Rare Voices reveals the wisest path to a fulfilled life for patients with rare and orphan disorders. Brought to you by the people at Optime Care, a pioneering specialty pharmacy. In each episode, we uncover insights from patient advocates, pharmaceutical innovators, leaders in insurance, physicians, and caregivers. Prepare to provoke your mind and fuel your drive to serve rare and orphan patient populations.
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The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders ...
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Are you facing trials? Are physical and mental challenges weighing you down on our journey? Through his experiences with the rare disease myasthenia gravis, host Stephen V. Smith shares encouragement and inspiration as he seeks to create a life of meaning and connection. "Live Life Rare" is the companion podcast to the newsletter of the same name, which can be found at liveliferare.com. Join in the conversation as Stephen helps us discover and pursue what a rare life means to each of us.
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Welcome to RARING, the voice of the rare disease community and a no-BS forum for patients and their families, rare disease patient organizations, and medical professionals. If you live with a rare disease or love someone who does, RARING is the podcast for you, by you, and with you every day. Tune in to hear leading experts discussing next-generation diagnostics and treatments. Learn from passionate nonprofit leaders talking about their highs and lows fighting for their communities. And laug ...
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In our series of podcasts, FIECON team members engage with patient advocates and thought leaders to explore the burden, unmet needs, patient journey, and potential future treatments for specific diseases, with the aim of gaining a deeper understanding of the patient's perspective, particularly for rare diseases. At FIECON, we are dedicated to ensuring that life-changing treatments reach the patients who truly need them, while also increasing awareness and amplifying the patient voice to make ...
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Market researchers have the coolest backstories. Hear them here!
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On this podcast, we interview voice and bodywork professionals to provide helpful information for overall health and optimal function of the voice. We interview SLPs, Otolaryngologists, Manual Therapists, Body Oriented Psychotherapists, Health Coaches, Fitness Instructors, Broadway Performers, Opera singers, Singer/Songwriters, Voice Teachers, Composers, Company Managers, Sports Broadcasters, and more. It is our mission to educate the professional voice user and provide knowledgable, creativ ...
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A cabinet of auditory wonders for the 21st century. If you would like to donate to help keep this project going you can donate to my Patreon: https://www.patreon.com/RandomTape
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Sojourner Truth with Margaret Prescod is a news & public affairs program that airs Tuesday through Friday on KPFK Radio from 7 to 8 AM (PST), and nationwide on Pacifica Radio networks. If you're in Los Angeles, or Southern CA, tune in at 90.7 FM Los Angeles, 98.7 FM Santa Barbara, 93.7 FM North San Diego, 99.5 FM Ridgecrest-China Lake, or www.kpfk.org. Tune in to daily Pacifica News headlines at the start of our show. Sojourner Truth brings you news and views on local, national & internation ...
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The campfire. school, church, and watercooler all-in-one. It's the earliest form of community; Sitting around a campfire and sharing stories. For generations, it was used to build trust, share knowledge, and inspire others. Welcome to the Virtual Campfire – I'm Tony Martignetti, the Inspired Coach. Here I'll share powerful lessons learned from leaders in their transformation journey. When you see someone on stage: sharing a powerful message, "owning the room" and, having a huge impact in the ...
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Insurance is a maze. Don’t get lost. Mark Geoghegan asks directions from all the top people in the Global Insurance and Reinsurance Industry
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This podcast is about the advancement of rare disease research told by health professionals, researchers, parents, and advocates. This podcast is for you to learn how newborn screening research saves the lives of babies every day through discoveries of new technologies and treatments. You will hear stories from experts who treat babies, the families who care for them, and the researchers who make it all happen.
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A fan podcast celebrating all things Penelope, Colin, and Bridgerton complete with episode deep dives, book rereads, theories and speculation, and plenty of spiraling from a group of friends who anxiously awaited Season 3 and now are braced once more for the Wilderness Weeks.
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Welcome to The Pharma Podcast - Insights from industry experts and business leaders about important and current topics in Canadian Pharma, Biotech and Medtech.
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The goal of our “Ask the Expert” podcast series is to share the latest research and information on rare neuroimmune disorders and provide an avenue for individuals diagnosed with these disorders and their family members to ask questions to experts who specialize in these disorders. The podcasts are moderated based on questions submitted by our community. We would like to hear from you. If there are topics that you would like us to address in our podcasts, you can share your thoughts by sendi ...
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STANDOUT on LinkedIn: in:dispensable truths, tools, and tips is a podcast focused on bringing our LinkedIn expertise and experience to listeners. For over 10 years, we have enabled professionals in reaching their career and business goals on LinkedIn, helping them show up, grow their sales pipeline, and land a new career. Listen to develop and increase your Significance over Time with Authenticity, Networking, Dedication, Open-mindedness, Understanding, and Tenacity on LinkedIn, and unlock n ...
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We explore the unique lives and work of our community's leaders, professionals, and inspirational members--conversations about the challenges, courage, and dedication that are pillars of this community. We share new perspectives, insights, and knowledge about the rare disease that impacts our daily lives and guides our individual journeys. The National MPS Society exists to cure, support and advocate for MPS and ML.
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Autoimmune Community Voices podcast features conversations with the diverse autoimmune community. This is a podcast of the Autoimmune Community Institute - acicommunity.org
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Insights into Success has been created to give small business owners and entrepreneurs around the world, never before access to successful business people to hear about their "warts and all" journey to success. There is no "sugar coating", we want to hear the truth so our listeners can have realistic expectations and therefore be better prepared to succeed! We specifically want to know, just how close they came to failure and why they think they ultimately succeeded. What do they think our l ...
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Ever wonder what makes people take the leap and follow their dreams? That's what RareErth Podcast is all about. I sit down with folks who've turned their passions into careers, asking them the tough questions we all face. How'd they find the courage to start? What keeps them going? Whether it's artists, business owners, or creative thinkers, I'm chatting with people who've taken risks to do what they love. If you're looking for a little inspiration or just enjoy a good story, tune in. Learn ...
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Join Rosaria Kozar, the mother of a warrior, as she interviews oncologists, pediatricians, survivors, parents, and other applicable organizations in the pediatric cancer world. If you need support as a caregiver or are just curious about childhood cancer, this is the show for you. Living With Scanxiety: Cancer Podcast discusses more than scans; it covers life during treatment and post-treatment. Subscribe, and I hope you will get some much-needed support from the show. Rosaria's mission is t ...
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This show is devoted to jewelry store owners, the jewelry trade, and those who want to get a rare full access pass into the inner workings of the multi-billion dollar U.S. diamond, gemstone, fashion jewelry and watch industry. To learn more contact Rod@FourGrainer.com.
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This free podcast is a long form conversation hosted by traveler, writer and curiosity seeker Rich Bryant with friends and guests that include artists, designers, authors and whoever steps up to the mic.
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Welcome to the On The Horizon podcast. This podcast series starts by taking you through recordings from our live event, and then will move onto more conversations with more brilliant people, throughout the year. We felt that the talks that we used to host at The Good Life Experience (our festival of food, ideas, music & craft that we ran for 8 years) on Hawarden Estate were really special and unusual. In many ways it was the guests’ conversations before and after the talks that made them dif ...
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What does it mean to be a spiritual leader at this critical and chaotic moment in human history? Rabbi Charlie Buckholtz conducts intimate long-form interviews with other rabbis and culture-carriers, change-agents and court-jesters. On topics ranging from spiritual resistance to disorganized religion to Israel/Palestine to creativity to the possibility of individual and collective change, their lively journeys and conversations offer insight, humor, rare perspective and at times rank absurdi ...
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Everyday of the week listen to the great shows from Old Time Radio. Those great shows that made of laugh or gave us exciting journeys into the Dramatic, Suspense, Action, Westerns, SciFi,and Adventure.
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Become an EMPOWERED INVESTOR. Survive and thrive in today's economy! With over 2,000 episodes in this Monday, Wednesday, Friday podcast, business and investment expert Jason Hartman interviews top-tier guests, bestselling authors and financial experts including; Steve Forbes (Freedom Manifesto), Tomas Sowell (Housing Boom and Bust), Noam Chomsky (Manufacturing Consent), Jenny Craig (Health & Fitness CEO), Jim Cramer (Mad Money), Harvey Mackay (Swim With The Sharks & Get Your Foot in the Door ...
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The best coaches and athletes in the world share stories and lessons on life, leadership and career success...and failure. The show is tailored for business men/women, entrepreneurs, leaders, coaches and athletes looking for the information and inspiration they need to take themselves, their careers and/or their teams to the next level. Show host, Coach Bruce Babashan (a.k.a. Your Corner Man), is a world renowned professional boxing trainer and former senior corporate executive. Coach Bruce ...
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Ep221 Tim Ronda: A rare moment where everyone can win
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It's the ultimate job of a Broker to make insurance and reinsurance deals happen. You can’t make things happen if you’re too shy to talk to anyone, or not good at listening. Once you have listened you then need to be empathetic and understand the nuances and intentions of the parties to a transaction. You also need to be able to make a point eloque…
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Using Tragic Events As A Driver For Success!
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As a small boy, Jose Berlanga suffered horrific burns (most of them 3rd degree) to almost all of his body. Understandably it has had a significant impact on his life, but not in a negative way like you would think. Jose chose to use this a fuel to make a better life for himself. Jose epitomizes, how your outlook on events is everything. Most in his…
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2204: Navigating Market Shifts, Policy Changes, and Wealth-Building Opportunities with Megan Gorman Part 2
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Jason discusses the alarming state of America's food industry, criticizing Starbucks for its unhealthy offerings. He highlights the excessive sugar content in popular items, like muffins, and expresses concern over bioengineered ingredients. Hartman also touches on the critical U.S. housing shortage, revealing a stark decline in single-family home …
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Ep222 Jean-Jacques Henchoz: Market of First Resort
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Today’s interviewee is making his fourth appearance on the podcast, which I think makes him my most interviewed guest. But as he is the CEO of Hannover Re, one of the world’s largest and most consistently outperforming reinsurers, I’d love to be able to have Jean-Jacques Henchoz on the show even more regularly. That's because very few underwriters …
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2203: All the Presidents' Money- Uncovering Wealth Lessons from History's Leaders with Megan Gorman Part 1
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Jason shares his recent experiences, speaking at the LIMITLESS conference in Dallas, Texas including an interaction with Robert F. Kennedy's private security team. He also expressed concerns about the control of information by the establishment and the media, and the potential for important issues to be overlooked. Lastly, Jason Hartman introduced …
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The Human Face Of Drug Development With Samuel Blackman
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Drug innovation is more than just scientific breakthroughs; it’s a transformative force that profoundly impacts the lives of millions, offering hope, healing, and improved quality of life. Today, Tony Martignetti takes us into a poignant conversation with biotech leader Samuel Blackman, co-founder and Chief Medical Officer of Day One Biopharmaceuti…
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2202 FBF: Rising Middle Class Impact on Real Estate & Data Science for Real Estate with Anna Myers
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This Flashback Friday is from episode 1185, published last May 2, 2019. Jason brings this episode to you from China, where he has seen the impact of the rising middle class. While it may seem to be a world away, the growth in construction in China is impacting the cost of construction here in the United States as well. Then Jason talks with Anna My…
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Episode #122: Rachel Baghelai - I/O Psychologist, Dressage Rider, Punk Rock Enthusiast
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Second time’s a charm. After starting out in banking, Dr. Rachel Baghelai pivoted and has thrived in her career as Industrial/Organizational psychologist and business consultant focused on employee research. She is currently VP of Assessment and Analytics and The Kaleidoscope Group, a leading DEI consultancy based in Chicago. We discuss Rachel’s ca…
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2201: Navigating the Housing Market: Rising Interest Rates, Refinancing, Emerging Markets and Institutional Investors with Robert Helms
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Jason and Robert Helms discuss the recent increase in mortgage refinancing activity and the ongoing housing shortage, its impact on the real estate market, and potential solutions for affordable housing. They also explore emerging real estate opportunities, such as investing in high-demand, low-supply markets and the potential of parking lots as an…
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An unearthed experiment in podcasting. Special thanks to KCRW and The Believer Magazine, Andrew Leland and Ross Simonini. You can hear more of Matt Holzman's work here: If you would likey to pupport theesey project you can donate to the Patreon at patreon.com/Randomtape
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Today on the Sojourner Truth Weekly Broadcast: We get an update on the Presidential election, a look at the contrast between the candidates of the two major political parties; key moments at the Democratic National Convention; and analysis on the race. Our guest is Jackie Goldberg. And for our annual Labor Day Special we focus on the labor union ac…
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2200: The Science of Memory Hacks: How to Study Smarter, Not Harder and Set Yourself Up for Success with Matt DiMaio
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Jason and Matt DiMaio discussed strategies to improve memory and learn new skills faster, with Matt sharing his extensive experience in building large sales forces and his journey of discovering effective learning techniques. They explored the causes of forgetfulness, the importance of active learning, and the power of belief in memory retention. L…
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Episode 55 - What a Rare Bavarian Text! [S3 Q&A Pt 2]
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Sigh no more, listeners, sigh no more. The Lady in Silver has been found at last. But there’s no rest for the Wicked as Beans has found herself with a new mystery on her hands: we don’t even know which rare Bavarian text it is, but we’re looking for it. As we scour the shelves of Shakespeare & Co. for the elusive tome, we’ll also be searching for a…
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2199 FBF: One Nation Under Gold, The Big Money, The Great Depression by James Ledbetter of Inc Magazine, Reuters, TIME & The Village Voice
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This Flashback Friday is from episode 857 published last July 17, 2017. Jason and Keri start things off by answering a client’s question submitted as part of the Airpod contest and then warn against working with companies who do not require inspections and only deal in cash. During the guest interview, Jason asks James Ledbetter about his books One…
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Episode #121: Rob Klein - Founder of Klein & Partners, Healthcare Expert, Budding Musician
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Rob and his business partner / wife, Toni, are giving new meaning to the term ‘house band.’ After starting his insights career with classic firms like Market Strategies Int’l and Elrick & Lavidge, Rob has been running his own firm, Klein & Partners, for over 20 years focused exclusively on supporting healthcare clients. Rob and Toni are partners in…
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Be Careful What You Wish For - James Arthur Ray
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James Arthur Ray featured in "The Secret". After 20 years of struggle, he was an overnight success, featuring in multiple TV shows including Oprah. From there his business boomed until on one fateful day it all changed when 3 of his clients tragically died. Found guilty of negligence, he then spent 2 years in prison and lost his fortune. Never losi…
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2198: Housing Affordability and Shortage- Investing in Rare Assets
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Jason discussed various issues related to geopolitics, capital gains taxes, and the real estate industry, expressing his discontent with proposed tax plans and the recent changes in real estate rules. He also warned against investing in pooled money assets due to the ongoing scandal involving Marco Santorelli and Norada Real Estate. Lastly, he high…
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Progressive Central 2024: The Politics Americans Want
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PDA conferenceProgressive Democrats of America was founded in 2004 to transform the Democratic Party and our country. We seek to build a party and government controlled by citizens, not corporate elites-with policies that serve the broad public interest, not just private interests.As a grassroots organization operating inside the Democratic Party, …
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2197: Leveraging Real Estate: How to "Die with Zero" While Building Wealth Through Smart Investments
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In this episode, Jason explores real estate trends in Warsaw, Poland, highlighting rising property prices and rents due to factors like the Ukraine invasion. He discusses global housing shortages and critiques U.S. policies, such as affordable housing initiatives and immigration impacts, which exacerbates demand and push prices higher. Jason emphas…
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Episode #120: Victoria Sakal - Head of Growth at Wonder, Family Business Kid, Real Estate Investor
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Victoria Sakal is currently the Head of Growth for the on-demand research platform company called Wonder (askwonder.com), who is applying AI and a whole lot of innovation to secondary research. Really cool stuff! But, if you would have told a young Victoria she would make a career in research, she most certainly would not have believed you. Much of…
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2196 FBF: The Housing Boom and Bust in America with Economist Thomas Sowell of The Hoover Institution at Stanford University
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This Flashback Friday is from episode 117 published last September 1, 2009. "For far too long, too many people have regarded home ownership as 'a good thing.' It is certainly true that home ownership has its benefits. But, like everything else, it also has its costs and its risks." This statement by Creating Wealth Show guest, American economist Th…
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Priyata -A Systems Biologist on Merging Ancient Wisdom with Cutting-Edge Science, Blockchain in Healthcare, and the Art of Conscious Living
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Welcome to a fascinating episode , where we explore the intersection of science, philosophy, and personal growth with a guest who embodies the spirit of interdisciplinary thinking and constant evolution. My guest is Priyata, a systems biologist whose journey spans from the bustling cities of India to the cutting-edge research labs of Germany. Priya…
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2195: Empowered Investing: Mastering Self-Management, Control and Outgrowing Dave Ramsey’s Advice
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Join Jason today as he broadcasts from Warsaw, Poland as he discusses the importance of self-management and maintaining control as an empowered investor. He emphasizes "commandment number 3: thou shalt maintain control" to avoid potential issues like fraud, incompetence, and excessive management fees. He highlights the ongoing controversy surroundi…
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Ep220 Hugh Sturgess: Define your appetites and live by them
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I’m really pleased today because after almost four years of trying I have finally managed to get someone from the Arch Capital group of companies onto the show. Arch’s appetite to make the most of market opportunity and react quickly to a lack of the same has led to long-term outperformance that speaks for itself. That is perhaps just as well in a …
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2194: Why Waiting for a #HousingMarketCrash Could Cost You Big
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Greetings from Poland! Today, Jason reflects on his recent travels from Croatia to Poland, emphasizing the value of taking chances in life. He discusses the current state of the real estate market, highlighting the resilience of housing prices despite high mortgage rates. He cautions against relying on predictions of a market crash, emphasizing the…
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How Asking Questions Transforms Relationships And Leadership With Jeff Wetzler
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In both personal and professional settings, the act of asking thoughtful questions can be a powerful tool. This seemingly simple act can foster deeper connections and transform the way we lead and interact with others. In this episode, Tony Martignetti engages with Jeff Wetzler, the co-CEO of Transcend and author of Ask, exploring the transformativ…
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Affirming Voice Training for Transgender and Gender Non-Conforming Singers: with Dr. Felix Graham and Dr. Christopher Cayari
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Join us for an insightful conversation with Dr. Christopher Cayari and Dr. Fellix Graham as we dive deep into the world of voice training for transgender and gender non-conforming singers. In this episode, we'll tackle crucial topics and common misconceptions in the field, including: Vocal Health: How should vocal health be managed during periods o…
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Episode 54 - What a Positive Tone of Voice! [S3 Q&A Pt 1]
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The Ton’s out for summer. But over here, the Class of 1815 is still very much in session. In the first of our S3 Q&As, we’ll be turning on our Regency location settings, standing on Crumbs sentry and tackling the hard-hitting questions of the social season. Which Soft Colin line still has us swooning? Which moonlight bisoux stole our hearts? And wh…
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2193 FBF: Irreversible Impacts on Big Business By Big Government with Tim Carney Author of ‘The Big Rip-Off’
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This Flashback Friday is from episode 449, published last 8 December 2014. Jason Hartman brings in a real estate focus to the introduction of today’s Creating Wealth Show by explaining exactly how you can work out your rent-to-value ratio. As this is one of the most important figures a real estate investor need to keep in mind, there’s no excuse fo…
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2192: Beyond the Property Manager: Empowering Yourself as a Landlord
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In today's episode you can listen in on Jason's Empowered Investor meeting about self-managing your own properties, especially its risks and rewards. Self-managing your rental property can offer significant benefits. By taking on this role, landlords can potentially save money on property management fees, which often account for a substantial porti…
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1212. The Role of Physicians and Patients in Legislative Advocacy
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In this episode of "Ask the Expert," hosted by Krissy Dilger of SRNA, Dr. Shuvro Roy talked about the importance of legislative advocacy in healthcare [00:01:10]. Dr. Roy discussed how physicians can engage in legislative advocacy by sharing their practice stories and providing technical expertise [00:05:05]. He emphasized the crucial role of patie…
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The Power Of Reading With Alicia Berberich
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Alicia Berberich has become passionate about helping others achieve their goals, especially women. Through her own experiences with a negative voice that she has learnt to overcome, she has been able to live a more vibrant life. She harnessed the power of manifestation to achieve a lifelong dream to live in Paris. In this "Read to Succeed" intervie…
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2191: Leadership and Real Estate: Creating a Successful Business and Life with Trey Taylor
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Real estate investor Trey Taylor advocates for single-family homes as a stable, long-term investment. He emphasizes financial prudence, focusing on properties generating rental income that exceeds expenses. While acknowledging economic challenges like rising interest rates, Taylor remains optimistic about the housing market's resilience. His leader…
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The Voice Of The Rare: Building A Community Through Shared Stories With Rebecca Stewart & Nicola Miller
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In this episode, Tony Martignetti talks with sisters Rebecca Stewart and Nicola Miller as they share their transformative journey and the impactful work they have undertaken in the rare disease community, catalyzed by Nicola’s son Edison’s diagnosis with xeroderma pigmentosum. They delve into the challenges of navigating the rare disease landscape,…
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