned physical therapist with dual certification in Women's Health and Pelvic Health. She discusses the prevalence of hypermobility among her pelvic PT patients…

1
Darren talks about how difficult it was to get an MCAS Diagnosis. 18:43

3M ago18:43

18:43

Darren from the UK talks about how difficult it was to get an MCAS Diagnosis. What treatments was he offered, and how did he find a private doctor to listen to him and prescribe LDN, among other treatments, which helped him tremendously.By Linda Elsegood

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Drop it Like it's POTS with Emily Rich, OT 43:38

3M ago43:38

43:38

This episode of Zebra Talks features Dr. Libby Hinsley, physical therapist and author, hosting Emily Rich, an occupational therapist with a focus on treating Ehlers Danlos syndromes, dysautonomia, and related conditions. The discussion begins with Emily sharing her personal journey with Hypermobile Ehlers Danlos Syndrome and her motivation for spec…

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96. Coping with Dance Injuries and Career Transitions with Chelsea Pierotti, PhD and Guest Cohost, Jennifer Milner 46:19

3M ago46:19

46:19

In this episode, Dr. Chelsea Pierotti discusses coping with dance injuries and transitions, both from a physical and psychological perspective. She explains that the way dancers appraise their injuries and their emotional response to them can greatly impact their coping mechanisms. Dr. Pierotti emphasizes the importance of shifting the mindset from…

1
Catherine share her LDN, MCAS, gastroparesis, MALS, RLS, journey. 20:42

3M ago20:42

20:42

Catherine from the US share her LDN, MCAS, gastroparesis, MALS, RLS,journey and struggles with us.By Linda Elsegood

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Linda Elsegood and Dr Jill Carnahan talk about her new documentary Doctor/Patient. 15:08

3M ago15:08

15:08

Dr Jill Carnahan's new documentary, Doctor/Patient, is a must-watch for anyone dealing with or treating chronic diseases. In the documentary, Dr Carnahan shares her expertise and insights on chronic diseases, providing valuable information for patients and healthcare providers alike. Don't miss out on this informative and eye-opening film. Check ou…