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SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about pyruvate kinase deficiency (PK Deficiency) and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PKD. Each episode, Just Listen: Voices of PK Deficiency strives to provide listeners with critical education, the latest scientific updates, and voices from the PKD community. Learn more about PKD by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency’s on Fac ...
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Like a pink laser beam of insanity beaming straight into your brain hole, authors and longtime D**kHeads David Agranoff and D. Harlan Wilson break down each of Philip K. D**k's novels in order of publication with very little help from their engineer Langhorne J Tweed. Plus: Interviews. Story Vs. Film episodes. And other bits of PKD history. Support this podcast: https://anchor.fm/dickheadspodcast/support
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This is an alternate universe story, where Petunia married a scientist. Harry enters the wizarding world armed with Enlightenment ideals and the experimental spirit.
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The internet’s first source for Rationalist Fiction in audio format!
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Losing weight is challenging and knowing how to keep it off is confusing. Everyone starts their “diet” on Monday and often break by Thursday because “stress” or health issues get in the way. If that sounds like you then meet Karina Rabin. She was born with a genetic kidney disease, ( PKD ), had 2 c-sections & shares with you how she got fit & healthy by eating real foods we all love. This podcast includes nutrition, meal prep, fitness, health, how to overcome the fear of carbs and how to hav ...
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The internet's first source for Rationalist Fiction in audio format!
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Having overcome a near-death experience, I decided to close my life coaching practice (accessible previously on this page) and place my health at the forefront of my journey. My focus has pivoted towards advocating not only for myself but also for others. While life coaching tips will still find their place in my content, my main emphasis is now on patient advocacy through sharing my story. Six months ago, I dove into a career in the AI field, aiming to improve my financial stability in the ...
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Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.
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PKD and the Gift of Life, feat. Patient Advocate Valen Keefer
40:10
40:10
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In this episode of the podcast we speak to Valen Keefer, a professional speaker and patient advocate who was diagnosed with polycystic kidney disease (PKD) at age 10. Valen has faced a number of challenges in her journey, including a double organ transplant, and now inspires other PKD and chronic illness patients by sharing her story. Connect with …
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Welcome the show where Brian and Steven dive into the weird world and weirder mind of Phillip K. Dick. This is an introduction where Brian explains a bit about who PDK was and gets up prepped to start our first of three of his books. We’re starting with Ubik, chapters 1 and 2 next week! (We change the name next episode as the one we went for with t…
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Welcome the show where Brian and Steven dive into the weird world and weirder mind of Phillip K. Dick. This is an introduction where Brian explains a bit about who PDK was and gets up prepped to start our first of three of his books. We’re starting with Ubik, chapters 1 and 2 next week! (We change the name next episode as the one we went for with t…
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Welcome the show where Brian and Steven dive into the weird world and weirder mind of Phillip K. Dick. This is an introduction where Brian explains a bit about who PDK was and gets up prepped to start our first of three of his books. We’re starting with Ubik, chapters 1 and 2 next week! (We change the name next episode as the one we went for with t…
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The Power of Resiliency, Feat. Multiple Myeloma Patient Advocate Keisha Hickson
50:02
50:02
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In this episode of the podcast, we speak to professional speaker and community advocate Keisha Hickson, who was diagnosed with multiple myeloma in 2016. That’s a rare form of cancer that develops in a type of white blood cell called a plasma cell. We discuss navigating a rare cancer diagnosis, adjusting to a new normal and the importance of resilie…
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On this episode of 'Just Listen, Voices of PK Deficiency,' host Dr. Rachel Grace is joined by patient advocate leaders Tamara Schryver of Thrive with PKD and Alejandra Watson of the PKD Foundation to discuss the newly available international guidelines for diagnosing and managing pyruvate kinase deficiency (PKD). The discussion highlights the impor…
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Fallout 09 – Uranium Fever Aftermath
1:22:01
1:22:01
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1:22:01
Buckle up as Eneasz and Steven discuss some of the feedback about this short series and then have an untamed discussion about how capitalism/capitalists are portrayed in popular culture full of all kinds of digressions and random thoughts. We hope you enjoy it! :)By The Methods of Rationality Podcast
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Fallout 09 – Uranium Fever Aftermath
1:22:01
1:22:01
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1:22:01
Buckle up as Eneasz and Steven discuss some of the feedback about this short series and then have an untamed discussion about how capitalism/capitalists are portrayed in popular culture full of all kinds of digressions and random thoughts. We hope you enjoy it! :)By podcast – The Methods of Rationality Podcast
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1
Fallout 09 – Uranium Fever Aftermath
1:22:01
1:22:01
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1:22:01
Buckle up as Eneasz and Steven discuss some of the feedback about this short series and then have an untamed discussion about how capitalism/capitalists are portrayed in popular culture full of all kinds of digressions and random thoughts. We hope you enjoy it! :)By The Methods of Rationality Podcast
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Epilepsy and Unmet Need, feat. The LGS Foundation and Ovid Therapeutics
42:39
42:39
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42:39
This episode's guests include Dr. Tracy Dixon-Salazar, Executive Director for the Lennox-Gastaut Syndrome (LGS) Foundation, as well as Meg Alexander, Chief Strategy Officer of Ovid Therapeutics. We discuss the treatment landscape for seizure disorders such as LGS and why further research and investment is crucial. Connect with the LGS Foundation: W…
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Steven and Eneasz wrap up their discussion on the Fallout TV show and plan out future content.By The Methods of Rationality Podcast
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Steven and Eneasz wrap up their discussion on the Fallout TV show and plan out future content.By The Methods of Rationality Podcast
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Steven and Eneasz wrap up their discussion on the Fallout TV show and plan out future content.By podcast – The Methods of Rationality Podcast
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Live Podcast from PKD Fest 2024 - Featuring Jonathan Lethem & Stephen Graham Jones
1:08:39
1:08:39
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The 'Not a Book Club Book Club' podcast on PKD, his books, and influence.We recently went live from the Philip K. Dick Festival in Fort Morgan, CO, along with fellow DickHeads Jonathan Lethem & Stephen Graham Jones. I was at home but had fun in the chat and even managed to get some technical difficulties under control once I realized I could. Enjoy…
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Ewing Sarcoma and the New Normal, feat. Patient Advocate Brandi Benson
19:48
19:48
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In this episode of the podcast we sit down with Brandi Benson, a U.S. army veteran, author and patient advocate who was diagnosed with Ewing sarcoma in 2008. That’s one of rare family of cancers that develop in bones and the surrounding soft tissues. Brandi shares her story of resilience and survivorship, hoping to inspire others to share their can…
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Enjoy the 7th episode of Uranium Fever! Everyone’s always trying to get some head. In this case it’s more literal.By The Methods of Rationality Podcast
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Enjoy the 7th episode of Uranium Fever! Everyone’s always trying to get some head. In this case it’s more literal.By The Methods of Rationality Podcast
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Enjoy the 7th episode of Uranium Fever! Everyone’s always trying to get some head. In this case it’s more literal.By podcast – The Methods of Rationality Podcast
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On this episode, Dr. Rachael Grace talks with the King family. Jennifer and Jerry King have been raising William and Lily. Both have pyruvate kinase deficiency and we discuss how they’ve managed the disease with their two children.. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficiency and is intended f…
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50 Years of Supporting the TSC Community, feat. TSC Alliance President and CEO Kari Rosbeck
33:03
33:03
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33:03
In this episode of the podcast we sit down with Kari Rosbeck, the president and CEO of the TSC Alliance. That’s a nonprofit dedicated to supporting people living with tuberous sclerosis complex and also driving research into promising treatment, among many other things. The TSC Alliance is also celebrating its 50th anniversary this year! Connect wi…
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Episode #50 - Puttering About in a Small Land
2:29:26
2:29:26
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Hello PKD fans. We're back with the next straight novel, Puttering About in a Small Land, written early in PKD's career but published after his death. This is an interesting take on an extramarital affair. We are joined by PKD collector and scholar Frank Hollander to discuss this odd semi-autobiographical effort. Plus: Relatively long. Paul Giamatt…
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Our heroes get trapped by evil mutants! Plus we get some ghoulishly awesome flashbacks from before the end of the world. Don’t forget to check out AskWho’s awesome Substack. Eneasz recommended this reading of a book review of the Old Testament and it’s awesome.By The Methods of Rationality Podcast
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Our heroes get trapped by evil mutants! Plus we get some ghoulishly awesome flashbacks from before the end of the world. Don’t forget to check out AskWho’s awesome Substack. Eneasz recommended this reading of a book review of the Old Testament and it’s awesome.By The Methods of Rationality Podcast
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Our heroes get trapped by evil mutants! Plus we get some ghoulishly awesome flashbacks from before the end of the world. Don’t forget to check out AskWho’s awesome Substack. Eneasz recommended this reading of a book review of the Old Testament and it’s awesome.By podcast – The Methods of Rationality Podcast
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Interview #33 - Barry Malzberg - The Second Interview
1:22:19
1:22:19
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The Two Davids (Agranoff & Wilson) sit down with author Barry Malzberg to discuss his books, legacy, and what it was like ascending the ranks amongst the new wave.Our Patreon ►► http://www.patreon.com/LanghorneJTweedElectric Larryland Discord ►► https://discord.com/channels/557458722268643329David's YouTube Channel ►► https://www.youtube.com/user/V…
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Eneasz and Steven chat about the fifth episode of the Fallout tv show. Remember when we thought we’d keep these around 15 minutes each? Ha!By The Methods of Rationality Podcast
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Eneasz and Steven chat about the fifth episode of the Fallout tv show. Remember when we thought we’d keep these around 15 minutes each? Ha!By podcast – The Methods of Rationality Podcast
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Eneasz and Steven chat about the fifth episode of the Fallout tv show. Remember when we thought we’d keep these around 15 minutes each? Ha!By The Methods of Rationality Podcast
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Helping Rare Parents Help Themselves, feat. Ronda Thorington, LPC
34:52
34:52
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In this episode of the podcast we sit down with Ronda Thorington, the mother of child living with mixed connective tissue disease. Ronda is also a licensed professional counselor who specializes in empowering parents of children who are living with a rare or chronic diagnosis. Connect with Ronda: Website - Facebook - Instagram Editor's Note: Chroni…
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This episode gets us back into awesome character stuff and we had a blast (bomb pun intended).By podcast – The Methods of Rationality Podcast
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This episode gets us back into awesome character stuff and we had a blast (bomb pun intended).By The Methods of Rationality Podcast
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This episode gets us back into awesome character stuff and we had a blast (bomb pun intended).By The Methods of Rationality Podcast
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IPF and the Importance of Clinical Trials, feat. Patient Advocate Murray Walz
18:08
18:08
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In this episode of the podcast we sit down with Murray Walz, a patient advocate who was diagnosed with the progressive lung diseases idiopathic pulmonary fibrosis (IPF) in 2019. Murray discusses the importance of support, clinical trials and why the family factor is crucial for IPF patients. Connect with the Canadian Pulmonary Fibrosis Foundation: …
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This was more of a plot moving episode and less of a deep diving conversation starter, but we still found some stuff to talk about. I hope you enjoy the transition between the main episode and the last few minutes – the sophisticated among you will get it. ;)By The Methods of Rationality Podcast
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