Introducing the BODi® Partner Podcast, the official podcast channel devoted exclusively to BODi Partners. From archives of the BODi Wake-Up Call, I Am BODi stories, and What I Know Now success tips from seasoned Partners, this podcast is your one-stop source for personal development, business training and peer-to-peer inspiration. Ready to explode your business? Tune in regularly to our official podcast and join the ranks of those transforming their lives and the lives of others!
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Ep. 31: MyBDC w/ Michelle Witkop and Maria Santaella - September 23, 2019
Manage episode 242710944 series 1362347
Content provided by BloodStream Media. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by BloodStream Media or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
As a member of the rare disease community, bleeding disorder patients and their families are used to taking surveys, signing up for clinical trials, and/or sharing our thoughts about what it is like living with a bleeding disorder. So what makes this new initiative from the National Hemophilia Foundation (NHF) different? Join us for a conversation with NHF Head of Research, Michelle Witkop and Research Nurse Specialist, Maria Santaella as they share the details of MyBDC, a community-powered registry aimed at capturing the patient experience. MyBDC is a comprehensive, personalized registry that focuses on the entire family unit. Want to learn more? Join us for an in-depth conversation about MyBDC on Ask the Expert!
Welcome to Episode 31 - or our In-Depth Look into MyBDC Episode- of the Ask The Expert Podcast!
Disclaimer: The content contained within Ask The Expert is for informational purposes only. Please consult your healthcare provider before making any decisions about treatment or changes in physical activities.
For more information and to enroll in MyBDC, click the link: mybdc.hemophilia.org
For specific questions email research@hemophilia.org
The enrollment process will take 2 to 3 minutes. Each family member, caretaker and/or patient will need to enroll. The initial survey will take 20 to 30 minutes.
All members of the family unit are encouraged to enroll. Patients, siblings, grandparents, caretakers, parents are able to enroll and create their own account. Currently, the platform only accepts adults, but a children’s portal is being created.
NHF has a newsletter, and research information is included. To sign up for the newsletter, visit www.hemophilia.org and scroll to the bottom of the page for the link.
BloodFeed: https://www.bloodfeed.com
Connect with BloodStream Media:
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
Subscribe to BloodStream:
iTunes: http://bit.ly/bloodstreamitunes
Stitcher: http://bit.ly/bloodstreamstitcher
LibSyn: http://bit.ly/bloodstreamlibsyn
SoundCloud: http://bit.ly/bloodstreamSC
TuneIn: http://bit.ly/bloodstreamtunein
Google Play: http://bit.ly/bloodstreamPlay
Spotify: http://spoti.fi/2nNPhui
44 episodes
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Manage episode 242710944 series 1362347
Content provided by BloodStream Media. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by BloodStream Media or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
As a member of the rare disease community, bleeding disorder patients and their families are used to taking surveys, signing up for clinical trials, and/or sharing our thoughts about what it is like living with a bleeding disorder. So what makes this new initiative from the National Hemophilia Foundation (NHF) different? Join us for a conversation with NHF Head of Research, Michelle Witkop and Research Nurse Specialist, Maria Santaella as they share the details of MyBDC, a community-powered registry aimed at capturing the patient experience. MyBDC is a comprehensive, personalized registry that focuses on the entire family unit. Want to learn more? Join us for an in-depth conversation about MyBDC on Ask the Expert!
Welcome to Episode 31 - or our In-Depth Look into MyBDC Episode- of the Ask The Expert Podcast!
Disclaimer: The content contained within Ask The Expert is for informational purposes only. Please consult your healthcare provider before making any decisions about treatment or changes in physical activities.
For more information and to enroll in MyBDC, click the link: mybdc.hemophilia.org
For specific questions email research@hemophilia.org
The enrollment process will take 2 to 3 minutes. Each family member, caretaker and/or patient will need to enroll. The initial survey will take 20 to 30 minutes.
All members of the family unit are encouraged to enroll. Patients, siblings, grandparents, caretakers, parents are able to enroll and create their own account. Currently, the platform only accepts adults, but a children’s portal is being created.
NHF has a newsletter, and research information is included. To sign up for the newsletter, visit www.hemophilia.org and scroll to the bottom of the page for the link.
BloodFeed: https://www.bloodfeed.com
Connect with BloodStream Media:
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
Subscribe to BloodStream:
iTunes: http://bit.ly/bloodstreamitunes
Stitcher: http://bit.ly/bloodstreamstitcher
LibSyn: http://bit.ly/bloodstreamlibsyn
SoundCloud: http://bit.ly/bloodstreamSC
TuneIn: http://bit.ly/bloodstreamtunein
Google Play: http://bit.ly/bloodstreamPlay
Spotify: http://spoti.fi/2nNPhui
44 episodes
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Similar to Ask The Expert - A BloodStream Media Podcast
Introducing the BODi® Partner Podcast, the official podcast channel devoted exclusively to BODi Partners. From archives of the BODi Wake-Up Call, I Am BODi stories, and What I Know Now success tips from seasoned Partners, this podcast is your one-stop source for personal development, business training and peer-to-peer inspiration. Ready to explode your business? Tune in regularly to our official podcast and join the ranks of those transforming their lives and the lives of others!
…
continue reading
Ready to get in the best shape of your life? Join NYT Bestselling Author Abel James to upgrade your performance, mental strength, and longevity. Featuring cutting-edge conversations with thought leaders in Performance, Technology, Strength Training, Longevity, Mindset, Nutrition, Intermittent Fasting, Music, Regenerative Agriculture, and much more. Winner of 4 awards and rated #1 in Health in 8+ countries with over 80+ million downloads.
…
continue reading
PT Inquest is an online journal club. Hosted by Jason Tuori, Megan Graham, and Chris Juneau, the show looks at an article every week and discusses how it applies to current physical therapy practice.
…
continue reading
Most of us have gotten at least a little emotional at some point recently. It’s natural. But why do we have emotions and how much should we pay attention to them on any given day? Can we learn to skillfully choose which emotions to listen to and which ones to just let move on by? In More Than A Feeling, the latest podcast from Ten Percent Happier, host Saleem Reshamwala goes on a real life quest to find the answers to these questions. He’ll experiment with neuroscientists, dive into stories ...
…
continue reading
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…
continue reading
A top podcast for healthcare leaders, with over one million downloads, Radio Advisory is your weekly download on how to untangle the industry's most pressing challenges to help leaders like you make the best business decisions for your organization. From unpacking major trends in care delivery—like site-of-care shifts and the rise of high-cost drugs—to demystifying stakeholder dynamics, to shining a spotlight on priorities that may get overlooked, we're here to help. Our hosts and seasoned r ...
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continue reading
The American healthcare system is one of the most innovative in the world. But it’s also riddled with complex challenges, such as access to affordable medications, inefficiency and administrative burdens, and communication barriers between providers. There’s clearly a better way—and at Surescripts, we have a unique sightline into what that may be. In this series, host Melanie Marcus, Chief Marketing Officer of Surescripts, sits down with today’s most inspiring and innovative leaders in healt ...
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…
continue reading
Welcome to the podcast about life experiences, anxiety, depression, and the road to The Happy Times with Joey Kidney
…
continue reading
Diet Science is a fun 7 to 8 minute weekly program with insights and straight scoops on today's health and diet issues from Dee McCaffrey, CDC. Dee is an Organic Chemist who lost 100 pounds, nearly half her body weight, and has kept it off for 20 years by staying away from processed foods. She's the author of The Science of Skinny, released by Perseus June 2012, and The Science of Skinny Cookbook, which was released December 2014.
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continue reading
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