Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.

A podcast for parents and families of people living with rare diseases in Ontario. I Care for Rare is a social advocacy campaign, designed to give individuals, families and caregivers living with rare diseases a collective voice for system healthcare AND community support reform.

Rare Voices reveals the wisest path to a fulfilled life for patients with rare and orphan disorders. Brought to you by the people at Optime Care, a pioneering specialty pharmacy. In each episode, we uncover insights from patient advocates, pharmaceutical innovators, leaders in insurance, physicians, and caregivers. Prepare to provoke your mind and fuel your drive to serve rare and orphan patient populations.

Your destination feed for medical, health care and clinical science podcasts courtesy of HCPLive—featuring our shows DocTalk, Rare Disease Report, Heart Team, Overdrive, and Derm Discussions. Music Courtesy of BenSound

Nutricia’s Caring for Rare explores what life is like with a rare metabolic disorder – from difficulties at diagnosis to adapting to condition management to thriving in everyday joys. Episodes feature personal experiences with rare inborn errors of metabolism like phenylketonuria (PKU). These stories may not be representative of all rare metabolic disorders, and this podcast in no way replaces the guidance and supervision of metabolic healthcare professionals. Guests on Caring for Rare are c ...

The AOP Health Group is the European pioneer for integrated therapies for rare diseases and in critical care. Over the past 25 years, the Group has become an established provider of integrated therapy solutions and has a highly consistent and pragmatic orientation towards the needs of all its stakeholders– especially the patients and their families as well as also the healthcare professionals treating them.

At Factor Care RX, their commitment to individuals with hemophilia is deeply rooted in empathy and understanding. They recognize the unique challenges and obstacles that come with managing this complex condition and approach each interaction with care and compassion. Whether it's assisting with medication access, navigating insurance complexities, or simply providing a listening ear, Factor Care RX is there every step of the way.

Hard to find rare and obscure tracks, stories, interviews

RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.

Welcome to the new Rare Kidney Disease Show part of the RKD Scientific Network sponsored by Travere Therapeutics. The Rare Kidney Disease Show is your primary source for cutting-edge insights, expert perspectives, and pivotal updates in nephrology. Led by our panel of experts, explore the advances in glomerular nephropathies through compelling conversations, challenging case studies, and discussions tackling hot topics. Join us as we strive to provide you with the ultimate resource to suppor ...

Imagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder. That is exactly where Sanath Kumar Ramesh found himself in the summer of 2018. One year later, on his son’s first birthday, they found out that their son, Raghav, had an extremely rare mutation of the GPX4 gene. At the time, doctors told them that Raghav may be the only one on the planet with this genetic variant who had lived beyond one month of life. The progno ...

Each week, physician, economist, and author of "Random Acts of Medicine" Dr. Bapu Jena will dig into a fascinating study at the intersection of economics and healthcare. He takes on questions like: Why do kids with summer birthdays get the flu more often? Can surviving a hurricane help you live longer? What do heart surgery and grocery-store pricing have in common?

Welcome to his book! A lot of people are writing books these days. Dr. Alex Nelson doesn't want to do that. Instead he invites you to join him as he looks to learn all he can about Chiropractic and functional care. In this podcast, Alex will talk with guests from throughout the industry while talking about life and topics we all face.

LilyList aims to be a ”handbook for the living.” Providing resources that help people tell their stories and understand their legacies. Life can be a scary place, and end-of-life even scarier, but fear has no place here.

Alex Wagner brings an enormous breadth of reporting experience to her new show, where she’ll cover news of the day, politics, and the cultural trends shaping our country and ourselves, leaving viewers with a better understanding of what’s happening in the world.

CMAJ Podcasts: Exploring the latest in Canadian medicine from coast to coast to coast with your hosts, Drs. Mojola Omole and Blair Bigham. CMAJ Podcasts delves into the scientific and social health advances on the cutting edge of Canadian health care. Episodes include real stories of patients, clinicians, and others who are impacted by our health care system.

Engage with expert NACE faculty for discussions about current clinical strategies for common and rare health conditions that you can use in clinical practice immediately, and that work for you and your patients.

Welcome to Talking Hope, breakthrough conversations about preventing, treating and curing cancer, brought to you by City of Hope Orange County, part of NCI-designated City of Hope comprehensive cancer center and Orange County’s most advanced cancer care.

.David and Daisy are both patients with Multiple System Atrophy who want to create Awareness for this rare terminal neurological disorder for other patients, caregivers and medical staff to help become more knowledgeable of the disorder **While this podcast features discussions with medical experts, it is important to note that the information provided is for general informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or tre ...

Editors at The Lancet Rheumatology, in conversation with the journal’s authors, explore their latest research and its impact on people’s health, healthcare, and health policy. A monthly audio companion to the journal, this podcast covers a broad range of topics, from disorders of the immune system to sex and gender in research design, the transitional care for adolescent patients with rheumatic diseases to care for undocumented immigrants, and more.

Embrace Her Wellness is a podcast where we talk about the current state of self-care, mental wellness, and self-improvement. Through conversations with individuals who have taken interesting and transformational life journeys, we explore how deeply held beliefs and systemic issues will not be solved by quick fixes and surface-level solutions. At Embrace Her Wellness, we encourage women to discover their strengths, overcome challenges, and foster a sense of belonging, ultimately empowering th ...

Oncology experts summarize current and emerging issues in cancer management for patients and caregivers. Information from the Global Resource for Advancing Cancer Education (GRACE) helps people to become informed partners in their care.

Welcome to a podcast where grown men obsessed with collecting plastic forms of their favorite DC heroes can discuss in a safe environment. Where we don't have to force our family members to pretend they care as we describe finding the last rare figure with a good paint job and no googly eyes. Should be a blast! Interviews weekly from toy photographers, toy collectors, and creators in general. Support this podcast: https://podcasters.spotify.com/pod/show/batmanfigs/support

We call ourselves the 4am Mom Club because more nights than not, our kids are awake at 4am. We both have very medical, complicated, rare, beautiful children. This is a podcast for medical and disability mamas (and the people who love them) who are facing a life they never expected. We share hope-filled stories of families, all shapes, colors, sizes and abilities, all in different phases of their medically complex or disabled caregiving journey. When Autumn Comes Podcast is a program of the A ...

Tune in to the HuttCast Podcast where we explore an expansive array of topics—from life lessons and business insights to the latest in automotive trends and current events. As a seasoned leader in the business community, I bring practical perspectives to the table, breaking down complex issues with common sense that seems all too rare these days. Join us on HuttCast, where no topic is off limits and every conversation is an opportunity to learn something new.

Pediatric Ethics Podcast is a monthly podcast from the Children’s Mercy Bioethics Center in Kansas City. This free podcast series for pediatric health care professionals features leading pediatric ethicists discussing timely topics in pediatric ethics.

The AVM Alliance Podcast was created for parents who are taking care of a medically complex child including those who have been diagnosed with epilepsy or rare disease. This podcast has a slight focus on pediatric stroke, Brain AVM / Aneurysm (brain vessel disease) and traumatic brain Injury (TBI). The goal is to provide helpful information and remind other parents they are not alone on this difficult journey. Thank you for joining us.

The POCUS Journal Podcast is a production from the Cardiovascular Imaging Network at Queen's aimed at educating listeners on point-of-care ultrasound and its many applications in the medical field. The POCUS Journal is a peer-reviewed publication containing the latest research, case reports, and protocols on point-of-care ultrasound. In our podcast, Dr. Amer Johri and fellow members of the Editorial Board bring on guests from various medical disciplines to discuss their ultrasound research r ...

A Slice of Healthcare podcast hosted by Sam Lippolis, Telehealth Consultant & FMR Director of Connected Care at UC Health. Key topics center around telehealth planning, key industry trends, and more!

Health Tech is a GeekWire podcast that explores the cutting edge of digital health. On each episode, we bring you stories about innovative technologies for patients, doctors and more, giving you a window into the future of health. Our fifth season is sponsored by Premera Blue Cross. Learn more about Premera here: https://www.premera.com/premera-voices/

On this podcast, we interview voice and bodywork professionals to provide helpful information for overall health and optimal function of the voice. We interview SLPs, Otolaryngologists, Manual Therapists, Body Oriented Psychotherapists, Health Coaches, Fitness Instructors, Broadway Performers, Opera singers, Singer/Songwriters, Voice Teachers, Composers, Company Managers, Sports Broadcasters, and more. It is our mission to educate the professional voice user and provide knowledgable, creativ ...

Join Megs and Nathan as we dive into the when, why, and how of your favourite Harry Potter ships! From OTPs to the rarest of the rare, we are ready to get SHIPwrecked! (18+ ears only, please!) FOLLOW US ON SOCIAL MEDIA! Twitter: https://twitter.com/magicalshippod Instagram: https://www.instagram.com/magicalshippod/ Tumblr: https://careofmagicalshippers.tumblr.com/ Website: https://www.careofmagicalshippers.com FOR BONUS CONTENT: Spotify subscriptions: https://podcasters.spotify.com/pod/show/ ...

The Occult Unveiled Podcast reveals secret rituals, strange experiences, and miracles by adept practitioners giving the listener a rare look into controversial, even scary, spiritual beliefs and practices.

This podcast is about the advancement of rare disease research told by health professionals, researchers, parents, and advocates. This podcast is for you to learn how newborn screening research saves the lives of babies every day through discoveries of new technologies and treatments. You will hear stories from experts who treat babies, the families who care for them, and the researchers who make it all happen.

From Jackson Hole Community Radio (KHOL), listen every weekday for a local newscast featuring town, county, state and regional headlines. It’s the daily dose of news you need on Wyoming, Idaho and the Mountain West—all in four minutes or less. Fridays feature a roundup of KHOL’s best stories of the week.

The FabryCast brings the human element of living with a rare disease. It’s a podcast for important conversations that teaches small bits of information, practical insights, and things you can do today to positively impact your life with Fabry. Hear from experts in the field, have the opportunity to “Ask a Doctor Anything” and keep up to date with what's happening in the Fabry space.

This show examines everyday concerns with a focus on women. Relationships, responsibilities, personal safety, health and wellness, nutrition supplementation, exercise and fitness, skin care, retirement, and residual income streams are among the many topics that will be explored. Call in during the broadcast with your questions and comments at: (845) 277-9410.

Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire

Each week on the Health Lab podcast, we share cutting-edge research, practical health information and inspiring stories of survival from Michigan Medicine, the academic medical center for the University of Michigan. You can find all Health Lab articles on our website, and podcast transcripts are linked in each episode. Health Lab is a part of the Michigan Medicine Podcast Network, and is produced by the Michigan Medicine Department of Communication. You can subscribe to Health Lab on Apple P ...

This podcast is all about IN DEPTH marketing concepts that are rare and not often talked about.

From podcasts to drunken chicanery and everything in-between, YINZBOYZ ushers the world into the life of the Western Pennsylvanian. Visit us at yinzboyz.com, watch us on YouTube and follow us on IG & Snap.

Our COR2ED podcast brings together world-renowned medical experts to discuss and provide clear guidance on the latest scientific and clinical insights in various therapeutic areas, including oncology, cardiology, hemostasis, rare diseases, hemato-oncology, and endocrinology. At COR2ED, we are committed to providing balanced and evidence-based independent medical education to support healthcare professionals in enhancing patient care. Many of our podcast episodes are created in collaboration ...

The Power Transformation Podcast is a celebration of determination, resilience, and hope. Hosted by Certified Transformational Coach and Motivational Speaker Alethea (pronounced "uh-lee-thee-uh") Felton, this show features intimate conversations with individuals who have triumphed over adversity, thrived beyond extraordinary obstacles, and created meaningful lives. Alethea's transparency in her journey of overcoming stuttering, retiring early after 20 years as a public school educator to bec ...

This podcast, hosted by Dr. Wally Smith of Virginia Commonwealth University, features interviews of diverse leading experts including researchers, physicians, and individuals living with the disease, exploring the history of the disease, the global impact and need for additional providers, disparity and bias in sickle cell disease, and promising news regarding the management and treatment of sickle cell disease. Learn about the past, present and future of sickle cell, and join us in the figh ...

Girlboss Radio is back with a new host and a renewed mission to help women achieve success on their own terms. Meet our host, Avery Francis! Francis is a veteran HR thought leader who specializes in implementing diversity, equity and inclusion practices in as many workplaces as possible through her consultancy, Bloom. Francis has been featured in Forbes and named a Top 40 Woman in Tech by Betakit. Her ethos? Work should work for all of us. The podcast features weekly chats with inspiring exe ...

It can be tough navigating life's rough waters. Up Stream is here to help make that journey a little smoother. About the host: Joy Tolle Joy has been with The River in various capacities since 2016. An ordained chaplain since 2019, she is now the lead chaplain for the team of River chaplains. She holds a deep compassion for people and believes her role is best described as a bridge between the sacred and secular, bringing Christ’s care and hope to those hurting and in crisis. Joy holds a Bac ...

This is a series of conversations that gives listeners a glimpse behind the scenes of medicine, focusing on the very human stories behind every patient and provider interaction. This podcast is made possible by the Richard M. Schulze Family Foundation and donors to the End in Mind Project.

The pace of change in healthcare is accelerating. Our understanding of how data, technology and scientific expertise can come together is only getting more precise. In this podcast, leaders from IQVIA lead discussions on the issues, innovations, and collaborations that are making an impact on health and business outcomes. Topics will include new approaches to clinical development, leading-edge technologies and methodologies that extract more value (and less work) from healthcare data, and st ...