Best Ftd Podcasts (2024)

1
EP 144: Q2 Insights with Dr. Veera Rajagopal: Genetic mutations and their impact on disease research 56:48

12m ago56:48

56:48

0:00 Introduction 1:40 A recurrent de novo mutation in a noncoding region of a small nucleolar RNA gene that has been identified as one of the most common causes of neurodevelopmental disorders This pathogenic variant escaped notice for years because it was not located in a protein coding region of the genome It now shows potential as a target for …

1
9| Tips to Tackle Your Crushing To-Do List 13:32

2h ago13:32

13:32

Does your to-do list feel like it's crushing you? Or do you not even have one because it seems like too big of a task? I have been there, and I'm still a work-in-progress! This is a huge area of struggle for me and one that I am constantly working on! In today's episode, I share a few tips that helped me to get my to-do list to a point that seemed …

1
Transforming Healthcare: Verily’s 50 Petabyte Data Migration Journey | EP 184 20:04

4h ago20:04

20:04

Join Miles Ward, CTO at SADA, as he delves into the world of massive data migration with Joe Intrakamhang, Head of Data Management and Cost Optimization at Verily. Discover how SADA and Google Cloud collaborated to move an astounding 50+ petabytes of data for Verily, a leader in precision healthcare. Learn about the challenges and triumphs of this …

1
OPEN MIC on Alzheimer's Speaks - Dementia Friendly Churches, Resources, Training, & Insight 1:08:44

1h ago1:08:44

1:08:44

OPEN MIC on Alzheimer's Speaks - Dementia Friendly Churches, Resources, Training, & Insight 7/23/24 Today our host Lori La Bey talks with Pastor Jeanette Bass Jordan founder of Dementia Dignified Academy and Lance A. Slatton known as the Senior Care Influencer. I think you will find our conversation interesting as we explore services, products, car…

1
Why Digital Audio Ads are Effective for Reaching Voters with John Fitzgerald DAX US 22:00

3h ago22:00

22:00

John Fitzgerald is EVP, AD Sales, DAX US part of Global Media & Entertainment Lmt and associated companies, and an audio ad expert. Digital audio ads expand the universe of people who can hear a candidate's message thanks to the proliferation of devices that can be used for real-time and on-demand listening. Digital audio ads can also be produced q…

1
Featured Artist Mark Timmons on Dementia and the Arts 1:42:36

4h ago1:42:36

1:42:36

SPECIAL PROGRAM ALERT - DEMENTIA AND THE ARTS on Alzheimer's Speaks Artist, Mark Timmons joins Dementia and the Arts host Lori La Bey and Mary Crescenzo. On today's show, Mark shares a sampling of his photography as well as some of his prose. In fact, in some pieces, he combines them! Mark shares his techniques, what sparks his interests and why, a…

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EP 143: Harnessing human data in drug development with Jakob Steinfeldt, Co-Founder and Chief Scientific Officer at Pheiron 36:17

11m ago36:17

36:17

0:00 Intro to The Genetics Podcast 01:00 Welcome to Jakob and background on Pheiron 02:14 What made Jakob decide to start Pheiron, what the company does, and how his scientific background inspired him to found a start-up 5:24 Jakob’s excitement and inspiration around the power and potential of machine learning 07:07 Cardiology and heart failure as …

1
The Emerging Role of Blood Tests in Improving Alzheimer's Disease Diagnosis 1:09:15

4d ago1:09:15

1:09:15

The Emerging Role of Blood Tests in Improving Alzheimer's Disease Diagnosis Lori La Bey explores the new path of utilizing blood tests to diagnose Alzheimer’s disease. She speaks with two professionals in the industry and one person living with dementia but also received several questions from our audience that she will be asking our panel as well.…

1
8| Unscripted. The Backstory of My Mother's Dementia Diagnosis.mp3 13:03

3h ago13:03

13:03

Today's episode was recorded on the 15th anniversary of my father's death, which I fully believe triggered Mom's dementia diagnosis. I share a little more about the backstory, and continue to vulnerably share more specifics of Mom's FTD symptoms and behaviors. I hope this helps you in some way as you are traveling your own journey as a parent careg…

1
EP 142: From genome to bedside: How genetics is transforming modern medical practice with Dr. Andrea Gropman 42:45

3d ago42:45

42:45

0:00 Introduction 1:40 Andrea’s background and how she got into the field of genetics, neuroimaging, and metabolic disorders 4:00 Insights into Andrea’s clinical practice, including the diverse families and patients she serves and her approach to clinical decision-making 6:30 How genetics and genomics have changed the diagnostic journey in the last…

1
Stigma Living with Dementia 53:38

6d ago53:38

53:38

Stigma Living with Dementia on Dementia Chats Today's conversation is all about stigma and living with dementia. Our experts living with dementia are Harry Urban, Karen Creekmoore, Cate Lau, Pam, Larue, Dr. Dale Anderson, Bob Savage, and Dr. Lonni Schicker. As usual, I think you will find great insights from those living with a form of dementia. Yo…

1
Bipartisan Support for the Transparency in Coverage Rule with Mark Galvin TALON 20:35

3d ago20:35

20:35

Mark Galvin, Co-Founder, President, and CEO of TALON, discusses the Transparency in Coverage rule in healthcare. This rule was added to the Affordable Care Act and requires commercial health plan sponsors to provide transparency in the costs of tests, procedures, and other medical services. Despite the sharp divide in Congress, this rule received b…

1
7| Don't Do These 3 Things! How NOT to Handle Hard Dementia Behaviors 10:59

4d ago10:59

10:59

Your parent or loved one with dementia probably displays behaviors that lead you to react in ways that leave you feeling regretful or even more frustrated. Today I will share 3 things NOT to do, and alternative reactions to help you maintain mental peace. As always, if you have questions or would like to learn more about a topic that I have discuss…

1
AI Revolution for Retail: Simplifying Pricing and Promotion | EP 183 22:55

7d ago22:55

22:55

Join us on Cloud and Clear, SADA's cloud transformation podcast. This episode features leaders from Revionics and Google Cloud discussing the transformative impact of AI in retail. Discover how AI enhances customer experience, optimizes pricing, and drives operational excellence. Learn about the role of Google Cloud in powering these advancements a…

1
CAN ADVENTURE PREVENT DEMENTIA? 1:35:17

5d ago1:35:17

1:35:17

CAN ADVENTURE PREVENT DEMENTIA? Lori La Bey talks with Dr. Helena Popovic MD is an Australian family physician and 10-year care partner for her father who had both Alzheimer’s and vascular dementia. She has written two best-selling books about their adventure with dementia, and she teaches health professionals, people living with dementia, and thei…

1
EP 141: Bringing genomics to the clinic with Lori Orlando, Associate Prof at Duke University 43:24

10d ago43:24

43:24

0:00 Intro to The Genetics Podcast 01:00 Welcome to Lori Orlando 03:00 Lori’s career: From mathematical modelling to genetics and family history 05:11 The study that revealed 20% of the general population is at a higher risk of disease than average and needs preventative care 07:36 The first five diseases that Lori started analysing through informa…

1
Communication Tips When Engaging Someone Living With Dementia 1:01:30

12d ago1:01:30

1:01:30

Hear Some Great Communication Tips From Those Living with Dementia and Why They Can Change and Are So Important. Today we have another amazing panel of experts living with dementia. sharing communication tips that work for them in different situations and as their disease progresses or changes. I know you will find Ginger Smith, Karen Creekmoore, C…

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6| 5 Tips to Reduce Caregiver Overwhelm 13:13

21d ago13:13

13:13

Caregiver overwhelm is REAL!! Instead of looking within the caregiver role to find ways to reduce stress, today I am sharing 5 tips that are more general in nature to help reduce caregiver stress and overwhelm. As always, if you have questions or would like to learn more about a topic that I have discussed, please email me at mel@themelcogar.com. A…

1
EP 140: The future of Electronic Health Records and data analysis with Ben Goldacre 52:51

17d ago52:51

52:51

0:00 Intro to The Genetics Podcast 1:00 Welcome to Ben Goldacre 02:22 Ben’s open data projects at the Bennett Institute and the challenges they aim to tackle 04:03 Using Electronic Health Records (EHR) to help the National Health Service improve care 06:18 The importance of software development within healthcare data and how to manage salary scales…

1
AI Trends and Innovations with SADA | EP 182 23:13

18d ago23:13

23:13

In this episode of Cloud and Clear, host Nikki Harley, VP of Ecosystem and Solutions at SADA, talks with Scott Bergquist, who leads SADA's go-to-market strategy for data, AI, and industry solutions. Scott, with over 25 years in tech, shares his insights on the rapid advancements and transformative potential of AI in business. They discuss how SADA …

1
June OPEN MIC on Alzheimer's Speaks 1:00:58

19d ago1:00:58

1:00:58

OPEN MIC on Alzheimer's Speaks Allows People to Share Their Stories, Services, Products, Tools, Advice, and Concerns Join Alzheimer's Speaks Radio today on Open Mic as we shift dementia care from crisis to comfort around the world one episode at a time. We love raising all voices and delivering sound news, not just sound bites! So, monthly we invit…

1
Using AI to Redefine Voter File Segmentation with Fadi Micaelian SPARKDIT 20:56

1M ago20:56

20:56

Fadi Micaelian, CEO of SPARKDIT, is an AI strategist who brings insights into using generative AI to support political consultants and voters. These voters are weighing choices and making tradeoffs as they decide who to financially support and vote for. Using additional data points to predict voting behavior is increasingly essential as voters beco…

1
BONUS: Understanding Different Aspects of FTD Research with Dr. Irwin and Dr. Massimo 35:36

1M ago35:36

35:36

Y’all thought we’d stay away this long??? We’re baaaccckkk! And this is #2 of the TWO bonus episodes we produced for Season 8! In this episode we tackle the different types of research with Dr. Irwin and Dr. Massimo, the Co-Directors of the Penn FTD Center. Some of the questions we ask: -What are the different types of research? Pharmacological vs.…

1
BONUS: Understanding Clinical Trials for FTD with Dahlia Kamel, Penn FTD Center 58:03

24d ago58:03

58:03

Y’all thought we’d stay away this long??? We’re baaaccckkk! And this is one of TWO bonus episodes we produced for Season 8! In this episode we tackle Clinical Trials with our friend Dahlia Kamel, MS - Clinical Trials Lead at the Penn FTD Center. Some of the questions we ask: -What is a clinical trial? -What do the different phases mean? -What are t…

1
EP 139: Rare disease breakthroughs using tRNA with Michelle Werner, CEO of Alltrna and CEO-Partner of Flagship Pioneering 44:42

24d ago44:42

44:42

0:00 Intro to The Genetics Podcast. 01:00 Welcome to Michelle. 02:00 Sstop codon diseases and how are they characterised 03:45 Diseases caused by premature stop codons in haploinsufficient genes. 04:35 The role of transfer RNA technology in finding solutions for premature stop codon diseases. 06:16 How Alltrna is engineering tRNAs which can bind to…

1
Dementia is No Match for a Daughter’s Determination 1:05:41

24d ago1:05:41

1:05:41

Dementia is no match for a daughter’s determination Lori La Bey talks with Dr. Helena Popovic MD who is an Australian family physician and 10-year care partner for her father who had both Alzheimer’s and vascular dementia. She has written two best-selling books about their adventure with dementia, and she teaches health professionals, people living…

1
Dale Marie Latimer Shares Her Fabulous Talent on Dementia and the Arts 1:06:46

25d ago1:06:46

1:06:46

We’ve all been trained to think people living with a dementia diagnosis and Dementia and the Arts is all about breaking that myth. Dale Marie Latimer never did art prior to her dementia diagnosis. By looking at her work I think most of you will be shocked by that. We invite you to sit down and enjoy this conversation and be amazed by Dale’s talent.…

1
Media Bubbles and Voter Behavior with Daniel Scantlebury Resonate 18:18

1M ago18:18

18:18

Daniel Scantlebury, Vice President of Data Science and AI at Resonate, is a seasoned observer of human behavior. He uses his insights to better understand and predict voting behavior. In this age of media bubbles, how voters consume news and form opinions creates even more challenges for campaigns to reach them. We talk about: Use of Predictive Res…

1
Geriatric and Dementia Care in India 47:53

1M ago47:53

47:53

Geriatric and Dementia Care in India Lori La Bey talks with Dr. Anita Kumar a Geriatrician from India with experience in geriatric oncology and public health. She has written multiple articles in national and international journals as well as national newspapers. Anita has spoken to a board audience. Learn: How is a Geriatrician different from a Ge…

1
Mastering Real-Time Customer Data Analysis with Quantum Metric and AI | EP 181 30:59

1M ago30:59

30:59

In this episode, Tony Safoian interviews Mario Ciabarra, the CEO and founder of Quantum Metric. They discuss Mario's background and journey as an entrepreneur, as well as the evolution of Quantum Metric and its product. They highlight the importance of understanding and listening to customers to improve digital experiences. They also introduce the …

1
Are you caring for a friend, family member, or loved one? 1:15:47

1M ago1:15:47

1:15:47

Are you caring for a friend, family member, or loved one? Lori La Bey talks with Crystal Gallo, Co-Founder and CEO of Innerhive, who has over 15 years of experience leading product strategy and operations for high-growth technology companies. Having felt the impact of being a caregiver, she will discuss why there is no better time to address the bu…

1
Tapping Into the Power of Influencers with Ryan Davis People First 19:54

1M ago19:54

19:54

Ryan Davis, Co-Founder and Chief Operating Officer of People First, brings voices from diverse and specialized communities to campaigns to promote candidates and causes. The role of individuals with social media followers and the skills to create content is increasingly relevant to political campaigns trying to reach targeted voters. Influencer mar…

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5 | Q&A Part 2. Dementia Diagnosis, Support, and How to Cope 10:38

2M ago10:38

10:38

What do you do if you suspect your parent has dementia, how do you get a diagnosis? Where do you find support as a parent caregiver? These are just a couple of the questions that I have been asked along this journey. Tune in to find out real life answers from my own experience. As always, if you have questions or would like to learn more about a to…

1
EP 138: Personalised medicine using microbiome models with Dr. Almut Heinken 40:22

1M ago40:22

40:22

0:00 Introduction 1:45 Almut’s research experience, including two recent publications on genome-scale metabolic reconstruction human microorganisms Genome-scale metabolic reconstruction of 7,302 human microorganisms for personalized medicine APOLLO: A genome-scale metabolic reconstruction resource of 247,092 diverse human microbes spanning multiple…

1
Fall Prevention with Cognitive Impairment: It Takes a Village 1:12:06

1M ago1:12:06

1:12:06

Fall Prevention with Cognitive Impairment: It Takes a Village Lori La Bey talks with Dr. Shawn A. Weiss who is a Doctor of Physical Therapy, a Certified Fall Prevention Specialist, and a Certified Alzheimer’s Disease and Dementia Care Trainer. Dr. Shawn Weiss is a licensed Physical Therapist, Functional Wellness Coach, and Healthcare Executive. She…

1
How Private Investigators Work with Wendy Pickering Sullivan 27:43

2M ago27:43

27:43

Wendy Pickering Sullivan, Pickering Sullivan Investigations, joins Deepak Puri, CEO of The Democracy Labs, to pull back the curtain on the job of a private investigator. While a great deal of information is available online, PIs have access to proprietary sources, hard-to-find public records, and the right people to access the right resources. Deep…

1
EP 137: Mavis Machirori on promoting equity, diversity, and social justice in genomics research 41:40

2M ago41:40

41:40

0:00 Intro 1:30 Mavis’ career arc, from starting as a midwife to researching medical innovation and technology with an emphasis on advocacy and equity 7:00 Systemic issues that are easily overlooked in medical research and advancements Webinar: Participant Diversity: Increasing the Impact of Biomedical Research Webinar 10:00 Addressing Eurocentrici…

1
A Passion for Distraction 1:01:09

1M ago1:01:09

1:01:09

A Passion for Distraction #FindingBeautyInIllness #SupportingFamilyCaregivers #HonestDiscussion Lori La Bey talks with Allene Symons who is the author of Love in a Time of Caterpillars: A Memoir of Monarchs and Caregiving. She has worked as a journalist, editor, and college instructor and is the author of three previous books. She has lived in San …

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From De-Extinction to Drug Discovery: SADA Explores the Future of Life Sciences with Form Bio | EP 180 19:21

2M ago19:21

19:21

Cloud and Clear, SADA's Cloud Transformation podcast, brings in Michael Ames, Managing Director of Industry Professional Services at SADA, to highlight Form Bio. We introduce Chris Haas, Head of Partner Engineering, and Doug Daniels, Chief Technology Officer at Form Bio, to talk to us about some amazing things that they're doing in genetic engineer…

1
EP 136: Developments in ring chromosome 20 research and advocacy with Allison Watson 40:57

2M ago40:57

40:57

0:00 Introduction 2:00 Allison’s personal journey to researching epilepsy and ring chromosome 20 syndrome 4:00 Biggest challenges families face with ring chromosome 20 syndrome 11:00 Incidence and prevalence of r(20) syndrome, and how we can improve data reliability 21:00 Applying next generation sequencing to r(20) syndrome gene research 29:00 Eng…

1
Transforming Dementia Care In Malaysia 1:08:26

2M ago1:08:26

1:08:26

Transforming Dementia Care In Malaysia Lori La Bey talks with Dr. Cecilia Chan who has been involved in the eldercare industry for the past 20 years. She is a Gerontologist, a Trainer, a Researcher, and a very passionate Dementia Advocate, and Activist. Dr. Chan has been involved in various projects concerning providing services and facilities to t…

1
Driving Genetic ALS and FTD Activism with Daniel Barvin End the Legacy Foundation 18:45

2M ago18:45

18:45

Daniel Barvin, Founder of the End the Legacy Foundation, is also the VP of Operations and Patient Advocacy at Coya Therapeutics. Coming from a family with a genetic predisposition to develop ALS, Daniel has brought together a community of activists who are intent on educating doctors and patients about early diagnosis and testing. This organization…

1
How To Develop A Plan To “Age Successfully” For Yourself Or With Your Parents 54:50

2M ago54:50

54:50

How To Develop A Plan To “Age Successfully” For Yourself Or With Your Parents This is a replay from Jan 2024 Lori La Bey talks with Star Bradbury who is a former Florida licensed administrator and Executive Director for both an Assisted Living and Memory Care facility, Star has a broad understanding of the variety of options and choices families fa…

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