DJ and radio host DJ Envy and his wife Gia Casey will explore the good, bad, ugly and beauty of relationships and family. Join them every week as they let you in on past experiences, give advice, talk to celebrity couples and give you two sides to every situation.
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1 The Southwest’s Wildest Outdoor Art: From Lightning Fields to Sun Tunnels 30:55
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A secret field that summons lightning. A massive spiral that disappears into a salt lake. A celestial observatory carved into a volcano. Meet the wild—and sometimes explosive—world of land art, where artists craft masterpieces with dynamite and bulldozers. In our Season 2 premiere, guest Dylan Thuras, cofounder of Atlas Obscura, takes us off road and into the minds of the artists who literally reshaped parts of the Southwest. These works aren’t meant to be easy to reach—or to explain—but they just might change how you see the world. Land art you’ll visit in this episode: - Double Negative and City by Michael Heizer (Garden Valley, Nevada) - Spiral Jetty by Robert Smithson (Great Salt Lake, Utah) - Sun Tunnels by Nancy Holt (Great Basin Desert, Utah) - Lightning Field by Walter De Maria (Catron County, New Mexico) - Roden Crater by James Turrell (Painted Desert, Arizona) Via Podcast is a production of AAA Mountain West Group.…
SED 530: Dunk You Very Much
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Today I'll be telling you more about Tess playing basketball, and a new development for her on the court.
101 episodes
Manage episode 470927239 series 1054126
Content provided by Bo Bigelow. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Bo Bigelow or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
Today I'll be telling you more about Tess playing basketball, and a new development for her on the court.
101 episodes
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×Today I'm gonna tell you about Tess's growth and some new clothes.
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Today I'm gonna tell you about a new person who's entered Tess's life.
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1 SED 537: How It Actually Went Down in Montreal 8:29
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Today I'm gonna give you the post-voyage report about Tess in Montreal.
Today we're gonna talk about Miss Tess's travel to the nation of Canada. This isn't a bunch of tips and tricks about how to travel with someone who has autism. BUT if that's what you're looking for, check out: SED 507 - Traveling with Autism: 14 Essential Hacks for a Smoother Journey Part 1 of 2 SED 508 - Traveling with Autism: 14 Essential Hacks for a Smoother Journey Part 2 of 2…
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Today we're talking about Tess being sick recently.
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Today we're gonna talk about Miss Tess's recent visit to the dentist. Many thanks to the New York Times for writing about dental patients with disabilities back in 2019, and NYU's new facility designed to help them: " Saving the Teeth of Patients with Special Needs ," by Catherine St. Louis, 5/2/2019.…
Today we're talking a bit more about basketball and what it means to Tess.
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Today we're gonna talk more about the podcast The Telepathy Tapes and how it applies to our Tess.
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More patients found! Not one but TWO groundbreaking scientific projects underway! And a new paper that could contain the key to our cure—something that might even be in your medicine cabinet. Today I'll be giving you an update on some of the thrilling developments of our foundation in our quest for a cure for Tess and the other patients.…
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Today I'll be telling you more about Tess playing basketball, and a new development for her on the court.
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Today I'm talking about the ability to read minds. And how it might affect our relationship with Tess. I've been listening to The Telepathy Tapes , a podcast by Ky Dickens about how certain nonspeaking people with autism have displayed the ability to read minds.
Today we're talking about an irksome behavior of Tess's, something that's happening more and more frequently, and what it could mean.
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SED 527: Why I'm Changing the Show Back Last summer, I made a big change to this show. Now, I’m changing it back. In this episode, I share why—and how a recent ski day with Tess, in zero-degree weather, reminded me of something important. Tune in to hear the full story.
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1 Stronger Every Season: A Caregiver’s Mindset Shift 5:20
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Stronger Every Season: A Caregiver’s Mindset Shift What if the way you think about aging is making caregiving even harder? If you're a caregiver, you know the toll it can take on your body—aching muscles, exhaustion, and the creeping fear that one day you just won’t be able to do it anymore. But what if there’s a different way to look at it? A mindset shift that keeps you strong, capable, and even optimistic? Discover how changing your perspective on physical decline can make a huge difference in caregiving. Learn how building a personal ‘support team’ can keep you strong and resilient. Get inspired by a powerful reframe that turns dread into determination. Hit play now to hear a short but game-changing episode about staying strong, shifting your mindset, and bringing the heat—season after season.…
Max Flex: The Rare-Disease Parent’s Superpower for Navigating Uncertainty How do you keep going when rare-disease parenting constantly upends your plans? If you're raising a child with a rare disease, you know that unpredictability is the norm—canceled plans, last-minute doctor visits, and constant pivots can feel exhausting. In this episode, we explore why these disruptions hit so hard and how a simple mindset shift can help you regain a sense of control. Understand why rare-disease parenting makes traditional planning so difficult—and what to do about it. Learn a new way to approach daily schedules that reduces frustration and stress. Discover how embracing "Max Flex" can help you feel more confident and prepared, no matter what comes your way. Listen now to learn how rare-disease parents can build a mindset that turns constant disruptions into opportunities for strength and adaptability.…
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1 Stepping Forward: How Shoes and Therapy Transformed Tess’s Confidence 9:35
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Stepping Forward: How Shoes and Therapy Transformed Tess’s Confidence What if a simple tweak in your child's footwear or a new approach to therapy could drastically improve their confidence and mobility? For parents of children with rare diseases, finding solutions to challenges like mobility and physical discomfort can feel overwhelming. In this episode, you'll learn how small adjustments can lead to significant progress, helping your child feel more secure and thrive in their daily life. Discover a groundbreaking physical therapy technique that could change how your child moves and feels. Learn how specific shoes can impact your child’s stability, confidence, and overall comfort. Gain actionable insights into ways you can support your child’s mobility and independence at home. Hit play now to uncover simple, practical changes that can transform your child’s mobility and confidence starting today!…
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1 Creative Workarounds for Extraordinary Challenges: Life with Tess 12:18
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Creative Workarounds for Extraordinary Challenges: Life with Tess Have you ever had to outsmart someone who seems to have superhuman strength and an endless appetite? If you’ve ever faced the challenge of keeping your home safe for a loved one—or if you’re simply curious about creative problem-solving—this episode is for you. Discover how we navigate safety challenges for our 15-year-old daughter Tess, who has unique needs that go far beyond the toddler-proofing most families rely on. Learn about ingenious solutions we’ve devised to manage Tess’s bedroom, bathroom, and kitchen safety. Understand the complexities of hyperphagia and why typical safety measures often fall short. Be inspired by real-life examples of persistence, adaptation, and the realities of parenting someone with extraordinary needs. Hit play now to hear practical tips, unexpected stories, and a call for your ideas—because we’re all in this together.…
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1 Seeing the Unseen: Navigating CVI and the Power of Being Heard - Part 2 of 2 12:50
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Have you ever been told you're wrong about your child’s needs, only to trust your gut and be proven right? If you’re a parent of a child with cortical visual impairment (CVI), navigating medical appointments and creating a supportive environment can feel overwhelming. This episode dives into a real-life journey of overcoming dismissal from professionals and finding clarity and solutions for CVI. Learn how to advocate effectively for your child, even when faced with skepticism from experts. Discover practical strategies to create a CVI-friendly environment that fosters improvement. Get a list of book recommendations tailored to children with CVI to make reading more engaging. Press play now to gain insights and actionable tips that can transform how you support your child with CVI! Mentioned: Milwaukee artist and author Lois Ehlert , creator and writer of Fish Eyes and Circus Luminous , by Julia Kuo…
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1 Seeing the Unseen: Navigating CVI and the Power of Being Heard - Part 1 of 2 11:39
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Seeing the Unseen: Navigating CVI and the Power of Being Heard - Part 1 of 2 What happens when a medical professional dismisses your concerns about your child’s health? How do you move forward when you're made to feel like you're imagining things? If you're a parent of a child with a rare disease, you've probably faced moments of disbelief from others—especially from those you trusted to help. This episode dives into one such experience, sharing practical insights on how to navigate this emotional and isolating journey while advocating for your child. Learn how to recognize the signs of cortical visual impairment (CVI) and why early identification matters. Discover strategies to manage the emotional toll of feeling dismissed or gaslit as a rare disease parent. Gain actionable tips for building resilience and finding allies who truly listen and care. Hit play now to hear this week's episode and equip yourself with tools to advocate for your child, even when the system feels stacked against you!…
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1 The Power of Accepting Help: A Farewell to Shawdiya 7:01
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Have you ever struggled with the idea of asking for help--feeling like you need to power through alone? What if embracing help could transform your family’s well-being? This week’s episode explores a challenge many of us face: letting go of the belief that we must do everything ourselves. Whether you're a parent, caregiver, or just navigating life’s demands, accepting help can unlock balance and peace. Discover how this mindset shift has impacted our family, especially through the support of an incredible BHP, Shawdiya, who has been a cornerstone of our lives for over four years. -Learn why accepting help isn’t a weakness but a strength that benefits your entire family. -Hear a heartfelt story about Shawdiya and the deep connection she built with our daughter Tess over the years. -Get practical insights into showing gratitude and fostering lasting relationships with those who support you and your family. Hit play now and discover how letting others step in can lead to a happier, healthier life for you and your loved ones!…
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1 Unlocked: Tess’s Midnight Adventure and the Lessons It Taught Us 7:28
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Unlocked: Tess’s Midnight Adventure and the Lessons It Taught Us Have you ever woken up in the middle of the night to a situation so surprising, it leaves you both laughing and shaking with relief? For families dealing with conditions like pica and hyperphagia, everyday routines can turn into unpredictable adventures. This episode dives into a real-life story of Tess's nighttime escapade and explores how these conditions impact not just her safety but also her family's peace of mind. - Discover what happened during Tess’s late-night piano performance and how her family managed the aftermath. - Learn about pica and hyperphagia, two conditions that require constant vigilance, and how they connect to Tess’s rare disorder. - Gain insights into how families implement creative safety measures and what happens when those defenses fail. Hit play now to hear this unforgettable story, understand the stakes of living with pica and hyperphagia, and come away with a new perspective on resilience and love.…
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1 Turning the Tables: How to Face Evaluations and Advocate for Your Child 12:07
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Turning the Tables: How to Face Evaluations and Advocate for Your Child How do you handle evaluations when every question feels like a punch to the gut, and the evaluators hold all the power over your child's future? If you're a parent of a child with a rare disease, evaluations can feel like a never-ending series of heartbreaks and hurdles—whether it's for early intervention, an IEP, or critical funding like Medicaid. But what if you could reframe these evaluations as tools to help your child thrive? In this episode, you'll discover: How to answer tough evaluation questions without heartbreak. How to shift your mindset and see evaluations as opportunities, not obstacles. How to advocate effectively, ensuring your child gets the resources and support they need. Don’t let evaluations control your journey--hit play now to learn how to turn the tables and use these tools to set your child up for success.…
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1 Burnout Busters: How Caregivers Can Find Energy and Connection Outside the Home 9:31
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Burnout Busters: How Caregivers Can Find Energy and Connection Outside the Home Feeling burned out as a caregiver? What if the simple act of leaving your house could be the key to restoring your energy and creating meaningful connections? If you’re juggling endless tasks like medical appointments, therapy sessions, and daily care for your child with a rare disease, burnout might feel inevitable. But in this episode, you'll discover how small changes in your routine can help you overcome that soul-crushing fatigue while fostering a sense of community for you and your child. Here’s what you’ll gain from listening: Insight into why caregivers experience burnout and how to recognize the warning signs. A simple yet powerful strategy to prevent burnout and feel more connected to the world around you. Heartwarming examples of how building relationships in your local community can benefit both you and your child. Hit play now to learn how a quick outing can transform your day, energize your spirit, and help you and your child feel more connected.…
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1 Filling Your Bucket: Stress-Free Holidays for Rare Disease Families 16:15
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Filling Your Bucket: Stress-Free Holidays for Rare Disease Families Are the holidays leaving you feeling drained instead of joyful? For parents of children with rare diseases, the holiday season often amplifies stress, disrupts routines, and makes it hard to enjoy quality time. This episode tackles these challenges head-on, offering actionable tips to help you turn the season into one that restores and uplifts you. Discover unconventional ways to approach holiday gift-giving that reduce stress and bring genuine joy. Learn quick and easy Amazon shopping hacks to save time and money during the busy season. Master the mindset shifts and planning strategies that can help you reclaim peace and balance, even when routines are upended. Listen to this episode now and equip yourself with simple, game-changing tools to make this holiday season the most fulfilling one yet. My Facebook fundraiser is here or you can donate here On Every: Michael Ashcroft's article How to Make Unfixated Choices…
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1 Uncharted Territory: ADHD, Rare Disease, and the Struggles with Medication 11:19
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Uncharted Territory: ADHD, Rare Disease, and the Struggles with Medication What happens when your child with a rare disease reacts unpredictably to a medication meant to help them focus and thrive? In this episode, we explore Tess’s journey with ADHD, rare disease, and her unexpected reaction to a new medication—highlighting the complex realities of balancing treatments and unknowns. Whether you’re a parent navigating similar challenges or a caregiver seeking insights, this episode is for you. Understand the complexities of combining anxiety and ADHD treatment with rare disease care. Learn why it’s crucial to monitor your child’s response to new medications. Gain reassurance that you’re not alone in facing these unpredictable parenting challenges. Press play to hear this heartfelt episode and gain practical advice for navigating the uncharted territory of rare disease parenting. ALSO: I'm launching a mobile app to help men connect with each other. The idea is to see our friends more often, and make new friends, too. More information is available here .…
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1 Cha Cha Moments: Navigating Anxiety, Impulsivity, and Focus Challenges in Rare Disease Parenting 8:30
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SED 514: Cha Cha Moments: Navigating Anxiety, Impulsivity, and Focus Challenges in Rare Disease Parenting What would you do if your child faced anxiety so intense it disrupts their daily life, paired with impulsivity and struggles with focus? In this episode, we dive into Tess’s journey with anxiety, impulsivity, and executive function challenges—issues that may resonate with many parents navigating similar struggles. Learn about how we’re uncovering the roots of these behaviors and seeking effective strategies to help Tess thrive. Discover how anxiety and attention challenges can compound care complexities for children with rare conditions. Learn about the tools and assessments we’re using, like the NICHQ Vanderbilt Scale, to better understand these behaviors. Gain practical insights for managing impulsivity and staying resilient as a caregiver. Hit play now to hear this heartfelt first part of Tess’s story and take away valuable tips to support your own caregiving journey. ALSO: I'm launching a mobile app to help men connect with each other. The idea is to see our friends more often, and make new friends, too. More information is available here .…
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1 Breaking Through Isolation: Finding Connection as a Rare Disease Parent 15:14
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Breaking Through Isolation: Finding Connection as a Rare Disease Parent Have you ever felt isolated, like no one around you understands the unique struggles you're facing? For parents of children with rare diseases, this feeling can be a daily reality. In this episode, you'll learn how to break through the walls of isolation that can accompany raising a child with a rare disorder. Whether it’s the stares, the silence, or the disconnection from friends, Bo Bigelow opens up about the challenges and offers insights to help you find connection and community in unexpected places. 1. Discover practical ways to shift your mindset and bring supportive people into your life. 2. Hear about the new project designed to tackle social isolation for rare disease parents and others. 3. Learn why vulnerability with the right people can be a powerful tool for building meaningful connections. Press play to learn how to create a circle of support and begin tackling the isolation of rare disease parenting. Man Park from SNL INTRODUCING my new project PopOut - a mobile app for men to schedule walks and other meetups. Coming soon to a city near you. DONATE | MERCH | WAITLIST | INSTAGRAM…
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1 Refuel to Be Stronger: Quick Self-Care Hacks for Busy Rare Disease Parents 14:37
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Refuel to Be Stronger: Quick Self-Care Hacks for Busy Rare Disease Parents Ever feel like you’re running on empty, with no time to refuel? What if you could recharge without needing hours to yourself? As a parent of a child with a rare disease, you’re constantly on the go, but neglecting self-care can leave you feeling drained and unable to give your best. In this episode, we address this challenge with real-life strategies for reclaiming even the smallest moments for yourself. By tuning in, you’ll discover why prioritizing self-care is essential for your wellbeing, simple but powerful ways to manage stress and cortisol, and how brief, consistent habits can transform your energy and focus. Take a few minutes to start building your recharge routine—listen to the episode now to reclaim your energy without sacrificing precious time. NSDR (Non-Sleep Deep Rest) with Andrew Huberman on YouTube…
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1 Building Your Child's Dream Team: Navigating Therapies for Rare Diseases 15:29
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Building Your Child's Dream Team: Navigating Therapies for Rare Diseases Are you feeling overwhelmed by the countless therapies and appointments involved in caring for your child with a rare disease? In this episode, we’ll discuss practical solutions to the complex challenges parents of children with rare disorders face, from managing occupational, physical, and speech therapies to building a team that truly supports your child’s unique needs. -Learn how to maximize the benefits of essential therapies like OT, PT, and speech for your child. -Discover how to create a “dream team” of therapists and specialists who are fully invested in your child’s progress. -Gain the mindset tools necessary for collaborating with your child's therapy team without feeling overwhelmed. Hit play now to find out how to ease the heavy load of caregiving while ensuring your child gets the best possible support!…
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1 Stronger Together: Aligning with Your Partner on the Rare Disease Journey 16:37
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Stronger Together: Aligning with Your Partner on the Rare Disease Journey Are you and your partner truly aligned when it comes to supporting your child with a rare disease, or are you struggling to get on the same page? This episode dives into a common but unspoken challenge many parents face: navigating a complex healthcare journey with your partner while maintaining your relationship. If you're feeling isolated, overwhelmed, or unsure how to stay united under the strain of constant caregiving, this episode offers clarity and hope. Discover why getting aligned with your partner about your child's rare disease is crucial for both your family’s well-being and your own peace of mind. Learn practical strategies for making time to reconnect with your partner amidst the chaos of caregiving. Hear real-life stories and actionable advice on how to overcome common pitfalls that strain relationships in families dealing with rare diseases. Tune in now to find out how you can strengthen your relationship and work as a team while managing the challenges of rare disease caregiving!…
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