show episodes
 
Discomfort Zone features immersive stories on chronic illness and disability showcasing our vulnerability, wellness, and resilience. My guests and I find comfort by turning towards discomfort, welcoming it, and laughing at it. I am an engineering graduate who reinvented himself as a podcaster and chronic illness/disability advocate after developing fibromyalgia, myalgic encephalomyelitis (ME/CFS), and postural orthostatic tachycardia syndrome (POTS).
 
Spoonie Radio is a Chronic Fatigue Syndrome & Fibromyalgia Podcast highlighting effective treatment strategies as well as insight from clinicians, researchers, & advocates. Each show focuses on evidenced-based, practical information to spread hope and understanding about an otherwise invisible illness. This show is brought to you by Dr. Courtney Craig, recovered CFS patient, clinician, and creator of www.drCourtneyCraig.com
 
The Rest Room is a podcast about living well with chronic illness. I'm Natasha Lipman, an award-winning chronic illness blogger and journalist from London. I've been working with experts to bring you evidence-based guides on a whole host of topics like pacing, exercise, and chronic pain. I'll also be talking to people who live with chronic illness and disability who are doing awesome things and learning how they make it work, as well as digging deep into the businesses and brands that are fo ...
 
Derek and Victoria are no strangers to chronic Illness. Beyond Your Diagnosis is a podcast about two strangers with two completely different chronic illnesses who found each other through the power of social media. Join them for the tears, the laughter and the “did they just really say that?!” moments while they both continue to navigate the long and winding road of their chronic illnesses.
 
Welcome to the because we are a strong podcast. A podcast inspired by stories of struggle and strength. A place where you can feel safe enough to share every part of your rare story. The good, the bad, the happy, and anything in between. Many times those in the rare disease community feel isolated from the rest of the world. rare disease comes with its own set of unique challenges, ones that are hard for the outside world to understand. Through our stories, we can bridge the gap between a la ...
 
Check in for a dose of stigma-break, humor-filling, empowerment building life hacks and motivation for all the “medically-adult-ish” young people. The InvisiYouth Chat Sessions: A Video Podcast Series, is part of InvisiYouth Charity. This international nonprofit helps teens and young adults with various chronic illnesses and disabilities gain the right lifestyle programs, empowerment and fun events to learn how to keep living life. Twice a month, our founder, Dominique Viel, will bring guest ...
 
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show series
 
IT WAS A KNIGHT TO DISMEMBER... Read by RPG Rabbit (she/her) Special Guest: Carter (she/her) Second spooky Halloween episode even though it's November Music credits! "Believe in the Magic of Halloween by WinnieTheMoog Link: https://filmmusic.io/song/6718-believe-in-the-magic-of-halloween License: http://creativecommons.org/licenses/by/4.0/" "Dreamy…
 
Join Monica, Eva and Dr. Lee for an untamed discussion on politics, human rights, family dynamics and, oh yeah, some holiday stuff thrown in there :p "Take it or leave it - I have an opinion" (all of us in a nutshell) Just a taste of what we talk about: Election results & compassion for human rights Love languages, sex and the "diamond rule" vs. th…
 
2020 a year no one could have predicted. One we honestly weren’t sure how to be thankful for. But once we sat down and thought about it we realized despite the ridiculousness of 2020, without it we wouldn’t have accomplished some of what we have. Sometimes it’s important to acknowledge and be thankful for the struggles. After all, they can get you …
 
DISABILITY IS A BADGE OF HONOR. Creating Strength and Empowerment for People with Disabilities Erin Noon Kay is the CEO & Founder of Claiming Disability Inc. Erin identifies as a "fierce disabled entrepreneurial woman," with Cerebral Palsy. She uses a walker and wheelchair occasionally, but she believes it's "OK" to look disabled and is working har…
 
EPISODE 1: MEET DR. LEE PHILLIPS! Dr. Phillips introduces himself to the listeners and shares his personal battle with Lyme disease and how he became an AASECT Certified Sex Therapist. He shares with the listeners the purpose of his podcast, and this episode he also discusses the stages of chronic illness and how this will be talked about on future…
 
Hey peeps! It was just Kristine this episode and I am back this week again hosting solo but we have another great episode for you today as I have the pleasure of sitting down with Orah Lasko who is the mother of Luke; Luke has a rare genetic disorder syndrome called Hao Fountain syndrome. As with to many of these rare genetic disorders Jake is amon…
 
We are back with another episode of Because we Are strong. Today we are sitting down with Effie, the mother of a rare disease warrior and a woman determined to make a difference. Effie has created her own podcast called Once upon a Gene, in honor of her son Ford who was born with a rare genetic disease called CTNNB1 syndrome. Many genetic syndromes…
 
Just like anything in life - whether new to the craft or not - being overwhelmed in your practice can happen. Join the Hestia Rose, Mountain Gypsy, and Bela Luna as they discuss ways one can get overwhelmed and some ideas on managing those feelings. National Suicide Prevention Hotline - (800) 273-8255; Military OneSource - (800) 342-9647; Phone App…
 
Jessica Taylor-Bearman is a bestselling author of the award-winning ‘A Girl Behind Dark Glasses’, which follows her journey as she goes from being a healthy teenager to fighting for her life in hospital with a very severe form of Myalgic Encephalomyelitis. She spent over a decade being completely bedridden and had to relearn how to speak, move, and…
 
This week’s episode takes place live during Extra Life Game Day 2020! We are joined by friend of the show, and host of Playstation Unchained and Moogle-Go-Round Radio, Chille! As Final Fantasy VII was his first foray into the series, we felt it would be nostalgic to have him join us as we talk about Disc 1 of the FFVII Original Soundtrack. The gang…
 
CAN YOU BATTLE THE SEA -- AND SURVIVE? Special Guest: Mark! (he/him) Read by: RPG Rabbit Special notes about this episode: Success is dependent on access to a map! Dr. Nera Vivaldi, last seen in The Third Planet From Altair makes an appearance. Weird! Our special guest writes musicals! Check it out, listen to the album at www.standbythemusical.com …
 
Sometimes people feel they're being helpful when they shower your situation with positivity and while positivity in rare disease is necessary for survival there is such a thing as to is positivity. When you use positivity so much to the point that you are negating someone’s struggles and experiences, that’s when it becomes toxic and not helpful. We…
 
November is caregiver awareness month. Being a caregiver to someone who is chronically ill is taxing and tiring and thankless. This week we sat down with Carrie, Kristine’s wife, to get her to take on life as a caretaker. She shares her experience of watching her best friend and love of her life get sick and how she manages a caretaker role as well…
 
On this special Samhain podcast episode, the Bitchy Witchys talk about tips for doing shadow work and the importance of our darker aspects. For an introduction to the Shadow and what Shadow Work is, watch this video here - https://www.youtube.com/watch?v=2ssm6... Buy us a coffee! https://www.buymeacoffee.com/BitchyWi... Watch us, like and subscribe…
 
ME TARZAN. YOU DEAD! Read by Calvin Redburn (he/him) Special Guest: Andrew! (he/him) SPECIAL HALLOWEEN EPISODE! :O Music Credits: "Believe in the Magic of Halloween by WinnieTheMoog Link: https://filmmusic.io/song/6718-believe-in-the-magic-of-halloween License: http://creativecommons.org/licenses/by/4.0/" "The Pumpkin Head by Frank Schröter Link: h…
 
A sneak peek from Episode 10 of Discomfort Zone You can subscribe to Discomfort Zone on your favorite podcast player, including: Apple Podcasts Spotify Google Podcasts Episode Description: I was too sick to attend my sister's wedding, so she wasn't expecting me to deliver a speech. Follow Discomfort Zone on Facebook, Instagram, and Twitter See acas…
 
In honor of Dysautonomia Awareness Month, we’re going to discuss dysautonomia and the ways it can present in different people, both on its own and in conjunction with other disorders. What is dysautonomia? Well, it’s a dysfunction of the autonomic nervous system, which tells you nothing unless you know a little bit about how the autonomic nervous s…
 
We've got an INB Roundtable! Dr. Lee was a minor league mascot, Monica played fetch with coyotes, and Jason blew his chance at hand modeling. Two are true, one is a lie! Get to know the hosts through a fun icebreaker game. Click here for the show notes. Listen and subscribe to: Explicitly Sick with Monica Humancare with Eva Discomfort Zone with Jas…
 
A sneak peak of this week's episode of Humancare Podcast You can subscribe to Humancare on your favorite podcast player, including: Apple Podcasts Spotify Google Podcasts Episode Description Eva was joined this week by Tami Stackelhouse, a Fibromyalgia Coach, fellow podcast host & Author. Tami has Fibromyalgia, Hashimoto’s thyroiditis, chronic dail…
 
Jacob Thompson (TEN20) has gone from diagnosis to destiny. His childhood dream was to be a professional athlete. He would tell you that, sometimes, our dreams for our lives need to die before we can live the true dreams and purpose that we were created for. He wouldn't only say this; he lives it every day. In his late teens, Jacob started having tr…
 
Kierra is a digital artist and blogger who is passionate about helping women navigate life after miscarriage and loss. Driven by her own experience with miscarriage (and lots of chips + salsa) she focuses on helping women not feel so alone in their journey. _______________________________ What are some tips you have for someone who experiences a mi…
 
To kick off our Samhain Series this episode we discuss the history of Witchcraft WORLDWIDE! There is so much to the history than the Salem Trials. So we have our soapboxes of course and find out some pretty funny names and fact. Buy us a coffee! https://www.buymeacoffee.com/BitchyWitchys Watch us, like and subscribe on YOUTUBE - https://www.youtube…
 
This week, Klauss and Seyrr discuss disc 3 of Final Fantasy VI Original Soundtrack. They also talk about the latest Producer Live Letter and patch 5.35 in Final Fantasy XIV. Enjoy! Show Notes: FFXIV News Make it Rain Campaign: https://na.finalfantasyxiv.com/lodestone/special/2020/the_make_it_rain_campaign/cx5vklj29q Producer Live Letter LX Summary:…
 
I was too sick to attend my sister’s wedding, so she wasn’t expecting me to deliver a speech. Follow me on Facebook, Instagram, and Twitter Check out our Official Invisible Not Broken Facebook group A transcript is available in the show notes. Read the definition of marriage on dictionary.com Written, Produced, and Sound Designed by: Jason Herteric…
 
Rare stories aren’t always easy to tell. Our brand may be black and white but rare stories usually aren’t. Today we are sitting down with Kristine, CEO of rare, my business partner, and close friend. She shares her journey with her rare disease and what life has been like for her. We discuss how as a community we can work alongside one another to c…
 
You know that saying travel often?? Well, whoever read that must not have a RARE. disease more like travel RARE.ly. Jump into this minisode with Kristine as she talks about her personal disappointments with traveling and how she has managed. "I am pretty good at managing my expectations and moving on with the universe but it's definitely harder dur…
 
We've got an INB Roundtable! Monica and Eva are joined by the two new hosts on the network: Jason, host of Discomfort Zone and Dr. Lee, host of Sex and Chronic Illness. The four of us chat about: Our go-to coping mechanisms Striking a balance with news and social media intake Using COVID as a time to reflect The impact COVID has had on relationship…
 
SURPRISE. We are back again this week with a new episode of Because We Are Strong and this is definitely not one to miss. . We sat down with two amazing women who happen to not only share the same rare conditions, apartment, and blog but they are also sisters! Connect with Em & Kate on Instagram @twobeinghealthy Visit their website and see all the …
 
We are back this week and we are chatting with Mariah. Mariah is the mother of Emma & Abby, two adorable little girls that are the only two known people in the world with their rare disease. The Gillaspie sisters share a mutation on one of their genes that causes seizures and severe developmental delays. Mariah started the non-profit Lightening and…
 
Klauss, Seyrr, and Taliz continue their discussion of classic Final Fantasy music. This episode, the trio wax nostalgic on Disc 2 of the Final Fantasy VI Original Soundtrack. They also discuss the latest news from Final Fantasy XIV and XVI. Enjoy! Show Notes: Final Fantasy XIV News Archie Lyndhurst, NA voice of Honoroit has passed away at age 19: h…
 
The Bitchy Witchys Podcast returns for SEASON 3!! In our season premier episode, Mountain Gypsy, Bela Luna and Hestia Rose look back at the Satanic Panic of the 80s and 90s and talk about the belief of some that a 21st century version is around the corner. Watch us, like and subscribe on YOUTUBE - https://www.youtube.com/channel/UCcFY... Support ou…
 
At the time of this recording, this show is entirely unsponsored and without ads. It is listener-supported. Will you support us? For only a dollar a month, you can show your support as a fan of the show. For five dollars a month, you can be an Official Patron. And as a show of gratitude, you'll have access to new episodes several days before everyb…
 
Hey peeps ! I am back this week and we are chatting with Brooke. Brooke is the mother of Evan, a boy born with “designer genes”. He is only a handful of people worldwide with his particular genetic condition, related to gene RPL10. Brooke is also the creator of Everyday Evan, her families blog that is striving to provide hope, Joy, Education, and p…
 
BIG Official Announcement We're now a Podcast Network! That means we now have 4 separate podcasts as part of our Invisible Not Broken Family: Explicitly Sick - hosted by Monica Michelle Humancare - hosted by Eva Minkoff Discomfort Zone - hosted by Jason Herterich Sex & Chronic Illness - hosted by Dr. Lee Phillips We will be continuing to publish ne…
 
This week we sat down with Billy, the CEO of Billy Footwear to get his story and why he created his footwear line and what makes them so special for the rare disease community. As many people know Owen has Beckwith-Wiedemann syndrome as well as Hemihypertrophy. Hemihypertrophy is a rare disease that affects usually one side of someone’s body making…
 
This week, Klauss, Seyrr, and Taliz get back into our exploration of Final Fantasy music, with disc 1 of Final Fantasy VI. We also discuss the release of the Final Fantasy XVI trailer from TGS, talk a bit about the final two Tales from the Shadows stories from Final Fantasy XIV, and Taliz tells us about the new Thancred card from the upcoming Opus …
 
My gym teacher ridicules me in front of my peers, prompting the question: was my child-acting career a fluke? If so, what does that say about my legacy? What does free pizza have to do with any of this? Follow me on Facebook, Instagram, and Twitter A transcript is available in the show notes. Written, Hosted, Produced, and Sound Designed by: Jason …
 
September is childhood cancer awareness month, where we recognize the strongest cancer fighters there is. This week we sat down with Amber. The mother of Vivian. A 3 and a half-year-old BWS warrior and cancer fighter who is currently fighting stage 4 Wilms Tumor. She shares her story of managing cancer during COVID and the frustrations as well as t…
 
A day we will never forget through the eyes of my 6th-grade self. The world has been in a constant state of turmoil, and we sometimes forget the lasting impact it can have on children. Opening up the books I made for September 11 brought me right back to the classroom I was in when it happened. Reflecting on this day and remembering the effects it …
 
This one might be a little difficult for me. As much as I put my family out there it doesn’t make sharing my story any less difficult. My story isn’t tragic. It’s not depressing. It actually is quite the opposite. Don’t get me wrong there are hard times, there’s a struggle, and loads of stress and uncertainties But among all the bullshit there are …
 
Phoenix Down Radio celebrates our fifth podcast anniversary with special guest FusionX from Gamer Escape. We talk about the FFXIV anniversary event, the Rising, as well as the launch issues of Final Fantasy Crystal Chronicles, the new Opus XII launch date for the FF Trading Card Game, and wax nostalgic on the past 5 years of podcasting. We also had…
 
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