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Advocating for Patients with Rare Neurological Disease LEMS with Amy Grover Catalyst Pharmaceuticals TRANSCRIPT

 
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Manage episode 289939749 series 99915
Content provided by Karen Jagoda. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Karen Jagoda or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Amy Grover, Director of Patient Advocacy, Catalyst Pharmaceuticals works primarily with patients suffering from Lambert-Eaton Myasthenic Syndrome LEMS an ultra-rare disease which is very similar to a larger rare disease myasthenia gravis MG. Working with the patient community and patient advocacy groups, Catalyst is providing support, tools and resources that for the most part have moved online during the pandemic. As a seasoned patient advocate, Amy is aware of how unique each patient's journey is and how important their participation is in driving research.

@CatalystForRare #RareReason #rarediseases #LEMS #MG #patientadvocate

CatalystPharma.com

Listen to the podcast here

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1733 episodes

Artwork
iconShare
 
Manage episode 289939749 series 99915
Content provided by Karen Jagoda. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Karen Jagoda or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Amy Grover, Director of Patient Advocacy, Catalyst Pharmaceuticals works primarily with patients suffering from Lambert-Eaton Myasthenic Syndrome LEMS an ultra-rare disease which is very similar to a larger rare disease myasthenia gravis MG. Working with the patient community and patient advocacy groups, Catalyst is providing support, tools and resources that for the most part have moved online during the pandemic. As a seasoned patient advocate, Amy is aware of how unique each patient's journey is and how important their participation is in driving research.

@CatalystForRare #RareReason #rarediseases #LEMS #MG #patientadvocate

CatalystPharma.com

Listen to the podcast here

  continue reading

1733 episodes

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