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A podcast for parents and families of people living with rare diseases in Ontario. I Care for Rare is a social advocacy campaign, designed to give individuals, families and caregivers living with rare diseases a collective voice for system healthcare AND community support reform.
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Rare Voices reveals the wisest path to a fulfilled life for patients with rare and orphan disorders. Brought to you by the people at Optime Care, a pioneering specialty pharmacy. In each episode, we uncover insights from patient advocates, pharmaceutical innovators, leaders in insurance, physicians, and caregivers. Prepare to provoke your mind and fuel your drive to serve rare and orphan patient populations.
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Your destination feed for medical, health care and clinical science podcasts courtesy of HCPLive—featuring our shows DocTalk, Rare Disease Report, Heart Team, Overdrive, and Derm Discussions. Music Courtesy of BenSound
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Nutricia’s Caring for Rare explores what life is like with a rare metabolic disorder – from difficulties at diagnosis to adapting to condition management to thriving in everyday joys. Episodes feature personal experiences with rare inborn errors of metabolism like phenylketonuria (PKU). These stories may not be representative of all rare metabolic disorders, and this podcast in no way replaces the guidance and supervision of metabolic healthcare professionals. Guests on Caring for Rare are c ...
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RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.
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The AOP Health Group is the European pioneer for integrated therapies for rare diseases and in critical care. Over the past 25 years, the Group has become an established provider of integrated therapy solutions and has a highly consistent and pragmatic orientation towards the needs of all its stakeholders– especially the patients and their families as well as also the healthcare professionals treating them.
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Imagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder. That is exactly where Sanath Kumar Ramesh found himself in the summer of 2018. One year later, on his son’s first birthday, they found out that their son, Raghav, had an extremely rare mutation of the GPX4 gene. At the time, doctors told them that Raghav may be the only one on the planet with this genetic variant who had lived beyond one month of life. The progno ...
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The Factor Care Podcast

Produced By Rhea Media Group

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At Factor Care RX, their commitment to individuals with hemophilia is deeply rooted in empathy and understanding. They recognize the unique challenges and obstacles that come with managing this complex condition and approach each interaction with care and compassion. Whether it's assisting with medication access, navigating insurance complexities, or simply providing a listening ear, Factor Care RX is there every step of the way.
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Freakonomics, M.D.

Freakonomics Radio + Stitcher

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Each week, physician, economist, and author of "Random Acts of Medicine" Dr. Bapu Jena will dig into a fascinating study at the intersection of economics and healthcare. He takes on questions like: Why do kids with summer birthdays get the flu more often? Can surviving a hurricane help you live longer? What do heart surgery and grocery-store pricing have in common?
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Welcome to his book! A lot of people are writing books these days. Dr. Alex Nelson doesn't want to do that. Instead he invites you to join him as he looks to learn all he can about Chiropractic and functional care. In this podcast, Alex will talk with guests from throughout the industry while talking about life and topics we all face.
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Welcome to the new Rare Kidney Disease Show part of the RKD Scientific Network sponsored by Travere Therapeutics. The Rare Kidney Disease Show is your primary source for cutting-edge insights, expert perspectives, and pivotal updates in nephrology. Led by our panel of experts, explore the advances in glomerular nephropathies through compelling conversations, challenging case studies, and discussions tackling hot topics. Join us as we strive to provide you with the ultimate resource to suppor ...
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Health Lab

Michigan Medicine Podcast Network

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Each week on the Health Lab podcast, we share cutting-edge research, practical health information and inspiring stories of survival from Michigan Medicine, the academic medical center for the University of Michigan. You can find all Health Lab articles on our website, and podcast transcripts are linked in each episode. Health Lab is a part of the Michigan Medicine Podcast Network, and is produced by the Michigan Medicine Department of Communication. You can subscribe to Health Lab on Apple P ...
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CMAJ Podcasts

Canadian Medical Association Journal

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CMAJ Podcasts: Exploring the latest in Canadian medicine from coast to coast to coast with your hosts, Drs. Mojola Omole and Blair Bigham. CMAJ Podcasts delves into the scientific and social health advances on the cutting edge of Canadian health care. Episodes include real stories of patients, clinicians, and others who are impacted by our health care system.
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LilyList

The Flux Creative

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LilyList aims to be a ”handbook for the living.” Providing resources that help people tell their stories and understand their legacies. Life can be a scary place, and end-of-life even scarier, but fear has no place here.
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BJGP Interviews

The British Journal of General Practice

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Listen to BJGP Interviews for the latest updates on primary care and general practice research. Hear from researchers and clinicians who will update and guide you to the best practice. We all want to deliver better care to patients and improve health through better research and its translation into practice and policy. The BJGP is a leading international journal of primary care with the aim to serve the primary care community. Whether you are a general practitioner or a nurse, a researcher, ...
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GRACEcast Kidney Cancer Video

cancerGRACE - H. Jack West, MD

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Oncology experts summarize current and emerging issues in cancer management for patients and caregivers. Information from the Global Resource for Advancing Cancer Education (GRACE) helps people to become informed partners in their care.
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Pediatric Ethics Podcast

Children's Mercy - Pediatric Ethics

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Pediatric Ethics Podcast is a monthly podcast from the Children’s Mercy Bioethics Center in Kansas City. This free podcast series for pediatric health care professionals features leading pediatric ethicists discussing timely topics in pediatric ethics.
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Welcome to a podcast where grown men obsessed with collecting plastic forms of their favorite DC heroes can discuss in a safe environment. Where we don't have to force our family members to pretend they care as we describe finding the last rare figure with a good paint job and no googly eyes. Should be a blast! Interviews weekly from toy photographers, toy collectors, and creators in general. Support this podcast: https://podcasters.spotify.com/pod/show/batmanfigs/support
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Editors at The Lancet Rheumatology, in conversation with the journal’s authors, explore their latest research and its impact on people’s health, healthcare, and health policy. A monthly audio companion to the journal, this podcast covers a broad range of topics, from disorders of the immune system to sex and gender in research design, the transitional care for adolescent patients with rheumatic diseases to care for undocumented immigrants, and more.
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We call ourselves the 4am Mom Club because more nights than not, our kids are awake at 4am. We both have very medical, complicated, rare, beautiful children. This is a podcast for medical and disability mamas (and the people who love them) who are facing a life they never expected. We share hope-filled stories of families, all shapes, colors, sizes and abilities, all in different phases of their medically complex or disabled caregiving journey. When Autumn Comes Podcast is a program of the A ...
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Welcome to Talking Hope, breakthrough conversations about preventing, treating and curing cancer, brought to you by City of Hope Orange County, part of NCI-designated City of Hope comprehensive cancer center and Orange County’s most advanced cancer care.
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The AVM Alliance Podcast was created for parents who are taking care of a medically complex child including those who have been diagnosed with epilepsy or rare disease. This podcast has a slight focus on pediatric stroke, Brain AVM / Aneurysm (brain vessel disease) and traumatic brain Injury (TBI). The goal is to provide helpful information and remind other parents they are not alone on this difficult journey. Thank you for joining us.
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Sam Talks Telehealth

Slice of Healthcare LLC

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A Slice of Healthcare podcast hosted by Sam Lippolis, Telehealth Consultant & FMR Director of Connected Care at UC Health. Key topics center around telehealth planning, key industry trends, and more!
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Health Tech is a GeekWire podcast that explores the cutting edge of digital health. On each episode, we bring you stories about innovative technologies for patients, doctors and more, giving you a window into the future of health. Our fifth season is sponsored by Premera Blue Cross. Learn more about Premera here: https://www.premera.com/premera-voices/
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On this podcast, we interview voice and bodywork professionals to provide helpful information for overall health and optimal function of the voice. We interview SLPs, Otolaryngologists, Manual Therapists, Body Oriented Psychotherapists, Health Coaches, Fitness Instructors, Broadway Performers, Opera singers, Singer/Songwriters, Voice Teachers, Composers, Company Managers, Sports Broadcasters, and more. It is our mission to educate the professional voice user and provide knowledgable, creativ ...
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Join Megs and Nathan as we dive into the when, why, and how of your favourite Harry Potter ships! From OTPs to the rarest of the rare, we are ready to get SHIPwrecked! (18+ ears only, please!) FOLLOW US ON SOCIAL MEDIA! Twitter: https://twitter.com/magicalshippod Instagram: https://www.instagram.com/magicalshippod/ Tumblr: https://careofmagicalshippers.tumblr.com/ Website: https://www.careofmagicalshippers.com FOR BONUS CONTENT: Spotify subscriptions: https://podcasters.spotify.com/pod/show/ ...
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Newborn Screening SPOTlight Podcast

Dr. Kee Chan and Dr. Amy Brower

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This podcast is about the advancement of rare disease research told by health professionals, researchers, parents, and advocates. This podcast is for you to learn how newborn screening research saves the lives of babies every day through discoveries of new technologies and treatments. You will hear stories from experts who treat babies, the families who care for them, and the researchers who make it all happen.
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Chats that encourage women to live well

Zenobia Bailey and Living Well

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This show examines everyday concerns with a focus on women. Relationships, responsibilities, personal safety, health and wellness, nutrition supplementation, exercise and fitness, skin care, retirement, and residual income streams are among the many topics that will be explored. Call in during the broadcast with your questions and comments at: (845) 277-9410.
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Are you the woman who has everything except your man? Dating coach Evan Marc Katz will help you find him. Evan is the author of four books, has a blog with over 35 million readers, and has coached 13,000 women through Love U, his signature course that helps smart, successful women find lasting love. With a rare blend of wit, wisdom, and warmth, Evan is an invaluable asset to any woman who is frustrated with dating and wants to fix her broken man-picker. Each week, Evan gives tangible, practi ...
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Autism in the Adult

Theresa M Regan, Ph.D.

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Theresa Regan, Ph.D., is a rare combination of adult neuropsychologist (specialist in brain-behavior relationships), parent of an amazing child on the autism spectrum, and certified autism specialist with the IBCCES. She is deeply grateful to bring validation, hope, and purpose to individuals and their families living on the autism spectrum. With this mission at its core, she founded and directs the OSF HealthCare Adult Diagnostic Autism Clinic in central Illinois. Her books include Understa ...
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Tune in to the HuttCast Podcast where we explore an expansive array of topics—from life lessons and business insights to the latest in automotive trends and current events. As a seasoned leader in the business community, I bring practical perspectives to the table, breaking down complex issues with common sense that seems all too rare these days. Join us on HuttCast, where no topic is off limits and every conversation is an opportunity to learn something new.
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Our COR2ED podcast brings together world-renowned medical experts to discuss and provide clear guidance on the latest scientific and clinical insights in various therapeutic areas, including oncology, cardiology, hemostasis, rare diseases, hemato-oncology, and endocrinology. At COR2ED, we are committed to providing balanced and evidence-based independent medical education to support healthcare professionals in enhancing patient care. Many of our podcast episodes are created in collaboration ...
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Embrace Her Wellness is a podcast where we talk about the current state of self-care, mental wellness, and self-improvement. Through conversations with individuals who have taken interesting and transformational life journeys, we explore how deeply held beliefs and systemic issues will not be solved by quick fixes and surface-level solutions. At Embrace Her Wellness, we encourage women to discover their strengths, overcome challenges, and foster a sense of belonging, ultimately empowering th ...
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This podcast, hosted by Dr. Wally Smith of Virginia Commonwealth University, features interviews of diverse leading experts including researchers, physicians, and individuals living with the disease, exploring the history of the disease, the global impact and need for additional providers, disparity and bias in sickle cell disease, and promising news regarding the management and treatment of sickle cell disease. Learn about the past, present and future of sickle cell, and join us in the figh ...
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The POCUS Journal Podcast is a production from the Cardiovascular Imaging Network at Queen's aimed at educating listeners on point-of-care ultrasound and its many applications in the medical field. The POCUS Journal is a peer-reviewed publication containing the latest research, case reports, and protocols on point-of-care ultrasound. In our podcast, Dr. Amer Johri and fellow members of the Editorial Board bring on guests from various medical disciplines to discuss their ultrasound research r ...
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Impact 3x

Alex, Marc & Miquel

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This is Impact 3X, home of the impact society. Start-ups that reach 1Bn$ valuations are a very rare phenomenon. That's why people call them unicorns. And because everybody wants to run a company that reaches a sky-high valuation or massive profits, there are many publications that focus on helping you get there. Well… we are not one of those. At 3X, we believe that what's truly unique are organizations that focus on optimizing, not one but, three dimensions in parallel: planet, people and pr ...
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It can be tough navigating life's rough waters. Up Stream is here to help make that journey a little smoother. About the host: Joy Tolle Joy has been with The River in various capacities since 2016. An ordained chaplain since 2019, she is now the lead chaplain for the team of River chaplains. She holds a deep compassion for people and believes her role is best described as a bridge between the sacred and secular, bringing Christ’s care and hope to those hurting and in crisis. Joy holds a Bac ...
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show series
 
Imagine you are diagnosed with a cancer that's so uncommon that even your doctor is uncertain of the pathway you need to take. You are isolated in your illness and you turn to investigating yourself online. Is it right that because your cancer is rare, that you should receive less support? When you have a rare cancer the treatment options are often…
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In this episode, we talk to Dr Anna Wilding, a Research Fellow based at Health Organisation, Policy and Economics at the University of Manchester. Title of paper: Geographic inequalities in need and provision of social prescribing link workers Available at: https://doi.org/10.3399/BJGP.2023.0602 Social prescribing link workers were proposed in the …
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Emily Oster is an economist not an obstetrician. But she knows how to use data to answer tough questions. After evaluating the research, she found many women are given misguided or bad advice about normal pregnancies. So she wrote a book about it. Then she heard from thousands of women who had difficult pregnancies and felt like they had nowhere to…
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In part 1 of a 3 part series on Profound Autism, ASF interviews Emily Ferguson, PhD from @Stanford shares what she learned by asking parents and caregivers of Profound Autism “what do you need?” The short answer was: “There is No Help“. The responses were overwhelmingly focused on inclusion in any program or service, since they are normally exclude…
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Send us a Text Message. On this episode of the CMAJ Podcast, Dr. Blair Bigham and Dr. Mojola Omole tackle the complex issue of "socially admitted" patients, sometimes uncharitably referred to as "granny dumping." They explore the factors leading to these non-acute medical admissions, the challenges faced by healthcare providers and innovative solut…
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50 years ago, Stephen King published his first novel and Carrie became an instant horror classic. Two culture critic and horror fans have taken it upon themselves to read every single Stephen King Book in order of its publication and talk about them on a podcast called Just King Things. We'll talk to hosts Cameron Kunzelman and Michael Lutz about t…
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The debut of the Speedway eatery Borage in June was one of the hottest local restaurant launches in recent memory, covered by most of the major media outlets in the Indianapolis market—including IBJ. Its co-creators—Josh Kline and Zoe Taylor—had won considerable acclaim as chefs for nationally lauded Milktooth in Fletcher Place. The concept for Bor…
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Dr. Regan begins a new series about the lifespan of a relationship and/or household. This first episode focuses on dating relationships. The episode provides practical insights and strategies to help you make informed and intentional choices in your relationships, ensuring they are fulfilling and sustainable for both partners. Dr. Regan's Resources…
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Researchers try to simplify the low-FODMAP diet in hopes of making it easier for patients to follow without sacrificing effectiveness. Visit Health Lab to read the full story. The transcript for this episode can be found here. Health Lab is brought to you by the Michigan Medicine Department of Communication. Michigan Medicine is the academic medica…
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Beyond the Diagnosis is more than a traveling art exhibit. It is a movement to humanize the children who happen to have a rare disease. So much of the work around rare diseases is logical, scientific, and medical. It can be a world without feeling. Using art and artists to introduce and celebrate these children is much more personal and evocative. …
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Nonsense mutations prematurely end the translation of a gene into protein and can result in a serious deficiency. About 10 to 15 percent of inherited genetic diseases involve nonsense mutations. Alltrna is developing transfer RNA therapies designed to correct the problem in protein synthesis caused by these aberrations. What’s particularly exciting…
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Support the podcast Facebook Group Dr. Catherine Darley a sleep specialist, delves into the role that sleep plays in our overall health and well-being. She provides a comprehensive overview of the three pillars of healthy sleep—duration, quality, and timing—and examines the societal hurdles contributing to widespread sleep insufficiency. Key Discus…
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I haven’t interviewed anyone on my podcast since 2017 but when I got the opportunity to speak with Thais Gibson, creator of the Personal Development School, I leapt at the chance. She’s fiercely intelligent and listening to her go deeper on attachment styles and limerence was a treat. Thais Gibson is a counselor, best selling author and co-founder …
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The NACE Journal Club with Dr. Neil Skolnik, provides review and analysis of recently published journal articles important to the practice of primary care medicine. In this episode Dr. Skolnik and guests review the following publications: 1. Effects of intensive lifestyle changes on the progression of mild cognitive impairment or early dementia due…
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In today’s episode of Summer Reading with When Autumn Comes, Suz, Katrina, and Jessica discuss joy. We always discuss what gives us hope, but where is the joy in this life of medical complexity? Maybe moms of medically complex kids mope around in black and grey all day long. Maybe some do, but not these girls! The girls discuss how they create mome…
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