In our series of podcasts, FIECON team members engage with patient advocates and thought leaders to explore the burden, unmet needs, patient journey, and potential future treatments for specific diseases, with the aim of gaining a deeper understanding of the patient's perspective, particularly for rare diseases. At FIECON, we are dedicated to ensuring that life-changing treatments reach the patients who truly need them, while also increasing awareness and amplifying the patient voice to make ...
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Living with Heart Disease
Bouba Diemé (Heart Of A Giant), Bouba Dieme, Heart of a Giant, Somaneh Bouba Dieme
~ From Somaneh Bouba, aka Heart of a Giant. ~ Is living a longer quality of life after a heart disease diagnosis possible? We are the patients who have resolved to become physically and mentally healthier. From managing symptoms to managing side effects From managing medication to managing finances Share the challenges and the triumphs. Help understand what it means to live with a heart condition. Discover what it means to survive and thrive with a heart condition. This is Living with Heart ...
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Welcome to "Connecting Communities: Building Inclusive Healthcare," a podcast exploring the critical intersection of diversity, clinical trials, and unmet medical needs. Hosted by leading voices in healthcare equity and research, this podcast delves into diversity's essential role in shaping clinical trials and addressing unmet medical needs. Each episode features insightful conversations with experts from various fields, including healthcare professionals, researchers, policymakers, and pat ...
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Nurse to Nurse Chronicles: The Podcast for Nurses! Step into a world of Authentic Conversations – a prescription for professional growth, personal connection, and amplifying voices within the healthcare industry. Whether you’re launching your nursing career, refining your expertise, or aiming for new heights as an advanced practice nurse, our tailored content is crafted just for you. Stay informed, inspired, and connected as we navigate the dynamic world of nursing together. Let’s elevate th ...
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Welcome to Lit Health – lighting a fire underneath the status quo of healthcare through interviews with authors, healthcare leaders, and policymakers who are working to create a healthcare environment that is equitable, transparent, and that welcomes the needs of every patient – especially our vulnerable populations including the mentally ill, people of color and women who feel they are at risk in our current system, and anyone who feels bias or the isms affect their health and quality of li ...
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Taking Control: The Key to Coping with Dr David Bullis, Therapist, Author
1:06:42
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Takeaways: Coping is an active process that requires setting goals and taking control over the choices we face. Balance is crucial in coping, and it involves managing stress coming into our lives and releasing it through physical exercise and relaxation breathing. Sorting worries into three boxes (things we have control over, things we will have co…
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The patient journey | Metastatic breast cancer
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In this episode Karl Freemyer, BD director at FIECON, is speaking with Emma Chaffin about her experience living with the metastatic breast cancer as a biopharmaceutical executive. Emma is a resilient breast cancer survivor who was diagnosed with stage 4 breast cancer five years ago at the age of 41. Facing a daunting prognosis and a treatment plan …
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A dynamic interview on diversity in clinical trials explores the critical importance of ensuring diverse representation among participants in medical research. It typically delves into various aspects, such as: Rationale: Understanding why diversity in clinical trials matters, including how it affects the generalizability and effectiveness of medic…
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There's a very evident lack of diversity nearly 80 percent of the trials are made up of white participants from underrepresented and under-served groups in clinical research Hispanics Latinos, African Americans, and lgbtqia they really should all be included and encouraged to participate in clinical trials.…
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Episode 1 LaShone O Interview with Dr. Devynn Taylor
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Conversation Highlights: Our discussion will kick off with a focus on your journey, allowing you to Share insights into how you all arrived at the moment where you are today, your vision, and anticipated impacts. While I'll guide the conversation, you are free to steer it to ensure we cover any specific points that matter most to all of you. Questi…
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Introduction to the Podcast and First Guest, Dr. Devon Taylor.By LaShone O
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Lewis Howe shares his journey towards optimal health and wellness, specifically focusing on living with hypertension. He discusses his diagnosis, the lifestyle changes he has made, and the importance of managing blood pressure. Lewis emphasizes the motivation to maintain good health for his children and future grandchildren. He also highlights the …
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Timestamps [00:02:41] Challenges caregivers face. [00:08:25] The role of caregivers. [00:10:56] Supporting caregivers' critical role. [00:15:32] Medication adherence and tips. [00:19:05] Timing of medication administration. [00:24:23] Grounding techniques for self-care. [00:29:20] Becoming an educated caregiver. [00:33:37] Effects of self-silencing…
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Integrating AI into Healthcare with Raj Ratwani
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Today, Raj Ratwani, Vice President of Scientific Affairs at the MedStar Health Research Institute, Director of the MedStar Health National Center for Human Factors Engineering in Healthcare, and an associate professor at the Georgetown University School of Medicine, joins Tracy Granzyk to explore the intersection of patient safety and data in our U…
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The patient journey | Von Hippel-Lindau syndrome (VHL)
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Von Hippel-Lindau syndrome (VHL), is an inherited condition that brings about tumors in various organs, particularly hemangioblastomas, which are blood vessel tumors found in the brain, spinal cord, and retina. Listen to FIECON's latest 'Patient Perspectives' podcast with Lauren Weinberg, Senior Associate at FIECON, talking to Frankie Bryant about …
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Converting Personal Tragedy into Healthcare Safety for All with Armando Nahum
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Joining Tracy for today’s episode is the truly remarkable Armando Nahum, a former patient advocate who has transitioned into an tremendously influential healthcare activist. Armando's inspirational story and educational presentations born out of his own family’s tragedy have left a profound mark on hospital administrations and frontline caregivers …
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S3E4: Building a Successful Nursing Career: Insights from Industry Leaders
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What does it truly mean to be a successful nurse leader? Join us in this episode as we explore the essential skills, personal development, and strategies needed to build a successful nursing career and inspire others. Hello, everybody, and welcome back to Nurse to Nurse Podcast! In today's episode, we explored a topic that lies at the heart of ever…
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S3E3: Emerging Technologies in Nursing: Enhancing Patient Care
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Are you ready to embrace the technological revolution in healthcare and nursing? As nurses, we understand that the modern healthcare environment is different from what it was just a couple of decades ago. We face the pressure of increasingly time-consuming administrative tasks, including extensive documentation requirements that can detract from di…
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S3E2: Diversity, Equity, and Inclusion in Nursing: Navigating The Challenges
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What are some challenges and opportunities for providing diversity, equity, and inclusion in nursing? Promoting diversity, equity, and inclusion in nursing is not just about meeting a quota or ticking a box; it's about creating an environment where everyone feels valued, respected, and included. Addressing these issues requires ongoing education, o…
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S3.E1: Advancement in Nursing Education Preparing for the Future
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How can advancements in nursing education enhance our ability to provide compassionate patient care? Welcome back, Nurse Nation! In this season's debut episode, we dive into the heart of nursing, discussing advancements in nursing education and the essence of compassionate patient care. We are thrilled to explore the evolution of online learning, e…
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The patient journey | Leber hereditary optic neuropathy (LHON)
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In this podcast, Lily Mumford talks to Lauren Weinberg, Senior Associate at FIECON, about her patient journey, experience living with LHON, and how losing her vision has impacted her life. Leber hereditary optic neuropathy (LHON) is a rare condition that primarily affects young adults. It causes painless vision loss, typically starting in one eye a…
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Navigating Personal Goals and Health Challenges with Jodie Hall-Holit
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Jodie Hall's story emphasizes the importance of putting oneself first and seeking support when facing health challenges. Her experience with congestive heart failure at a young age sheds light on the significance of early diagnosis and proper medical care. At 19, Jodie discovered that she had congestive heart failure. Despite this diagnosis, she co…
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The patient journey | FOP (Fibrodysplasia Ossificans Progressiva ), Lexi's story
29:55
29:55
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In this podcast, David Robins talks to Lauren Weinberg, Senior Associate at FIECON, about the patient journey, his experience as the father of Lexi who lives with Fibrodysplasia Ossificans Progressiva (FOP), and as a family after the FOP diagnosis. FOP is an ultra-rare genetic condition and is one of the most debilitating conditions known to medici…
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Amplifying Patient Voice to Improve Care with Martin Hatlie
39:19
39:19
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Tracy welcomes esteemed patient safety advocate and President/CEO of Project Patient Care, Marty Hatlie, to the podcast today for a conversation that delves deeply into the core of patient safety and the integral roles patients and families play in elevating healthcare outcomes. Together, they engage in a timely dialogue which underscores the urgen…
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The patient journey | SATB2-associated syndrome (SAS)
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Erika Stariha is the mother of the first child in Slovenia diagnosed with SATB2-associated syndrome (SAS), as well as the founder and president of SATB2-Europe. SATB2 Europe's aim is: “To improve quality of life for individuals with SATB2 syndrome through discovery and development of targeted treatments and enhanced availability of appropriate care…
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Review of a Six-Year Heart Transplant Journey with Somaneh Bouba: Diagnosis & Challenges
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Meet Somaneh Bouba, a heart transplant recipient who has overcome tremendous challenges in his 6-year long heart transplant journey.As a dedicated husband, father, senior corporate manager and social entrepreneur, Somaneh has navigated his way through the complex world of heart transplantation with grace and resilience. His personal experiences hav…
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S2E17 Informed Consent: To Consent or Not To Consent, Nurse’s Role
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Welcome back to Nurse to Nurse Podcast- Straight Talk, a podcast designed specifically for nurses, by nurses. In today’s episode, we delve into the crucial topic of consent, exploring its relevance, challenges, and ethical considerations within the nursing profession. As healthcare providers, nurses encounter diverse situations that require informe…
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Battle of Heart Disease: Overcoming Obstacles with Armin Muzafirovic
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Ep 13: Battle of Heart Disease: Overcoming Obstacles with Armin Muzafirovic Against all odds, Armin refused to let his diagnosis define him. But a ski trip to Colorado brought an unexpected twist, changing everything he thought he knew about his condition. What happened next was an ongoing battle, and Armin's incredible resilience kept him fighting…
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S2E16: Nurses, Are You Ready for Your Well-Deserved Retirement?
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As a nurse, you've dedicated your career to caring for others, ensuring their well-being, and making a positive impact on countless lives. After years of tireless service and commitment, the time to consider your retirement has finally arrived. This momentous transition marks the beginning of a new chapter, filled with opportunities for relaxation,…
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S2E15: Urinary Catheterization Procedure: Types, The How To’s, and Complications with Kevin Stansbury
33:07
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BEST TO WATCH THIS ON VIDEO POSTED IN OUR FACEBOOK COMMUNITY! Join the conversation: https://www.facebook.com/groups/590215372864282 Welcome, everyone, to the Nurse to Nurse Podcast, where we engage in candid conversations with Kevin and Starshema. We are truly grateful for your presence today. In today's episode, Kevin will be taking the spotlight…
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Defying Odds with Olivia Rose: Heart Disease Survivor's Journey
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Bouba chats with Olivia Rose to talk about her heart disease journey. After suffering two strokes and heart disease, Olivia Rose, an elite athlete, courageously fights for her life and embarks on an inspiring journey of self-discovery and resilience to defy the odds. Olivia Rose is a thriving survivor, heart transplant recipient, and former LVAD pa…
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S2E14: Understanding the 3 Major Complaints of Patients to Provide Quality Care
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49:11
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Welcome back to Nurse To Nurse Podcast Straight Talk! Dealing with different types of patients every day can be very stressful especially when you're not communicating well with each other. Today, we are talking about what patients are complaining about in the hospital and give you some insight as to ways that can help you make your patients feel c…
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S2E13: Iconic is the Goal, Take Your Nursing Career to the Next Level with Starshema
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Welcome back to another episode of the Nurse to Nurse podcast! We have received so much love from you all so to serve you better, I and my co-host, Kevin, decided to do a solo podcast episode at least each season to be able to come and teach you something around your magic and our level of expertise. We aim to help you be able to show up in the wor…
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From Professional Basketball to LVAD: George Boakye-Yiadom's Unexpected Journey
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"If it wasn't for Ivy, I probably wouldn't be where I am. So I thank God for her. It wasn't easy. " - George Boakye-Yiadom Bouba talks with George about the ups and downs of living with a heart condition. George Boakye-Yiadom is a mental health coach, fashion designer, and technology consultant. He is the founder the Boak Group LLC and works at of …
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S2E12: The Pros and Cons of Being A Float Pool Nurse
1:11:55
1:11:55
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We reached 2000 downloads! We want to grab this chance to thank you all for tuning into the podcast. The way that you all have shown up for us has been absolutely amazing! So we are absolutely grateful to you all. And to continue serving you with resources, tips and advice to help you succeed in your nursing career and beyond, today, we are going t…
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S2E11: Medication Administration Error: A Better Understanding of Medications in Nursing
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Welcome back everyone to another episode of the Nurse to Nurse podcast-straight talk with the two skilled nurses Kevin and Starshema! Today we’re going to talk about medication errors. Some of you might be able to understand our point of view in this episode and some might have the slightest idea or knowledge of the drugs you administer or some of …
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Inspiring Journey From Heart Failure to Transplant: A Chat With John Sanson
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John Sanson was diagnosed with dilated cardiomyopathy in 2016. After undergoing an LVAD and a transplant, he lives in Houston, Texas, with his wife, two dogs, and a cat. John works in the coffee industry, does photography, and is currently working on a documentary series about coffee. He is now facing $50,000 worth of medical debt due to the high c…
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S2E10: Navigating Some Of The Most Stressful Job In Nursing
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Welcome back everyone to another episode of the Nurse to Nurse podcast-straight talk with the two skilled nurses Kevin and Starshema! Nursing is considered a hard job and their work stresses can have negative effects on health and quality of life. In today’s episode, we are going to help you understand the stressful environment nurses experience ev…
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S2E9: Stepping Up to Life Difficulties and Building Your Nursing Career
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Welcome back everyone to another episode of the Nurse to Nurse podcast-straight talk with the two skilled nurses Kevin and Starshema! In the last episode, we talked about Refocusing Life and Career as a Nurse. Starshema shared her own experience in life and how she was able to transition from being a nurse to being a nurse coach, focusing on teachi…
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S2E8: Refocusing Life and Career As a Nurse During Midlife Crisis
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Welcome back everyone to another episode of the Nurse to Nurse podcast-straight talk with the two skilled nurses Kevin and Starshema! Ralph Mando Emerson once said, “In order to learn the important lessons in Life, one must, each day, surmount a fear.” Do you ever struggle choosing between career over business? Does the minimum wage really pay off …
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S2E7: The Good Nurse Movie Review From Two Highly Skilled Nurses
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Welcome back everyone to another episode of The Nurse to Nurse podcast- Straight talk with two skilled nurses Kevin and Starshema! Have you seen The Good Nurse movie? Today, we are going to give a review of that movie and how we can relate that to our profession as a nurse. We also tap into laws where police seek access to patients or patient infor…
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S2E6: Nursing Questions and Answers
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Welcome back everyone to another episode of The Nurse to Nurse podcast- Straight talk with two skilled nurses Kevin and Starshema! Today is our very first LIVE podcast and we are answering some of your questions so stay tuned! Some of the questions we answered: 4:28 I'd like some advice on an ongoing issue at my facility. We have worked at a specia…
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S2E5: How to cope in a toxic work environment
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Welcome back everyone to another episode of The Nurse to Nurse podcast- Straight talk with two skilled nurses Kevin and Starshema! “A toxic environment keeps people in a fight or flight mindset—the constant pump of cortisol, testosterone, and norepinephrine generates physical, emotional, and mental stress,” -Cheri Torres Patient safety should be th…
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S2E4: Staffing Ratio in acute care and long term care facilities
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Welcome back everyone to another episode of The Nurse to Nurse podcast- Straight talk with two skilled nurses Kevin and Starshema! Thank you all for tuning in to The Nurse to Nurse podcast! We received a lot of love and a lot of feedback from our last episodes and this one young girl wrote to us about her concern about staffing ratios within facili…
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Welcome back everyone to another episode of The Nurse to Nurse podcast- Straight talk with two skilled nurses Kevin and Starshema! So in today’s episode, we are going to be talking about burnout, specifically, nurse burnout. Is nurse burnout a real thing? What factors do you think contribute to nursing burnout? Is it COVID, the nursing shortage, or…
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S2E2: How To Protect Yourself as a Nurse When The Organization Fails You | Nurse To Nurse Podcast
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Welcome back everyone to another episode of The Nurse to Nurse podcast- Straight talk with two skilled nurses Kevin and Starshema. As young nurses, some of you are probably thinking that you don’t need any type of insurance, that the organizations will always have your back and they will be there to protect you in the event that you did something w…
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Welcome to Season 2: Meet co-host Kevin Stansbury, Our Mission, and Our Goals
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Welcome to Season 2 of the Nurse to Nurse podcast- Straight Talk Nursing! And as I shared with you, I will no longer be a solo host for this new season. We are going to welcome a co-host who is also a skilled nurse and we are really going to have a nurse to nurse podcast conversation. So in this episode, we want to get a good chance to meet and gre…
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Season 1 Finale: Goodbye Season 1, Hello Season 2
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Welcome to the final episode of season one on the nurse to nurse podcast. I want to take this opportunity to thank you all for leaning in. It means so much to me to have had your listening ears, your attention, your feedback and communication along the way. In this final episode of season 1, I’m taking you to why I launched this podcast, what’s my …
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EP38- The Current State of Healthcare From A Nursing Perspective with Kevin Stansbury
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Welcome to the new episode of Nurse to Nurse podcast! We have a special guest to join us today, Kevin Stansbury, which I have to pull major strings to get him here. And we are going to have a conversation about what’s happening in the healthcare setting right now and how we can navigate this situation to grow and be better nurses and create greater…
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Advocating for Mom and Medical System Reform with Steve Burrows
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Steve Burrows is a writer, director, performer, and producer who began his career in Chicago, joining Second City director Dell Close as a member of the critically acclaimed and groundbreaking improvisational comedy group ‘Baron's Barracudas’. After relocating to Los Angeles, Burrows began his film and TV career with an award-winning short film, "T…
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EP37: Speak Up Sis! How To Harness The Power Of Your Voice
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Welcome girlfriends to another episode of Nurse to Nurse podcast! Today, on this episode, I want to have a conversation with you about the power of your voice. But before we jump into the content, let me ask you these questions: Has there been a time that you wanted to give your opinion about a subject, but instead of speaking out, you decided to k…
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EP36: How to get more out of your life and business- Prepare your goals like a CEO
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Alright, girlfriends, welcome back again to another episode of the Nurse to Nurse podcast! Before we start, let me ask you this question: Have you ever wondered why some seem to accomplish so much more while the vast majority never accomplish what they are capable of? If you could really tap into your potential, what might be different for you? Thi…
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EP35: What Is Scarcity Mindset in Business and How It’s Stunting Your Business Growth
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Hey Girlfriends! Welcome back to the Nurse to Nurse podcast! Alright, so this is the last episode of the Nurse to Nurse podcast for the year 2022 and I think it’s really a good time to have this conversation with you about the scarcity mindset as we’re wrapping up 2022, leaving what wasn’t serving us and showing up in 2023 with a bang and making su…
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Episode 34: Children and Entrepreneurship
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Welcome to another episode of the Nurse to Nurse podcast, your girl Starshema here. Today we are going to be talking all about nurse entrepreneurship, but we're going to be seeing it from the lens of my child. I have a very special guest, my daughter and we're going to have a very candid conversation around entrepreneurships and seeing how us as nu…
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Welcome girlfriend! Today, we are going to be talking about nurse entrepreneurship. You probably hear me say all the time, “Start your own business, Be your own boss, Leverage your nursing education, Be a nurse entrepreneur” and you might be asking, nurse entrepreneur, what is that? Well, you are in for a treat as today, we are going to dissect abo…
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