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From Pain To Purpose: Kari Luther Rosbeck

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Manage episode 324135231 series 2702939
Content provided by Matthew Zachary and Matthew Zachary Worldwide. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Matthew Zachary and Matthew Zachary Worldwide or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Kari Luther Rosbeck is the President & Chief Executive Officer of the TSC Alliance, a nonprofit whose mission is to find a cure for Tuberous Sclerosis Complex (TSC) while improving the lives of those affected. Kari began her life as a Theater nerd and started her own company in NYC after graduating from SUNY Albany. Tragedy struck when she lost her newborn to SIDS. Today she leads an incredible team and fights for equity and quality of life of tens of thousands of patients impacted by this rare genetic condition. Aside from nerding out on all things Sondheim, she and host Matthew Zachary also dive into the "How a bill becomes a law" process of drug development. There's nothing quite like getting a drug approved that you know will actually make a dent in the universe for thousands of people. Enjoy the show.

NORDpod is the official podcast of The National Organization for Rare Disorders. For more information visit https://rarediseases.org.

See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

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39 episodes

Artwork
iconShare
 
Manage episode 324135231 series 2702939
Content provided by Matthew Zachary and Matthew Zachary Worldwide. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Matthew Zachary and Matthew Zachary Worldwide or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Kari Luther Rosbeck is the President & Chief Executive Officer of the TSC Alliance, a nonprofit whose mission is to find a cure for Tuberous Sclerosis Complex (TSC) while improving the lives of those affected. Kari began her life as a Theater nerd and started her own company in NYC after graduating from SUNY Albany. Tragedy struck when she lost her newborn to SIDS. Today she leads an incredible team and fights for equity and quality of life of tens of thousands of patients impacted by this rare genetic condition. Aside from nerding out on all things Sondheim, she and host Matthew Zachary also dive into the "How a bill becomes a law" process of drug development. There's nothing quite like getting a drug approved that you know will actually make a dent in the universe for thousands of people. Enjoy the show.

NORDpod is the official podcast of The National Organization for Rare Disorders. For more information visit https://rarediseases.org.

See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

  continue reading

39 episodes

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