show episodes
 
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Utah Hemophilia Foundation Education Channel
 
The provision of educational podcasts focused on different facets of the treatment and management of bleeding disorders. Through education, advocacy, networking, and outreach, the Utah Hemophilia Foundation empowers individuals with bleeding disorders to lead healthier and more self- sufficient lives.
 
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Ask The Expert - A BloodStream Media Podcast
 
Ask The Expert from BloodStream Media is a podcast series features hematologists and other healthcare experts answering listen-submitted questions about hemophilia, von willebrand disease, and other inherited bleeding disorders. Learn more at BloodStreamMedia.com.
 
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Powering Through Podcast
Monthly
 
T​he Powering Through Podcast features live panel conversation on obstacles and challenges faced by people affected by hemophilia, von Willebrand disease, and other bleeding disorders. The nationwide series features members of the bleeding disorders community as well as inspiring friends. Both the live events and the podcast are hosted by community member Patrick James Lynch. Find more Powering Through podcasts by visiting PoweringThrough.org/podcast. Powering Through and The Powering Throug ...
 
B
BloodStream
Monthly
 
A monthly, 360-degree look at the bleeding disorders community, complete with news, interviews, and informed opinionating. Hosted by Patrick James Lynch. Produced by Believe Limited.
 
H
HemoStories Podcast
Rare
 
The HemoStories Podcast is dedicated to discussing, exploring, learning from, and celebrating all things related to bleeding disorders. We interview people with bleeding disorders, people who have children with bleeding disorders, or people associated with bleeding disorders by profession. We talk about our global outreach initiatives, what it’s like to have a bleeding disorder, and we cover what’s happening in the bleeding disorder community.Don’t forget to like us on Facebook, follow us on ...
 
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Melvin Federbush's Holocaust Survivor Stories
 
Life before, during and after the holocaust with Buchenwald survivor, Melvin Federbush.In hour 5 of this series, he reveals his harrowing experiences while in Nazi occupied Poland. Melvin Federbush was born in Deblin, Poland, July 1923. He attended Cheder and Yeshiva as well as high school. Within eight days of Hitler's invasion of Poland, his parents and nine year old twin sisters were killed during a bombing attack. Melvin was taken prisoner during the Nazi occupation and forced to live in ...
 
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show series
 
BloodStream Media is proud to present The Factor Revolution: The Last 60 Years in Hemophilia Treatment, a three-episode special series with over forty interviews from community members, doctors, experts and advocates. We take a deep look at the history of factor treatment from the 1950's to today. The Factor Revolution pulls together source mat ...…
 
Our guest on today’s podcast is James DeFilippi, a triathlete who tells us everything that goes into his training, from his training regimen to the technology he uses to work out to managing his hemophilia. In his fourteenth year of racing competitively, James let us in on some of the new tech devices that he uses to support his training. Tune ...…
 
My guest today, Leah Nash, is a bit of a creative bunny rabbit. Leah has been involved with so many things around town, I always wonder how she is able to do it all. Currently, she has a radio show on WPRK called Sitting on Top of a Pile of Poop and the View is Spectacular (seriously, how fun is that name?). Leah also works with the Hemophilia ...…
 
In this episode, we give a listen to our Powering Through event held on December 1st, 2016 as part of the World AIDS Day ceremony hosted at The National AIDS Memorial Grove in San Francisco, California. Our panel included Carl Weixler, the President of the Committee of Ten Thousand (COTT), Kimberly Haugstad, the President and CEO of the Hemophi ...…
 
Hello everybody. First, let me just say my heart is with you Houston. I am assuming that the foundation there will be needing some assistance so this month’s donation from HU will be going to the NHF Relief Fund. I can’t donate a lot but I always try to donate where I can. Every dollar makes a difference. Stay strong everybody, as you know ever ...…
 
On this episode, four hemophilia treatment center (HTC) hematologists discuss recent trends and updates on topics such as the treatment of women with bleeding disorders, insurance challenges; chronic pain management, aging with hemophilia, the complex challenges of treating a multicultural community, updates on treatment products for patients w ...…
 
Hemos Unite is proud to host another incredible guest who is proving that you can live a rich, fulfilling life with a rare blood disorder. I feel so lucky that we have such empowering people in our community. Meet Cassandra, an accomplished woman in Southern Arizona who is speaking about her Glanzmann Thrombasthenia in an effort to educate more ...…
 
I met Jessica at an Arizona Hemophilia Association in the first month that we landed in Tucson. She worked for industry at the time and she was just so genuine, we instantly connected. She knows so many people in the community, it has been wonderful knowing I can call on her to introduce me to people or help me find a resource. I personally lik ...…
 
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Ask The Expert - A BloodStream Media Podcast
 
In this episode, Katie Verb, the Director of Policy and Government Relations for the Hemophilia Federation of America, answers questions on health care legislation, advocacy, and the extraordinarily-troubling Better Care Reconciliation Act (BCRA) that has been drafted by Senate Republicans in an unprecedented and lightning-fast manner. What cou ...…
 
Description: In this episode, Patrick & Natalie discuss a recent study highlighting the issue of patient aging, a story about a young Iowan with hemophilia whose healthcare costs recently made national waves, and the latest on the American Health Care Act. Plus, our hosts sit down for an in-person interview of Believe Limited’s own Rob Bradford ...…
 
The promise of gene editing and gene therapy has rare disease patients not only contemplating the potential of new treatments, but ones that can free them from chronic therapies and potentially provide cures. Sangamo Therapeutics, long pursuing its proprietary gene editing technology, is suddenly moving into the clinic with four experimental th ...…
 
Powering Through returned to Southern California! Recorded at The York Manor in the Historic Highland Park neighborhood of Los Angeles, Powering Through SoCal 2 was a conversation on hemophilia & turning a personal challenge into a career with speakers Shawn Whelan, medical student living with Hemophilia, Greg Edwards, Actor and Comedian & Mari ...…
 
Hello Bleeders! We have added a new column to Hemos Unite! Introducing (again, if you follow the podcasts) one of my BFFs (thank you Hemophilia, I never would have met this amazing woman otherwise) HEATHER to the HU site. She will be contributing to the site to inspire you to gain confidence in and out of the water. So, here is the Awesome Heat ...…
 
Andy Price joins for the first time and wins a new, somewhat used (and not by a virgin) mattress. He is as pleased as you might expect. References: Andy co-hosts the very very funny Talking Movies Pictures Movies Show which you can find on iTunes and all the other places that it can be found. It's really good! You should listen to it! Hemophili ...…
 
Bloomberg Markets with Carol Massar and Cory Johnson.GUEST:Alexander MacraeCEOSangamo Therapeutics Discussing teaming with Pfizer in the development of gene therapy programs for Hemophilia.
 
Bloomberg Markets with Carol Massar and Cory Johnson.GUEST:Alexander MacraeCEOSangamo Therapeutics Discussing teaming with Pfizer in the development of gene therapy programs for Hemophilia.
 
Bloomberg Markets with Carol Massar and Cory Johnson.GUEST:Alexander MacraeCEOSangamo Therapeutics Discussing teaming with Pfizer in the development of gene therapy programs for Hemophilia.
 
What is nanotechnology? An invitation to enter a new field of physics: A lecture on nanotechnology that Richard Feynman gave in 1959 (Zyvex) Definition of 'nano' (Wikipedia) Nanotechnology (Wikipedia) The National Nanotechnology Initiative (NNI) @NNInanonews: Twitter feed of NNI Center for Responsible Nanotechnology (CRN) The billion year techn ...…
 
In this episode, mountaineer Chris Bombardier and high schooler Justin Senger describe the challenges hemophilia has posed in their lives respective lives, while Missouri-native Kelle Geringer shares openly about suddenly losing her husband just after he returned from serving overseas. Held for the benefit of the teens at Gateway Hemophilia Ass ...…
 
Dan and I are virtual buddies. We met through Facebook a couple of years ago and have attempted a podcast before. Our first try, we ended up chatting for almost 4 hours about everything under the sun. I was just fascinated about the exciting life he has created for himself. Dan is from the States and moved to Japan several years ago. He is a so ...…
 
Hey Medicare Nation! Learn More About Medicare Here I receive many questions from clients and listeners about Medicare. A question that is quite common is: "What vaccinations are covered under Medicare?" That's what this week's episode is all about.... vaccinations! There are currently three vaccinations that are covered under preventative and ...…
 
Steven Julian, Sarah Weikert, Nadira Shadeed, Joe Rouw, Mike Sammond Nadira Shadeed and Joe Rouw/Pediatric Vision Development Center The Pediatric Vision Development Center specializes in providing vision therapy and vision rehabilitation services to patients of all ages. Their vision therapy services improve visual skills for kids struggling i ...…
 
The BloodStream Podcast - Episode 11 - Program Notes Listen to Episode 11 by clicking the play button on the audio player above, or follow any of these links to listen and subscribe on your podcast player of choice (recommended): iTunes: http://bit.ly/bloodstreamitunes Stitcher: http://bit.ly/bloodstreamstitcher LibSyn: http://bit.ly/bloodstrea ...…
 
Around the world, people suffer from a genetic condition called hemophilia. Even with expensive and time-consuming treatments, simple injuries for these patients hold the threat of turning into serious complications and even life-threatening events. But now, one biotech company has stumbled upon what very early trials suggest could be a "cure" ...…
 
Around the world, people suffer from a genetic condition called hemophilia. Even with expensive and time-consuming treatments, simple injuries for these patients hold the threat of turning into serious complications and even life-threatening events. But now, one biotech company has stumbled upon what very early trials suggest could be a "cure" ...…
 
Around the world, people suffer from a genetic condition called hemophilia. Even with expensive and time-consuming treatments, simple injuries for these patients hold the threat of turning into serious complications and even life-threatening events. But now, one biotech company has stumbled upon what very early trials suggest could be a "cure" ...…
 
Welcome to the Genealogy News from Geneatopia I’m Patty Roy, also known as Dinah Larkham in Second Life. Today is Sunday April 9, 2017 and this is Episode 100. AncestryDNA Genetic Communities Genetic Communities or GCs were released by Ancestry on March 28th. A GC is a group of AncestryDNA test takers who all descend from a particular populatio ...…
 
Is the bleeding time prolonged in hemophilia?
 
Description: In this episode- it's Bleeding Disorders Awareness Month! Patrick and Natalie discuss that, Washington Days, the landmark opening of the My Life, Our Future research repository, and more! Also, Australian community member Jenna Lovell gives her take on life w/ vWD, and Mainer Justin Levesque discusses photography, hemophilia, Icela ...…
 
Episode 007 Feeling sick? Although many illnesses are caused by microorganisms, other diseases such as cystic fibrosis and hemophilia are genetic disorders, caused by abnormalities in the DNA of our own chromosomes.
 
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PowerMedEd - Turning the Power Of Medical Education ON!
 
After listening to this podcast, you can obtain free Continuing Medical Education (CME) credit. Register at PowerMedEd.com, answer a few short post-test questions and receive free CME. You can find us on iTunes and GooglePlay. It is really that simple. In this episode, Anne Greist, MD, a hematologist with The Indiana Hemophilia and Thrombosis C ...…
 
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Ask The Expert - A BloodStream Media Podcast
 
In this episode, pediatric hematologist Dr. Arash Mahajerin is back to answer listener-submitted questions on the future of portacaths for kids with hemophilia, what to do when mysterious bruising or joint pain begins to show, and marijuana- is it a legitimate form of medication, or not? His answers to those questions, and more, on Episode 2 of ...…
 
Description: In this episode, Patrick and Natalie review some advocacy best practices, take a look at the increasingly popular cryotherapy, share one mom's (anonymous) story of addiction, hemophilia and family, and during the Sit-Down segment, Patrick speaks with NHF board member Jorge de la Riva about how NHF's board works, his views on health ...…
 
This episode of the Sofa King Podcast looks at the Mad Monk of Russia, Grigori Yefimovich Rasputin. Born in a small town in Siberia to peasants, he had a reputation of having visions from God as a young child, and he eventually left town to join a monastery after he was recruited due to his “visions.” However, Rasputin wasn’t that good at being ...…
 
This episode of the Sofa King Podcast looks at the Mad Monk of Russia, Grigori Yefimovich Rasputin. Born in a small town in Siberia to peasants, he had a reputation of having visions from God as a young child, and he eventually left town to join a monastery after he was recruited due to his “visions.” However, Rasputin wasn’t that good at being ...…
 
T
This or That | A Would You Rather Comedy Podcast
 
There are so many diseases in the world, many of them potentially fatal. Though life is surely difficult for those people, or maybe because of that, this week we take two of these awful afflictions and debate which is better! Autobrewery Syndrome: brewer's yeast in the intestinal tract that can turn consumed carbohydrates into ethanol. The resu ...…
 
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This or That | A Would You Rather Comedy Podcast
 
There are so many diseases in the world, many of them potentially fatal. Though life is surely difficult for those people, or maybe because of that, this week we take two of these awful afflictions and debate which is better! Autobrewery Syndrome: brewer's yeast in the intestinal tract that can turn consumed carbohydrates into ethanol. The resu ...…
 
For a number of diseases that require chronic administration of a substance naturally produced by the body, patients may have to rely on regular injections or infusions. Sernova is working to free patients from these types of regimes with it combination device and cell therapy that implants a pouch that contains living cells that produce the mi ...…
 
Competitors make headway against Teva Pharmaceutical's top-seller, and Biogen's hemophilia drugs become Bioverativ. Here's what you should know.
 
Sobi is a drugmaker focused on hemophilia, inflammation, and genetic and metabolic diseases. It is now pursuing its drug Orfadin, used to treat the metabolic disorder tyrosemia type 1, as a potential treatment for the metabolic condition alkaptonuria. It is also pursuing Kineret, its drug for the rare inflammatory condition NOMID, as a potentia ...…
 
Haydée Benoit de García, of the Dominican Republic, used her son’s diagnosis with Severe Hemophilia A as motivation to empower her entire country with knowledge and information about bleeding disorders. From what had once been an isolating experience for the hundreds in the Dominican Republic with Hemophilia (diagnosed or not), came a community ...…
 
In this episode, Patrick & Natalie review recent headlines of interest, introduce a patient perspective on life with sickle cell disease, discuss Believe Limited's upcoming documentary about hemophiliac mountaineer Chris Bombardier's summiting of Mount Everest, and discuss football, finance, and five tips toward improving money management durin ...…
 
In this episode of HemoStories, Holly Olsen speaks with Miguel Izquierdo in Mexico City. Himself a hemophiliac, Miguel Izquierdo understands the challenges of diagnosis and treatment. As the president of the Directive Board of the Mexican Federation of Hemophilia, he advocates for proper health care for thousands of hemophiliacs in Mexico. The ...…
 
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