))
Kendra Gottsleben, speaker, author and founder shares her journey of living with a rare disease
Manage episode 378624350 series 3309415
Content provided by Karen Guilbault. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Karen Guilbault or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
Welcome to the Guilbault Girls Show where you will have the opportunity to hear from mothers, fathers, siblings, and individuals themselves about their journey of living with a disability.
Todays Guest is is Kendra Gottsleben. Kendra is the marketing communication specialist at the Center for Disabilities at the University of South Dakota Sanford School of Medicine in Sioux Falls, South Dakota. She is an author and spokesperson on living a life with a rare disease and disability. Kendra is the founder and executive director of the nonprofit organization, Rare by Design. She is an Augustana University graduate with a double major in Sociology and Psychology. Her career blends the two worlds in which she grew up: medicine and education. Kendra’s memberships on numerous boards, advisory groups and professional societies keeps her actively engaged locally, state-wide and nationally.
She has defined her life by a positive outlook and success in overcoming obstacles. Kendra refuses to be defined by Mucopolysaccharidosis (MPS)—the rare genetic condition she has had since birth. Kendra enjoys a stylish outfit and shoes to match as she strives to make a difference. One of her favorite colors is yellow which embodies her life motto: When life hands you lemons, make the BEST lemonade possible!
For more information or to contact Kendra please visit:
rarebydesign.org
kendragottsleben.com
As promised here is the link to her poem called Imagine:
https://www.kendragottsleben.com/post/through-kendra-s-eyes-in-2004
As they say it takes a village, and you can help be a part of that village, simply sharing our show to the masses to spread awareness, change mindsets, and help teach others to be kind to one another.
Become a supporter of The Guilbault Girls Show today by clicking on the following link:
https://www.buzzsprout.com/1827471/support
If you would like to be on our show, be sure to contact us today and don’t forget to subscribe to our Guilbault Girls Podcast and YouTube show, and make sure to follow us on Facebook and Instagram at Guilbault Girls!
Facebook: @Guilbault Girls, Instagram: @GuilbaultGirls, YouTube: @Guilbault Girls, Email: GuilbaultGirls@gmail.com, and Website: www.GuilbaultGirls.com.
Our daughter, Faith Guilbault directed a documentary called Faith’s World about her journey of living with a disability which aired on PBS in April of 2020. You can watch the documentary in full at the following link the link:
https://www.pbs.org/video/faiths-world-ozblht/
“It takes a village to raise a child” is an African proverb that means an entire community of people must interact with children for those children to grow in a safe and healthy environment.
“We live in a world in which we need to share responsibility. It’s easy to say it’s not my child, not my community, not my world, not my problem. Then there are those who see the need and respond.” -Fred Rogerss
125 episodes
Share
