Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.

In rarity we unite, connect and find our way to purpose.

A podcast for parents and families of people living with rare diseases in Ontario. I Care for Rare is a social advocacy campaign, designed to give individuals, families and caregivers living with rare diseases a collective voice for system healthcare AND community support reform.

Rare Voices reveals the wisest path to a fulfilled life for patients with rare and orphan disorders. Brought to you by the people at Optime Care, a pioneering specialty pharmacy. In each episode, we uncover insights from patient advocates, pharmaceutical innovators, leaders in insurance, physicians, and caregivers. Prepare to provoke your mind and fuel your drive to serve rare and orphan patient populations.

Your destination feed for medical, health care and clinical science podcasts courtesy of HCPLive—featuring our shows DocTalk, Rare Disease Report, Heart Team, Overdrive, and Derm Discussions. Music Courtesy of BenSound

Nutricia’s Caring for Rare explores what life is like with a rare metabolic disorder – from difficulties at diagnosis to adapting to condition management to thriving in everyday joys. Episodes feature personal experiences with rare inborn errors of metabolism like phenylketonuria (PKU). These stories may not be representative of all rare metabolic disorders, and this podcast in no way replaces the guidance and supervision of metabolic healthcare professionals. Guests on Caring for Rare are c ...

RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.

The AOP Health Group is the European pioneer for integrated therapies for rare diseases and in critical care. Over the past 25 years, the Group has become an established provider of integrated therapy solutions and has a highly consistent and pragmatic orientation towards the needs of all its stakeholders– especially the patients and their families as well as also the healthcare professionals treating them.

Imagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder. That is exactly where Sanath Kumar Ramesh found himself in the summer of 2018. One year later, on his son’s first birthday, they found out that their son, Raghav, had an extremely rare mutation of the GPX4 gene. At the time, doctors told them that Raghav may be the only one on the planet with this genetic variant who had lived beyond one month of life. The progno ...

At Factor Care RX, their commitment to individuals with hemophilia is deeply rooted in empathy and understanding. They recognize the unique challenges and obstacles that come with managing this complex condition and approach each interaction with care and compassion. Whether it's assisting with medication access, navigating insurance complexities, or simply providing a listening ear, Factor Care RX is there every step of the way.

Each week, physician, economist, and author of "Random Acts of Medicine" Dr. Bapu Jena will dig into a fascinating study at the intersection of economics and healthcare. He takes on questions like: Why do kids with summer birthdays get the flu more often? Can surviving a hurricane help you live longer? What do heart surgery and grocery-store pricing have in common?

Welcome to his book! A lot of people are writing books these days. Dr. Alex Nelson doesn't want to do that. Instead he invites you to join him as he looks to learn all he can about Chiropractic and functional care. In this podcast, Alex will talk with guests from throughout the industry while talking about life and topics we all face.

Welcome to the new Rare Kidney Disease Show part of the RKD Scientific Network sponsored by Travere Therapeutics. The Rare Kidney Disease Show is your primary source for cutting-edge insights, expert perspectives, and pivotal updates in nephrology. Led by our panel of experts, explore the advances in glomerular nephropathies through compelling conversations, challenging case studies, and discussions tackling hot topics. Join us as we strive to provide you with the ultimate resource to suppor ...

Each week on the Health Lab podcast, we share cutting-edge research, practical health information and inspiring stories of survival from Michigan Medicine, the academic medical center for the University of Michigan. You can find all Health Lab articles on our website, and podcast transcripts are linked in each episode. Health Lab is a part of the Michigan Medicine Podcast Network, and is produced by the Michigan Medicine Department of Communication. You can subscribe to Health Lab on Apple P ...

CMAJ Podcasts: Exploring the latest in Canadian medicine from coast to coast to coast with your hosts, Drs. Mojola Omole and Blair Bigham. CMAJ Podcasts delves into the scientific and social health advances on the cutting edge of Canadian health care. Episodes include real stories of patients, clinicians, and others who are impacted by our health care system.

LilyList aims to be a ”handbook for the living.” Providing resources that help people tell their stories and understand their legacies. Life can be a scary place, and end-of-life even scarier, but fear has no place here.

The week in autism research discoveries

Listen to BJGP Interviews for the latest updates on primary care and general practice research. Hear from researchers and clinicians who will update and guide you to the best practice. We all want to deliver better care to patients and improve health through better research and its translation into practice and policy. The BJGP is a leading international journal of primary care with the aim to serve the primary care community. Whether you are a general practitioner or a nurse, a researcher, ...

Engage with expert NACE faculty for discussions about current clinical strategies for common and rare health conditions that you can use in clinical practice immediately, and that work for you and your patients.

Oncology experts summarize current and emerging issues in cancer management for patients and caregivers. Information from the Global Resource for Advancing Cancer Education (GRACE) helps people to become informed partners in their care.

Pediatric Ethics Podcast is a monthly podcast from the Children’s Mercy Bioethics Center in Kansas City. This free podcast series for pediatric health care professionals features leading pediatric ethicists discussing timely topics in pediatric ethics.

Welcome to a podcast where grown men obsessed with collecting plastic forms of their favorite DC heroes can discuss in a safe environment. Where we don't have to force our family members to pretend they care as we describe finding the last rare figure with a good paint job and no googly eyes. Should be a blast! Interviews weekly from toy photographers, toy collectors, and creators in general. Support this podcast: https://podcasters.spotify.com/pod/show/batmanfigs/support

Editors at The Lancet Rheumatology, in conversation with the journal’s authors, explore their latest research and its impact on people’s health, healthcare, and health policy. A monthly audio companion to the journal, this podcast covers a broad range of topics, from disorders of the immune system to sex and gender in research design, the transitional care for adolescent patients with rheumatic diseases to care for undocumented immigrants, and more.

We call ourselves the 4am Mom Club because more nights than not, our kids are awake at 4am. We both have very medical, complicated, rare, beautiful children. This is a podcast for medical and disability mamas (and the people who love them) who are facing a life they never expected. We share hope-filled stories of families, all shapes, colors, sizes and abilities, all in different phases of their medically complex or disabled caregiving journey. When Autumn Comes Podcast is a program of the A ...

Welcome to Talking Hope, breakthrough conversations about preventing, treating and curing cancer, brought to you by City of Hope Orange County, part of NCI-designated City of Hope comprehensive cancer center and Orange County’s most advanced cancer care.

The AVM Alliance Podcast was created for parents who are taking care of a medically complex child including those who have been diagnosed with epilepsy or rare disease. This podcast has a slight focus on pediatric stroke, Brain AVM / Aneurysm (brain vessel disease) and traumatic brain Injury (TBI). The goal is to provide helpful information and remind other parents they are not alone on this difficult journey. Thank you for joining us.

A Slice of Healthcare podcast hosted by Sam Lippolis, Telehealth Consultant & FMR Director of Connected Care at UC Health. Key topics center around telehealth planning, key industry trends, and more!

Health Tech is a GeekWire podcast that explores the cutting edge of digital health. On each episode, we bring you stories about innovative technologies for patients, doctors and more, giving you a window into the future of health. Our fifth season is sponsored by Premera Blue Cross. Learn more about Premera here: https://www.premera.com/premera-voices/

On this podcast, we interview voice and bodywork professionals to provide helpful information for overall health and optimal function of the voice. We interview SLPs, Otolaryngologists, Manual Therapists, Body Oriented Psychotherapists, Health Coaches, Fitness Instructors, Broadway Performers, Opera singers, Singer/Songwriters, Voice Teachers, Composers, Company Managers, Sports Broadcasters, and more. It is our mission to educate the professional voice user and provide knowledgable, creativ ...

Join Megs and Nathan as we dive into the when, why, and how of your favourite Harry Potter ships! From OTPs to the rarest of the rare, we are ready to get SHIPwrecked! (18+ ears only, please!) FOLLOW US ON SOCIAL MEDIA! Twitter: https://twitter.com/magicalshippod Instagram: https://www.instagram.com/magicalshippod/ Tumblr: https://careofmagicalshippers.tumblr.com/ Website: https://www.careofmagicalshippers.com FOR BONUS CONTENT: Spotify subscriptions: https://podcasters.spotify.com/pod/show/ ...

Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire

This podcast is about the advancement of rare disease research told by health professionals, researchers, parents, and advocates. This podcast is for you to learn how newborn screening research saves the lives of babies every day through discoveries of new technologies and treatments. You will hear stories from experts who treat babies, the families who care for them, and the researchers who make it all happen.

This show examines everyday concerns with a focus on women. Relationships, responsibilities, personal safety, health and wellness, nutrition supplementation, exercise and fitness, skin care, retirement, and residual income streams are among the many topics that will be explored. Call in during the broadcast with your questions and comments at: (845) 277-9410.

Are you the woman who has everything except your man? Dating coach Evan Marc Katz will help you find him. Evan is the author of four books, has a blog with over 35 million readers, and has coached 13,000 women through Love U, his signature course that helps smart, successful women find lasting love. With a rare blend of wit, wisdom, and warmth, Evan is an invaluable asset to any woman who is frustrated with dating and wants to fix her broken man-picker. Each week, Evan gives tangible, practi ...

This podcast is all about IN DEPTH marketing concepts that are rare and not often talked about.

Theresa Regan, Ph.D., is a rare combination of adult neuropsychologist (specialist in brain-behavior relationships), parent of an amazing child on the autism spectrum, and certified autism specialist with the IBCCES. She is deeply grateful to bring validation, hope, and purpose to individuals and their families living on the autism spectrum. With this mission at its core, she founded and directs the OSF HealthCare Adult Diagnostic Autism Clinic in central Illinois. Her books include Understa ...

The Occult Unveiled Podcast reveals secret rituals, strange experiences, and miracles by adept practitioners giving the listener a rare look into controversial, even scary, spiritual beliefs and practices.

A weekly take on business news in central Indiana. The IBJ Podcast is brought to you by Taft.

Tune in to the HuttCast Podcast where we explore an expansive array of topics—from life lessons and business insights to the latest in automotive trends and current events. As a seasoned leader in the business community, I bring practical perspectives to the table, breaking down complex issues with common sense that seems all too rare these days. Join us on HuttCast, where no topic is off limits and every conversation is an opportunity to learn something new.

Our COR2ED podcast brings together world-renowned medical experts to discuss and provide clear guidance on the latest scientific and clinical insights in various therapeutic areas, including oncology, cardiology, hemostasis, rare diseases, hemato-oncology, and endocrinology. At COR2ED, we are committed to providing balanced and evidence-based independent medical education to support healthcare professionals in enhancing patient care. Many of our podcast episodes are created in collaboration ...

Embrace Her Wellness is a podcast where we talk about the current state of self-care, mental wellness, and self-improvement. Through conversations with individuals who have taken interesting and transformational life journeys, we explore how deeply held beliefs and systemic issues will not be solved by quick fixes and surface-level solutions. At Embrace Her Wellness, we encourage women to discover their strengths, overcome challenges, and foster a sense of belonging, ultimately empowering th ...

This podcast, hosted by Dr. Wally Smith of Virginia Commonwealth University, features interviews of diverse leading experts including researchers, physicians, and individuals living with the disease, exploring the history of the disease, the global impact and need for additional providers, disparity and bias in sickle cell disease, and promising news regarding the management and treatment of sickle cell disease. Learn about the past, present and future of sickle cell, and join us in the figh ...

The POCUS Journal Podcast is a production from the Cardiovascular Imaging Network at Queen's aimed at educating listeners on point-of-care ultrasound and its many applications in the medical field. The POCUS Journal is a peer-reviewed publication containing the latest research, case reports, and protocols on point-of-care ultrasound. In our podcast, Dr. Amer Johri and fellow members of the Editorial Board bring on guests from various medical disciplines to discuss their ultrasound research r ...

This is Impact 3X, home of the impact society. Start-ups that reach 1Bn$ valuations are a very rare phenomenon. That's why people call them unicorns. And because everybody wants to run a company that reaches a sky-high valuation or massive profits, there are many publications that focus on helping you get there. Well… we are not one of those. At 3X, we believe that what's truly unique are organizations that focus on optimizing, not one but, three dimensions in parallel: planet, people and pr ...

This is a series of conversations that gives listeners a glimpse behind the scenes of medicine, focusing on the very human stories behind every patient and provider interaction. This podcast is made possible by the Richard M. Schulze Family Foundation and donors to the End in Mind Project.

Oncology experts summarize current and emerging issues in cancer management for patients and caregivers. Information from the Global Resource for Advancing Cancer Education (GRACE) helps people to become informed partners in their care.

It can be tough navigating life's rough waters. Up Stream is here to help make that journey a little smoother. About the host: Joy Tolle Joy has been with The River in various capacities since 2016. An ordained chaplain since 2019, she is now the lead chaplain for the team of River chaplains. She holds a deep compassion for people and believes her role is best described as a bridge between the sacred and secular, bringing Christ’s care and hope to those hurting and in crisis. Joy holds a Bac ...

Jesse Mulligan presents an upbeat mix of the curious and the compelling, ranging from the stories of the day to the great questions of our time.