Best Ftd Podcasts (2024)

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Pushing forward, breaking boundaries and achieving an outstanding career in modeling while caring for her mother with early onset FTD, with Nicole Petrie (Episode 109) 46:02

8h ago46:02

46:02

Nicole Petrie is not a person who is easily describable with words. Using her passion for FTD advocacy and surpassing numerous obstacles and limits in her way, she achieved an outstanding career in modeling, featured in some of the largest publications and on the largest platforms worldwide. In today’s episode, Nicole talks about her journey caring…

1
EP 149: Sequencing 33 million samples to support the UK’s COVID-19 response with Tony Cox, CEO of UK Biocentre 34:16

1h ago34:16

34:16

0:00 Intro to The Genetics Podcast 01:00 Welcome to Tony 02:00 What Tony was expecting going into the role of CEO at UK Biocentre, and how the COVID-19 pandemic changed his plans 03:38 Receiving a phone call from the UK government in March 2020 asking the UK Biocentre to stop all of its projects and focus on sequencing COVID-19 samples 05:12 The UK…

1
THE GERI-GADGETS® APPROACH 47:19

2h ago47:19

47:19

THE GERI-GADGETS® APPROACH Lori La Bey talks with Angela Fairhurst who is a seasoned entrepreneur with a passion for innovation. As the CEO and Founder of Geri-Gadgets®, Angela has carved out a niche in the realm of senior care with her groundbreaking patented products. Angela's expertise spans multiple domains; She’s a seasoned television and even…

1
On The Road with HFC | Music, Grief + Dementia with Karen Pearson at Amoeba Music 41:54

5d ago41:54

41:54

We stopped at the ICONIC Amoeba Music... and we had the most tender conversation on music and grief with Co-Owner Karen Pearson. We loved hearing about her beloved Ilene. We could have talked for hours. We hope this episode finds the people who need to hear it so please share! And don't forget to follow us ⁠⁠⁠⁠@remembermepodcast⁠⁠⁠⁠ and ⁠⁠⁠⁠@weareh…

1
Moving countries and caregiving for her grandmother with cancer and her mom with dementia as an only child, and the lessons learned along the way, with Katrina Prescott (Episode 108) 40:57

1d ago40:57

40:57

When Katrina Prescott left her commercial production role in New York City and returned to British Columbia as she was faced with the realities of her aging grandmother. Little did she know, almost immediately following her grandmother’s passing, she would become a full on solo caregiver for her mother with FTD. In today’s episode, Katrina takes yo…

1
Practical Tips and Candid Conversations for Alzheimer's and Dementia Family Caregivers 1:05:28

4d ago1:05:28

1:05:28

Practical Tips and Candid Conversations for Alzheimer's and Dementia Family Caregivers Today we will learn about “The Caregiver’s Journey is an innovative and refreshing way to learn how to tackle day-to-day dementia family caregiving challenges with strength, patience, and peace of mind. Using practical tips and candid conversations, Lori La Bey t…

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EP 148: Advancing veteran health through the Million Veteran Program with Dr. Mike Gaziano, professor of medicine at Harvard Medical School 35:13

22h ago35:13

35:13

0:00 Intro 2:00 Mike’s career prior to the Million Veteran Program (MVP), how Mike got to work on MVP, and important milestones in the project's evolution 8:30 Future goals for the Million Veteran Program in expanding and diversifying the research cohort 11:00 The roles of various omics in advancing the project's development 14:30 The most meaningf…

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Insight and SADA: Driving AI-Powered Multicloud Solutions | EP 186 21:24

9d ago21:24

21:24

In this episode of SADA’s Cloud and Clear podcast, join host Veronica Raulin, Sr. Director of Advisory at SADA, as she sits down with Jeff Bozic, Distinguished Technologist at Insight, to discuss the dynamic landscape of cloud security, AI, and how their strategic partnership is driving innovation in these fields. Jeff shares his experiences and in…

1
OPEN MIC on Alzheimer's Speaks - Resources, Training, & Insight 52:03

7d ago52:03

52:03

OPEN MIC on Alzheimer's Speaks - Resources, Training, & Insight Today our host Lori La Bey talks with Denise Calhoun is an author and founder of Calhoun Communications and Communicare Connections. Marilyn Raichle is an author and Executive Director of Maude’s Awards. Ken Whalen whose Mother lived with dementia and changed his life. He and his broth…

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Becoming more aware of our thoughts as caregivers, with Jessica Smith (Episode 107) 37:33

11d ago37:33

37:33

As people, we have thousands and thousands of thoughts each and every day. But do you truly recognize your thoughts and are you aware of the thoughts you are having? How are your thoughts impacting you and your daily life as a caregiver? In this episode, Jessica and Stephanie talk about the importance of noticing our thoughts and how this practice …

1
EP 147: From research to delivering precision medicine in the clinic with Scott Weiss, Professor of Medicine at Harvard University 37:19

27m ago37:19

37:19

0:00 Intro to The Genetics Podcast 01:00 Welcome to Scott 01:55 Scott’s career highlights to date, ranging from epidemiology to the genetics of asthma and chronic obstructive pulmonary disease (COPD) 04:56 How and why Scott decided to transition into genetics 06:30 The advances in our understanding of the genetics of asthma and COPD over the past 2…

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On the Road with HFC | The Brain Donation Decision with Lauren Miller Rogen 32:29

10d ago32:29

32:29

A very special sit-down interview with Lauren Miller Rogen, actress, screenwriter, director AND co-founder of ⁠⁠HFC⁠⁠ alongside her husband Seth. This is a raw + honest conversation between 3 daughters of dementia about the decision to donate their parents brain's to research. We hope this episode finds the people who need to hear it so please shar…

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On The Road with HFC | A Little Summer Adventure 47:31

16d ago47:31

47:31

Surprise! Here to share all about being on the road with ⁠HFC⁠ AKA Hilarity for Charity. Have no idea what we're talking about? Take a seat. From touching brains at UCI Mind to jamming out at Ameoba music to chatting up strangers on Hollywood Boulevard with Bruno the BRAIN PUPPET... we had ourselves an adventure. Buckle up for some fun + stay tuned…

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Don’t Walk Away, A Care Partner’s Journey 57:39

1h ago57:39

57:39

Don’t Walk Away, A Care Partner’s Journey Lori La Bey talks with Marilyn Raichle is the Executive Director of Maude’s Awards for innovation in Alzheimer’s Care. In 2009 she became a caregiver for her mother Jean, and together they navigated a fulfilling life with dementia. She is also the author of the book, Don’t Walk Away, A Care Partners’ Journe…

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Let’s talk about the driver’s license (Episode 106) 15:38

4d ago15:38

15:38

The driver’s license and cognitive or physical impairment. Something that, unless you’ve experienced it, you can never fully understand. The battle and the ethics and the nuances to exploring safety vs. autonomy and taking the path of least resistance. What in the world do we do when we are faced with the reality that it may be time to confront the…

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How To Care For Yourself While Caring For Someone Else 1:18:05

5d ago1:18:05

1:18:05

How To Care For Yourself While Caring For Someone Else #Selfcare #StressFactors #EmotionalEating This conversation will give you many tips when caring for another and will also dive into emotional eating what it is, and how to control it. What’s your favorite comfort food? We bet by asking yourself that question alone, you are already thinking abou…

1
EP 146: The biology of aging with Austin Argentieri, Research Fellow at Harvard Medical School, Affiliate Member of the Broad Institute, and Research Fellow at Massachusetts General Hospital 43:05

5d ago43:05

43:05

0:00 Intro to The Genetics Podcast 01:00 Welcome to Austin 01:42 What is aging and how should we think about it? 03:50 Discussion of Austin’s recent breakthrough paper on aging, including the questions he set out to answer, and the outcomes of the research 06:32 How Austin’s work focuses on using large-scale population proteomics data to create acc…

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11| Advocating for Your Parent With Dementia While in the Hospital 15:43

6d ago15:43

15:43

UGH! The healthcare system is broken when it comes to the flow of information for dementia (and so many other) patients! Today I'm sharing a few tips that my sister and I have used when our mother has been in the hospital since her FTD diagnosis. There has to be a better way! I'd love to hear from you at mel@themelcogar.com if you have experiences …

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Entrepreneurial Dreams 27:31

26d ago27:31

27:31

Keeley Grace Collins, Owner of Savvy Socialite talks all things pageant, to business to purpose. Ever wanted to start your own business or compete in a pageant, hear straight from this decorated and determined young, female entrepreneur as she's a true trailblazer. Continuously learning, growing and changing is the key to turning your dreams to rea…

1
Email Security Revolution: A Deep Dive with Material Security | EP 185 21:52

21d ago21:52

21:52

In this episode of Cloud and Clear, your host John Veltri sits down with Abhishek Agarwal, Co-Founder and CEO of Material Security. They dive into the intricacies of cloud security, focusing on Google Workspace, and discuss how Material Security addresses the evolving threats in this space. From email security to sensitive content management and th…

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What exactly is Caregiver Burnout? (Episode 105) 11:22

25d ago11:22

11:22

We hear about this term, caregiver burnout, so often. But what exactly is ‘burnout’ and how do we get there? What can we do to try and prevent or mitigate burnout? In today’s episode, Stephanie takes it back to basics to talk about this commonly used term and what it means. We want your feedback. Let us know how you liked today’s episode! Rate, rev…

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Caregivers: Helping your Veteran Access Benefits 1:03:08

12d ago1:03:08

1:03:08

Caregivers: Helping your Veteran Access Benefits Lori La Bey talks with Nancy Poland, owner of Grace’s Message. Nancy is an author, speaker, and trainer from the Minneapolis, MN area. She states, “With grace and hope, I provide written and spoken communication on caregiving, loss, and other valuable topics.” Learn: How to tap into Veteran’s benefit…

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EP 145: Navigating rare disease drug development regulations with Daniel O’Connor 39:12

1M ago39:12

39:12

0:00 Intro to The Genetics Podcast 01:00 Welcome to Daniel 02:04 Defining rare disease in the age of personalized medicine 04:57 Key touchpoints with the Medicines and Healthcare products Regulatory Agency (MHRA) when developing a new medicine 09:27 Improvements over the course of Daniel’s career when it comes to incentivizing and making the path t…

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10| 3 Tips to Stay Connected With Friends on Limited Time 12:34

13d ago12:34

12:34

Do you desperately miss your girls night out? Or just laughing with friends? Friends are invaluable on your caregiver journey! They laugh with you, cry with you, listen to your fears, and just sit with you when there's nothing to say. Today I share 3 tips that have helped me to maintain friend connections - and those friends have helped me more tha…

1
Impressions on the 2024 Alzheimer’s Disease International Conference 58:17

14d ago58:17

58:17

Impressions on the 2024 Alzheimer’s Disease International Conference Lori La Bey talks with Mary Crescenzo about her impressions of the Alzheimer's Disease International conference which was held early this year in Poland. Learn: About the organization Alzheimer's Disease International. Who the audience and speakers were, along with where they trav…

1
Parenting after the devastating loss of an infant- continuing to care while growing a successful business and determining her own needs in processing substantial grief- with Caitlin Melvin (Episode 104 ... 38:16

27d ago38:16

38:16

Caitlin Melvin’s life changed forever in 2021 when her 3 week old baby Scottie passed away. Having to continue caring for her young son in the face of grief, Caitlin learned how to navigate a situation she never thought she would face. In today’s episode, Caitlin talks about feeling substantial pain and having to continue on while growing her famil…

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EP 144: Research Roundup with Dr. Veera: breakthroughs in developmental disorders, Parkinson's, SLE, and Alzheimer's 56:48

26d ago56:48

56:48

0:00 Introduction 1:40 A recurrent de novo mutation in a noncoding region of a small nucleolar RNA gene that has been identified as one of the most common causes of neurodevelopmental disorders This pathogenic variant escaped notice for years because it was not located in a protein coding region of the genome It now shows potential as a target for …

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9| Tips to Tackle Your Crushing To-Do List 13:32

19d ago13:32

13:32

Does your to-do list feel like it's crushing you? Or do you not even have one because it seems like too big of a task? I have been there, and I'm still a work-in-progress! This is a huge area of struggle for me and one that I am constantly working on! In today's episode, I share a few tips that helped me to get my to-do list to a point that seemed …

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Transforming Healthcare: Verily’s 50 Petabyte Data Migration Journey | EP 184 20:04

29d ago20:04

20:04

Join Miles Ward, CTO at SADA, as he delves into the world of massive data migration with Joe Intrakamhang, Head of Data Management and Cost Optimization at Verily. Discover how SADA and Google Cloud collaborated to move an astounding 50+ petabytes of data for Verily, a leader in precision healthcare. Learn about the challenges and triumphs of this …

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OPEN MIC on Alzheimer's Speaks - Dementia Friendly Churches, Resources, Training, & Insight 1:08:44

1M ago1:08:44

1:08:44

OPEN MIC on Alzheimer's Speaks - Dementia Friendly Churches, Resources, Training, & Insight 7/23/24 Today our host Lori La Bey talks with Pastor Jeanette Bass Jordan founder of Dementia Dignified Academy and Lance A. Slatton known as the Senior Care Influencer. I think you will find our conversation interesting as we explore services, products, car…

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Featured Artist Mark Timmons on Dementia and the Arts 1:42:36

1M ago1:42:36

1:42:36

SPECIAL PROGRAM ALERT - DEMENTIA AND THE ARTS on Alzheimer's Speaks Artist, Mark Timmons joins Dementia and the Arts host Lori La Bey and Mary Crescenzo. On today's show, Mark shares a sampling of his photography as well as some of his prose. In fact, in some pieces, he combines them! Mark shares his techniques, what sparks his interests and why, a…

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Finding herself again after substantial loss: continuing on and locating meaning after a long chapter as a care partner to both parents- with Patti LaFleur (Episode 103) 53:27

1M ago53:27

53:27

Patti LaFleur (known as misspatticake on social media) has become a well-known figure in the caregiving space. After leaving her teaching job of many years, she dedicated her life to caring for her father and her mother Linda, diagnosed with dementia. Documenting her journey daily, Patti and Linda were an inspiration and a real view on the happines…

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EP 143: Harnessing human data in drug development with Jakob Steinfeldt, Co-Founder and Chief Scientific Officer at Pheiron 36:17

1M ago36:17

36:17

0:00 Intro to The Genetics Podcast 01:00 Welcome to Jakob and background on Pheiron 02:14 What made Jakob decide to start Pheiron, what the company does, and how his scientific background inspired him to found a start-up 5:24 Jakob’s excitement and inspiration around the power and potential of machine learning 07:07 Cardiology and heart failure as …

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The Emerging Role of Blood Tests in Improving Alzheimer's Disease Diagnosis 1:09:15

28d ago1:09:15

1:09:15

The Emerging Role of Blood Tests in Improving Alzheimer's Disease Diagnosis Lori La Bey explores the new path of utilizing blood tests to diagnose Alzheimer’s disease. She speaks with two professionals in the industry and one person living with dementia but also received several questions from our audience that she will be asking our panel as well.…

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8| Unscripted. The Backstory of My Mother's Dementia Diagnosis.mp3 13:03

1M ago13:03

13:03

Today's episode was recorded on the 15th anniversary of my father's death, which I fully believe triggered Mom's dementia diagnosis. I share a little more about the backstory, and continue to vulnerably share more specifics of Mom's FTD symptoms and behaviors. I hope this helps you in some way as you are traveling your own journey as a parent careg…

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Using music and art as a method of coping and growth while caregiving for her spouse with Lewy body dementia - with Mary Lou Falcone (Episode 102) 50:52

2M ago50:52

50:52

Mary Lou Falcone lived a life of sophistication and excitement as a prominent figure in the classical music space, her husband a well-known artist. Using music throughout her life helped as a means of expressing herself and proved to be paramount when her husband was diagnosed with Lewy body dementia- at a time in her life that was shocking and une…

1
EP 142: From genome to bedside: How genetics is transforming modern medical practice with Dr. Andrea Gropman 42:45

2M ago42:45

42:45

0:00 Introduction 1:40 Andrea’s background and how she got into the field of genetics, neuroimaging, and metabolic disorders 4:00 Insights into Andrea’s clinical practice, including the diverse families and patients she serves and her approach to clinical decision-making 6:30 How genetics and genomics have changed the diagnostic journey in the last…

1
Stigma Living with Dementia 53:38

1M ago53:38

53:38

Stigma Living with Dementia on Dementia Chats Today's conversation is all about stigma and living with dementia. Our experts living with dementia are Harry Urban, Karen Creekmoore, Cate Lau, Pam, Larue, Dr. Dale Anderson, Bob Savage, and Dr. Lonni Schicker. As usual, I think you will find great insights from those living with a form of dementia. Yo…

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7| Don't Do These 3 Things! How NOT to Handle Hard Dementia Behaviors 10:59

2M ago10:59

10:59

Your parent or loved one with dementia probably displays behaviors that lead you to react in ways that leave you feeling regretful or even more frustrated. Today I will share 3 things NOT to do, and alternative reactions to help you maintain mental peace. As always, if you have questions or would like to learn more about a topic that I have discuss…

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AI Revolution for Retail: Simplifying Pricing and Promotion | EP 183 22:55

1M ago22:55

22:55

Join us on Cloud and Clear, SADA's cloud transformation podcast. This episode features leaders from Revionics and Google Cloud discussing the transformative impact of AI in retail. Discover how AI enhances customer experience, optimizes pricing, and drives operational excellence. Learn about the role of Google Cloud in powering these advancements a…

1
CAN ADVENTURE PREVENT DEMENTIA? 1:35:17

1M ago1:35:17

1:35:17

CAN ADVENTURE PREVENT DEMENTIA? Lori La Bey talks with Dr. Helena Popovic MD is an Australian family physician and 10-year care partner for her father who had both Alzheimer’s and vascular dementia. She has written two best-selling books about their adventure with dementia, and she teaches health professionals, people living with dementia, and thei…

1
I no longer want to engage in sex or intimacy with my partner who I care for (Episode 101) 13:01

2M ago13:01

13:01

Do you ever feel completely removed, turned off or differently in general about your partner who you care for? Do you notice that you no longer want to engage in intimacy with your partner because of the changes in your relationship and the dynamic as a result of your caregiving? In today’s episode, Stephanie touches upon the topic of sex as a care…

1
EP 141: Bringing genomics to the clinic with Lori Orlando, Associate Prof at Duke University 43:24

2M ago43:24

43:24

0:00 Intro to The Genetics Podcast 01:00 Welcome to Lori Orlando 03:00 Lori’s career: From mathematical modelling to genetics and family history 05:11 The study that revealed 20% of the general population is at a higher risk of disease than average and needs preventative care 07:36 The first five diseases that Lori started analysing through informa…

1
Communication Tips When Engaging Someone Living With Dementia 1:01:30

2M ago1:01:30

1:01:30

Hear Some Great Communication Tips From Those Living with Dementia and Why They Can Change and Are So Important. Today we have another amazing panel of experts living with dementia. sharing communication tips that work for them in different situations and as their disease progresses or changes. I know you will find Ginger Smith, Karen Creekmoore, C…

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6| 5 Tips to Reduce Caregiver Overwhelm 13:13

2M ago13:13

13:13

Caregiver overwhelm is REAL!! Instead of looking within the caregiver role to find ways to reduce stress, today I am sharing 5 tips that are more general in nature to help reduce caregiver stress and overwhelm. As always, if you have questions or would like to learn more about a topic that I have discussed, please email me at mel@themelcogar.com. A…

1
An informative look at our ‘crumbling’ healthcare system, its shortcomings , achievements and what we need to focus on shifting to benefit the future of our caregivers and those they care for- with Andr ... 46:21

2M ago46:21

46:21

For 43 years André Picard has been at the forefront of health journalism and health reporting for The Globe and Mail. In today’s episode, André takes a deep dive into the reality of our healthcare system and its impact on caregivers and the people they care for. André compares and contrasts the Canadian system in relation to systems in other nation…

1
EP 140: The future of Electronic Health Records and data analysis with Ben Goldacre 52:51

2M ago52:51

52:51

0:00 Intro to The Genetics Podcast 1:00 Welcome to Ben Goldacre 02:22 Ben’s open data projects at the Bennett Institute and the challenges they aim to tackle 04:03 Using Electronic Health Records (EHR) to help the National Health Service improve care 06:18 The importance of software development within healthcare data and how to manage salary scales…

1
AI Trends and Innovations with SADA | EP 182 23:13

2M ago23:13

23:13

In this episode of Cloud and Clear, host Nikki Harley, VP of Ecosystem and Solutions at SADA, talks with Scott Bergquist, who leads SADA's go-to-market strategy for data, AI, and industry solutions. Scott, with over 25 years in tech, shares his insights on the rapid advancements and transformative potential of AI in business. They discuss how SADA …

1
June OPEN MIC on Alzheimer's Speaks 1:00:58

2M ago1:00:58

1:00:58

OPEN MIC on Alzheimer's Speaks Allows People to Share Their Stories, Services, Products, Tools, Advice, and Concerns Join Alzheimer's Speaks Radio today on Open Mic as we shift dementia care from crisis to comfort around the world one episode at a time. We love raising all voices and delivering sound news, not just sound bites! So, monthly we invit…

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How caregiving for 3 family members concurrently drove her to create innovative tools for other caregivers, with Debbie Compton (Episode 99) 36:04

2M ago36:04

36:04

Debbie Compton and her husband cared for 3 family members at the same time. It was during this balance that she recognized exceptionally innovative ways to navigate presenting difficulties and stressors. She has since adapted these innovations and techniques for other caregivers to help them through their journeys. Debbie is a positive and truly in…

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