Best Mike Porath Podcasts (2024)

1
Real Talk on CP: Insights from Future Physical Therapists 1:00:36

18d ago1:00:36

1:00:36

Send us a Text Message. Something I enjoy regularly is giving talks to physical therapy students about cerebral palsy. In today's episode, I had the pleasure of interviewing three physical therapy students in a class I spoke in last year. This episode is unique because all four of us, Aly West, Cameron Samrai, and Dillon Werner, were together in on…

1
Disability Marketing with Martyn Sibley 31:26

3M ago31:26

31:26

Send us a Text Message. You can now send me fan mail! Right above 👆 is the link to send me a text message. You won't be spammed or put on a list. Let me know how I'm doing! I would love your feedback. It's another international episode of OTC! One of the things that I love about doing my podcast is interviewing people from all over the world. There…

1
Trusting Yourself with Melody Wilding 35:44

4M ago35:44

35:44

Send us a Text Message. It’s been a little while because I got sick again, darn! Thankfully, I’m all better. We’re right in the middle of Mental Health Awareness Month and thought it would be appropriate to have on a mental health expert, Melody Wilding. Melody Wilding is the best-selling author of Trust Yourself: Stop Overthinking and Channel Your…

1
The Mighty with Mike Porath 33:06

5M ago33:06

33:06

Send us a Text Message. This week is pretty mighty! My guest today is Mike Porath, Founder and CEO of The Mighty. The Mighty is powered by the shared experiences of 3.5 million members, whose stories have been shown by Harvard researchers to improve health outcomes as a first-of-its-kind bibliotherapy. Mike’s experience raising a daughter with a ra…

1
Cerebral Palsy Awareness Month with UCP CEO and President Armando Contreras 26:31

6M ago26:31

26:31

Send us a Text Message. It's March, which means it's Cerebral Palsy Awareness Month! Last April, I had the fortunate opportunity to speak at the United Cerebral Palsy Annual Conference in Las Vegas, NV. I shared my story of reslience and how I live my life with cerebral palsy. Because this month means so much to me, I thought it would be appropriat…

1
Resilience, Connections, and Breaking Boundaries with Rayne Clarkson 31:35

7M ago31:35

31:35

Send us a Text Message. After a year-long hiatus, I am finally back! I talk about my 2023 entrepreneurial journey, launching a Rush Bowls franchise, and the insights gained from small business ownership Before talking to Rayne Clarkson, the Commodity Business Manager for Applied Materials in Austin, TX. Rayne shared her path of resilience after a l…

1
Adaptive Fashion with Alexandra Herold 33:18

1+ y ago33:18

33:18

Send us a Text Message. I'm back with another episode with my friend Alexandra Herold. If you haven't checked out Monday's episode with Jocelyn Cohen, I encourage you to do so. Alexandra Herold (she/her) is the CEO and Founder of Patti + Ricky (PattiAndRicky.com), the Adaptive Fashion Marketplace for adults and kids with and without disabilities, c…

1
Cerebral Palsy Alliance Research Foundation with Jocelyn Cohen 53:03

2y ago53:03

53:03

Send us a Text Message. This week and next week, you will find three episodes being released. I have a plethora of wonderful interviews that I want you to hear about before the end of 2022. Today's guest is Jocelyn Cohen. Jocelyn is a writer and a storyteller at heart. She knows a compelling story when she sees one, so she’s excited to serve as Vic…

1
International Day of Persons with Disabilities with Isaac Harvey 33:47

2y ago33:47

33:47

Send us a Text Message. Happy International Day of Persons with Disabilities. Today aims to promote an understanding of disability issues and mobilize support for the dignity, rights, and well-being of persons with disabilities. In addition to celebrating the day, my guest is Isaac Harvey from across the pond! Some of Isaac's achievements and roles…

1
Happy World Cerebral Palsy Day 21:58

2y ago21:58

21:58

Send us a Text Message. Today is a special day in the CP community because it is World CP Day! Created by the Cerebral Palsy Alliance in 2012, the mission is to bring together people living with cerebral palsy, their families, allies, supporters, and organizations across more than 100 countries. All to ensure a future in which children and adults w…

1
Season Finale: The FDA's Dr. Kathleen Donohue and RDCA- DAP 26:39

2y ago26:39

26:39

Today on NORDpod, Andrew MacDowell stands in for Matthew Zachary, and he welcomes Dr. Kathleen Donohue, Director of the Division of Rare Diseases and Medical Genetics, at the FDA’s Office of New Drugs. Over 350 million people worldwide have a rare disease, yet only 10% of rare diseases have an FDA-approved treatment. Dr. Donohue oversees the nation…

1
Living With Trichotillomania: Pageant Queen Sarah Pennington 34:00

2+ y ago34:00

34:00

You're in for a treat on today's episode of NORDpod as I welcome chronic illness advocate Sarah Pennington to the show. Since the age of 11, Sarah has been managing a condition known as Trichotillomania, a disorder that involves recurrent, irresistible urges to pull out body hair. An estimated 330,000 children in the US alone may face Trichotilloma…

1
Paying It Forward: Young Adult Brain Cancer Survivor Rob Long 31:33

2+ y ago31:33

31:33

Rob Long is the Executive Director at Uplifting Athletes, a nonprofit organization that inspires the rare disease community with hope through the power of sport. In 1020, as a Pre-Season All-American playing for the Syracuse Orange Football team, he was contemplating which NFL team he wanted to be on. Until he was diagnosed out of the blue with a G…

1
The Incredibly Talented Mr Bobby Foster 38:01

2+ y ago38:01

38:01

Bobby Foster is a content creator, a rapper/producer, a spoken word poet, and a certified life coach who was diagnosed with cystic fibrosis at birth. He graduated with a degree in creative writing from the University of Central Florida. Bobby is currently on a path to bring awareness and change through music. NORDpod is the official podcast of The …

1
The Patient Experience: Philip Bright 26:57

2+ y ago26:57

26:57

Today on NORDpod, Matthew Zachary welcomes Phillip Bright, a senior at The University of Kentucky diagnosed with Hereditary Hemorrhagic Telangiectasia (HHT) at a very young age and has lived an accelerated life facing this rare condition. HHT is a congenital dominant hereditary disorder in which some blood vessels do not develop properly. Phil subs…

1
One Piece Of The Puzzle: Dr. Adrienne Hammill 30:23

2+ y ago30:23

30:23

Dr. Adrienne Hammill is Research Director of the Hemangioma & Vascular Malformation Program and Director of the HHT Center of Excellence at Cincinnati Children's Hospital. Her path to becoming a physician started when she was eight years old when she read an article about retinoblastoma, which is cancer with a genetic cause. She decided then that s…

1
From Pain To Purpose: Kari Luther Rosbeck 33:24

2+ y ago33:24

33:24

Kari Luther Rosbeck is the President & Chief Executive Officer of the TSC Alliance, a nonprofit whose mission is to find a cure for Tuberous Sclerosis Complex (TSC) while improving the lives of those affected. Kari began her life as a Theater nerd and started her own company in NYC after graduating from SUNY Albany. Tragedy struck when she lost her…

1
Chris Anselmo: The Accidental Muscular Dystrophy Advocate 28:04

2+ y ago28:04

28:04

Chris Anselmo is the Director of Market Intelligence at the Muscular Dystrophy Association but he never envisioned becoming an advocate for a disease he never thought he'd get. After a car crash found him in the hospital on the receiving end of a random diagnosis of having extremely high creatine kinase levels, he was soon after diagnosed with Dysf…

1
Rare Disease Day 2022 with actor Adam Rose 34:10

2+ y ago34:10

34:10

Welcome to Season Four of NORDpod, the voice of rare disease. Kicking off 2022, and in recognition of Rare Disease Day, we are proud to welcome actor and social media influencer Adam Rose. Adam has amassed a considerable fan base by creating relatable, entertaining, and insightful video segments on TikTok, often sporting a blue cardigan. He is also…

1
ABLE Accounts & Financial Literacy with Heather Benavidez 30:12

2+ y ago30:12

30:12

Send us a Text Message. Did you know that individuals on SSI (Social Security Income) can only have up to $2,000 dollars in their checking account or their medical benefits may be taken away? On the first episode of 2022, my guest, Heather Benavidez shares what the ABLE program is and how that can help individuals with disabilities become more fina…

1
Life Possible with Former Miss Wheelchair America Karen Roy 30:46

2+ y ago30:46

30:46

Send us a Text Message. Happy Christmas Eve Eve everyone! Today my podcast just got a little merrier! I had the pleasure of interviewing Karen Roy I first connected with Karen a couple of years ago on LinkedIn and during my first Abilities Expo in Phoenix, I got to meet her in person! What makes Karen unique is how she has handled adversity since t…

1
Dr. Edward Neilan: NORD's Chief Medical and Scientific Officer 29:36

2+ y ago29:36

29:36

On the show today, we welcome Dr. Edward Neilan, NORD's own Chief Medical and Scientific Officer. In this role, Ed oversees medical and research initiatives, including the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP) program that NORD established in partnership with FDA and the Critical Path Institute (C-Path) He carries a …

1
[BONUS] The 2021 NORD Breakthrough Summit 43:39

3y ago43:39

43:39

Today’s extra-long, extra-special BONUS episode is brought to you from the 2021 NORD Breakthrough Summit. Every year, NORD hosts its flagship conference in October to discuss what’s new, relevant, and on the horizon in the rare disease space. The session we’re featuring is “Designing Trials for Inclusivity, Equity, and Engagement,” The discussion a…

1
One Father's Barefoot 1,200 Mile Journey 33:40

3y ago33:40

33:40

Chris Brannigan, a major in the British Army, took off his boots for a 1,200-mile barefoot walk down the eastern seaboard of the United States in an effort to raise funds for the creation of a gene therapy treatment that could help patients like his daughter Hasti, battling Cornelia de Lange Syndrome (CdLS ). The NORD community is so proud of Chris…

1
Meet Kam Redlawsk: Disability Advocate 30:47

3y ago30:47

30:47

On the show today, Kam Redlawsk is a designer, illustrator, writer, and disability advocate. After five years of being consistently misdiagnosed and not taken seriously, she was diagnosed correctly with a condition called GNE Myopathy, which is a very, very rare degenerative muscle wasting disorder. There's so much to unpack about her that can only…

1
Best Buddies in New Mexico with Tessah Latson & Martha Mondragon 17:31

3y ago17:31

17:31

Send us a Text Message. In today's episode, I re-visit the wonderful organization of Best Buddies. My guests are Tessah Latson, State Director for Best Buddies in New Mexico, and Martha Mondragon, Program Manager for Community Engagement. For those of you who didn't check out my podcast episode last year with Whitney Michielssen, Best Buddies is a …

1
The Next Generation of Rare Disease Advocate 31:59

3y ago31:59

31:59

Joining me today is Lewis Freese, an incredible young man fresh off the heels of being diagnosed with a rare disease during the pandemic, no less. (I mean, not that there's ever a good time for this to happen but COME ON!) The condition is called IGA Vasculitis and typically affects 2 in 100,000 children each year. As a college student, this threw …

1
The Strength of Families 33:52

3y ago33:52

33:52

On the show today, Aprill Lane is a mother of five and rare disease and infertility advocate — and you do not want to mess with her. She and her husband, Brian, tried to have a baby on their own for 4½ years until they were diagnosed with unexplained infertility. Endless cycles and tens of thousands of dollars later, they are now the proud parents …

1
Universal Designed Footwear with Billy Price 42:50

3y ago42:50

42:50

Send us a Text Message. After several months of being away working and enjoying the summer, the podcast is back. Check out this episode to hear what I've been up to. Then, listen to my interview with Billy Price, owner of Billy Footwear. As a teenager and Seattle native, Billy suffered a spinal cord injury and became paralyzed from the chest down, …

1
Rare Cancer Day: An Interview With Dan “Dry Dock” Shockley 31:08

3y ago31:08

31:08

In celebration and recognition of Rare Cancer Day, I had the pleasure of speaking with Dan “Dry Dock” Shockley. Dan is a retired Navy, Operation Desert Storm; Enduring and Iraqi Freedom veteran and hereditary colon cancer warrior. After his initial colonoscopy, he was recommended for a genetic panel, passed along to specialists, was diagnosed and t…

1
Sturm and Drang: One Disabled Journalist’s Story 35:03

3y ago35:03

35:03

Kicking off Season 3 of NORDpod, I am joined by Karina Sturm, a disabled journalist, blogger, author, and filmmaker who tries to connect with chronically ill people around the world and spread the word about Ehlers-Danios Syndrome and other chronic illnesses. From giving up her job as a research associate in 2010 to cashing out her life savings to …

1
Policy Matters: One Dad's Journey 29:06

3y ago29:06

29:06

On the show today, Nick Kirchhof, a volunteer state ambassador in Colorado and member of the newly established Policy Steering Committee for NORD's Rare Action Network. Nick and his wife were welcomed into the club no one asks to join when their daughter Hayden was diagnosed with an extremely rare condition known as Cystinosis. In navigating these …

1
NORD's Rare Disease Advisory Councils 25:55

3y ago25:55

25:55

On the show today, it's all about Rare Disease Advisory Councils – or RDACs, for short. RDACs provide a platform for the rare community to have a stronger voice in state government. Joining us is NORD Director of Policy Heidi Ross, your one-stop human shop to understanding what these councils are, and how you – the listener – can take an active rol…

1
Fifteen Months Later... 38:11

3+ y ago38:11

38:11

Today on NORDpod, we welcome back Lesli Nordstrom, Director of Marketing and communications at NORD. As returning champion to the show, she’s back to get real about the rare disease community with reflection on the past 18 months. The pandemic’s impact cannot be understated. Millions of lives have been uprooted as we mourn the deaths of hundreds of…

1
Rare Voices of NORD: Jo-Ann D'Angelo 25:57

3+ y ago25:57

25:57

On the show today, Matthew Zachary welcomes Jo-Ann D'Angelo, a Parry-Romberg syndrome patient and the Founder of The Parry-Romberg Syndrome Foundation. PRS, as it is known in acronym land, is an extremely rare facial disfigurement that impacts the bone, muscle, and dental only on one side of the face. There is no cure, and the only treatment is inv…

1
Jeff Goldstein and NORD's RareLaunch Research Ready 29:40

3+ y ago29:40

29:40

On the show today: Jeff Goldstein, President, and Founder of the Lung Transplant Foundation, a nonprofit organization that provides education and emotional support for transplant recipients and their caregivers and raises money for lung transplant research. Jeff was diagnosed in his mid-40s in peak health with Idiopathic Pulmonary Fibrosis — lots o…

1
New Job! 8:30

3+ y ago8:30

8:30

Send us a Text Message. Thankful to everyone who checked out my birthday episode. I have some exciting news to share with you all about my new job! No interview this week. Take a listen. To donate to my United Cerebral Palsy campaign click here, https://give.classy.org/travisdavisBy Travis Davis

1
Adolescent and Young Adult Rare Disease: Seth Rotberg's Story 31:07

3+ y ago31:07

31:07

On the show today, we are talking all things adolescent and young adult (AYA) rare disease. Back when I was CEO at Stupid Cancer, we’d always say that AYA cancer was not better or worse, just different. And the same holds true for this community. Joining me is Seth Rotberg, a very vocal leader in the AYA rare disease community and the Founder of Ou…

1
Birthday Episode with Stacey Sumereau 56:40

3+ y ago56:40

56:40

Send us a Text Message. Today is my birthday! And I am so excited to share my interview with Stacey Sumereau. I've only known Stacey for less than a year but her story has ties with my journey living with cerebral palsy. Without giving much away in the description, this hits home for me for so many reasons, especially on my birthday. Here's a littl…

1
Rare Disease Research: What's All This Then? 27:32

3+ y ago27:32

27:32

On the show today: Vanessa Boulanger is Director of Research at NORD and heads up — you guessed it — NORD’s research department. What kind of research, you ask? Well, I’m glad you asked. We’ll be discussing NORD’s I AM RARE platform, a patient registry that, with the rare disease community’s help, allows for a better understanding of rare diseases,…

1
SLP Continued and More with Monica Jordan 21:40

3+ y ago21:40

21:40

Send us a Text Message. Last week was a great conversation with Janie McCloughan. I decided to continue the conversation of SLP with my friend, Monica Harms. Monica Jordan has been involved in the disability community since she was young, which propelled her in the direction of speech-language pathology. She graduated with her Masters of Communicat…

1
Becoming an SLP with Janie McCloughan 31:10

3+ y ago31:10

31:10

Send us a Text Message. Hope everyone had a Hoppy Easter! We are finally in April and this month is my favorite for a number of reasons. This week is about Speech-Language Pathology. My guest is Janie McCloughan who is a graduate student at Saint Xavier University in Chicago. Janie shared the journey she has gone through picking the major and navig…

1
Ungeeking The Speak: Dr Rachel Bailey Talks "Gene Therapy 101" 35:15

3+ y ago35:15

35:15

Dr. Rachel Bailey joins me today on the program. She is an Assistant Professor of the Center for Alzheimer's and Neurodegenerative Diseases and Pediatrics at UT Southwestern Medical Center. Today's episode is all about those two magic words, no not "COVID Vaccine — those indeed are magic words — no, I'm referring to "Gene Therapy." Yes, Rachel and …

1
Social Media Disability Influencer with Chelsea Bear 21:08

3+ y ago21:08

21:08

Send us a Text Message. This is the last week of Cerebral Palsy Awareness Month and with that, my guest is Chelsea Bear. Chelsea Bear is a South Florida-based disability and inclusivity influencer and advocate. Chelsea utilizes her social media platforms to share her first-hand story of living with cerebral palsy. Her content consists of educationa…

1
Palsy Positive with Andy Imlay 13:58

3+ y ago13:58

13:58

Send us a Text Message. Week 4 of Cerebral Palsy Awareness Month and on this episode, I have comedian Andy Imlay. Andy Imlay was born several weeks early in Owensboro, Kentucky. Having a disability doesn’t get him down and gives him a unique perspective in life, and that translates into comedy gold. He has performed throughout the US, including app…

1
A Conversation With Yann Le Cam: EURODIS Co-Founder and Chief Executive 33:26

3+ y ago33:26

33:26

On the show today — we’ve got a big one or you — Yann Le Cam, Co-Founder and Chief Executive Officer of EURODIS and Rare Diseases International — and “enraged rare disease advocate”, as the media have hailed him. We only recently celebrated Rare Disease Day 2021 on February 28th so we thank all of you who participated and remind those who could not…

1
Stomping on CP with Tylia Flores 18:45

3+ y ago18:45

18:45

Send us a Text Message. Week 3 of Cerebral Palsy Awareness Week and today, I have Tylia Flores. Tylia Flores, who lives in Florida, is a 25-year-old born with cerebral palsy. Although her condition has affected her mobility, it has never affected her will and determination to make a difference in the world. Tylia is the podcast host of Stomping On …

1
Parenting a Child with a Disability with Kayla Sheer 16:08

3+ y ago16:08

16:08

Send us a Text Message. Week two in Cerebral Palsy Awareness Month is here. This month also belongs to those with developmental disabilities. Because of that, my guest is Kayla Scheer, whom I met during my time in TEDx. In 2012, Kayla Scheer married her high school sweetheart and earned her BA in Secondary Education and Spanish with a concentration…

1
Season Two PREMIERE with CEO Peter Saltonstall 30:11

3+ y ago30:11

30:11

It is Season Two of NORDPod, and we're kicking it off in style with a "Last Year Tonight"-themed episode with NORD's President and CEO, Peter Saltonstall, from his undisclosed bunker in New England. 2020 was not the best of times, but it was not the worst of times either, as you'll hear from our conversation for NORD. In today's episode, we'll be d…

1
Cerebral Palsy Awareness Month and 10 Facts about CP 8:28

3+ y ago8:28

8:28

Send us a Text Message. March is Cerebral Palsy Awareness Month which means for the month of March I will be having guests in the CP community, providing resources, and answering any questions you may have. This week I provide 10 facts about cerebral palsy. Please send me an e-mail with any questions at offthecrutch@gmail.com Follow me on Facebook …

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