Best Patientexperience Podcasts (2024)

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099 Art Therapy Part 1 - Photography 41:25

12h ago41:25

41:25

This episode kicks off our 4-part series featuring people with Parkinson’s who found one form of the arts to be helpful with managing symptoms and gaining perspective. We will explore four different art disciplines – photography, dance, writing and music. We wanted to hear directly from the person with Parkinson’s rather than an expert on the resea…

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098 Parkinson's Together Student Power 33:04

18d ago33:04

33:04

Last episode we spoke with a MDS and Assistant Professor at Vanderbilt University about integrative medicine. This episode is a great follow up to the previous one. This time it is student at the University of Cincinnati leading the charge to bring an integrated approach to Parkinson’s care. She formed a not-for profit organization called Parkinson…

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097 Benefits of Integrative Medicine 37:17

25d ago37:17

37:17

What is integrative medicine and how is it different than what we are used to which is mostly silos of care and mostly Western medicine? My guest today will offer an alternative to this, a better way to treat a patient with a condition or disease. Dr. Britt Stone, an Assistant Clinical Professor at Vanderbilt Medical Center, spent her pandemic time…

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096 Living with PD and Finding Love 37:41

1M ago37:41

37:41

In April 2010, Allison (Allie) Toepperwein experienced a tremor in her left hand while living in Austin, Texas after giving birth to her daughter. Around eight months later, in December 2010, Steven Eury noticed a tremor in his right hand while filming the birth of his son 1100 miles away in North Carolina. The following year, Steven received a dia…

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095 Parkinson's Stages Explained 28:18

2M ago28:18

28:18

What stage are you in? Do people ask you that question? If so, do you tell them? Do you even know? What are the stages and what do they mean? Frankly, I have never asked my movement disorder specialist neurologist what stage I am in. I don’t know why. We have never discussed it. However, learning and knowing more about how your doctor is tracking t…

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094 Answers in the Skin 39:59

2M ago39:59

39:59

Earlier this season on episode number 088 titled “the Skinny on Skin” we learned about the various skin disorders that can manifest in people with Parkinson’s. Well, on the flip side, the skin is the largest organ in our body. It must hold all kinds of secrets to our health. It turns out alpha-synuclein gets deposited in the skin of patients with s…

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093 Follow Your Gut - The Importance of your microbiome on your health 26:48

2M ago26:48

26:48

What do you know about your gut? In the last several years, research has led us to a more detailed understanding of the role of the gut – which includes the stomach, intestines, and colon. This isn’t your father’s understanding of the gut. So, what does the gut have to do with it? It being the possible cause of many diseases including Parkinson’s d…

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092 Innovative Approach for Bladder Relief 38:11

3M ago38:11

38:11

The topic today is one of those difficult to discuss symptoms that most of us try to avoid and deal with it on our own. Not a great idea. So, let’s learn about and discuss our bladders. You might have an overactive one which is also referred to as hyperactive or underactive one also referred to as hypoactive. Unfortunately, the probably of anyone h…

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091 The Dean Team - Exercise Part 3 43:17

4M ago43:17

43:17

Welcome to the third episode in our three-episode series on exercise. During the process of researching for this episode, I have found more and more studies showing that exercise does help reduce symptoms of PD. Very exciting to be able to take control of your journey by including certain exercises in your day and week. My guest today, Dean Laws, d…

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090 Exercise Cocktail Part 2 29:04

4M ago29:04

29:04

Welcome to part two in our series on exercise and how it has been proven to reduce the symptoms of PD. As one of my guests, Dr. Daniel Corcos, explains, “It is crystal clear, exercise slows the progression of Parkinson’s.” In this episode, Kristine Meldrum and Dr. Corcos, authors of the book “Parkinson’s: How to Reduce Symptoms Through Exercise,” c…

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089 Exercise Cocktail Part 1 36:58

4M ago36:58

36:58

OK, I know what you are thinking. Another exercise episode, really? Yes, but this isn’t your run of the mill plead for people with Parkinson’s to exercise more. Up until now, we have been told to exercise but not given any direction on which exercises are best for us. Recently friends recommended a book that is filling this deficit. It is based on …

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088 The Skinny on Skin 48:09

5M ago48:09

48:09

Did you know that people with Parkinson’s disease have a higher risk of developing certain skin disorders than the rest of the population including melanomas? Have you had a skin issue pop up on you and not know what it is or how you got it? There is a good chance you were experiencing a manifestation of the Parkinson’s disease process or a side ef…

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087 Tips for Managing Stress 35:02

5M ago35:02

35:02

My guest from the last episode on Nutrition, Debbie Polisky, is back to talk about stress and stress management. Research has shown stress can reduce a person’s life expectancy. How many years are we losing is determined by other factors and lifestyle choices. However, I am pretty sure everyone experiences stress in their lives so this episode is i…

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086 Lifestyles and Nutrition 38:36

5M ago38:36

38:36

It’s our first episode of 2024. How many of you have already stopped working on your New Year’s resolutions? History would suggest most people fail early. Some of you probably are striving to eat better for your Parkinson’s health and for your overall health. Therefore, it is the perfect time to discuss nutrition and diet. My guest is a dietician w…

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085 Resolution Follow Up 27:39

7M ago27:39

27:39

Well, I can’t believe we find ourselves at the end of 2023. Where did the time go? I hope you had a good year. It was a fantastic year for Parkinson’s research and for this podcast. We witnessed a breakthrough in the study of PD with the discovery of a biomarker and how to test for it. That is a game changer. And this is my 85th episode of the Park…

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The LLM Inflection Point Moment and the Implications for the Specialty Pharmaceutical Industry 18:48

7M ago18:48

18:48

Recent advancements in AI and Large Language Models (LLMs) have caught the world’s attention and for good reason. It’s a big deal. Specialty pharmaceuticals are typically costly, sometimes ranging from $10,000 to over $5 million per patient, per year. The onboarding and approval process that come with these drugs are complex, requiring extensive ef…

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084 Speech Accessibility Project 31:44

7M ago31:44

31:44

This episode is about communication via your voice. Are you being heard? Speech issues is one of those symptoms People with Parkinson’s most likely will need to address as part of the journey with this disease. Does Siri or Alexa understand you? Is it frustrating to use these smart voice assistants? Well, my guests are working to change all of that…

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083 Community Camaraderie 39:12

8M ago39:12

39:12

When you or a loved one has a chronic condition, where do you go to find support, information and your “community”? People with Parkinson’s may not all have the combination of symptoms, but we are all better off when we seek out and find others like us who will be there for you and lift you up. I am grateful to have found a couple groups that have …

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082 A DBS Story 30:05

9M ago30:05

30:05

This episode is a feel good, inspirational story about the decision to have Deep Brain Stimulation (DBS) surgery. Basically, it’s brain surgery and a major decision. I have the privilege of knowing my guest today and have followed her decision-making process and outcomes. As we know, every person with Parkinson’s is different. However, the decision…

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081 Gene Therapy Explained 35:15

10M ago35:15

35:15

Gene therapy has been a previous topic on this podcast. However, it was from a neurosurgeon’s perspective. I continue to be very excited about the possibility’s gene therapy might have for modifying the effects of Parkinson’s disease - stopping the progression. My guest and the company he works for are on the cutting edge of gene therapy research. …

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080 Biomarker Breakthrough 27:27

12M ago27:27

27:27

One of the most important problems to solve in the treatment of a disease is to find out how to measure its status in the person. In order to do that you need a biomarker to measure. For example, we take a blood test to measure cholesterol. If it is higher than normal, the physician can prescribe a diet and medication to treat it. Then, measure it …

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079 Fatigue 32:17

1y ago32:17

32:17

Have you ever felt completely exhausted or fatigued during the day? Does this happen frequently? Not sleepy but totally fatigued or tired. Well, this could be one of those non-motor symptoms of Parkinson’s disease or a medication side effect or something else. Either way, it is really annoying and can affect our quality of life. We discuss fatigue …

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078 Strive for Symptom Objectivity with This Tool 40:08

1y ago40:08

40:08

This is the fourth and final episode in our tech series. We could probably highlight many more innovative ideas and companies. It is a very exciting time for the use of technology in the treatment of Parkinson’s disease. In this episode, we talk with a company whose product, StrivePD, is really cool and very useful. It is an app which communicates …

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077 Modern Day Doctor House Call: Telehealth for PD 39:46

1y ago39:46

39:46

This is our third episode in our series on the topic of using technology to assist you along your journey of living with Parkinson’s disease. In this episode, I speak with a representative of a company offering a telehealth platform specifically for neurodegenerative diseases including Parkinson’s. We all quickly adopted to seeing our doctors via t…

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076 PD Tech Part 2: Remote Patient Monitoring 31:53

1y ago31:53

31:53

This is our second episode in our tech series. In the first episode we introduced you to a couple of physical items developed to help People with Parkinson’s improve their gait and avoid freezing. The other episodes, including this one, will be more about using the internet and software/apps to help you and your doctor monitor your symptoms and pro…

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075 PD Tech Part 1: Tech for your feet? 28:31

1y ago28:31

28:31

We are kicking off our tech series with this episode. Technology has changed the way we interact with the world over the last couple of decades. The pace of change keeps accelerating. We can ask a small box any question and get an answer within seconds. We can pay for items with our phones. The list goes on. However, the healthcare environment hasn…

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074 Rehabilitation: Use it or lose it 38:36

1y ago38:36

38:36

When we hear the word “rehab,” what do we think of first? Some might think of a place where addicts go to get clean. Others might think of traumatic injuries sustained in an accident and the road to recovery. And still others might think of the place you go after a hospital stay of any length. In this episode, we will focus on rehab or rehabilitati…

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073 Pickleball for Parkinson's 26:02

1+ y ago26:02

26:02

I really like the story you are about to hear. It’s uplifting because my guest is uplifting and inspiring with a nonstop positive outlook and genuine desire to help others. And, I also have come to love the sport of Pickleball. Pickleball is quite the popular sport and growing. About 48 million people in the US play. But, can it help with your Park…

1
072 How to Best Manage Your Pain 36:00

1+ y ago36:00

36:00

Pain. We have all felt it over the course of living our lives. However, it isn’t often discussed or attributed as a non-motor symptom of Parkinson’s disease. And yet, it can be one of those symptoms that most negatively impacts our quality of life. How common is it that people with Parkinson’s experience pain? Is it due to the disease or another ca…

1
071 Healthy Mouth Healthy You 28:16

1+ y ago28:16

28:16

Maintaining good overall health and quality of life is important to everyone. Part of the maintenance, my parents always taught me, is regularly visiting the dentist for cleanings and cavity checks. It turns out dental care is particularly important for people with Parkinson’s. Dental hygiene can be challenging for people with Parkinson’s due to th…

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070 Parkinsonism Explained 28:34

1+ y ago28:34

28:34

It wasn’t that long ago that I heard the word Parkinsonism. What is that? Is that what I have? Why am I just now hearing this term? It turns out that a couple of friends were reassessed and found to have a different, but related, diagnosis than Parkinson’s disease. Each had a different variant of PD. There are several conditions that have similar s…

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069 Dual Roles - A Love Story 37:45

1+ y ago37:45

37:45

Someone suggested I read a book titled “Dancing in Small Spaces.” I downloaded it from Amazon and read it quickly. It is a gripping true story of a couple’s life together. Leslie Davidson and her husband Lincoln get diagnosed with Parkinson’s disease and Lewy Body dementia, respectively, around the same time. Although it can be tough to read if you…

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068 You Can Do (Almost) Anything with Bill Bucklew 38:49

1+ y ago38:49

38:49

This episode is about one person’s persistence, resilience, and positivity and how these characteristics can lead to be more friendly with your Parkinson’s disease. My guest has many amazing accomplishments that most of us will never even attempt but are interesting to learn about. The message he communicates to all of us is one of self-advocacy, e…

1
067 PD Medication Review - The Art and The Science 51:41

1+ y ago51:41

51:41

It’s been over a year since we have focused an episode of the Parkinson’s Experience on medication. These episodes are always popular. Even if you think you know a lot about the choices available to treat the motor and non-motor symptoms of PD, I urge you to still listen in. There is always new information and new medications and something for ever…

1
066 Six People Talk New Year's Resolutions 31:25

1+ y ago31:25

31:25

Are you a resolution person? Do you set yearly goals for yourself each January 1st? Do you regularly accomplish your goals? Don’t worry, this isn’t an episode whose goal is to shame you into making resolutions. It can be fascinating what people choose as their resolutions each year. Do they accomplish their goals? For the people with Parkinson's co…

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Building Conversational AI for Healthcare: Tips for Delivering High Patient Satisfaction in a Complex, Regulated Environment 19:34

1+ y ago19:34

19:34

The full power of conversational AI is being unleashed on the world through a steady stream of technological advancements, such as ChatGPT. It’s only a matter of time before language becomes the dominant interface between humans and machines. The healthcare industry will become one of the prime beneficiaries of this technology leap forward. In this…

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The Power and Potential of Conversational Analytics for Healthcare 15:37

1+ y ago15:37

15:37

Business intelligence is a cornerstone of every digital transformation, with businesses spending $140B per year in analytics software. As conversational AI and digital engagement technology matures, a new domain of performance insights is emerging with the ability to measure every moment of the interaction between a business and its customers. In t…

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065 The Present and Future of Surgical Options Explained 52:35

1+ y ago52:35

52:35

This is our final episode of 2022 and we have covered a lot of topics this year and heard from a few of you as well. However, this topic is an important one to understand as we all keep our therapy options open. Neuromodulation, which mostly means neurosurgery and includes Deep Brain Stimulation, may be a perfectly normal option either in the short…

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The Path to Informed eConsent for Clinical Research with Conversational AI 15:41

1+ y ago15:41

15:41

Clinical research studies are increasing in numbers, they’re getting more complex, and they must be executed in a very challenging, tight labor environment. These are some of the key drivers of decentralized programs that use technology to lessen the burden of requiring patients to be physically present in order to participate. Despite advances in …

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064 What Should I Eat? 36:18

2y ago36:18

36:18

We weren't sure what the title of this episode should be at first. However, we get a lot of questions from fellow Parkies and others asking what they should eat for better disease outcomes. Thus, the title. Have you ever wondered what would be a good diet for people with Parkinson’s? What foods to eat, what to avoid and why? Do you plan your meals …

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Observational Studies and a Reimagined Approach to Engaging Participants and Collecting Real World Data 19:32

2y ago19:32

19:32

Observational studies are designed to establish baseline data for diseases and treatments across broad patient populations. There are over 94,000 of them each year. Often, these studies go on for an extended period of time, which places challenges on study sponsors to keep participants engaged and motivated. In this episode, Greg Kefer talks with R…

1
063 Brain and Body Donation 34:29

2y ago34:29

34:29

This episode is an important research topic. We interview one of the most significant and relevant brain and body donation research programs in the country. Some might find this topic tough to think about since people need to donate their bodies upon their death. However, it is one of the least selfish things to do. Since the brain is difficult to …

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A Conversation with Emily Gibb, Head of Patient Services and President of the Patient Access Foundation at GSK 22:06

2y ago22:06

22:06

As medications get more specialized, so has the need for better engagement to help patients with their prescriptions. Manufacturers are investing in tools and programs that can help patients on their medication journeys, and digital strategies are front and center. In this episode, Greg Kefer is joined by Emily Gibb, who leads the patient service o…

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062 What Is It Like Living with Parkinson's? Six People Respond 34:47

2y ago34:47

34:47

Each person experiences the symptoms of Parkinson's and living with Parkinson's uniquely and it changes as the disease progresses. So the saying goes "if you see one person with Parkinson's, you have seen one person with Parkinson's". No one can assume they will live the same as others with the disease. However, what does it feel like to live with …

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061 6 Marathons in 6 Weeks 38:43

2y ago38:43

38:43

The headline read “Six marathons in six weeks.” That hooked me in. Then I read a person with Parkinson’s disease was the runner. Wow. I had to learn more. Everyone reacts differently to the PD diagnosis. Some don’t know what to do or where to start. Some are in denial for as long as they can stay that way. Others tackle it with all they have and fi…

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Diabetes, the Cost of Insulin, and the Challenge of Engaging Over 100 Million Americans that are Dealing with the Disease 15:09

2y ago15:09

15:09

More than 37 million Americans have diabetes today and an additional 96 million adults have pre-diabetes. Access to insulin treatment for many is vital. But in the past 10 years, the cost of insulin has increased by more than 1000% which is driving one in every four people with diabetes to ration or skip doses of insulin. The government and private…

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060 To Drive or Not To Drive 35:38

2y ago35:38

35:38

One of the possibilities along the Parkinson’s journey is losing the ability to drive safely. This possibility is a scary one. For many, driving equals independence. So, it means more than just the hassle of getting around. It means losing your independence. It can lead to depression and anxiety. However, it is important to be safe on the road whil…

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The Time has Arrived to Deliver 6 Billion Digital Health Assistants and Level the Playing Field for All 21:16

2y ago21:16

21:16

Healthcare has become an expensive, clunky mess for everyone. The path forward has to be digital, but with labor shortages showing no signs of slowing down, the time has come to double down on innovation. The good news is that technology has matured to a place where it may finally be able to make a significant difference. In this episode, Shuo Qiao…

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059 Home Sweet Home (Safety) 32:54

2y ago32:54

32:54

The topic of this episode is home safety and how we might think about what we can modify in our homes to be safer in them as we age or as our Parkinson’s progresses. I don’t think of myself as an anxious person or someone who worries excessively. However, I do like to have information stored away for when I need it. After speaking to our expert on …

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The Art and Science of Delivering Conversational Patient Engagement 22:11

2y ago22:11

22:11

The technology behind Conversational AI is maturing rapidly across all sectors as consumers increasingly relying on language to interact with their devices. The labor shortage that plagues most industries has set the stage for technology that powers digital conversations, and the sector that may benefit most is healthcare. Anil Nair, Chief Technolo…

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