Flash Forward is a show about possible (and not so possible) future scenarios. What would the warranty on a sex robot look like? How would diplomacy work if we couldn’t lie? Could there ever be a fecal transplant black market? (Complicated, it wouldn’t, and yes, respectively, in case you’re curious.) Hosted and produced by award winning science journalist Rose Eveleth, each episode combines audio drama and journalism to go deep on potential tomorrows, and uncovers what those futures might re ...
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Netflix Is A Daily Joke
1 Jerry Seinfeld:A Joke About The Phrase "It Is What It Is' 1:54
1:54 
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LikedJerry Seinfeld jokes about the phrase "it is what it is' in his Netflix special, "23 Hours To Kill".
166: An Interview With MDA 2025 Patient Ambassador Lily Sander
Manage episode 477255865 series 3302577
Content provided by Rare Care Podcast. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Rare Care Podcast or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews 17-year-old Lily Sander with Charcot-Marie-Tooth disease. The Muscular Dystrophy Association has named Sander its 2025 MDA Patient Ambassador.
185 episodes
ShareManage episode 477255865 series 3302577
Content provided by Rare Care Podcast. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Rare Care Podcast or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews 17-year-old Lily Sander with Charcot-Marie-Tooth disease. The Muscular Dystrophy Association has named Sander its 2025 MDA Patient Ambassador.
185 episodes
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1 175: An Interview With Allucent's Marcus Delatte, PhD, on Using Cannabinoids to Treat Patients With Rare Seizure Disorders 10:30
10:30 Play Later Play Later Lists Like Liked10:30
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Marcus Delatte, PhD, on how the versatile cannabis plant offers innovative treatments for children with Dravet syndrome and Lennox-Gestaut syndrome.
1 174: An Interview With Lucy Culp, VP of State Government Affairs at the Leukemia & Lymphoma Society 11:13
11:13 Play Later Play Later Lists Like Liked11:13
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Lucy Culp, vice-president of state government affairs at the Leukemia & Lymphoma Society, on top issues of importance to patients with rare blood cancers.
1 173: An Interview With Amyloidosis Patient Dan Lier, a Partner With the Nonprofit Group 'Somebody To Talk To' 10:46
10:46 Play Later Play Later Lists Like Liked10:46
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews amyloidosis patient and former basketball player Dan Lier, a partner with the nonprofit group Somebody To Talk To, about his new "Rare Disease Playbook."
1 172: An Interview With Huntington Disease Patient and Advocate Lauren Holder of Help 4 HD 12:25
12:25 Play Later Play Later Lists Like Liked12:25
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Lauren Holder, an activist and patient with Huntington disease, as well as producer and host of the podcast series Help 4 HD Live.
1 171: An Interview WIth Antonella Favit-Van Pelt, MD, PhD, on Neuromodulation to Treat Multiple Sclerosis 15:44
15:44 Play Later Play Later Lists Like Liked15:44
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Antonella Favit-Van Pelt, MD, PhD, chief medical officer at Helius Medical, on the potential of neuromodulation to treat people with multiple sclerosis.
1 170: An Interview With Joyce Kullman, Executive Director of the Vasculitis Foundation 12:09
12:09 Play Later Play Later Lists Like Liked12:09
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Joyce Kullman, executive director of the Vasculitis Foundation, duirng Vasculitis Awareness Month.
1 169: An Interview With Chris Lewis, Son of Famous Comedian Jerry Lewis 13:35
13:35 Play Later Play Later Lists Like Liked13:35
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Chris Lewis, whose father, Jerry Lewis, was not only among the most famous comedians of the 20th century but also a tireless advocate for people with muscular dystrophy.
1 170: An Interview With Chris Lewis, Son of Famous Comedian Jerry Lewis 13:35
13:35 Play Later Play Later Lists Like Liked13:35
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Chris Lewis, whose father, Jerry Lewis, was not only among the most famous comedians of the 20th century but also a tireless advocate for people with muscular dystrophy.
1 168: An Interview WIth Lisa Butler, CEO of the GBS-CIDP Foundation 12:34
12:34 Play Later Play Later Lists Like Liked12:34
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Lisa Butler, CEO of the GBS-CIDP Foundation, on what her organization is doing for patients with chronic inflammatory demyelinating polyneuropathy (CIDP).
1 167: An Interview With MDA Patient Advocate Donavon Decker, WInner of the 2025 MDA Legacy Award for Community Impact in Research 13:19
13:19 Play Later Play Later Lists Like Liked13:19
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, talks to Donavon Decker, who has limb-girdle muscular dystrophy. Decker is the winner of the 2025 MDA Legacy Award for Community Impact in Research.
1 166: An Interview With MDA 2025 Patient Ambassador Lily Sander 14:51
14:51 Play Later Play Later Lists Like Liked14:51
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews 17-year-old Lily Sander with Charcot-Marie-Tooth disease. The Muscular Dystrophy Association has named Sander its 2025 MDA Patient Ambassador.
1 165: An Interview With Duchenne Expert Katherine Mathews, MD, of the University of Iowa 11:25
11:25 Play Later Play Later Lists Like Liked11:25
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Katherine Mathews, MD, winner of the Muscular Dystrophy Association's 2025 Legacy Award for Achievement in Clinical Research for her contributions to understanding and treating genetic disorders affecting the neuromuscular system.…
1 164: An Interview With Generalized Pustular Psoriasis Expert Arash Mostaghimi, MD 9:09
9:09 Play Later Play Later Lists Like Liked9:09
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Arash Mostaghimi, MD, an associate professor of dermatology and a practicing physician at Boston's Brigham and Women's Hospital. Dr. Mostaghimi is a recognized expert on generalized pustular psoriasis (GPP).
1 163: An Interview With Clinical Hematologist and Professor Dr. Luke Chen 16:04
16:04 Play Later Play Later Lists Like Liked16:04
Play Later Play Later Lists Like LikedRare Disease Advisor correspondent Tori Rodriguez interviews clinical hematologist and professor Luke Chen, MD, about IgG4-related disease and how it mimics various malignancies.
1 162: An Interview With John Anderson, MD, Expert on Hereditary Angioedema 10:32
10:32 Play Later Play Later Lists Like Liked10:32
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews John Anderson, MD, chief research officer at AllerVie Clinical Research, on the complexities of diagnosing and treating hereditary angioedema.
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Rare Care Podcast
1 146: An Interview With Payel Gupta, MD, on the Importance of Social Media in Healthcare 9:07
9:07 Play Later Play Later Lists Like Liked9:07
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare DIsease Advisor, interviews Payel Gupta, MD, on social media platforms such as TikTok, Facebook and YouTube, and their importance in reaching today's public—and fighting online misinformation.
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Rare Care Podcast
1 145: An Interview With Sandy Siegel, Founder and President of the Siegel Rare Neuroimmune Association 16:10
16:10 Play Later Play Later Lists Like Liked16:10
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Sandy Siegel, founder and president of the Siegel Rare Neuroimmune Association. Siegel started the charity 30 years ago with his wife, Pauline, after she was diagnosed with transverse myelitis. After Pauline's death in 2017, the organization expanded to include five other rare neuroimmune diseases including neuromyelitis optica spectrum disorder (NMOSD).…
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Rare Care Podcast
1 144: An Interview With Anastasia Vishnevetsky, MD, MPH, on the Use of Cannabis to Treat NMOSD 16:32
16:32 Play Later Play Later Lists Like Liked16:32
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Anastasia Vishnevetsky, MD, MPH, of Massachusetts General Hospital and Harvard Medical School. Dr. Vishnevetsky is heading a groundbreaking clinical trial of the cannabinoid spray nabiximols in treating the symptoms of NMOSD.
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Rare Care Podcast
1 143: An Interview With Ignacio Muñoz-Sanjuan, PhD, President and Founder of Factor-H 16:07
16:07 Play Later Play Later Lists Like Liked16:07
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Ignacio Muñoz-Sanjuan, PhD, the president and founder of Factor-H—a Los Angeles-based nonprofit organization that works to alleviate extreme poverty among people with Huntington disease in Venezuela, Colombia, and Peru.
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Rare Care Podcast
1 142: An Interview With Amy Case, MD, Chief Medical Officer of the Pulmonary Fibrosis Foundation 16:30
16:30 Play Later Play Later Lists Like Liked16:30
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Amy Case, MD, chief medical officer of the Pulmonary Fibrosis Foundation, about the importance of passing the bipartisan Supplemental Oxygen Access Reform (SOAR) Act, which is currently stalled in Congress.
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Rare Care Podcast
1 141: An Interview WIth Steve Van Wormer, Cofounder and Director of the Phaware Global Association 12:02
12:02 Play Later Play Later Lists Like Liked12:02
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Steve Van Wormer, cofounder and director of the Phaware Global Association. Van Wormer became a patient advocate after his late son, Lucas, was diagnosed with pulmonary hypertension at age 4.
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Rare Care Podcast
1 140: An Interview With Victor Test, MD, Chair of the Pulmonary Vascular Disease Program at Texas Tech School of Medicine in Lubbock 12:49
12:49 Play Later Play Later Lists Like Liked12:49
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Victor Test, MD, an expert in pulmonary arterial hypertension (PAH). Dr. Test is a professor of medicine and chair of the pulmonary vascular disease program at Texas Tech School of Medicine in Lubbock.
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Rare Care Podcast
1 139: An Interview With Drew Harris, MD, Expert on Black Lung Disease 12:55
12:55 Play Later Play Later Lists Like Liked12:55
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews pulmonologist Drew Harris, MD, an associate professor of medicine at the University of Virginia in Charlottesville. Dr. Harris is also medical director of the Black Lung Program at Stone Mountain Health Services, in the heart of southwestern Virginia's coal-mining industry.…
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Rare Care Podcast
1 138: An Interview With Mahesh Desai, PhD, of the Luxembourg Institute of Health 9:47
9:47 Play Later Play Later Lists Like Liked9:47
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Mahesh Desai, PhD, of the Luxembourg Institute of Health’s Department of Infection and Immunity. Dr. Desai discusses how healthy gut bacteria may reduce the side effects of chemotherapy in cancer patients.
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Rare Care Podcast
1 137: An Interview With Karin Hoelzer, DVM, PhD, Senior Director of Policy and Regulatory Affairs at NORD 9:44
9:44 Play Later Play Later Lists Like Liked9:44
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Karin Hoelzer, DVM, PhD, senior director of policy and regulatory affairs at the National Organization for Rare Disorders (NORD). Dr. Hoelzer discusses the importance of convincing the US Congress to renew the Rare Pediatric Disease Priority Review Voucher Program, which is set to expire on September 30, 2024.…
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Rare Care Podcast
1 136: An Interview With Susan Ward, PhD, Founder and Executive Director of the Collaborative Trajectory Analysis Project (cTAP) 15:32
15:32 Play Later Play Later Lists Like Liked15:32
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Susan Ward, PhD, founder and executive director of the Collaborative Trajectory Analysis Project (cTAP), which seeks to broaden patient eligibility for clinical trials in Duchenne muscular dystrophy.
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Rare Care Podcast
1 135: An Interview With Taylor Kane, Founder and Executive Director of 'Remember the Girls' 11:15
11:15 Play Later Play Later Lists Like Liked11:15
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Taylor Kane, founder and executive director of 'Remember the Girls.' The charity advocates for female carriers of X-linked rare disorders including Duchenne muscular dystrophy and hemophilia.
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Rare Care Podcast
1 134: An Interview With Dr. Jeffrey A. Cohen of the Cleveland Clinic on Cellular Therapies for MS 10:25
10:25 Play Later Play Later Lists Like Liked10:25
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews neurologist Jeffrey A. Cohen, MD, of Ohio's Cleveland Clinic on the latest developments in cellular therapies to treat multiple sclerosis.
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Rare Care Podcast
1 133: An Interview With Maureen Juip, Secretary of the Friedreich's Ataxia Research Alliance and Mother of 2 Children With FA 8:58
8:58 Play Later Play Later Lists Like Liked8:58
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Rare Care Podcast
1 133: An Interview With Jacquelyn Bainbridge, DPharm, of the University of Colorado, on Cannabis Therapy for MS 12:20
12:20 Play Later Play Later Lists Like Liked12:20
Play Later Play Later Lists Like LikedLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Jacquelyn Bainbridge, DPharm, a neurology professor at the University of Colorado in Aurora, on the benefits of medical cannabis in treating multiple sclerosis.
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Similar to Rare Care Podcast
Flash Forward is a show about possible (and not so possible) future scenarios. What would the warranty on a sex robot look like? How would diplomacy work if we couldn’t lie? Could there ever be a fecal transplant black market? (Complicated, it wouldn’t, and yes, respectively, in case you’re curious.) Hosted and produced by award winning science journalist Rose Eveleth, each episode combines audio drama and journalism to go deep on potential tomorrows, and uncovers what those futures might re ...
…
continue reading
Come dive into one of the curiously delightful conversations overheard at National Geographic’s headquarters, as we follow explorers, photographers, and scientists to the edges of our big, weird, beautiful world. Hosted by Peter Gwin and Amy Briggs.
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continue reading
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continue reading
Help me fill in the blanks of the practice of ED Critical Care. In this podcast, we discuss all things related to the crashing, critically ill patient in the Emergency Department. Find the show notes at emcrit.org.
…
continue reading
DNA science. Artificial intelligence. Smartphones and 3D printers. Science and technology have transformed the world we live in. But how did we get here? It wasn’t by accident. Well, sometimes it was. It was also the result of hard work, teamwork, and competition. And incredibly surprising moments. Hosted by bestselling author Steven Johnson (“How We Got To Now”), American Innovations uses immersive scenes to tell the stories of the scientists, engineers, and ordinary people behind the great ...
…
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The BMJ brings you interviews with the people who are shaping medicine and science around the world.
…
continue reading
Concise summaries of everything published in the latest weekly issue of the New England Journal of Medicine (NEJM). NEJM publishes new medical research findings, review articles, and editorial opinion on topics of importance to biomedical science and clinical practice.
…
continue reading
Brilliant solutions to the world’s problems. We meet people with ideas to make the world a better place and investigate whether they work.
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We humans could have a bright future ahead of us that lasts billions of years. But we have to survive the next 200 years first. Join Josh Clark of Stuff You Should Know for a 10-episode deep dive that explores the future of humanity and finds dangers we have never encountered before lurking just ahead. And if we humans are alone in the universe, if we don't survive intelligent life dies out with us too.
…
continue reading
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