Best Kenzie Mari Podcasts (2024)

1
INTERVIEW: Mathew Horsnell & Narcolepsy 30:51

2+ y ago30:51

30:51

Today we are sitting down with Matthew Horsnell from TREND Community. TREND Community’s mission is to improve the quality of life for those living with rare and chronic diseases. They utilize technology to leverage social media to understand the disease burden. Let’s dive in! ____________________________________________ This episode was produced an…

1
INTERVIEW: Tori and Congenital Heart Defect 20:15

2+ y ago20:15

20:15

Meet Tori: Tori is a congenital heart defect survivor and has undergone multiple open-heart surgeries and procedures throughout her life, including a life-changing visit to the ER where she narrowly escaped cardiac arrest and was defibrillated 3 times. Sharing her story of resilience and lessons for living victoriously, Tori is a bestselling author…

1
INTERVIEW: Kenzi Paquin & Cervical Cancer 52:49

2+ y ago52:49

52:49

Your listening experience is extremely important to us with that being said please forgive Kristine's audio track. We apologize and will continue to work to improve your overall experience. Thank you for helping us bridge the gap between rare diseases and the rest of the world. _____________________________________________ Meet Kenzi: I had a posit…

1
INTERVIEW: Lindsay 26:52

2+ y ago26:52

26:52

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chi…

1
INTERVIEW: Marie & R.A.R.E Advocates 1:06:35

2+ y ago1:06:35

1:06:35

Meet Marie: Marie Dagenaia-Lewis is a very pridefully disabled art activist, speaker, author and creator of the Chronically Spooky series, a coloring book inspired by Disability & Chronic Illness. On top of running her own business, she is the Content Manager at Diversability and the Social Media Manager at Omnium Circus. She spent almost a decade …

1
INTERVIEW: Amber 41:05

2+ y ago41:05

41:05

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chi…

1
INTERVIEW: Roxy Murray & Multiple Sclerosis 39:00

2+ y ago39:00

39:00

Roxy ( aka Roxanne Channel ) Murray Is a Multiple Sclerosis Warrior , Blogger, Podcaster , Fashion Stylist and MS Advocate. She created her podcast @SickandSickening_Podcast while trying to combat her own depression and isolation to navigate life with a chronic illness as a MS sufferer from a ethnic background . Sharing real unfiltered stories from…

1
INTERVIEW: Brittany 15:09

2+ y ago15:09

15:09

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chi…

1
INTERVIEW: David Connor & RDDT 45:10

2+ y ago45:10

45:10

Rare Disease Data Trust is a new and innovative patient-centric diagnostic model that accelerates the discovery and diagnosis of lost rare disease patients, through direct collaboration with large provider groups and health systems, and compliant commercial sponsorship of targeted searches. To healthcare data owners, RDDT is a first to market innov…

1
INTERIVEW: Dima & Through The Pain 23:40

2+ y ago23:40

23:40

_____________________________________________________________ At the age of six months, Dima Hendricks was diagnosed with Sickle Cell Anemia. In the face of adversity, Dima is determined to live a life filled with purpose. As a patient advocate and a Sickle Cell Heath Coach for the CARISMA study. Dima’s mission is to help other sickle cell warriors…

1
INTERVIEW: Gigi Robinson & Manifesting A Life You Love 48:17

2+ y ago48:17

48:17

Meet Gigi Robinson: I am a digital artist, health & wellness advocate, current M.S. Candidate, and graduate of the University of Southern California with a Bachelors in Fine Arts, Design, and Photography. I have strong presences across Tik Tok (100k views on average) and Instagram (15.5k+ followers), and, as of this year, I have been developing my …

1
INTERVIEW: Michaela Mardiga and The Valentine Project 47:11

2+ y ago47:11

47:11

Meet Michaela: Michaela G. Margida is one very smart cookie who has dedicated her life to acquiring and translating knowledge into meaningful actions that improve the world. She happens to be a Ph.D. scientist, and she is very proud of that, because she worked extremely hard for it! However, she is a human being first, and has worked hard to define…

1
INTERVIEW: Tami Stroud & The Fibrospot 26:28

2+ y ago26:28

26:28

Hey Peeps! I’m your host Kristine and I’m flying solo! Today we are sitting down with Tami, founder of The Fibro Spot, an online shop dedicated to people with Fibromyalgia. Tami was diagnosed with Fibromyalgia herself in 2009 and I am sure we will have tons in common! Let’s dive in! ____________________________________ This episode was edited by: R…

1
INTERVIEW: Kristen Manieri and Better Daily Mindfulness 33:44

2+ y ago33:44

33:44

Meet Kristen: Have you ever had the feeling that you’re off course? Or maybe that life is moving so fast that you don’t even have time to catch your breath, never mind check in with yourself? Without setting time and space to be with our inner world, the outer world takes over. However, when we establish and cultivate a daily centering practice, we…

1
INTERVIEW: Amy Grover and Catalyst Pharma 29:34

3y ago29:34

29:34

For a Pharma company with an approved treatment for a rare disease, patient advocacy and community relations play an integral role in its expansion and progress. Without the support and trust of the rare disease community a pharmaceutical company cannot reach its patients, a reason why building and fostering strong relationships with the patient au…

1
INTERVIEW: Aaron Huey and Parenting Teens that Struggle 35:49

3y ago35:49

35:49

Hey Peeps! It’s Kristine and I am flying solo! Today we are talking with Aaron Huey, the founder of Parenting Teens that Struggle and the host of the #1 parenting podcast Beyond Risk and Back. He is also a Parent Coach, teen addiction interventionist, a facilitator of powerful parenting events, and a happy husband and father to two adults. This epi…

1
INTERVIEW: Sam Thiara & Telling Your Story 38:07

3y ago38:07

38:07

Through his tireless work, Sam continues to be committed to the betterment of communities. In 2016, Sam received the Governor General’s Sovereign’s Volunteer Medal as a past recipient of the Governor General’s Caring Canadian Award. Also, in 2012 he received the Queen’s Diamond Jubilee Medal and the Rick Hansen Difference Maker medallion. As a writ…

1
INTERVIEW: Amanda Griffith Atkins and Prader-Willi Syndrome 30:40

3y ago30:40

30:40

Hey peeps, this week I am so excited to sit down and chat with Amanda, not only is she a member of this RARE. herd but she is also a therapist. Meet Amanda: I'm a mom to a 12-year old with Prader-Willi Syndrome as well as a licensed marriage and family therapist. My son got his diagnosis when he was 7 weeks old. It turned my life upside down and I …

1
INTERVIEW: Riley and Spina Bifida 22:36

3y ago22:36

22:36

Hey Peeps welcome back to another episode of because we are strong this week we are sitting down with Riley who was diagnosed in utero as a spina beautiful. Riley is using her experience to move mountains and show others how powerful adaptive beauty really is. I'm your host Kristine so let's dive in. ______________________________________________ T…

1
INTERVIEW: Heather Hutchinson and Holding On by Letting Go 25:17

3y ago25:17

25:17

Meet Heather: Heather Hutchison is an award-winning singer/songwriter and author of the new memoir, Holding On by Letting Go. She shares her story of life as a blind person both in Canada and Latin America, her struggles with anxiety and depression, the unique challenges of being hospitalized for psychiatric care during the COVID-19 pandemic, and t…

1
Those RARE. Girls: Thankfully RARE. 2021 27:37

3y ago27:37

27:37

Happy THANKSGIVING peeps! Join us as we go over a year to be grateful for. __________________________________________________________ Connect with us: @findyourrare on all your favorite social media channels https://www.findyourrare.com The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to co…

1
INTERVIEW: Christine Rich & Chronic 39:34

3y ago39:34

39:34

Christine Rich is an award-winning marketing executive, retired spin instructor, speaker, mentor, mama, advocate, and author. She is passionate about raising awareness about the intersection of chronic illness and mental health and advocating for better support for patients and physicians. She serves on the board of directors of the Northeast Ohio …

1
Those RARE. Girls: T.Co's Story 10:49

3y ago10:49

10:49

Theresa (aka T.Co) is the marketing coordinator for RARE. Her journey in the RARE. world began in 2017 after an unfortunate accident with a camping chair. She developed a rare condition called Complex Regional Pain Syndrome (CRPS) where her brain misfires pain signals. After extensive physical rehab and finding the right medication, Theresa went in…

1
INTERVIEW: Leeya Alperin & GLA 31:02

3y ago31:02

31:02

Hey Peeps! Welcome back to another weekly episode of Because We are Strong! This week we are talking with Leeya, who was only 15 years old when she started down this rare journey. In her sophomore year, she was diagnosed56 with GLA which changed her and her family's lives forever. Now at just 20 years old, Leeya has found a passion for advocacy. I …

1
INTERVIEW: Tri Bourne Olympian & Myositis Warrior 1:14:11

3y ago1:14:11

1:14:11

Hey Peeps! It’s Kristine and I am flying solo! Today we have a very special guest, Olympic volleyball player Tri Bourne! Not only is Tri an elite athlete, he also is a RARE. athlete, having been diagnosed with Dermatomyositis in 2016. This is going to be a great episode, so let’s dive in _____________________________________________________________…

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INTERVIEW: Barby Ingles, The Cheerleader of Hope 1:00:23

3y ago1:00:23

1:00:23

Meet Barby Ingles: I was living my dream. I trained and performed cheerleading, dance and gymnastics starting at age 4 through college. Straight out of college I started my own cheer/dance training company. A year later I was hired by Washington State University as the head spirit program coach. I have been battling chronic pain since 1997. First w…

1
INTERVIEW: Golara Haghtalab & Immigrant: Courage Required 22:12

3y ago22:12

22:12

Hey, Peeps welcome to this bonus episode of because we are strong. Today I am so excited to introduce you to an up-and-coming author who I happened to have stumbled upon while strolling on Instagram. Golara author of Immigrant courage required. The invisible challenges of the estimated 272 million international migrants is a topic that needs to be …

1
INTERVIEW: Joe Bullok & Stage 3B Colorectal Cancer 55:03

3y ago55:03

55:03

I am a survivor of stage 3b colorectal cancer. I was diagnosed in May 2018 after a routine colonoscopy. I have been NED since February of 2019. Trevor Maxwell a stage IV CRC patient who created Manuptocancer.com ask me to help him create The Howling Place Group on Facebook. We have grown to 1100 men strong in 16 months. The goal is to help men not …

1
INTERVIEW: Fez Awan & His Three Kidneys 52:09

3y ago52:09

52:09

Show Notes: Hey peeps! Welcome back to another episode of Because We Are Strong. Today we are sitting down with a very special guest from the UK who has been nominated for a we go health award this year and is a fierce advocate. Fez has had 3 kidney transplants but continues to fight not only for himself but for others through mentoring and his wor…

1
INTERVIEW: D-REK & The Angel Warriors 44:18

3y ago44:18

44:18

Meet D-Rek Derek Canas (AKA D-REK), born a sweet, cute, seemingly healthy baby, had everything going for him until the age of 3 months, when he was surrounded by many doctors talking about transposition of the great arteries, pacemakers, and blood transfusions. His parents now had, what they called a “battery operated son”. This was a scary scenari…

1
INTERIVEW: Seth Rotberg & Our Odyssey 25:51

3y ago25:51

25:51

Hey Peeps! Welcome back to another episode of the Because We are Strong Podcast, where we sit down every week to hear the untold stories of those in the rare disease and chronic illness community. This week we are sitting down with Seth, a rare disease fighter who founded Our Odyssey, a foundation that connects young adults who have rare diseases w…

1
INTERVIEW: Charles Mickles & The Fight To Choose Hope 55:17

3y ago55:17

55:17

Meet Charles: I have battled Rheumatoid Arthritis since the age of 15, have my hip replaced/revised 3 times, and 2 years ago was diagnosed with Young Onset Parkinson's Disease (I am only 46 years old). I have had many other health struggles and currently seek to share with others that even in the face of all this, there is much to be thankful for a…

1
INTERVIEW: Michelle Fruhschien & Mamabear4rare 39:56

3y ago39:56

39:56

Just a mamabear advocating and spreading awareness. Motivated by my daughter, driven by change My journey is just beginning, but my mission will not be complete until treatment and/or a cure. My daughter was born and diagnosed 8 months later with a rare disease called Jordan’s Syndrome. There are about 180 individuals worldwide diagnosed and the nu…

1
MINISODE: Community Over Competition 26:36

3y ago26:36

26:36

Join Kristine and special guest host Michelle as they talk about community, competition and how we come together to make change. The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go …

1
INTERVIEW: Jessica Del Toro "Miracle Baby of Colorado" 25:26

3y ago25:26

25:26

Meet Jessica Romero⬇️ My name is Jessica Romero I was born October 26, 1983 at Denver General Hospital in Denver, Colorado. I was born 3 months premature weighing one pound, 7 ounces. The Rocky Mountain News crowned me the “Miracle Baby of Colorado". Everything was developed except my lungs. I was born with a collapsed left lung in which i was diag…

1
INTERVIEW: Jenny & Life's a Polyp 20:37

3y ago20:37

20:37

Hey peeps and welcome back to another episode of the Because We Are Strong podcast. Today we are sitting down with Jenny, a blogger and entrepreneur, who battles FAP and Short Bowel Syndrome. Jenny uses her platforms and shop to raise awareness and research funds. One thing that Jenny wants our community to know: They are not alone in their rare di…

1
INTERVIEW: Alex Herold & The creation of an Adaptive Fashion Market 45:07

3y ago45:07

45:07

Patti + Ricky is the Adaptive Fashion Marketplace for adults and kids with disabilities, chronic conditions, patients, seniors, and caregivers. Shopping does not typically include or embrace differences and individuals with disabilities. Patti + Ricky changes this with an inclusive shopping experience for all. Patti Connell was a mother, sister, au…

1
INTERVIEW: Belinda The Angry Bladder 43:52

3y ago43:52

43:52

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chi…

1
Chrissy Grube Make Life A Party 38:13

3+ y ago38:13

38:13

This episode is in loving memory of Chrissy Grube The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep system…

1
INTERVIEW: Linds Miranda & Tell Me More Gifts 54:38

3+ y ago54:38

54:38

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chi…

1
INTERVIEW: Manisha The Patient Doctor 27:41

3+ y ago27:41

27:41

Welcome back to another episode of Because We Are strong. This week we are sitting down with Manisha, the Patient Doc and author of Butterflies, Boards and Blessings: A Doctor’s Journey to Thriving with Lupus. The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of yo…

1
INTERVIEW: Felicia Distad & Fight Like a Mama 38:22

3+ y ago38:22

38:22

Hey Peeps! Welcome back to another episode of the Because We Are Strong podcast ! Where every week we sit down with chronic illness warriors across the globe in the hopes that sharing their stories will help bridge the gap between rare diseases and the rest of the world. This week we are chatting with Felicia, a Mother, Wife, Book Nerd, Podcaster, …

1
INTERVIEW: Chardell & Stronger For Ben 36:09

3+ y ago36:09

36:09

Welcome back for another episode of Because We are Strong. Today we are sitting down with Chardell, a registered dietician and mother of 3. One of Chardell’s children has Phelan-McDermid Syndrome (22q13 deletion). Currently, she is helping special needs parents take better care of their families with healthy eating. Meet Chardell: Chardell Buchanan…

1
INTERVIEW: Patti M. Hall & Loving Large 59:39

3+ y ago59:39

59:39

This week we are sitting down with Patti, a writer, book coach, rare disease advocate, and author of loving large, a mother's rare disease memoir. Meet Patti: I'm an author, writing coach, and publishing project manager, and a proud #memoiraholic. I adore non-fiction and especially the memoir and personal narrative genre. I'm an architect of story.…

1
INTERVIEW: Carly Flumer 27:35

3+ y ago27:35

27:35

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chi…

1
INTERVIEW: Autumn Prince & UCD 19:12

3+ y ago19:12

19:12

Hey Peeps! Welcome back for another episode of Because we are strong! Today we are sitting down with Autumn, who has a rare medical condition called UCD also known as UCD. Autumn is 28 years old and was diagnosed with UCD when she was a young infant. The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and u…

1
INTERVIEW: Jason 36:35

3+ y ago36:35

36:35

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chi…

1
INTERVIEW: Gerry Langan. & PHN 34:44

3+ y ago34:44

34:44

This week on the BECAUSE WE ARE STRONG PODCAST we featured Gerry a mom and PHN warrior; meet Gerry In 2018, I was diagnosed with Idiopathic Pulmonary Arterial Hypertension. Since diagnosis, I have felt the draw to share my story so that you can find hope and inspiration from it. PH patients and chronic illness patients alike fight battles every da…

1
Interview: Jessica Hatch & Hatching For Health 36:54

3+ y ago36:54

36:54

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chi…

1
INTERVIEW: Melody Olander & But You Don't Look Sick 48:22

3+ y ago48:22

48:22

Hi! My name is Melody Olander and I’m the founder of the community and non-profit “But You Don’t Look Sick.” This community started by sharing my own story living with CIDP, POTS and EDS. I hope by sharing my story it helps someone feel less alone. Connect with Melody: Website: www.butudontlooksick.com Insta: @butyoudontlooksickofficial Podcast: Re…

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