Best Hemophilia podcasts we could find (Updated September 2019)
Related podcasts: Podcasting Education Science Fitness Alternative Health Medicine Healthcare Patient Emergency Self-Improvement Hematologic Holocaust Concentrate Coalition Mhealth Drkildare Maperkins PEM Pemed Clinicaltrials Medicalapps  
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B
B's in a Pod
Monthly
 
A podcast series sponsored by Pfizer Hemophilia where host Becky VanSant (whose daughter has hemophilia B) speaks with patients, caregivers, and friends in the hemophilia community to talk about a range of important issues.
 
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BloodStream
Monthly
 
A monthly, 360-degree look at the bleeding disorders community, complete with news, interviews, and informed opinionating. Hosted by Patrick James Lynch. Produced by Believe Limited.
 
Ask The Expert from BloodStream Media is a podcast series features hematologists and other healthcare experts answering listener-submitted questions about hemophilia, von willebrand disease, and other inherited bleeding disorders. Learn more at BloodStreamMedia.com. The content contained within Ask The Expert is for informational purposes only. Please consult your health care provider before making any decisions about treatment.
 
T​he Powering Through Podcast features live panel conversation on obstacles and challenges faced by people affected by hemophilia, von Willebrand disease, and other bleeding disorders. The nationwide series features members of the bleeding disorders community as well as inspiring friends. Both the live events and the podcast are hosted by community member Patrick James Lynch. Find more Powering Through podcasts by visiting PoweringThrough.org/podcast. Powering Through and The Powering Throug ...
 
H
Hemos Unite
Monthly
 
Support, Networking and Inspiration
 
Empowered Patient Podcast with Karen Jagoda is a window into the latest innovations in digital health, the changing dynamic between doctors and patients, and the emergence of precision medicine. The show covers such topics as aging in place, innovative uses for wearables and sensors, advances in clinical research, applied genetics, drug development, and challenges for connected health entrepreneurs.
 
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BloodLine Podcast
Monthly
 
Stream or download the episode today by visiting www.BloodLinePod.com! BloodLine is a BloodStream Media podcast series featuring deep dives into the stories that matter most. This three-episode series focuses on von Willebrand Disease, and features stories of people affected by vWD alongside interviews with clinical experts. The series is sponsored exclusively by Shire and is intended to reduce the marginalization of people w/ vWD, increase clinical and organizational focus on vWD, and to gi ...
 
I
In My Words
Daily+
 
Real patients sharing real experiences
 
E
Everything Dies
Monthly
 
A podcast dedicated to tournament preparation for the game Dark Age created by Cool Mini or Not.
 
HFA's podcast series is designed for young adults with bleeding disorders to learn tips for health and wellness. Listen to learn more about managing stress and mental health, maintaining the motivation to work out, weight lifting, yoga, and healthy eating!HFA would like to thank CDC Collaborative Partners, Shire, CSL Behring and CVS Specialty for their support of HFA’s Young Adult Wellness Podcast Series.
 
Blood, Sweat and Smears is a podcast focused on thrombosis and hemostasis and is hosted by Benign Hematologist, Dr. Brad Lewis. Dr. Lewis shares some of his knowledge built over decades of experience in hematology and laboratory testing.
 
Life before, during and after the holocaust with Buchenwald survivor, Melvin Federbush.In hour 5 of this series, he reveals his harrowing experiences while in Nazi occupied Poland. Melvin Federbush was born in Deblin, Poland, July 1923. He attended Cheder and Yeshiva as well as high school. Within eight days of Hitler's invasion of Poland, his parents and nine year old twin sisters were killed during a bombing attack. Melvin was taken prisoner during the Nazi occupation and forced to live in ...
 
Podcast by Advanced Medical Strategies
 
Each week Dennis Humphrey takes you back to the early days of Radio by presenting the best of the Soap Operas, from Ma Perkins, One Man's Family, and Dr.Kildare. Join us each week as we continue these great stories.
 
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Nassim Usman, CEO, Catalyst Biosciences discusses the problem of Hemophilia, a rare and debilitating disease in which patients have a genetic deficiency in their ability to prevent bleeding. Currently, these patients must receive cumbersome bi-weekly IV infusions of clotting factor replacement therapy and may still bleed. Catalyst is developing ...…
 
Hemophilia Foundation of Michigan’s Camp Bold Eagle is turning 50 this year! Camp Bold Eagle is the longest running summer camp for kids and teens with bleeding disorders in the United States and to celebrate this incredible accomplishment and to relish in the joy of summer camp, Ask the Expert invited staff of the Hemophilia Foundation of Mich ...…
 
Guest host Matt sits down with Jill, a caregiver, and Paul and Shelby, who have hemophilia B, to talk about events in the hemophilia community. Recorded on site at The Coalition for Hemophilia B Symposium, the group discusses how their involvement in the community has evolved over the years and what they would recommend for new families who are ...…
 
Lincoln Nguyen, CEO, Karuna Labs discusses their work in pain management using virtual reality to build immersive environments to aid in retraining the brain to overcome learned pain behaviors. Of particular concern is the fear of movement of those suffering from chronic pain and addressing real dangers for additional injury and those that are ...…
 
Lincoln Nguyen, CEO, Karuna Labs discusses their work in pain management using virtual reality to build immersive environments to aid in retraining the brain to overcome learned pain behaviors. Of particular concern is the fear of movement of those suffering from chronic pain and addressing real dangers for additional injury and those that are ...…
 
NHF’s 71st Bleeding Disorders Conference (BDC) is just weeks away, the stress of back-to-school season is in full effect, and might Tai Chi be, “An Ancient Remedy for Modern Times” that we all need? Rick Starks says so! Nutrition consultant student Delisa O’Brien and Hong Kong-based singer/songwriter Kashy Keegan join the pod to talk about Sick ...…
 
Sean Berman, Cell Surgical Network talks about the advances in stem cell therapies that are allowing doctors to treat orthopedic conditions and inflammatory diseases. He describes how stem cells are isolated and harvested and in turn used in therapies for many parts of the body. Still being tested in clinical trials, stem cell therapies have be ...…
 
Sean Berman, Cell Surgical Network talks about the advances in stem cell therapies that are allowing doctors to treat orthopedic conditions and inflammatory diseases. He describes how stem cells are isolated and harvested and in turn used in therapies for many parts of the body. Still being tested in clinical trials, stem cell therapies have be ...…
 
Nassim Usman, CEO, Catalyst Biosciences discusses the problem of Hemophilia, a rare disease in which patients have a genetic deficiency in their ability to prevent bleeding. Currently, these patients must receive cumbersome bi-weekly IV infusions of clotting factor replacement therapy and may still bleed. Catalyst is developing a solution to gi ...…
 
Presenting a NEW BloodLine podcast, “FVIII Inhibitors: The Next Chapter.” In our third episode, we speak to community members and advocates about their hopes for the future of FVIII inhibitor treatment as well as local and nationwide resources available to FVIII inhibitor patients. “FVIII Inhibitors: The Next Chapter” is a three-part podcast se ...…
 
Sam Liu, Vice President Marketing, VivaLNK talks about the current state of health wearables and how they are powering the growth of remote patient monitoring (RPM), how continuous monitoring changes the relationship between doctors and patients, and advances in sensors which will make it easier for patients to comply with reporting and treatme ...…
 
Sam Liu, Vice President Marketing, VivaLNK talks about the current state of health wearables and how they are powering the growth of remote patient monitoring (RPM), how continuous monitoring changes the relationship between doctors and patients, and advances in sensors which will make it easier for patients to comply with reporting and treatme ...…
 
Presenting a NEW BloodLine podcast, “FVIII Inhibitors: The Next Chapter.” In our second episode, we learn about the ten-year journey to bring HEMLIBRA® (emicizumab-kxwh) to market and take a deep look at the clinical trials of HEMLIBRA. “FVIII Inhibitors: The Next Chapter” is a three-part podcast series looking at the current and future state o ...…
 
Chris Hutchison, CEO, Cheetah Medical discusses the importance of a non-invasive, easy to use way to assess if a patient will respond positively to IV fluids in emergencies and in other critical care situations, and how Cheetah Medical devices are empowering healthcare providers by providing real time, continuous information to allow them to do ...…
 
Chris Hutchison, CEO, Cheetah Medical discusses the importance of a non-invasive, easy to use way to assess if a patient will respond positively to IV fluids in emergencies and in other critical care situations, and how Cheetah Medical devices are empowering healthcare providers by providing real time, continuous information to allow them to do ...…
 
Alexis Peyroles, CEO, OSE Immunotherapeutics talks about the important role the immune system plays in the development of a number of diseases. OSE is a biotechnology company focused on the therapies that control the immune system for treatment of cancers and autoimmune diseases. We discuss how drugs that regulate the immune system can provide ...…
 
Alexis Peyroles, CEO, OSE Immunotherapeutics talks about the important role the immune system plays in the development of a number of diseases. OSE is a biotechnology company focused on the therapies that control the immune system for treatment of cancers and autoimmune diseases. We discuss how drugs that regulate the immune system can provide ...…
 
Presenting a NEW BloodLine podcast, “FVIII Inhibitors: The Next Chapter.” In our first episode, we meet patients from around the country who live with hemophilia A with factor VIII inhibitors and hear about their journeys first hand. “FVIII Inhibitors: The Next Chapter” is a three-part podcast series looking at the current and future state of l ...…
 
Dr. Tony Fiorino, Chief Medical Officer, electroCore discusses the challenge of managing and preventing primary and secondary headaches particularly migraines, the science behind the electroCore non-invasive vagus nerve stimulator gammaCore(TM) and understanding the neurological triggers and mechanisms of headache disorders. @electroCoreVNS #mi ...…
 
Dr. Tony Fiorino, Chief Medical Officer, electroCore discusses the challenge of managing and preventing primary and secondary headaches particularly migraines, the science behind the electroCore non-invasive vagus nerve stimulator gammaCore(TM) and understanding the neurological triggers and mechanisms of headache disorders. @electroCoreVNS #mi ...…
 
Is gun control a healthcare issue? Why is CBD everywhere? What new assistive device did Patrick buy? We discuss it all, plus, Association for Healthcare Social Media Founder and President Dr. Austin Chiang joins to discuss his mission, Debbie de la Riva’s back to talk about National Suicide Prevention Month, and Mama Sue helps us wind down with ...…
 
Dr. Costas Hadjipanayis, Director of Neurosurgical Oncology for Mount Sinai Beth Israel Hospital discusses his experience working with the advanced robotically-controlled digital microscope, Modus V, from Synaptive Medical and how this technology was used recently to successfully remove a 19-year old woman's rare brain tumor. Dr. H talks about ...…
 
Dr. Costas Hadjipanayis, Director of Neurosurgical Oncology for Mount Sinai Beth Israel Hospital discusses his experience working with the advanced robotically-controlled digital microscope, Modus V, from Synaptive Medical and how this technology was used recently to successfully remove a 19-year old woman's rare brain tumor. Dr. H talks about ...…
 
Isaac Israel, CEO, Kitov Pharmaceuticals talks about how the development of new cancer treatments is an active and rapidly changing field and how Kitov is focusing on making cancer treatments more effective for patients. They are developing combination therapies that can help overcome cancers' ability to develop resistance to treatment. Kitov i ...…
 
Isaac Israel, CEO, Kitov Pharmaceuticals talks about how the development of new cancer treatments is an active and rapidly changing field and how Kitov is focusing on making cancer treatments more effective for patients. They are developing combination therapies that can help overcome cancers' ability to develop resistance to treatment. Kitov i ...…
 
Support for this episode comes from Novo Nordisk. Vaughn shares what it was like growing up with hemophilia and how medicine has helped him manage his condition. You can also watch a video to learn more about the Ripley family. The post Hemophilia: Vaughn’s Story appeared first on In My Words.By Jumo Health.
 
Our usual host, Becky, passes the mic to her daughter Elizabeth, a person with severe hemophilia, to guest host this episode. Elizabeth, who is studying to be a music therapist, chats with Spencer, a musician and teacher who also has severe hemophilia, about how music can make a difference in the lives of people with hemophilia. The pair talk a ...…
 
Gilead Raday, COO, Redhill Biopharma, a specialty biopharmaceutical company primarily focused on gastrointestinal (GI) diseases talks about the growing problem of antibiotic resistance and the challenges this presents treating H. pylori infections, which affects about half of the global population. Redhill is working to bring Talicia, a new tre ...…
 
Gilead Raday, COO, Redhill Biopharma, a specialty biopharmaceutical company primarily focused on gastrointestinal (GI) diseases talks about the growing problem of antibiotic resistance and the challenges this presents treating H. pylori infections, which affects about half of the global population. Redhill is working to bring Talicia, a new tre ...…
 
Matt, who has appeared on the show in the past to discuss his son’s experiences with hemophilia B, steps in as guest host in this episode to chat with Elizabeth and Josh. Elizabeth is a college senior and Josh is a young adult who has completed his degree. The trio talk about scholarships, infusing at the dorm, and what it was like to live with ...…
 
Paul Kohlhaas, Founder, Molecule is passionate about creating a network for the decentralization of the process of researching new molecules and developing new molecular compounds using blockchain to track and reward all those who participate. With the current pharma innovation crisis and rising costs of drug development, new methods are needed ...…
 
Is a healthy joint an active joint or a stagnant joint? How many bleeds does it take to create damage? How does treatment adherence compliment our activity levels and joint health? Join us for the latest episode of Ask the Expert where nationally recognized physical therapist, Cindy Bailey, Ph.D, gives us the 101 on joint health, physical activ ...…
 
Paul Kohlhaas, Founder, Molecule is passionate about creating a network for the decentralization of the process of researching new molecules and developing new molecular compounds using blockchain to track and reward all those who participate. With the current pharma innovation crisis and rising costs of drug development, new methods are needed ...…
 
Robbie takes a trip to the kidneys to learn more about how the kidneys work, what happens when they are damaged, and what treatments are available. Sign up for more resources at JumoHealth.com. The post Understanding Chronic Kidney Disease appeared first on In My Words.By Jumo Health.
 
Dr. Nerissa Kreher, Chief Medical Officer, Tiburio discusses the company's lead asset, TBR-760 as a novel treatment option for patients with non-functioning pituitary adenomas (NFPA), which are rare neuroendocrine tumors located in the pituitary gland. She also speaks about the challenges facing patients even after surgical or radiation treatme ...…
 
Dr. Nerissa Kreher, Chief Medical Officer, Tiburio discusses the company's lead asset, TBR-760 as a novel treatment option for patients with non-functioning pituitary adenomas (NFPA), which are rare neuroendocrine tumors located in the pituitary gland. She also speaks about the challenges facing patients even after surgical or radiation treatme ...…
 
This month on The BloodStream Podcast host Natalie infuses host/husband Patrick for the first time, on mic (and video)! Listen to the discussion around first infusions, infusion anxieties, and more on our Special Infusion Segment. A new Mental Health Resource Guide is the focus of our Moment For Mental Health Segment with Debbia de la Riva; hea ...…
 
Venkat Nelabhotla, Chief Executive Officer, Vyome Therapeutics discusses the growing problem of antimicrobial resistance in medicine and how Vyome is working to tackle resistant dermatological conditions using their understanding of the skin microbiome. Focusing first on acne, Vyome is developing VB-1953, a topical gel capable of killing resist ...…
 
Venkat Nelabhotla, Chief Executive Officer, Vyome Therapeutics discusses the growing problem of antimicrobial resistance in medicine and how Vyome is working to tackle resistant dermatological conditions using their understanding of the skin microbiome. Focusing first on acne, Vyome is developing VB-1953, a topical gel capable of killing resist ...…
 
Guest hosts Wayne and Chad, 2 older community members, sit down with Rocky, age 36, to discuss intergenerational connection in the hemophilia B community. The men talk about how things have evolved over the years, whom in the community they admire, and their hopes for future generations.
 
In Part 3 of the Hemophilia and Young Adulthood podcast series presented by BloodStream Stories, members of the Hemophilia Association of New Jersey (HANJ) give their perspectives on DATING & INTIMACY, how hemophilia plays a role in a young adult’s FAMILY, and what they HOPE for the future of the hemophilia community. This conversation was reco ...…
 
In Part 2 of the Hemophilia and Young Adulthood podcast series presented by BloodStream Stories, members of the Hemophilia Association of New Jersey (HANJ) discuss PUSHING LIMITS and finding boundaries, the need for EMOTIONAL SUPPORT, various forms of PAIN MANAGEMENT, and troubling topic of SUBSTANCE ABUSE. This conversation was recorded live o ...…
 
BloodStream Stories presents Hemophilia and Young Adulthood, a special three-part podcast. In Part 1, eight young adult members of the Hemophilia Association of New Jersey (HANJ) weigh in on the topics of IDENTITY as someone with a bleeding disorder; DISCLOSURE in school, professional, and social settings; and TRANSITIONS, such as those from hi ...…
 
Dr. Greg van Wyk, CMO and recently appointed CEO, Noxopharm talks about the Company's current milestones and upcoming news related to its lead clinical drug candidate, Veyonda, a chemotherapy and radiation enhancer that is being studied in men with late stage metastatic prostate cancer and that may have broad applicability in other cancer types ...…
 
Dr. Greg van Wyk, CMO and recently appointed CEO, Noxopharm talks about the Company's current milestones and upcoming news related to its lead clinical drug candidate, Veyonda, a chemotherapy and radiation enhancer that is being studied in men with late stage metastatic prostate cancer and that may have broad applicability in other cancer types ...…
 
Rocky and Brittany have been together just over 5 years and are recently married. In this episode, Becky chats with them about navigating a relationship as it relates to Rocky’s hemophilia B. They chat about discussing hemophilia with a potential partner, the impact of being a hemophilia spouse, how hemophilia may influence family planning, and ...…
 
Did you know that women are twice as likely as men to be diagnosed with a mental health condition when presenting cardiovascular symptoms? Or that, on average, it takes women ten years to be diagnosed with endometriosis? On the latest episode of Ask the Expert, we dive into this topic and the long history of women feeling dismissed or ignored w ...…
 
Terri Wingham, Founder, A Fresh Chapter was diagnosed with an aggressive form of cancer when she was in her 30's. As a result she founded A Fresh Chapter, giving cancer survivors and caregivers an opportunity to travel to foreign and US destinations to get outside of their comfort zone and discover new possibilities, community and purpose. Thes ...…
 
Dr. Lewis discusses TMAs in the post-BMT setting, recent research into the topic, when to think about it and what to do about it.By Dr. Brad Lewis, Machaon Diagnostics.
 
This month on The BloodStream Podcast, we breakdown “Clotting Factors: Aren’t They Basically All the Same?” from the May issue of the Parent Empowerment Newsletter (PEN), we discuss one physician’s social media crusade to tear down “fake health news,” we listen to Tabitha White’s story of becoming a hemo mom after losing her hemophiliac father ...…
 
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