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Dementia Matters
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Dementia Matters is a podcast about Alzheimer‘s disease and other causes of dementia. Creator and host Dr. Nathaniel Chin interviews leading scientists and caregiving experts to bring listeners the latest in Alzheimer’s disease news, research and caregiver resources. Brought to you by the Wisconsin Alzheimer’s Disease Research Center, find show notes and more resources at adrc.wisc.edu/dementia-matters.
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Dementia Matters is a podcast about Alzheimer‘s disease and other causes of dementia. Creator and host Dr. Nathaniel Chin interviews leading scientists and caregiving experts to bring listeners the latest in Alzheimer’s disease news, research and caregiver resources. Brought to you by the Wisconsin Alzheimer’s Disease Research Center, find show notes and more resources at adrc.wisc.edu/dementia-matters.
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1 Training the Next Generation: How the Research Education Component Supports Early Career Researchers 28:40
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LikedThe Research Education Component (REC) focuses on educating, mentoring and training the next generation of researchers at the over 30 Alzheimer’s Disease Research Centers (ADRCs) across the United States, offering a range of fellowships, educational activities and events like the annual Alzheimer’s Disease and Related Dementias (ADRD) Research Day. In honor of this year’s ADRD Research Day, early career researchers Isa Hayde and Dr. Yang Yeh join the podcast to discuss how REC has impacted their research journeys, as well as share a preview of their lightning presentations. Guests: Isa Hayde, undergraduate student, Clark Lab, and Yang Yeh, PhD, postdoctoral fellow, Lamming Lab Show Notes Learn more about REC and the Wisconsin ADRC’s Alzheimer’s Disease and Related Dementias Research Day on our website. Listen to the podcast with Drs. Barb Bendlin and Tyler Ulland, “ Gut Feelings: The Links Between Gut Health and Alzheimer’s Disease ,” mentioned by Dr. Chin at 5:30, on our website, Spotify , Apple Podcasts and all other major podcast platforms. Learn more about Dr. Yang Yeh and the Lamming Lab on the Lamming Lab website . Learn more about Dr. Lindsay Clark’s lab on their website . Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 Talking about Tau: The Role of Tau PET Scans in Alzheimer’s Research and Care 55:33
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Play Later Play Later Lists Like LikedEarly detection is a top priority in the field of Alzheimer’s research, and one indicator of Alzheimer’s disease is the buildup of tau in the brain. What is tau, though? How can we detect this protein, and what can it tell us about a person’s symptoms or disease progression? Dr. Gil Rabinovici, a leader in the field of brain imaging, joins Dementia Matters this week for an in-depth discussion on the role of tau PET scans in Alzheimer’s disease detection, research and clinical care. Guest: Gil Rabinovici, MD, professor, Department of Neurology, University of California San Francisco (UCSF), director, UCSF Alzheimer’s Disease Research Center, study chair, Imaging Dementia-Evidence for Amyloid Scanning (IDEAS) and New IDEAS studies, co-principal investigator, Alzheimer’s Network for Treatment and Diagnostics (ALZ-NET), Longitudinal Evaluation of Alzheimer’s Disease Study (LEADS) Show Notes Are you a clinician interested in receiving continuing education (CE) credits for listening to this episode? Find credit designation information, disclosures and evaluation information on our website and on the UW–Madison Interprofessional Continuing Education Partnership (ICEP) website . The accreditation for this course expires 4/7/2026. After this date, you will no longer be able to access the course or claim credit. Read “ Criteria for Diagnosis and Staging of Alzheimer's Disease ,” mentioned by Dr. Rabinovici at 18:43, on the Alzheimer’s Association’s website. Listen to our past episode with Dr. David Wolk, “ LATE, Explained ,” mentioned by Dr. Rabinovici at 26:31 on Spotify , Apple Podcasts and on our website. Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 Changing the Narrative: One Man’s Journey to Alzheimer’s Diagnosis and Treatment 28:50
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Play Later Play Later Lists Like LikedReceiving a diagnosis of Alzheimer’s disease or a related dementia can be a complicated experience. While some experience relief at being able to put a name to their concerns, many worry about telling loved ones or being treated differently due to the stigma surrounding the word “dementia.” Mike Zuendel joins the podcast to share his experience of being diagnosed with Mild Cognitive Impairment (MCI) due to Alzheimer’s disease and how he’s pushing back against the stigma surrounding dementia. He also talks about how early detection and treatment have allowed him to lead a normal life with cognitive impairment. Guest: Mike Zuendel, member, board of directors, Banner Alzheimer’s Institute Foundation, member, Alzheimer’s Patient Advisory Board, Center for Information and Study on Clinical Research Participation, founder, Initiative to Change the D-Word, founder, CEO, Legacy Bridge Private Family Offices Show Notes Learn more about Mike Zuendel on his profile on the Initiative to Change the D-Word’s website . Learn more about MCI by listening to other MCI-related episodes of Dementia Matters . Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 A Pathway to Wellness: The Benefits of Integrative Medicine on Brain Health 29:58
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Play Later Play Later Lists Like LikedHolistic medicine, alternative medicine, complementary medicine – you may have heard these terms or seen them used online and wondered what they mean. Each term refers to the concept of integrative medicine, a comprehensive approach to healthcare that focuses on treating a person’s mind, body and spirit rather than addressing symptoms or a specific disease through a combination of medical treatments and other evidence-based therapies. By integrating practices like nutrition, mindfulness, supplements and other alternative therapies with traditional care, integrative medicine aims to promote overall wellness, enhance healing and improve quality of life, especially for individuals managing chronic conditions like dementia. Dr. David Rakel, a leader in integrative medicine, joins the podcast to share about how this holistic approach can help people experiencing memory change and how diet, mindset and lifestyle can play a crucial role in supporting brain health. Guest: David Rakel, MD, professor, chair, University of Wisconsin Department of Family Medicine and Community Health, founder, University of Wisconsin Osher Center for Integrative Health Show Notes Learn more information about the Healthy Living With Mild Cognitive Impairment (MCI) program and register for upcoming events by visiting our website . Learn more about Dr. Rakel from his profile on the UW Madison Department of Family Medicine and Community Health website . Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 Putting a ‘Spotlight on Care’: Caregivers Help Other Caregivers Through Podcast Series 40:10
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Play Later Play Later Lists Like LikedCaring for a loved one with Alzheimer’s disease or a related dementia can be challenging, with no two journeys being the same. Who better to turn to for caregiving support, tips and advice, then, than other caregivers who have been on similar paths? Steve O’Leary and Virginia Naeve join Dementia Matters to share their different experiences caring for their partner and parent respectively, their goal to help other caregivers on their journeys through their podcast Spotlight on Care and more. Guests: Steve O’Leary, co-host, Spotlight on Care, member, leadership council, University of California, Irvine Institute for Memory Impairments and Neurological Disorders (UCI MIND), and Virginia Naeve, co-host, Spotlight on Care, volunteer, UCI MIND Show Notes Listen to the Spotlight on Care podcast on the UCI MIND website , Apple Podcasts , Spotify or wherever you listen to podcasts. Read Virginia’s blog, A New Path for Mom , online. Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 Shining Light on Younger-Onset Dementia with Lorenzo’s House 41:02
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Play Later Play Later Lists Like LikedDementia diagnoses affect families in many different ways. One of the most challenging to navigate is that of younger-onset dementia (YOD), a form of dementia that affects someone below the age of 65. This diagnosis can be particularly jarring for young families, as resources, support and research for this form of dementia are limited. When Diana Cose’s husband Lorenzo received this diagnosis, she decided to change that by founding Lorenzo’s House, a nonprofit that supports families grappling with younger-onset dementia and works toward lessening the stigma surrounding it. Diana Cose joins the podcast with programs lead Patti LeFleur to share their experiences with younger-onset dementia and how Lorenzo’s House brings light in the darkness. Guests: Diana Cose, founding executive director, Lorenzo’s House, Patti LeFleur, youth and lighthouse outreach lead, Lorenzo’s House Show Notes Learn more about Lorenzo’s House and their free programs on their website . Follow Lorenzo’s House on their Instagram , Facebook and LinkedIn for updates and more information. Learn about early-onset dementia, mentioned by Dr. Chin at 27:30, listen to our episode with Dr. Susanne Seeger, “ Early-onset Alzheimer’s Disease: What to Know and What to Expect ” on our website. Learn more about the documentary on autosomal dominant Alzheimer’s disease, mentioned by Dr. Chin at 28:05, on CBS News’ website and watch the documentary on Paramount+ . Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 What Now? Next Steps After Receiving an MCI Diagnosis 44:42
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Play Later Play Later Lists Like LikedWhat exactly does a mild cognitive impairment (MCI) diagnosis mean, and what should you do after receiving one? Hearing this diagnosis from a doctor can bring up a lot of emotions and questions for individuals and family members. Jennifer McAlister joins Dementia Matters to offer advice for next steps after receiving an MCI diagnosis and share strategies and resources that have been successful for individuals she’s worked with over the course of her career. Guest: Jennifer McAlister, outreach and partnerships manager, Outreach, Recruitment & Engagement Core, Wisconsin Alzheimer’s Disease Research Center Show Notes Find Jen’s “Next Steps After Diagnosis” flowchart, mentioned at 41:22, on our website and as a PDF . View and download a PDF of the decision-making tool , mentioned at 28:57, online. Learn more about the Wisconsin ADRC’s Healthy Living with Mild Cognitive Impairment (MCI) series on our website . Watch the Healthy Living with MCI series on YouTube . Learn more about MCI by listening to our past podcast episode, “ Our Evolving Understanding of Mild Cognitive Impairment ” on our website, Spotify , Apple Podcasts , and all podcast platforms. Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
While there are many kinds of dementia, like Alzheimer’s disease and Lewy body dementia, there’s one that researchers have only recently identified. LATE, or Limbic-predominant Age-related TDP-43 Encephalopathy, is a newly-characterized type of dementia associated with abnormal clumps of a protein called TDP-43. So, what exactly do we know about LATE? Dr. David Wolk joins the podcast to share what key features of LATE are, how it compares to Alzheimer’s disease and impacts treatment, and what next steps are needed to better understand this neurodegenerative disease. Guest: David Wolk, MD, director, Penn Alzheimer’s Disease Research Center, co-director, Penn Memory Center, co-director, Penn Institute on Aging, chief, Division of Cognitive Neurology, professor of neurology, University of Pennsylvania Perelman School of Medicine Show Notes Learn more about LATE on the National Institute on Aging’s website and on Penn Memory Center’s website . Read Dr. Wolk's article, " Clinical criteria for limbic-predominant age-related TDP-43 encephalopathy ," on the journal Alzheimer's & Dementia 's website. Learn more about Dr. Wolk in his profile on the Penn Memory Center website . Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 ‘Tis the Season: Navigating the Holidays as a Dementia Caregiver 21:28
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Play Later Play Later Lists Like LikedThe holidays can be a stressful time for everyone, especially those with dementia and their care partners. In preparation for this season, Dr. Alexis Eastman joins Dementia Matters for our last episode of 2024. Drs. Chin and Eastman discuss strategies for managing the potential stress of holiday traveling and gatherings, important safety considerations and more. Guest: Alexis Eastman, MD, geriatrician, Senior Medical Director of Ambulatory Medical Specialties, UW Health, associate clinical professor, Division of Geriatrics and Gerontology, University of Wisconsin School of Medicine and Public Health Show Notes Listen to our past episode with Dr. Eastman, “ Holiday Tips for Dementia Caregivers ,” on our website. Find more resources and tips for the holidays in “ Resources for navigating the holidays with Alzheimer’s ” on our website. Want to support Dementia Matters ? Make an end-of-year gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 Could AI Identify Alzheimer’s Risk Factors from Electronic Health Records? 34:51
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Play Later Play Later Lists Like LikedWith the recent surge in artificial intelligence and machine learning technology, one of the most exciting fields it could revolutionize is health care and, more specifically, the field of cognitive care and research. Dr. Marina Sirota and Alice Tang join the podcast to share their research on how AI could be used to predict one’s risk of developing Alzheimer’s disease based on their electronic health records. They also discuss what needs to be done to improve these algorithms and other ways this technology could be used in Alzheimer's disease research. Guests: Marina Sirota, PhD, associate professor, University of California San Francisco (UCSF), principal investigator, Sirota Lab, and Alice Tang, MD/PhD student, University of California San Francisco, postdoctoral fellow, Sirota Lab Show Notes Read Alice Tang and Dr. Sirota’s study, “ Leveraging electronic health records and knowledge networks for Alzheimer’s disease prediction and sex-specific biological insights ,” online through the journal Nature. . Learn more about Sirota Lab on their website . Learn more about Dr. Sirota on her UCSF profile . Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 The Future of Fluid Biomarkers for Alzheimer’s Disease and Related Dementias 38:41
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Play Later Play Later Lists Like LikedThe field of biomarkers is constantly evolving, leading to developments in diagnosing and treating different kinds of dementia, but what exactly are biomarkers and how has our understanding of these measures changed over time? Dr. Henrik Zetterberg joins Dementia Matters to talk about the latest updates in research on fluid biomarkers. Dr. Zetterberg goes in depth on the role and properties of different biomarkers and how new measures and tools, like blood tests, are impacting diagnostic tests for Alzheimer’s and other neurodegenerative diseases. Guest: Henrik Zetterberg, MD, PhD, professor of neurochemistry, University of Gothenburg, University College London, visiting professor, University of Wisconsin–Madison, Biomarker Core co-leader, Wisconsin Alzheimer’s Disease Research Center Show Notes Learn more about Dr. Zetterberg on his University College London and University of Gothenburg profiles. Learn more about blood tests in our episode with Dr. Thomas Karikari, “ Update on Blood Tests for Alzheimer’s Disease, ” on our website. Learn more about the different biomarker procedures, such as lumbar punctures, through the Biomarker Videos on our website . Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 Support for the Supporters: Resources for Alzheimer’s Caregivers 29:48
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Play Later Play Later Lists Like LikedIf you're one of the 11 million Americans providing unpaid care to a loved one with Alzheimer’s disease, you know that caregiving is both incredibly rewarding and challenging. What makes caring for someone with dementia so emotionally and physically demanding, and what resources and strategies are available to help? In this episode, Bonnie Nuttkinson joins us to discuss the unique needs of dementia caregivers, tips for navigating each stage of the disease and ways to find support along the caregiving journey. Guest: Bonnie Nuttkinson, MS, research program coordinator, Wisconsin Alzheimer’s Disease Research Center Show Notes Read the Alzheimer’s Association’s 2024 Facts and Figures report that Dr. Chin mentioned at 7:29 Get 10 tips and more resources for caregivers from the Caregiver Action Network that Dr. Chin mentioned at the 12-minute mark. Visit “ Resources for People with Dementia and Care Partners ” on the Wisconsin ADRC website. Find caregiving resources on the National Institute on Aging’s (NIA) Alzheimer’s Caregiving website . Download or order The Caregiver’s Handbook from the National Institute on Aging (NIA) for free. Alzheimers.gov has information and resources for caregivers managed by the NIA at the National Institutes of Health (NIH). Find local elder care resources with the Elder Care Locator that Bonnie mentioned at 23:30. Learn more about Bonnie from her profile on the BerbeeWalsh Department of Emergency Medicine website. Read “ UW–Madison Alzheimer’s program staff featured in Badger Talks series during National Family Caregivers Month ” on the Wisconsin ADRC website. Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 Smartphone Screenings: Assessing Memory and Cognition using a Mobile App 31:45
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Play Later Play Later Lists Like LikedWhat if you could test your cognition from the comfort of your own home using a smartphone? Drs. David Berron and Lindsay Clark have spent years researching cognitive neuroscience, culminating in a 2024 published study investigating the effectiveness of a smartphone app as a tool for detecting cognitive impairment outside of a clinic or research setting. Drs. Berron and Clark join Dementia Matters to discuss how the app and tests were developed, the benefits and drawbacks of this approach and the implications of remote testing in the healthcare field. Guests: David Berron, PhD, Clinical Cognitive Neuroscience research group leader, German Center for Neurodegenerative Diseases (DZNE), and Lindsay Clark, PhD, licensed neuropsychologist, clinical core co-lead, Wisconsin Alzheimer’s Disease Research Center (ADRC), assistant professor, Division of Geriatrics and Gerontology, University of Wisconsin School of Medicine and Public Health Show Notes Read Drs. Berron and Clark’s study, “ A remote digital memory composite to detect cognitive impairment in memory clinic samples in unsupervised settings using mobile devices ,” online through the journal npj Digital Medicine. Learn more about Dr. Berron and his research on his website. Learn more about Dr. Clark on her profile on the Wisconsin ADRC’s website. Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 Catch Some Zzz’s: The Cognitive Benefits of Quality Sleep 33:35
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Play Later Play Later Lists Like LikedIf you get the recommended eight hours of sleep per night, you spend a third of your life asleep. Why dedicate so much time to sleeping, and how can one get the most out of those eight hours? In this episode, Dr. Allison Reiss joins us for an insightful conversation about how sleep helps the brain, what the brain does while we are asleep, tips for improving one’s sleep hygiene and much more. Guest: Allison Reiss, MD, internal medicine physician, head, Inflammation Laboratory, New York University (NYU) Langone Hospital-Long Island, associate professor of medicine, NYU Grossman Long Island School of Medicine, member, Medical, Scientific & Memory Screening Advisory Board, Alzheimer’s Foundation of America Show Notes For more information about sleep, listen to our episode with Dr. Steven Barczi, “ The Importance of Sleep for a Healthy Life ,” mentioned by Dr. Chin at 1:40. Learn more about Dr. Reiss and her publications from her profile on the NYU Grossman Long Island School of Medicine website. Learn more about the Alzheimer’s Foundation of America’s Medical, Scientific & Memory Screening Advisory Board, which includes Drs. Chin and Reiss, by visiting their website . Learn more about the Wisconsin Registry for Alzheimer’s Prevention (WRAP) on their website . View 9 sleep tips from the Wisconsin Alzheimer’s Disease Research Center (ADRC) Watch a recording of “Sleeping Your Way to Better Brain Health” presented by Dr. Steven Barczi. Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 Taking a Closer Look at Cognitive Decline and Preclinical Alzheimer’s Disease 24:26
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Play Later Play Later Lists Like LikedDr. Reisa Sperling returns for another episode of Dementia Matters . After covering her research focused on preclinical Alzheimer’s disease in part one, Dr. Sperling dives deeper into the different factors that can impact cognitive decline and early-stage Alzheimer’s disease and how clinical trials are shaping the field’s understanding of detecting, treating and preventing the disease. Guest: Reisa Sperling, MD, director, Center for Alzheimer Research and Treatment (CART), co-principal investigator, Harvard Aging Brain Study, principal investigator, Alzheimer’s Clinical Trials Consortium (ACTC), co-leader, A4 Study, co-leader, AHEAD 3-45 Study, professor of neurology, Harvard Medical School Show Notes Listen to our first episode with Dr. Sperling, “Defining and Addressing Preclinical Alzheimer’s Disease,” on Spotify , Apple Podcasts and on our website. Read more about the Harvard Aging Brains Study on their website. Read more about the AHEAD Study on their website. Watch “Voices from the AHEAD Alzheimer’s Disease Trial,” featuring Dr. Cynthia Carlsson and a research participant, on YouTube. Learn more about the Anti-Amyloid Treatment in Asymptomatic Alzheimer’s disease (A4) study here. Learn more about Dr. Sperling in her profile on the Massachusetts General Hospital website . Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 Defining and Addressing Preclinical Alzheimer’s Disease 21:49
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Play Later Play Later Lists Like LikedWhat if there was a way to detect Alzheimer’s disease before clinical signs and symptoms even appeared? Dr. Reisa Sperling joins Dementia Matters for a two-part series covering her research on detecting and treating Alzheimer’s disease at the earliest possible stage, known as preclinical Alzheimer’s. In this episode, Dr. Sperling goes in-depth on amyloid and tau proteins and the implications on early detection and treatment strategies for Alzheimer’s disease. Guest: Reisa Sperling, MD, director, Center for Alzheimer Research and Treatment (CART), co-principal investigator, Harvard Aging Brain Study, principal investigator, Alzheimer’s Clinical Trials Consortium (ACTC), co-leader, A4 Study, co-leader, AHEAD 3-45 Study, professor of neurology, Harvard Medical School Show Notes Read more about the Harvard Aging Brains Study on their website. Read more about the AHEAD Study on their website. Watch “ Voices from the AHEAD Alzheimer’s Disease Trial ,” featuring Dr. Cynthia Carlsson and a research participant, on YouTube. Learn more about the Anti-Amyloid Treatment in Asymptomatic Alzheimer’s disease (A4) study here. Learn more about Dr. Sperling in her profile on the Massachusetts General Hospital website . Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 Gut Feelings: The Links Between Gut Health and Alzheimer’s Disease 33:32
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Play Later Play Later Lists Like LikedAn expanding field of research is looking at how the gut affects different parts of people’s health, but how does it affect brain health? Drs. Barb Bendlin and Tyler Ulland join the podcast to talk about their 2023 study, which suggests a link between gut health, aging and changes related to Alzheimer’s disease. They discuss their findings on how gut inflammation could impact brain health, as well as explain what it means to have good gut health and how food, medications, where one lives and other factors can impact the gut microbiome. Guests: Barbara Bendlin, PhD, professor, Division of Geriatrics and Gerontology, deputy director, University of Wisconsin (UW) Center for Health Disparities Research, and Tyler Ulland, PhD, associate professor of pathology and laboratory medicine, UW School of Medicine and Public Health, leader, Ulland Lab Show Notes Learn more about the 2024 Fall Community Conversation: The Impact of Social Connections on Brain Health and register to attend in person on our website. Read Dr. Bendlin and Dr. Ulland’s study, “ Gut inflammation associated with age and Alzheimer’s disease pathology: a human cohort study ,” on the National Library of Medicine website. Learn more about Dr. Bendlin and Dr. Uland’s study in the article, “ Gut inflammation linked to aging and Alzheimer’s disease ,” on the UW School of Medicine and Public Health website. Learn more about Dr. Ulland from his profile on the Ulland lab webpage . Learn more about Dr. Bendlin from her profile on the UW Center for Health Disparities Research website . Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
In this compendium episode, we review some of the best information and research that we’ve shared on the six pillars of brain health. With excerpts highlighting the importance of physical activity, diet, sleep, social engagement and more, our six guests show that there are numerous evidence-based lifestyle interventions that a person can incorporate into their daily lives to improve their brain health and delay the onset of or reduce their risk of developing Alzheimer’s disease. Show Notes Learn more about the 2024 Fall Community Conversation: The Impact of Social Connections on Brain Health and register to attend in person on our website. Learn more about exercise and physical activity at 2:57 or by listening to the episode, “ Building the Brain: Finding the Cognitive Benefits of Physical Activity ,” on our website. Learn more about the MIND diet at 8:58 or by listening to the episode, “ MIND Diet for Healthy Brain Aging ,” on our website. Learn more about the importance of sleep at 14:28 or by listening to the episode, “ The Importance of Sleep for a Healthy Life ,” on our website. Learn more about mindfulness as a practice for managing stress at 21:22 or by listening to the episode, “ Mindfulness: What Is It, What Are the Benefits, Where to Begin ,” on our website. Learn more about cognitive engagement at 28:10 or by listening to the episode, “ Exercise Your Mind: Cognitively Stimulating Activities and Social Engagement ,” on our website. Learn more about social isolation and engagement at 34:44 or by listening to the episode, “ The Impact of Social Isolation on Dementia Risk in Older Adults ,” on Spotify , Apple Podcasts and on our website. Find more information about the six pillars of brain health and other prevention strategies on our website . Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 Predictive Personalities: How Personality Traits Influence Dementia Risk 37:15
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Play Later Play Later Lists Like LikedWhile genetics and lifestyle can influence one’s risk of developing Alzheimer’s disease, other unexpected factors can shift the possibility. One of these factors is personality. Dr. Emorie Beck joins Dementia Matters to share her research on the link between personality and Alzheimer’s risk. Dr. Beck breaks down the Big Five traits that make up someone’s personality and their effects on a person’s cognitive health. Guest: Emorie Beck, PhD, assistant professor, University of California, Davis Show Notes Read Dr. Beck’s study, “ Personality predictors of dementia diagnosis and neuropathological burden: An individual participant data meta-analysis ,” through the Alzheimer’s Association Journals website. Learn more about Dr. Beck on her profile on the UC–Davis website . Learn more about social isolation by listening to our episode, “The Impact of Social Isolation on Dementia Risk in Older Adults,” on Spotify , Apple Podcasts , and on our website . Find out your personality type by taking the FiveThirtyEight Personality Quiz Test your cognitive ability and participate in studies similar to Dr. Beck’s on TestMyBrain.org Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 Getting AHEAD of Alzheimer’s with Inclusive Clinical Trials 25:19
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Play Later Play Later Lists Like LikedDementia Matters Special Series: Voices of Research Participants When Ms. Carol Turner found out her family had a history of Alzheimer’s disease, she wanted to know how she could help herself and others with similar experiences. After learning about the AHEAD Study, which is testing a treatment that could delay memory loss before Alzheimer’s symptoms appear, she signed up to participate in this ground-breaking research. Ms. Turner joins the final episode in our Voices of Research Participants series to discuss her journey as a research participant, how she became an advocate for others in her community and the power of representation in clinical trials. Guest: Ms. Carol Turner, AHEAD Study participant Co-host: Sarah Walter, MSc, program administrator, Alzheimer’s Clinical Trials Consortium (ACTC) and Alzheimer’s Therapeutic Research Institute (ATRI) Show Notes Listen to the rest of the Voices of Research Participants series, “ From Caregiver to Research Participant: How One Woman’s Experience as a Dementia Caregiver Drew Her to Alzheimer’s Research ,” “ Living with Lewy Body: A Neurologist’s Journey Through Research and Dementia Care ,” and “ Advocating for All: The Impact of Community and Equity in Dementia Research ” on our website and all podcast platforms. Watch “ Voices from the AHEAD Alzheimer's Disease Trial ” featuring Cynthia Carlsson, MD, MS on the UW Clinical Trials Institute YouTube. Learn more about the AHEAD Study on their website. Learn more about Sarah Walter in her bio on the Alzheimer’s Clinical Trials Consortium website . Find resources for people with dementia and their care partners on our website . Connect with Us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 REVEALing APOE Results: Making Genetic Disclosures in Alzheimer’s Research 35:00
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Play Later Play Later Lists Like LikedOn this episode of Dementia Matters , Dr. Scott Roberts talks about disclosing genetic test results for APOE, a gene that can increase one’s likelihood of developing Alzheimer’s disease. While this information can be concerning, Dr. Roberts shares that it can empower individuals to take the necessary precautions to lower their risk of developing the disease. He discusses the Risk Evaluation and Education for Alzheimer’s Disease (REVEAL) study, walks us through the APOE disclosure process and shares how it is evolving with the development of new Alzheimer’s treatments. Guest: Scott Roberts, PhD, interim chair, professor of health behavior & health education, University of Michigan School of Public Health Show Notes Read Dr. Roberts’ article, “ Genetic risk assessment for adult children of people with Alzheimer's disease: the Risk Evaluation and Education for Alzheimer's Disease (REVEAL) study ,” on the SageJournals website. Decide if you’re a fit forAPOE testing using Virginia Tech’s ‘Gene Test or Not?’ decision aid tool, mentioned at 17:00 in the episode . Learn more about Dr. Roberts on his University of Michigan profile . Learn more about APOE by listening to our episode, “ DNA Is Not Your Destiny: Genetics and Alzheimer’s Disease Risk ,” with Dr. Corinne Engelman on our website. Read “ WRAP data used in study finding a distinct, genetic form of Alzheimer’s disease ” on the Wisconsin Alzheimer’s Institute (WAI) website. Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 Advocating for All: The Impact of Community and Equity in Dementia Research 32:45
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Play Later Play Later Lists Like LikedDementia Matters Special Series: Voices of Research Participants What do you do when dementia symptoms begin to upend your entire life? For Brother John-Richard Pagan, the answer was to persist in finding a diagnosis and a supportive community that aligned with his values. In this episode of our Voices of Research Participants series with co-host Sarah Walter, MSc, Br John-Richard describes how he went from a PhD student to a dementia research participant and his journey getting diagnosed with Lewy body dementia (LBD). Br John-Richard also discusses how his background in clinical psychology influenced his participation in research and his advocacy for disabled, LGBTQ+ and other marginalized community members in medical research. Guest: Br John-Richard Pagan, MS, veteran, monastic, Episcopal Ecumenical Community, advocate, Lewy Body Dementia Association (LBDA) Co-host: Sarah Walter, MSc, program administrator, Alzheimer’s Clinical Trials Consortium (ACTC) and Alzheimer’s Therapeutic Research Institute (ATRI) Show Notes Listen to the first episode of the Voices of Research Participants series, “ From Caregiver to Research Participant: How One Woman’s Experience as a Dementia Caregiver Drew Her to Alzheimer’s Research ,” and “ Living with Lewy Body: A Neurologist’s Journey Through Research and Dementia Care ,” on our website and all podcast platforms. Learn more about AGREEDementia and the Participants’ Bill of Rights, mentioned at 17:10 and 30:12, on their website . Learn more about the Dementia Action Alliance on their website . Find support and resources from the Lewy Body Dementia Association on their website . Learn more about Sarah Walter in her bio on the Alzheimer’s Clinical Trials Consortium website . Learn more about how to get a dementia diagnosis on our website. Find resources for people with dementia and their care partners on our website . Connect with Us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 Be BOLD: Detecting Dementia Early Through Public Health Initiatives 33:38
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Play Later Play Later Lists Like LikedWhen it comes to dementia diagnoses, the earlier, the better, but why is it difficult to detect dementia in its early stages? Moreover, what strategies can be used to improve dementia detection? Dr. Josh Chodosh joins the podcast to answer these questions and discuss how public health initiatives could improve dementia diagnoses. He also talks about his work with the Building Our Largest Dementia (BOLD) Center, a public health center focused on early detection and ending the stigma around dementia. Guest: Joshua Chodosh, MD, director, division of geriatric medicine and palliative care, Michael L. Freedman professor of geriatric research, Grossman School of Medicine, New York University, staff physician, VA Harbor Healthcare System Show Notes Learn more about the Building Our Largest Dementia (BOLD) Public Health Center of Excellence on Early Detection of Dementia on their website . Learn more about the Aging and Disability Resource Centers (ADRCs) in Wisconsin and across the country . Learn more about Dr. Chodosh on his NYU Langone Health bio . Learn more about how to get a dementia diagnosis on our website. Learn how to get a free virtual memory screening through the Alzheimer’s Foundation of America (AFA) on their website. Connect with Us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 Let’s Talk: Navigating Family Conversations About Dementia Through Shared Decision-Making 47:44
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Play Later Play Later Lists Like LikedPicture this: you are supporting someone experiencing memory changes as a clinician, support person or care partner while they go through the memory clinic process. How do you navigate the challenging conversations surrounding symptoms, diagnoses, care plans and more that come up? Dr. Toby Campbell joins the podcast to discuss the importance of shared decision-making and share strategies for clinicians, care partners and loved ones to help navigate these important conversations with respect and empathy. Guest: Toby Campbell, MD, MS, thoracic medical oncologist, chief of palliative care, UW Health, professor of hematology, medical oncology and palliative care, University of Wisconsin School of Medicine and Public Health Show Notes Are you a clinician interested in receiving continuing education (CE) credits for listening to this episode? Find credit designation information, disclosures and evaluation information on our website and on the UW–Madison Interprofessional Continuing Education Partnership (ICEP) website . The accreditation for this course expires 5/13/2025. After this date, you will no longer be able to access the course or claim credit. Learn more about the SPIKES strategy, mentioned at 20:48, by reading “ Breaking bad news: the S-P-I-K-E-S strategy ” for free online. Read Dr. Campbell’s article, “ Discussing Prognosis and Shared Decision-Making ,” mentioned at 27:55 on ScienceDirect ’s website. Read Dr. Campbell’s article, “ Discussing prognosis: balancing hope and realism, ” mentioned at 31:20 on The Cancer Journal ’s website. Learn more about PalliTALK and WeTALK on the University of Wisconsin Department of Medicine website . Learn more about Dr. Campbell through his profile on the University of Wisconsin Department of Medicine website . Find Wisconsin-based and online resources for people with dementia and care partners on our website . Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 Making an IMPACT: Advancing Alzheimer’s Disease Clinical Trials Through Workforce Development and Inclusivity 23:17
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Play Later Play Later Lists Like LikedAdvances in Alzheimer’s disease clinical trials are accelerating rapidly, leading to new insights and disease-modifying therapies, but how does the field continue bolstering that momentum? For Dr. Rema Raman, it’s through improving inclusivity and training for early-career researchers. Recorded at the 2024 Alzheimer’s Disease & Related Dementias Research Day, Dr. Raman joins the podcast to discuss her work in research recruitment and retention, the importance of training the next generation of clinical trialists in dementia research with the IMPACT-AD program and more from her featured presentation. Guest: Rema Raman, PhD, co-director, Institute of Methods and Protocols for Advancement of Clinical Trials in ADRD (IMPACT-AD), director, section of biostatistics, section of participant recruitment & retention section, Alzheimer’s Therapeutic Research Institute, professor of neurology, University of Southern California Show Notes Watch our YouTube page for upcoming recordings of Dr. Raman’s presentation and other featured speakers at Alzheimer’s Disease & Related Dementias Research Day 2024. Learn more about Alzheimer’s Disease & Related Dementias Research Day on our website. Learn more about the Institute of Methods and Protocols for Advancement of Clinical Trials in ADRD (IMPACT-AD) on their website. Learn more about Dr. Raman at her bio on the Keck School of Medicine website. Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 Living with Lewy Body: A Neurologist’s Journey Through Research and Dementia Care 26:42
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Play Later Play Later Lists Like LikedWhat do you do if you have a family history of dementia and are experiencing symptoms, but can’t get a diagnosis? Dr. Sara Langer has dealt with just that. In the latest episode of our Voices of Research Participants series, Dr. Langer shares the obstacles she endured to receive her diagnosis of Lewy body dementia (LBD), how her background as a neurologist influenced her search for clinical care and how she turned to dementia research to find answers. She also discusses ways that the field of dementia research could improve to support those with other forms of dementia outside of Alzheimer’s disease. Guest: Sara Langer, MD, neurologist Co-host: Sarah Walter, MSc, program administrator, Alzheimer’s Clinical Trials Consortium (ACTC) and Alzheimer’s Therapeutic Research Institute (ATRI) Show Notes Learn more about Sarah Walter at her bio on the Alzheimer’s Clinical Trials Consortium website . Listen to the first episode of the Voices of Research Participants series, “ From Caregiver to Research Participant: How One Woman’s Experience as a Dementia Caregiver Drew Her to Alzheimer’s Research ,” on our website, Spotify , Apple Podcasts and all podcast platforms. Learn more about Lewy body dementia by watching the 2021 Dr. Daniel I. Kaufer Lecture, “ Diagnosis and Management of Dementia with Lewy Bodies ,” on our YouTube page. Learn more about how to get a dementia diagnosis on our website. Connect with Us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 The Fundamentals of Neuropsychology: Breaking Down Cognition, Memory and More 41:52
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Play Later Play Later Lists Like LikedThe brain is the most complex part of the human body, controlling thought, memory, emotion, motor skills, sensory input and all the processes that regulate our bodies. How exactly does it work, and how are clinicians able to determine whether brain changes are a result of normal aging, Alzheimer’s disease, or something else? Dr. Victoria Williams joins the podcast to explain important concepts in neuropsychology, from the difference between cognition and intelligence to how memories are made, and discuss how cognitive tests work in memory clinics. Guest: Victoria Williams, PhD, neuropsychologist, UW Health, assistant professor, Department of Medicine, University of Wisconsin School of Medicine and Public Health Show Notes Are you a clinician interested in receiving continuing education (CE) credits for listening to this episode? Find credit designation information, disclosures and evaluation information on our website and on the UW–Madison Interprofessional Continuing Education Partnership (ICEP) website . The accreditation for this course expires 3/25/2025. After this date, you will no longer be able to access the course or claim credit. Learn more about the domains and structure of the brain through the National Institute of Neurological Disorders and Stroke (NINDS) website . Learn more about Dr. Williams at her bio on the University of Wisconsin Department of Medicine website . Connect with Us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
Since the COVID-19 pandemic was declared by the World Health Organization (WHO) in 2020, there have been many concerns about how cases of COVID-19 and Long COVID or Post-COVID Conditions (PCC) affect not just a person’s physical health, but their cognition as well. In this episode, Dr. Jim Jackson talks about his path into critical illness research and his dedicated focus on unraveling the impact of Long COVID on cognition. Throughout the discussion, he talks about the parallels between Long COVID and other chronic illnesses, the effects of Long COVID across different demographics, the concurrent challenges faced by older adults and more. Guest: James “Jim” Jackson, PsyD, director of long-term outcomes, Critical Illness, Brain Dysfunction, and Survivorship (CIBS) Center, research associate professor of medicine, director of behavioral health, ICU Recovery Center, Vanderbilt University Medical Center Show Notes Learn more about Dr. Jackson’s book, Clearing the Fog: From Surviving to Thriving with Long Covid―A Practical Guide , on Goodreads. Listen to Dr. Jackson’s interview on NPR’s Fresh Air podcast, “ Millions of people have long COVID brain fog — and there's a shortage of answers .” Learn more about Dr. Jackson at his bio on the Vanderbilt University website. Learn more about Long COVID or Post-COVID Conditions on the Centers for Disease Control and Prevention (CDC) website. Connect with Us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 Listen Up! The Connections Between Hearing Loss, Hearing Interventions and Cognitive Decline 38:52
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Play Later Play Later Lists Like LikedHearing loss affects roughly 15.5% of Americans 20 years and older . While the majority of these individuals experience mild hearing loss, the prevalence and severity of hearing loss increases with age. What does this sensory change mean for dementia risk, and can this risk be prevented through interventions like hearing aids? Dr. Frank Lin joins the podcast to discuss the relationship between hearing loss and dementia and share findings from the Aging and Cognitive Health Evaluation in Elders, or ACHIEVE, study. Guest: Frank Lin, MD, PhD, director, Cochlear Center for Hearing and Public Health, Professor of Otolaryngology, Medicine, Mental Health, and Epidemiology, Johns Hopkins University Show Notes Read more about Dr. Lin’s study, “ Hearing intervention versus health education control to reduce cognitive decline in older adults with hearing loss in the USA (ACHIEVE): a multicentre, randomised controlled trial ,” in The Lancet . Learn more about the Atherosclerosis Risk in Communities (ARIC) study, mentioned at 20:01, through the National Heart, Lung, and Blood Institute and Johns Hopkins Bloomberg School of Public Health ’s websites. Read more about U.S. regulations surrounding over-the-counter hearing aids, mentioned at 34:00, in “ ‘A New Frontier’ for Hearing Aids, ” by The New York Times . Learn more about Dr. Lin at his bio on the Johns Hopkins Bloomberg School of Public Health website. Learn more about the ACHIEVE study on their webpage . Connect with us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
1 From Caregiver to Research Participant: How One Woman’s Experience as a Dementia Caregiver Drew Her to Alzheimer’s Research 35:20
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Play Later Play Later Lists Like LikedCaring for a loved one with cognitive decline can be challenging. While it is a labor of love, burnout is all but inevitable. In this episode kicking off our Voices of Research Participants series with co-host Sarah Walter, Cynthia Sierra touches on her personal experience with caregiver burnout as both a caregiver and research study partner for her mother, who has early-onset Alzheimer’s disease. She also shares her unique perspective on Alzheimer’s disease research as someone who started as a family caregiver. Guest: Cynthia Sierra, MS, LPC, senior project manager, UT Health San Antonio Co-host: Sarah Walter, MSc, program administrator, Alzheimer’s Clinical Trials Consortium (ACTC) and Alzheimer’s Therapeutic Research Institute (ATRI) Show Notes Learn more about Cynthia Sierra’s research at her ResearchGate profile . Learn more about Sarah Walter at her bio on the Alzheimer’s Clinical Trials Consortium website . Find resources for people with dementia and their care partners on our website . Connect with Us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.…
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