Best Pulmonary Fibrosis Podcasts (2024)

1
Diary of a Dying Girl, Diane (Mallory) Shader Smith 27:26

3h ago27:26

27:26

Diane Shader Smith’s daughter Mallory died from complications of cystic fibrosis 6 years ago. She was 25 years old. Diane initially published her daughter’s diary, "Salt in My Soul". This book gave insight into how Mallory was feeling during her CF fight. Her deepest thoughts, and life lessons. Diane Shader Smith is now releasing a second book on b…

1
Special Insurance for CF families (and others) in MI 33:29

2d ago33:29

33:29

Children’s Special Health Care Services (CSHCS): Have you heard of it? In the simplest terms, it is defined by the need for specialty care required for your child. It’s not a Medicaid program. Access to the program has nothing to do with your household income. The program has a lot of benefits. CSHCS covers transportation that can include airfare a…

1
Myth Busting: Are full body, preventative scans helpful or harmful for healthy individuals? 7:06

4d ago7:06

7:06

Back by popular demand, the latest myth-busting episode of the 5-Minute Check In with Dr. McGinn takes a closer look at another popular and controversial topic: Are full body, preventative scans helpful or harmful for healthy individuals? Watch as we separate fact from fiction and compare popular beliefs to the evidence. Previous Myth-Busting Episo…

1
Virtual Grand Rounds/Clinical Update: Fast Track Insights: Rapid Review of Impactful Articles 53:00

15d ago53:00

53:00

Learning Objectives (and corresponding articles): Identify medications best avoided by older adults in most circumstances or specific clinical scenarios (JAGS) Discern the benefits, harms, and efficacy of different smoking cessation pharmacotherapies and e‐cigarettes (Annals of Internal Medicine) Evaluate the effectiveness, harms, and benefits of n…

1
Virtual Grand Rounds: Implementation of Race-Neutral GLI Equation for Pulmonary Function Tests 50:08

16d ago50:08

50:08

Learning Objectives: -Review the history and flawed assumptions in the use of race and how race-specific PFT reference equations might lead to health disparities. -Understand the evidence behind the recommendation to use race-neutral reference equations. -Review the quantitative impact of switching from race-specific to race-neutral reference equat…

1
Discussion on How PhD Scientists can Navigate Clinical Departments 57:28

16d ago57:28

57:28

Hosts: Richard Johnston, Ph.D., ATSF and Jarrod Wesley Barnes, Ph.D., MBA Panelists: Beth Moore, Ph.D., Scott Budinger, M.D., Rama Mallampalli, M.D., and Raed Dweik, M.D.,By American Thoracic Society

1
Remembering Matt McCloskey of Take a Breather 37:29

19d ago37:29

37:29

Shortly after we did this podcast Matt died from complications of cystic fibrosis. With permission from his sisters, and dear friend Jennifer Bleecher (featured in this podcast) we are now airing this podcast to shine a light about what a great man Matt was. He speaks in this podcast about concern for his health. Thanks to Jenn, his family and to M…

1
The Fearless Vagina: Ellen Dolgen 1:00:06

27d ago1:00:06

1:00:06

As people with cystic fibrosis live longer, with a life expectancy currently at about 56 years old, many women with CF will be going through menopause. I recently spoke to doctors at a hospital gathering, and recommended they speak to women with CF about menopause. They agreed. It's time. There is so little discussion and education about women and …

1
Dr. Caleb Bupp, Rare Genius (in our opinion) 43:39

1M ago43:39

43:39

Dr. Caleb Bupp. In my opinion. A scientific star. He is a most humble human, but has every right to brag, but he never would. I do believe he's a genius. You will love this podcast. We talk about rare disease, his family and how he discovered and helped families who had no rare disease answers, until they met him! An absolute scientific rock star. …

1
Senolytic-facilitated Reversal of End-Organ Dysfunction in a Murine Model of Obstructive Sleep Apnea 32:44

1M ago32:44

32:44

Dr. John Fleetham chats with Dr. Gozal on his article, "Senolytic-facilitated Reversal of End-Organ Dysfunction in a Murine Model of Obstructive Sleep Apnea."By American Thoracic Society

1
Cambrey Vasconez White - rare mutations 38:33

1M ago38:33

38:33

Cambrey Vasconez White is the mother of toddler Rowland, who has Cystic Fibrosis. If you listened to our podcast with Vicky Maldonado, they have similar struggles. Cambrey is also working to find an equitable approach to rare mutations in the U.S. and Canada. These two women connected, as you’ll hear, because their sons share the same mutation. Row…

1
Brandi Berry, Chidlren's Special Health Care Services Prgrm 39:34

2M ago39:34

39:34

Did you know most states have programs for CF families, and they don’t have to do with your income? Michigan has one of the best programs in the Country. It’s called Children’s Special Healthcare and acts as a secondary insurance to pediatric and adult patients. Brandi Berry tells us all about it. Brandi Berry, LLMSW is the Program Coordinator of t…

1
Dr. Bhanu Jena, another CF modulator on the horizon? 35:36

2M ago35:36

35:36

A new CF modulator could be on the horizon. Professor Dr. Bhanu Jena is exciting to tell us all about it. Dr. Jena was born in a small town in Odisha, India. He got his love for science and medicine from his father and grandfather. He majored in Chemistry, Zoology, and Botany at BJB College in Bhubaneswar, Odisha, India, He got his masters in zoolo…

1
5-Minute Check In: Evaluating the Use of Resmetirom in Patients with NASH and Liver Fibrosis 5:16

2M ago5:16

5:16

First-of-its-kind medication shows promise for liver disease patients Metabolic dysfunction-associated steatotic liver disease (MASLD), formerly known as non-alcoholic fatty liver disease (NAFLD), is estimated to affect nearly one-quarter of adults in the United States. Nonalcoholic steatohepatitis (NASH) is a form of MASLD that can cause liver fib…

1
The Final 10 percent 38:03

2M ago38:03

38:03

Approximately 10 percent of the CF population is waiting for a CF modulator drug that will help them by correcting the underlying condition of their disease. Current modulator drugs help more common CF mutations. Emily Kramer Golinkoff is one of the people who doesn't have a CF modulator that will help her. Her Foundation, Emily's Entourage, is a l…

1
Dr. Mitch Drumm - CF Pioneer (and hero to CF community) 44:14

3M ago44:14

44:14

Living legends. One of them is Dr. Mitch Drumm. He was part of the team with Dr. Francis Collins who discovered the gene that cause CF. They were all at the University of Michigan. You’ll hear the connection Laura and Mitch have, and they didn’t know it until this podcast! Dr. Drumm is a living CF hero. Dr. Drumm earned his doctoral degree while in…

1
Dr Ryan Hadley - Lung Transplants 27:38

3M ago27:38

27:38

Do you know what is needed before you have a lung transplant? Or even how it works? More and more adult CF clinics are explaining the details to adult patients, but if you're a CF parent, there is a lot you may not know. We welcome Dr. Ryan Hadley. Dr. Hadley is at Corewell health in Grand Rapids. He is an assistant Profession of Medicine in pulmon…

1
Idiopathic Pulmonary Fibrosis: The Role of Radiology in Accurate and Timely Diagnosis

3M ago

—

Host: Jonathan Chung, MD Host: Seth Kligerman, MD Learn from experts about differentiating idiopathic pulmonary fibrosis (IPF) from other interstitial lung diseases and the role of radiology in effectively diagnosing IPF with a multidisciplinary team approach.

1
Virtual Grand Rounds/Clinical Update: Game-Changing Updates in Management of Sickle Cell Disease 1:03:04

3M ago1:03:04

1:03:04

This special session will explore the transformative impact of gene therapy for sickle cell disease. The session includes the firsthand perspective of Ms. Victoria Gray. Ms. Gray is the first patient in the United States to undergo revolutionary CRISPR treatment for Sickle Cell Disease. After decades of pain and struggle, Ms. Gray's CRISPR procedur…

1
Insights on the Rising Rates of Syphilis in the United States

3M ago

—

Guest: Ina Park, MD The United States has seen its largest increase in syphilis cases in the past five years. And with increases prevalent in every region, along with a shortage of medication, additional surveillance strategies and importation resources are necessary. Dive in for a discussion on the challenges and strategies to combat the spread of…

1
Section on Genetics and Genomics Early Career Workshop: Collaborations in Omics 44:23

3M ago44:23

44:23

Host: Matthew R. Moll, MD, Brigham and Women's Hospital Guest Speakers: David C. Christiani, MD, MPH, MS, ATSF, Mass General Hospital; and Mark M. Wurfel, MD, PhD, University of WashingtonBy American Thoracic Society

1
Laura and Beth talk about what makes a Foundation work! 40:50

3M ago40:50

40:50

Everyone always asks me "What does it take to run a Foundation?" So I thought I would explain some of the different aspects of funny and challenging parts of running a Foundation. Please join me with my friend Beth Vanstone who asks me all sorts of questions about what running a Foundation is all about! Please follow us on social media! Please cons…

1
5-Minute Check In: The Impact of Race and Ethnicity in Pulmonary Function Testing 6:42

3M ago6:42

6:42

As part of our ongoing commitment to advancing health equity and evidence-based medicine, CommonSpirit Health has been leading the way in adjusting the use of race and ethnicity in various clinical calculators, first with eGFR and now with pulmonary function tests. In this 5-minute check in, we take a look at: The history and flawed assumptions in …

1
Evolving Gene Therapy: A Deep Dive into 3rd-Generation Lentiviral Vectors

3M ago

—

Host: Matt Birnholz, MD Guest: Donald Kohn, MD Third-generation lentiviral vectors were developed to improve upon safety measures and mitigate the risks of toxicity and replication that are typically associated with first- and second-generation therapies. These advancements may help enhance the functionality and utility of third-generation lentivir…

1
Navigating the Crisis: How to Diagnose and Treat Malignant Hyperthermia

3M ago

—

Host: Charles Turck, PharmD, BCPS, BCCCP Guest: Henry Rosenberg, MD Malignant hyperthermia is an inherited disorder primarily recognized by anesthesia professionals. And since this condition can have significant consequences on a patient’s health, including their likelihood of surviving surgery, it’s important to know how to diagnose and treat mali…

1
Preventing Allergic Reactions to Peanuts with a Cancer Drug

3M ago

—

Host: Charles Turck, PharmD, BCPS, BCCCP Guest: Melanie Dispenza, MD The future therapeutic landscape for food allergy prevention is looking clearer as a drug typically used to treat hematologic malignancies has shown to prevent systemic anaphylaxis to allergens and increase patients' tolerance to peanuts. Along with this, other therapies are also …

1
Innovations in Adherence: Long-Acting Agents for Infectious Diseases

3M ago

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Host: Charles Flexner, MD Daily oral therapy can have low adherence, which is why the field of long-acting formulations is rapidly advancing. Tune in to hear Dr. Charles Flexner discuss how long-acting regimens can address this problem of adherence and help patients living with HIV, tuberculosis, malaria, and other infectious diseases. Dr. Flexner …

1
Rabbi Moskowitz, embracing the Queer community 58:41

3M ago58:41

58:41

He’s been arrested. He’s CIS gender with a wife and kids. Rabbi Mike Moskowitz is also an orthodox Jew’is and he is one of the biggest supporters of the queer community. Rabbi Moskowitz is the Scholar-in-Residence for Trans and Queer Jewish Studies at Congregation Beit Simchat Torah, the world’s largest LGBT synagogue. He is a deeply traditional an…

1
Anemia and Myelofibrosis: Optimizing Diagnosis, Treatment, and Management Strategies

3M ago

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Host: Charles Turck, PharmD, BCPS, BCCCP Guest: Prithviraj Bose, MD Normally, when a patient is newly diagnosed with myelofibrosis, the anemia is from the disease. And it’s important to treat these patients with an individualized treatment plan as this could have a significant positive impact on their quality of life and outcome. To learn more, div…

1
Increasing CKD Awareness and Early Detection in Adult Patients

3M ago

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Host: Mary Katherine Cheeley, PharmD, BCPS, CLS, FNLA Guest: Christin Iroegbu PhD, RN If left untreated, chronic kidney disease (CKD) can progress to end-stage renal disease, requiring dialysis or kidney transplant as the only treatment options. So communicating this to patients, along with chronic conditions that could contribute to this are key. …

1
Assessing Omalizumab for Food Allergy Treatment

3M ago

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Host: Jennifer Caudle, DO Guest: Sayantani Sindher, MD Recently, Omalizumab was studied in patients due to the avoidance of management and guidance when it comes to treating food allergies in children and adults. According to this doctor, approximately 45 percent of patients seen in his clinic have multi-food allergies that are not being met with c…

1
CF in Brazil, and one outstanding advocate 57:39

3M ago57:39

57:39

We’re going to Brazil for this podcast. Brazil is famous for some soccer players; you remember Pele and others. It’s the largest country in South America, it has 4 times zones…60 percent of the amazon rainforest is in Brazil, their flag has 27 stars on it and they speak Portuguese there. And the food looks amazing there. I have never been to Brazil…

1
5-Minute Check In: Updated Breast Cancer Screening Guidelines 6:59

4M ago6:59

6:59

This is our 50th episode! Thanks to everyone that has participated as a guest or has watched our videos. In this episode of the 5-Minute Check In with Dr. McGinn, we take a closer look at CommonSpirit Health's updated breast cancer screening guidelines. Topics discussed in this episode include: - Reviewing screening best practices on risk stratific…

1
Gut pain and CF, Dr. Jorge Machicado 23:46

4M ago23:46

23:46

So many people with cystic fibrosis have gut pain. It is often times, debilitating. Dr. Matthew DiMagno and Dr. Jorge Machicado are working to find answers to the suffering of people with CF, and others without. Dr. Machicado is a Clinical Assistant Professor in the Division of Gastroenterology and Hepatology at the University of Michigan. Dr. Mach…

1
Effectiveness of Fludrocortisone Plus Hydrocortisone Versus Hydrocortisone Alone in Septic Shock: A Systematic Review and Network Meta-Analysis of Randomized Controlled Trials 20:49

4M ago20:49

20:49

Dr. John Fleetham chats with Dr. Bijan Teja and Dr. Nicholas Bosch about their article, "Effectiveness of Fludrocortisone Plus Hydrocortisone Versus Hydrocortisone Alone in Septic Shock: A Systematic Review and Network Meta-Analysis of Randomized Controlled Trials."By American Thoracic Society

1
Virtual Grand Rounds/Clinical Update: Palliative Care for Patients Living with Serious Illness 52:20

4M ago52:20

52:20

Learning Objectives: - Differentiate between usual care, palliative care, and hospice care - Identify patients who may benefit from palliative care or hospice - Discuss outcome data supporting early palliative care intervention - Describe opportunities for integrating palliative care into the management of the patient with serious illness Speakers:…

1
Virtual Grand Rounds: Advancements in Non-Medical Therapy of Heart Failure 52:43

4M ago52:43

52:43

Learning Objectives: - Discuss the barriers and the necessary resources required for successful rapid up-titration of GDMT - Recognize the appropriate timing for referral of patients with advanced heart failure for percutaneous/surgical intervention - Understand indications/contraindications for HF patients requiring advanced therapies (i.e., trans…

1
Win Like A Girl - Maureen Electa Monte 49:45

4M ago49:45

49:45

Maureen Electa Monte and I go ... way back! When she was an engineer, and doing photography, she photographed our first Portraits of cystic fibrosis black and white calendar in 2003. The wives of the Detroit Tigers, pretty much all of them pregnant, played in our first celebrity softball game. They played against law enforcement at a ballpark in St…

1
Severe Allergic Reactions: The Potential Detriments of Diphenhydramine

4M ago

—

Guest: Douglas Jones, MD A recent study was done to show the side effects of diphenhydramine for allergic reactions, and one of the main detriments was that it could impair the patient by making them tired or sleepy. Another finding was that it doesn’t work that quickly, so in turn, giving diphenhydramine in a severe allergic reaction could cause m…

1
Mindfullness and CF with Aliyah Novelli 30:52

4M ago30:52

30:52

Aliyah Novelli was diagnosed with cystic fibrosis as an infant. Today, she's a licensed social worker practicing as a child and family therapist at The Center for Change and Growth in Ardmore, PA. Aliyah is full of enthusiasm about her new program: mindfulness. The CF Foundation awarded her with a CF Impact grant to get it started. Aliyah launched …

1
Health Myth or Fact: Comparing Clinical Beliefs to the Evidence, Episode 2 5:27

4M ago5:27

5:27

In this episode of clinical mythbusting, we’re taking a look at two commonly held health beliefs and comparing them to the evidence: * Do we really need to drink so much water? * Is a vegetarian or vegan diet healthy? Watch and see what the evidence shows. See the first Mythbusting Episode: https://www.buzzsprout.com/1903646/13919434…

1
Improving CKD Patient Outcomes with SGLT2 Inhibitors

4M ago

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Guest: Gates B. Colbert, MD, FASN A class of medications called SGLT2 inhibitors have been proven to make a major difference for patients with chronic kidney disease (CKD) with and without diabetes when added to angiotensin converting enzyme (ACE) and angiotensin receptor blockers (ARB) classes of medications. Several medications that have been wel…

1
CF Mom Vicky Maldonado talks Ultra Rare CF mutations 38:14

4M ago38:14

38:14

Canadian, Vicky Maldonado is the mother of a young boy living with a rare genetic form of CF. Sebastian is 6 years old, and a twin. The road to diagnosis was challenging. Sebastian was diagnosed with two rare CF genes after repeated respiratory infections and two hospitalizations. “We were told that Sebastian likely didn’t have CF because he’s “not…

1
All of Us - Science, Innovation and YOU. 39:20

4M ago39:20

39:20

A better future for health for: All of Us! Dr. Josh Denny is the All of Us Research program, CEO. A program that comes from the National Institute of Health. The Bonnell Foundation is all about Science and Innovation! And he has a CF connect via his father! The goal of All of Us is to enroll 1 million people to build one of the most diverse health …

1
5-Minute Check In: Colorectal Cancer Screening 7:02

5M ago7:02

7:02

In honor of March as Colorectal Cancer Awareness Month, we are taking a closer look at our updated colorectal cancer screening guidelines, including risk-based screening, engaging patients, the best approach to screening, incidence and prevalence by age group (including rising incidence with younger patients) and more. Guests: Ankita Sagar, Devi Mu…

1
Loss of ANT1 Increases Fibrosis and Epithelial Cell Senescence in Idiopathic Pulmonary Fibrosis 13:01

5M ago13:01

13:01

Dr. Sunad Rangarajan chats with Dr. Corrine Kliment about her article, "Loss of ANT1 Increases Fibrosis and Epithelial Cell Senescence in Idiopathic Pulmonary Fibrosis."By American Thoracic Society

1
Virtual Grand Rounds/Clinical Update: Advancements in Medical Therapy for Heart Failure 51:30

5M ago51:30

51:30

Learning Objectives: Define the key pharmacologic therapies for HFrEH and HFpEF and describe their optimal use in specific patient population Discuss the barriers and the necessary resources required for successful rapid up-titration of GDMT Identify how improvement in medical therapy influences patient outcomes, including hospitalizations, re-admi…

1
CF Trust, U.K. with Belinda Cupid 40:23

5M ago40:23

40:23

(Please follow us wherever you get your podcasts, rate us and/or comment. Thank you) Part of the Bonnell mission, while doing these podcasts, is to raise awareness and shine the light on other Foundations who are also doing great things. Today we’re going to tell you about the CF Trust in the United Kingdom. Belinda Cupid is the Senior Impact Advis…

1
SUD Among Physicians: The Journey of Seeking Help and Treatments

5M ago

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Host: Michael Greenberg, MD Guest: Chris Bundy, MD, MPH, FASAM Clinicians experiencing substance abuse disorder (SUD) may have some reluctance about utilizing a Physician Health Program; however, it’s important to know what your resources are in terms of formal treatment and to seek a psychiatrist with addiction specialization. Dive into part two o…

1
Unveiling the Numerous Benefits of RTA Prefilled Syringes

5M ago

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Host: Charles Turck, PharmD, BCPS, BCCCP Guest: John Hertig PharmD, MS, CPPS Here in the United States, we're investing a little more into cost effectiveness to make the best use of very limited healthcare resources. When ready-to-administer (RTA) syringe products were compared against traditional vial and syringe, there was a significant holistic …

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