Player FM - Internet Radio Done Right
Checked 1d ago
Added nine years ago
Content provided by Bo Bigelow. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Bo Bigelow or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
Player FM - Podcast App
Go offline with the Player FM app!
Go offline with the Player FM app!
SED 532: More Talking Without Words
Manage episode 473392873 series 1054126
Content provided by Bo Bigelow. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Bo Bigelow or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
Today we're gonna talk more about the podcast The Telepathy Tapes and how it applies to our Tess.
101 episodes
Manage episode 473392873 series 1054126
Content provided by Bo Bigelow. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Bo Bigelow or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
Today we're gonna talk more about the podcast The Telepathy Tapes and how it applies to our Tess.
101 episodes
All episodes
×Today we're talking about Tess being sick recently.
Today we're gonna talk about Miss Tess's recent visit to the dentist. Many thanks to the New York Times for writing about dental patients with disabilities back in 2019, and NYU's new facility designed to help them: " Saving the Teeth of Patients with Special Needs ," by Catherine St. Louis, 5/2/2019.…
Today we're talking a bit more about basketball and what it means to Tess.
Today we're gonna talk more about the podcast The Telepathy Tapes and how it applies to our Tess.
More patients found! Not one but TWO groundbreaking scientific projects underway! And a new paper that could contain the key to our cure—something that might even be in your medicine cabinet. Today I'll be giving you an update on some of the thrilling developments of our foundation in our quest for a cure for Tess and the other patients.…
Today I'll be telling you more about Tess playing basketball, and a new development for her on the court.
Today I'm talking about the ability to read minds. And how it might affect our relationship with Tess. I've been listening to The Telepathy Tapes , a podcast by Ky Dickens about how certain nonspeaking people with autism have displayed the ability to read minds.
Today we're talking about an irksome behavior of Tess's, something that's happening more and more frequently, and what it could mean.
SED 527: Why I'm Changing the Show Back Last summer, I made a big change to this show. Now, I’m changing it back. In this episode, I share why—and how a recent ski day with Tess, in zero-degree weather, reminded me of something important. Tune in to hear the full story.

1 Stronger Every Season: A Caregiver’s Mindset Shift 5:20
5:20
Play Later
Play Later
Lists
Like
Liked5:20
Stronger Every Season: A Caregiver’s Mindset Shift What if the way you think about aging is making caregiving even harder? If you're a caregiver, you know the toll it can take on your body—aching muscles, exhaustion, and the creeping fear that one day you just won’t be able to do it anymore. But what if there’s a different way to look at it? A mindset shift that keeps you strong, capable, and even optimistic? Discover how changing your perspective on physical decline can make a huge difference in caregiving. Learn how building a personal ‘support team’ can keep you strong and resilient. Get inspired by a powerful reframe that turns dread into determination. Hit play now to hear a short but game-changing episode about staying strong, shifting your mindset, and bringing the heat—season after season.…
Max Flex: The Rare-Disease Parent’s Superpower for Navigating Uncertainty How do you keep going when rare-disease parenting constantly upends your plans? If you're raising a child with a rare disease, you know that unpredictability is the norm—canceled plans, last-minute doctor visits, and constant pivots can feel exhausting. In this episode, we explore why these disruptions hit so hard and how a simple mindset shift can help you regain a sense of control. Understand why rare-disease parenting makes traditional planning so difficult—and what to do about it. Learn a new way to approach daily schedules that reduces frustration and stress. Discover how embracing "Max Flex" can help you feel more confident and prepared, no matter what comes your way. Listen now to learn how rare-disease parents can build a mindset that turns constant disruptions into opportunities for strength and adaptability.…

1 Stepping Forward: How Shoes and Therapy Transformed Tess’s Confidence 9:35
9:35
Play Later
Play Later
Lists
Like
Liked9:35
Stepping Forward: How Shoes and Therapy Transformed Tess’s Confidence What if a simple tweak in your child's footwear or a new approach to therapy could drastically improve their confidence and mobility? For parents of children with rare diseases, finding solutions to challenges like mobility and physical discomfort can feel overwhelming. In this episode, you'll learn how small adjustments can lead to significant progress, helping your child feel more secure and thrive in their daily life. Discover a groundbreaking physical therapy technique that could change how your child moves and feels. Learn how specific shoes can impact your child’s stability, confidence, and overall comfort. Gain actionable insights into ways you can support your child’s mobility and independence at home. Hit play now to uncover simple, practical changes that can transform your child’s mobility and confidence starting today!…

1 Creative Workarounds for Extraordinary Challenges: Life with Tess 12:18
12:18
Play Later
Play Later
Lists
Like
Liked12:18
Creative Workarounds for Extraordinary Challenges: Life with Tess Have you ever had to outsmart someone who seems to have superhuman strength and an endless appetite? If you’ve ever faced the challenge of keeping your home safe for a loved one—or if you’re simply curious about creative problem-solving—this episode is for you. Discover how we navigate safety challenges for our 15-year-old daughter Tess, who has unique needs that go far beyond the toddler-proofing most families rely on. Learn about ingenious solutions we’ve devised to manage Tess’s bedroom, bathroom, and kitchen safety. Understand the complexities of hyperphagia and why typical safety measures often fall short. Be inspired by real-life examples of persistence, adaptation, and the realities of parenting someone with extraordinary needs. Hit play now to hear practical tips, unexpected stories, and a call for your ideas—because we’re all in this together.…

1 Seeing the Unseen: Navigating CVI and the Power of Being Heard - Part 2 of 2 12:50
12:50
Play Later
Play Later
Lists
Like
Liked12:50
Have you ever been told you're wrong about your child’s needs, only to trust your gut and be proven right? If you’re a parent of a child with cortical visual impairment (CVI), navigating medical appointments and creating a supportive environment can feel overwhelming. This episode dives into a real-life journey of overcoming dismissal from professionals and finding clarity and solutions for CVI. Learn how to advocate effectively for your child, even when faced with skepticism from experts. Discover practical strategies to create a CVI-friendly environment that fosters improvement. Get a list of book recommendations tailored to children with CVI to make reading more engaging. Press play now to gain insights and actionable tips that can transform how you support your child with CVI! Mentioned: Milwaukee artist and author Lois Ehlert , creator and writer of Fish Eyes and Circus Luminous , by Julia Kuo…

1 Seeing the Unseen: Navigating CVI and the Power of Being Heard - Part 1 of 2 11:39
11:39
Play Later
Play Later
Lists
Like
Liked11:39
Seeing the Unseen: Navigating CVI and the Power of Being Heard - Part 1 of 2 What happens when a medical professional dismisses your concerns about your child’s health? How do you move forward when you're made to feel like you're imagining things? If you're a parent of a child with a rare disease, you've probably faced moments of disbelief from others—especially from those you trusted to help. This episode dives into one such experience, sharing practical insights on how to navigate this emotional and isolating journey while advocating for your child. Learn how to recognize the signs of cortical visual impairment (CVI) and why early identification matters. Discover strategies to manage the emotional toll of feeling dismissed or gaslit as a rare disease parent. Gain actionable tips for building resilience and finding allies who truly listen and care. Hit play now to hear this week's episode and equip yourself with tools to advocate for your child, even when the system feels stacked against you!…
Welcome to Player FM!
Player FM is scanning the web for high-quality podcasts for you to enjoy right now. It's the best podcast app and works on Android, iPhone, and the web. Signup to sync subscriptions across devices.