show episodes
 
Chronic illness completely changes your life but nobody talks about or even acknowledges all of the emotional issues that come with it and I'm on a mission to change that. As a therapist living with four autoimmune diseases, I know exactly what the issues are and more importantly, how to overcome them. From medical gaslighting, dealing with grief and all of the 'what if' thoughts that keep you awake at night, let's talk about the emotional issues of chronic illness and what you can do to hel ...
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show series
 
In this episode I answer questions from my chronic illness community including: Can you speak to the cost of the unique stressors in chronic illness including not being able to trust the guidance of doctors, trying to resolve health problems alone and how do you cope when taking expert advice goes badly for you? How do you revise your story of self…
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Today (June 19th, 2024) marks 4 years since my Type 1 diabetes diagnosis which makes this the perfect time to talk about how my chronic illnesses affect my everyday life. In this podcast I open up about each of my 4 different autoimmune diseases, the impact they have on me, what's changed what ongoing issues I still have and how I deal with them. T…
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One of the big, missing pieces in supporting people with chronic illness is that there is so little acknowledgment that becoming chronically ill changes peoples lives and that this creates complex emotional issues that are in fact, completely normal. The typical experience is that you get your diagnosis (or not) and leave the doctors office with no…
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One of my main objectives both with my podcast and my work, is to educate and validate the very normal emotional experiences and issues that come with becoming chronically ill. The feelings of jealousy and envy are the ones we don't talk about because it creates so much guilt and shame to even admit them to yourself, let alone to others. Watching y…
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Anxiety and dealing with constant 'what if' thoughts are something that every human has to deal with as our brain is trying to interpret our environment for potential threats to try and keep us safe. But when you live with chronic illness, you will experience new levels of fear that create specific types of anxiety that non chronically ill people n…
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When you live with chronic illness, you can feel so very alone which makes getting support more important than ever. What's often shocking though is discovering just how little support is actually out there! There is so little knowledge about chronic illness in our communities, families, medical and social support systems that you can end up feel j…
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If you live with chronic illness and autoimmune disease, then you understand just how frustrating and debilitating brain fog can be. From the embarrassment of forgetting simple words, losing your ability to concentrate and focus or reading the same lines over and over again and still not being able to take it in, brain fog can have a significant im…
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This episode is a collaboration between myself, my clients and my social media community. We all know that one of the biggest issues we face is the lack of understanding about what chronic illness is and the ongoing impact it has on those of us living with it. In this episode I share what those of us with chronic illness most want people to underst…
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There is no denying that when it comes to chronic illness, there is a huge gap in peoples understanding of just how much it changes your life, energy and ability. So when it comes to trying to share your feelings, doubts, fears and sadness about your experiences of living with chronic illness, you are so often met with toxic positivity responses li…
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When you become chronically ill, one of the biggest challenges you will face because of how the disease so often limits your energy and ability, is an increased need for rest. In fact, rest is an essential component of responsible chronic illness management. Yet so many of us struggle with embracing rest because of ongoing issues of feeling guilty …
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Grant Kirkhope shares with us his journey through a combination of education and solo dedication. His unique approaches and adjacent connectivity to the folks who created RARE built a platform for Grant to bring his talents to manifest some of the most memorable music in the history of video games. Time-travel with us as we revisit some of his grea…
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Jon St. John is world renowned for being the incredible voice of DUKE NUKEM! Jon has a career spanning decades not only as the Alien Ass Kicker, but also as an unforgettable radio personality, many iconic voices from hit animations, and more epic characters in video games like Dota 2, Guild Wars 2, and Mario & Sonic at the Olympic Games. Jon shares…
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The hallmark symptom of all chronic illness is without question, the fatigue. Every time I ask my community which symptom they most wish they could eliminate permanently, fatigue tops the list. It is debilitating, disabling and usually coincides with things like brain fog, pain, anxiety and depression. So it's no surprise that learning how to manag…
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Having good boundaries in our relationships at any time are essential, but during the holiday season, they take on a much bigger importance! There are so many expectations, pressures and emotions that only happen during the Holidays and New Years Eve that are a sure fire way to ramp up your anxiety and guilt and send you crashing into a major flare…
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When you get chronic illness, it doesn't only change your life. The impact on your family and partners can be huge, potentially damaging and be the cause of so much guilt, conflict, resentment and division. A few weeks ago, I asked my wonderful email community to ask their partners what sorts of issues or advice they most needed and they definitely…
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Irrational thoughts, otherwise known in Cognitive Behavioural Therapy circles as Cognitive Distortions are something that everyone experiences. The problem with these irrational thoughts is that they can and do influence our behaviour, emotions, beliefs and relationships and they are key contributors to high levels of stress. They are also the bigg…
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When you live with chronic illness, chances are high that you have experienced many moments of fear, overwhelm and grief and for so many of us in the chronic illness community, it can lead to such despair that you give up all hope. Hope of ever feeling better, hope of ever finding someone to help you, hope of being believed and hope of ever creatin…
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One of the biggest issues of living with chronic illness is that people don't "get it". They don't understand what it is, how much it impacts every part of your daily life and the complex emotions that go along with it. And because people don't get it and there's so much lack of knowledge and acceptance, you can be left feeling isolated in your exp…
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October 8th was my 9th anniversary of the Hashimoto's diagnosis that left me sitting in the ruin of my life, cognitively and physically disabled with no idea if I was going to survive or ever have a chance of recovery. Because my descent into chronic illness was a year long, worsening process of what I thought at the time was terrible perimenopause…
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We all know that one of the biggest frustrations about living with chronic illness is the unsolicited ‘have you tried….?’ suggestions. Especially when it’s being given by someone who has no experience or knowledge about what living in your body with your illness is actually like. Even worse when it's being given by another person with chronic illne…
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When you live with chronic illness, one of the things you may hear quite often is a version of "not letting the illness define you" either as a caution or warning from other people or as a fear that you hold yourself as you struggle to hang on to your former life, abilities and identity. Where does this thing about "not letting the illness define y…
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Changing how you eat to manage chronic illness can be a very triggering and divisive topic for so many in our chronic illness community because how and what we eat is about so much more than simply satisfying hunger. Food is family, community, culture, comfort, tradition, belonging and in many cases, the only sanctioned way to 'treat' or "indulge" …
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How do you know if you are a people pleaser? If you say yes to 3 or more of these statements, you definitely have some people pleasing characteristics which could be making your chronic illness symptoms worse. You find it really hard to say no to requests You often find yourself overcommitting to plans, events or responsibilities You rarely ever di…
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One of the biggest emotional issues that the people around us can't seem to understand is how becoming chronically ill feels like losing your old life and your old self. It's one of those big, intensely personal catastrophic events where you can clearly see and describe how you used to be and how you are now, the before and the after when everythin…
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The hearts and minds behind SPINRACK, Melissa McGinnis (Chief Executive Officer) and Jeff Pierce (Chief Visionary Officer) share with us a FIRST EXCLUSIVE chat about the amazing community experience they built with a team of next generation focused geniuses. SPINRACK is a home for people who produce, discuss, or collect original comic stories, emer…
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Way back in 2017 when I was still in the midst of adapting to life with chronic illness, I was searching for some sort of psychological grief model to help me make sense of everything I was going through. There was nothing out there that I could find that was helpful as most of them were trying to adapt the model that Dr Elizabeth Kübler-Ross creat…
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We had the pleasure of discovering the creative savant Stephen Ddungu online thinking his content was the next Square Enix game only to find out it was the work of one man! From the other side of the world in Great Britain we were educated by Stephen on all the steps of creating a video game from scratch by himself from his vast knowledge in animat…
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Ernie Kim AKA itstheG.O is a variety streamer, content creator, and fashion reviewer. An unstoppable zoomer with street cred on virtually everything virtual as he navigates the routes and challenges of being an entrepreneur in this massive digital landscape. He shares with us the stories of fitting in and finding his place in the world. Ernie prese…
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When you become chronically ill, along with all the disbelief, medical gaslighting and accusations of "it's all in your head", you can also meet a lot of armchair psychologists. And they just love to tell you all about the deep seated issues, long hidden trauma and other weird and wonderful subconscious things that not only created your chronic ill…
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Kerri Ann Hoskins is an incredible woman of personal and professional achievement. Her adventurous spirit and unflinching determination is a testament to what can be achieved through positive perseverance. Kerri is a Video Game Character Icon along with being a gymnast, super model, martial artist, weightlifter, wrestler, and stuntwoman. After appe…
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Beau Jimenez is a Sound Designer & Ear Exciter at PlayStation Studios who picks up right where he left off from PART 1 of his conversation with us in this epic PART 2 of his career. Beau leads the way inventing breakthrough technology that has become the NEW STANDARD in the evolution of player immersion in the video game entertainment industry. As …
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Beau Jimenez is a Sound Designer & Ear Exciter at PlayStation Studios who is driven to push the limits of game audio and help steer a team towards excellence. He is a passionate sound creator, a positive, solution-oriented leader, a fierce collaborator, an avid field recordist, and a technical tinkerer. His goal is to continue to foster a fun, crea…
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Jeffery P. Lee is a visionary artist whose foresight and instincts propelled a quirky evolutionary game to international recognition ushering in the Golden Age Video Games by his creation of Q*Bert! He has been doodling illustrations ever since he was a kid and never turned off the faucet of his flowing creativity. Thousands of hours of paper and p…
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Ricco Phinisee brings the attitude and experience of a winner to his every day actions. His schedules are tightly packed with tasks and goals geared toward helping gamers excel. Pushing them to reach their true potential on the court and off. As a Head Coach of the Boston Celtics NBA2K Team (CLTX GAMING) he brings the leadership to his team in the …
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Mark Turmell is the “grandfather of video games” with a Creative Directing, Game Designing, Lead Programing, and Coding career that spans from the APPLE II era to present day. Each game brought across the finish line cemented his name in history as a video game trend-setter, prophet, and pioneer. Mark takes us through some fascinating accounts of v…
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If you have ever experienced body hypervigilance before, then you will know how debilitating it can be. Hypervigilance is a symptom of trauma and PTSD where you are left scanning your environment constantly for any potential external threat. When you have body hypervigilance, the threat is internal and it can feel like your constant awareness and v…
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Rebecca Ann Heineman continues her incredible stories of the founding and rise of Interplay Productions. Her developing the first female character and pronoun system in RPG games showcased first in Bard's Tale 3: Thief of Fate. Developing, creating, porting, and debugging hundreds of games throughout the course of leaving Interplay Productions to f…
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Rebecca Ann Heineman USA's first video game champion at 16 years old in 1980 playing Space Invaders. She has worked on over 250 games, helming the development of critically acclaimed titles like The Bard’s Tale 3: Thief of Fate and Dragon Wars. She co-founded Interplay Entertainment in 1983 and shares with us the play by play of the historical mome…
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Garry Schyman is the stunningly talented composer, conductor, and musician of video games and film. He has been nominated and won numerous awards for his video game scores, including "Soundtrack of the Year" for Bioshock. Currently, he is teaching Screen Scoring at one of the best music schools in the country, the USC Thornton School of Music while…
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Lisa Fleck is a Senior 3D Environment Artist who has been creating art and observing the outside world all her life. With a decade in the video game industry contributing to AAA and Indie games across many genres she shares with us her journey. She brings us amazing memories of her early days as a gamer with a dedication to schoolwork while being p…
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Dating no matter what your age or situation is absolutely guaranteed to bring out all of your insecurities and living with chronic illness adds a whole new level of difficulties. How do you deal with feeling "less than" you were before? How much do you share about your illness? How do you work around dietary issues? How and when do you disclose you…
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Tommy Gustafsson is the Co-Founder of Easy Trigger Games, honors us from the deep north of Trollhättan, Sweden. This is the guy behind the story, graphics, concept, music, and art direction of the greatest hard-boiled 80's cyberpunk styled retro platformer arcade shooter ever: HUNTDOWN. Tommy talks about the process, influences, and challenges maki…
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If you live with chronic illness, then you have probably experienced some form of Medical Gaslighting. In fact, having an experience of Medical Gaslighting seems to be the rule rather than the exception. Gaslighting in any setting is a form of emotional abuse, however Medical Gaslighting is not only emotionally damaging, it can result in disability…
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Master Daniel Pesina is The original Johnny Cage in Mortal Kombat and Mortal Kombat II, as well as characters Reptile, Scorpion, Sub-Zero, Noob Saibot and Smoke. Pioneer of the legendary martial arts moves in video games that permanently changed the world forever. PART I of II Master Pesina shares with us some of the most amazing history with John …
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Master Daniel Pesina is the original Johnny Cage in Mortal Kombat and Mortal Kombat II, as well as characters Reptile, Scorpion, Sub-Zero, Noob Saibot and Smoke. Pioneer of the legendary martial arts moves in video games that permanently changed the world forever. PART II of II Master Pesina shares with us some philosophy and impactful lessons thro…
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Weston Tracy saves us all with a game that is original and inventive. He is the Project Lead and Art Lead of the incredible "metroidvania" 2D action adventure game Savior. After a 30 year love affair with pixels, Weston is building the game he started designing in 4th grade. Through his experience and dedication he assembled an awesome crew to help…
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Kyle Herbert is a voice powerhouse with credits of the video games and shows we all know and love! He gives us samples of some of the iconic video game character voices while sharing aspiring tips on following your passion to build an epic career! We will discuss what inspired him and how he created the memorable sounds that shape our childhood and…
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Titus Fury himself joins us in the "real world" to let us know what life is like as a committed Virtual Reality Gamer joining the streaming universe, as he play tests all the latest games and apparatuses. This is our 1st Podcast so we are very excited to kick it off and join the community of excited listeners who want to know more about the world o…
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So there I was, home from my second hospitalisation with Diabetic Ketoacidosis, physically frail, very underweight and emotionally traumatised. I had my diagnosis of LADA (Latent Autoimmune Diabetes in Adults) and was left to sort out my new life as an insulin dependant person. Chronic illness isn't just the physical issues though. The emotional is…
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After several months of worsening health, extreme weight loss and becoming physically unable to care for myself, I was admitted to hospital and spent 5 days in intensive care where I came close to dying. I emerged a week later with a new diagnosis of type 1.5 LADA (Latent autoimmune diabetes in adults) that I had difficulty accepting, feeling traum…
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