Best Spondylitis Podcasts (2024)

1
The 9 Strangest Things I Do to Manage My Autoimmune Disease (AS) 44:34

16m ago44:34

44:34

Welcome to another episode of Gut Heroes! In this episode, I dive into some of the strangest things I do to manage my autoimmune disease. I share my personal insights and experiences using some 'unconventional' approaches that have helped me manage ankylosing spondylitis (AS), but can also be helpful for anyone dealing with a chronic health conditi…

1
Pilates for Spondyloarthritis: Flexibility and Strengthening Through Movement 40:48

6d ago40:48

40:48

Shane Keith Rhoads, MS, CSCS,a professional trainer, discusses how pilates can improve flexibility and strength for people managing SpA.

1
Elevating the Patient Voice in Rheumatology Research: Cheryl and Jen’s Stories 44:09

4h ago44:09

44:09

Cheryl and Jen share exciting trends in rheumatology research that will help improve quality of life and develop better targeted treatments for rheumatic disease. They also discuss the importance of involving patients at all levels of research, and shared simple ways that listeners can get involved. Additionally, Cheryl and Jen reflected on the imp…

1
Juvenile Spondyloarthritis: Research and Advocacy Efforts with Dr. Pam Weiss and Parent Advocate Emily Neu 35:50

1h ago35:50

35:50

Pediatric rheumatologist Pam Weiss, MD, and Parent Advocate Emily Neu discuss juvenile spondyloarthritis and its treatment, and the Back Off JSpA research study.

1
How to Travel With an Autoimmune Disease and a Challenging Diet 37:20

13d ago37:20

37:20

In this episode, I explore practical strategies for travelling with an autoimmune disease and specific dietary requirements. I share my own personal experiences from my recent trip to the Faroe Islands and offer some of the insights I've gained over the years managing my ankylosing spondylitis through diet and lifestyle changes. I discuss: ✔️ Prepa…

1
Tackling Rheumatoid Arthritis with Obstinance and Humor: Stasha’s Story 1:01:04

4d ago1:01:04

1:01:04

In this episode, Stasha shares her diagnosis journey for rheumatoid arthritis and reflects on what it was like being a parent to small children while learning how to adapt to rheumatoid arthritis. Stasha also shares how her quest to merge science-based and natural methods led her to starting a blog. Cheryl and Stasha reflect on the role “obstinance…

1
Fixing the Now: Powerful, Practical Ways to Reduce Pain and Stress ‘In the Moment’ 36:17

1d ago36:17

36:17

In this episode, I explore powerful, practical ways to reduce pain and stress 'in the moment'. I share personal strategies I've developed over the years to help shift into a better, less painful, less stressful state, including: ✔️ Using the 'third person' perspective to reframe stressful thoughts ✔️ Tackling challenging tasks immediately to avoid …

1
Navigating the Health Care System, Access to Treatment and Insurance Companies: The Patient’s Role 51:51

7d ago51:51

51:51

Robin Dore, MD, rheumatologist and member of SAA’s Advocacy Committee, discusses how patients can advocate for themselves while working with their physicians and health insurance to get needed healthcare.

1
“Joined at the Joints:” How Marissa Became a YA Romance Writer with RA 55:10

8d ago55:10

55:10

Have you ever read a love story that features someone with chronic illness? In this episode, author Marissa Eller shares how living with RA led her to write her debut young adult (YA) romantic comedy book "Joined at the Joints." She and Cheryl discuss the importance of authentic representation in books and media, particularly for those with invisib…

1
6 Ways AS Is Affecting Your Nails. 7:39

15d ago7:39

7:39

In this episode I discuss an article from myspondylitisteam.com that discusses how your nails can be affected by AS. As always, this is designed to help you plan the conversations you may need to have with your doctor(s). Here is a link to the article . Here are the links to the YouTube channels for: Yoga for AS Alex Levine, Fitness Alex's Full Wor…

1
Ayurvedic Concepts of Food and Nutrition 45:52

21d ago45:52

45:52

Loribeth Cohen, PT, CAP, IMT-C, NET Practitioner, provides an overview of the Ayurvedic guidelines for nutrition and food.

1
Where have I been? 9:50

1M ago9:50

9:50

In this episode, I just give a short talk about where I have been and the journey I hope some of you will do with me.By Jayson Sacco

1
How Rumination and Catastrophising Can Worsen Chronic Pain 28:01

24d ago28:01

28:01

Welcome to another episode of Gut Heroes! In this episode, I look at the fascinating relationship between rumination, catastrophising, and chronic pain. I explore the latest research and share personal insights on how our mental states and relationships could affect our pain management journey, including: ✔️ The role of stress in chronic pain (and …

1
Podiatric Care: Enhancing Foot Health for Spondyloarthritis Patients 41:13

1M ago41:13

41:13

Dr. Lindsey Cherry, Specialist Podiatrist in Rheumatology, discusses how spondyloarthritis can impact your feet and how a podiatrist can help.

1
“Bald Girl Big World:” Colleen’s Alopecia Story 1:25:35

1M ago1:25:35

1:25:35

What’s it like to suddenly go bald at age 22? In this episode, Cheryl interviews Colleen Kydd, who speaks candidly about living with autoimmune alopecia. She shares how she went from covering her baldness with wigs to confidently, unapologetically embracing her identity as a “bald girl in a big world!” Colleen shares how she managed her alopecia in…

1
World Health Organisation Releases Scathing Report On The Impact Of Ultra Processed Foods 16:51

26d ago16:51

16:51

Welcome to another episode of Gut Heroes! In this episode, I dive into a groundbreaking new report released by the World Health Organisation. It sheds light on the staggering influence of four major industries - tobacco, ultra-processed foods, fossil fuels, and alcohol. The report reveals the shocking tactics employed by powerful corporations to ma…

1
Your Stories: A Conversation with Dancer Alicia Graf Mack 42:10

1M ago42:10

42:10

Alicia Graf Mack, Dean and Director of Juilliard Dance, discusses her journey with spondyloarthritis and her career as a professional dancer.

1
Recipe: Tommy's Turbocharged Electrolytes 11:42

1M ago11:42

11:42

Welcome to another episode of Gut Heroes! This is a bonus episode, where I'm going to share one of my homemade recipes with you (MUCH cheaper then buying expensive sachets). This one is for electrolytes and I call it... wait for it... Tommy's Turbocharged Electrolytes. In this episode I look at: ✔️ All the ingredients you'll need ✔️ Why I created t…

1
Gut Digest: Intermittent Fasting Success, The Western Diet Chronic Disease Connection and 'Smart' Antibiotics 17:21

2M ago17:21

17:21

Welcome to another episode of Gut Heroes! This is a Gut Digest episode, where I dive into some of the most fascinating stories and news in the gut health right now. Today, I look at: ✔️ New Study: Intermittent Fasting Success ✔️ New Study: The Western Diet and Chronic Disease Connection ✔️ An Exciting Development With 'Smart Antibiotics' To access …

1
Spondyloarthritis and Aging: Navigating Changes in Later Years 37:20

2M ago37:20

37:20

Rheumatologist Raymond Yung, MD, specializing in geriatric medicine and rheumatology, discusses how spondyloarthritis impacts people as they age.

1
Comedy, Chronic Illness, and Coping: Katie’s Inflammatory Arthritis Story 1:10:41

1M ago1:10:41

1:10:41

In this episode, Katie reflects on the crucial role that parental and patient advocacy played in her her journey to a diagnosis of juvenile idiopathic arthritis (JIA). She also shares her college experience, and discusses the roles that comedy and humor have played in helping her cope. Cheryl and Katie express the importance of accepting the need f…

1
The Curious Case of Leonard Trask - 'The Wonderful Invalid' and Ankylosing Spondylitis 38:00

1M ago38:00

38:00

Welcome to another episode of Gut Heroes! Today I look at the curious story of Leonard Trask. It provides possibly the first documented account of what we now know to be ankylosing spondylitis in the US. In this podcast, I look at: ✔️ About Leonard Trask and his tragic story ✔️ My highlights from the book and what we can take from them ✔️ The delug…

1
Discovery Lab: Distilled Water - My Results After 2 Weeks 19:10

2M ago19:10

19:10

Welcome to another episode of Gut Heroes! This is a Discovery Lab episode, where I run a test on myself, in this case for 2 weeks, on a specific dietary, supplement or exercise change. Today, I look at distilled water. Please note: This is not medical advice. Always check with a medical practitioner before making any changes, such as this, to your …

1
The Spondyloarthritis Athlete: Overcoming Obstacles and Leading Advocacy Efforts 48:35

2M ago48:35

48:35

Ultramarathon runners and endurance athletes Helgi Olafson and Brandon Robert Hozack discuss their journey with spondyloarthritis, their advocacy and awareness efforts, and how they overcome their challenges with AS.

1
Creating a Better Future for Autoimmune Care With Rheumission’s Dr. Micah Yu & Bonnie Feldman 52:22

2M ago52:22

52:22

Cheryl, Dr. Yu and Dr. Feldman share their patient experiences and exploring problems with current healthcare systems. They then share how these problems led them to form creative patient programs and services. Cheryl shares the origin story for her Rheum to THRIVE program, and Dr. Yu and Dr. Feldman share how they created Rheumission, a virtual fi…

1
Gut Digest: Colombia's New Food Law, Menopause Diet Ideas and a Quirky Study on Refined Carbs and Attractiveness 15:40

2M ago15:40

15:40

Welcome to another episode of Gut Heroes! This is a Gut Digest episode, where I dive into some of the most fascinating stories and news in the gut health right now. Today, I look at: ✔️ Colombia's groundbreaking law on junk and ultra-processed foods ✔️ A compelling study on how diet can affect postmenopausal hot flushes (reducing them by 95%!) ✔️ A…

1
Gut Rumble: Magnesium, The Incredible Mr Baker and a Hot Take 13:47

3M ago13:47

13:47

This is the first of my Gut Rumble Rambles! (Yes, I know, the name needs work). This is a free-form episode where I look at the things I discovered recently that I hope you find useful. Today I look at: ✔️ An essential tip for magnesium supplementation ✔️ J. A. Baker, an incredible author (The Peregrine) with ankylosing spondylitis ✔️ Hot take: Det…

1
An Introduction to Ayurveda with Loribeth Cohen 59:15

2M ago59:15

59:15

Loribeth Cohen, PT, CAP, IMT-C, NET Practitioner, provides an introduction to Ayurveda and how this practice strives to move people from a state of “dis-ease” or imbalance to more wholeness.

1
What’s it like to run Half Marathons with Autoimmune Disease? 1:20:17

2M ago1:20:17

1:20:17

After facing skepticism from some medical professionals who doubted her ability to run, Gretchen defied expectations and has completed over 100 half marathons, all while raising money and awareness for autoimmune causes. She and Cheryl also discuss the importance of self compassion in their journeys with chronic autoimmune disease. Gretchen shares …

1
Nathan's Ankylosing Spondylitis Success Story 1:56:18

3M ago1:56:18

1:56:18

Welcome to the first in our Ankylosing Spondylitis Success Story series! In this episode, I'm thrilled to be joined by my friend and fellow AS warrior, Nathan Mennel. Nathan has battled ankylosing spondylitis for many years, and today, he shares his incredible journey with us. In our conversation, Nathan delves into: ✔️ The early signs and symptoms…

1
Speak Up with Author Stephen Shedletzky 50:10

3M ago50:10

50:10

Stephen Shedletzky, author of Speak Up Culture, discusses how people living with spondyloarthritis can find their voice to advocate for their needs.

1
How Mindfulness Helped Paulina Reconnect with Her Body and Thrive with RA 59:45

3M ago59:45

59:45

On episode 125, Paulina Buryzynska shares how self-compassion and mindfulness help her thrive with rheumatoid arthritis. She also highlights the importance of reconnecting with her body after experiencing a period of dissociation as a coping mechanism for pain. Cheryl and Paulina discuss the power of non-judgmental awareness and loving curiosity in…

1
From World Traveler to Warrior Advocate: A Conversation with Carrie Kellenberger 44:56

3M ago44:56

44:56

Carrie Kellenberger, SpA advocate and award-winning blogger of myseveralworlds.com discusses her journey with spondyloarthritis while being a Canadian living in Taiwan.

1
Walking Stronger Together: A Conversation with Jennifer Visscher about Walk Your AS Off with Jennifer 41:06

3M ago41:06

41:06

Jennifer Visscher, Founder of the annual Walk Your AS Off event discusses her journey with spondyloarthritis, her advocacy and awareness efforts, and transitioning the Walk Your AS Off event to SAA’s stewardship. www.walkyourasoff.com

1
Weather and Arthritis: Everything You Need to Know 32:29

3M ago32:29

32:29

In this episode, we take a deep dive into the fascinating connection between weather and arthritis. Discover how factors like humidity, atmospheric pressure, temperature and wind can impact pain levels and inflammation for those of us with rheumatoid arthritis, osteoarthritis, and other conditions in the spondyloarthritis family such as ankylosing …

1
What do People with Rheumatoid Arthritis Need to Know about COVID-19 in 2024? 53:24

3M ago53:24

53:24

Dr Dave & Dr Campbell answer Cheryl’s burning questions about long COVID, vaccine efficacy and safety for people with autoimmune conditions, and potential links between autoimmunity and long COVID. They also talk about cutting edge research and new therapies including CAR T-cell therapy. Dr. Campbell encourages participation in research studies to …

1
Animal-assisted Interventions for Physical and Mental Health Wellness with Dr. Chastain 25:35

3M ago25:35

25:35

Dr. Taylor Chastain Griffin, National Director of AAI Advancement for Pet Partners, discusses the connection between animal-assisted interventions and mental and physical health benefits for people living with SpA. www.petpartners.org www.aaaiponline.org

1
“Disability is not a Dirty Word:” Catherine’s Story of Fierce Hope & Young Patient Advocacy 1:06:39

3M ago1:06:39

1:06:39

Through sharing her own story publicly, Catherine learned the importance of disability representation and advocacy for young people. She also delves into why it is crucial to include the voices of young adults in the research and advocacy process. Cheryl and Catherine explore the process of dismantling their own internalized ableism and challenging…

1
Your Stories: Sarah Louden’s Journey with Sarah 42:18

3M ago42:18

42:18

Sarah Louden discusses her journey with spondyloarthritis and how she strives to live her best life as an entrepreneur, mother, and wife while living with axSpA.

1
Targeted Therapies and Earlier Diagnosis: Exploring Potential SpA Breakthroughs with Dr. Paley 33:51

4M ago33:51

33:51

Ocular rheumatologist Dr. Michael Paley M.D. Ph.D., SAA’s 2023 Early Career Investigator Award Winner, discusses his research. https://spondylitis.org/early-career-investigators-award/

1
Overcoming Denial, Confronting Food Phobia, and Embracing Online Communities: Ray’s AS and OA Story 1:01:51

4M ago1:01:51

1:01:51

Trigger warning: orthorexia / eating disorders; fear of foods In Episode 122, Ray shares the shock and emotional turmoil he experienced upon receiving his diagnoses of rheumatoid arthritis (RA), ankylosing spondylitis (AS), and osteoarthritis (OA). He described the initial denial he felt and the process of coming to terms with his diagnoses, acknow…

1
Fatigue and Brain Fog with Dr. Korte 43:09

4M ago43:09

43:09

Simon Korte, PhD, neuroscientist, and SpA Warrior, discusses fatigue, brain fog, and its relation to spondyloarthritis.

1
Demystifying Chronic Pain, Fibromyalgia, Rheumatic Disease and Long Covid: with Christine Stamatos 1:22:17

4M ago1:22:17

1:22:17

Christine highlights the importance of lifestyle methods to manage chronic conditions including sleep hygiene, stress management, anti inflammatory nutrition, exercise and more. They discuss the importance of focusing on what brings joy and meaning to one's life while managing chronic illness. Overall, the conversation underscores the importance of…

1
70 Percent of Your Immune System is in Your Gut - What You Eat Matters 30:26

4M ago30:26

30:26

So many of the health problems we face in modern life are caused by, or exacerbated by, gut health issues. That's because at least 50% of what makes you 'you' is microbial. More importantly, 70% of your immune system resides in your gut. That means when microbial populations are unbalanced, or the immune system is overworked, it can cause havoc and…

1
Your Stories: Conversations with a Physical Trainer Living with SpA 39:48

5M ago39:48

39:48

John Frazier, physical trainer and author of the book Through the Pain, discusses his journey with AS and how it has impacted his own physical fitness and his work with others. Link to book: Through the Pain by John Frazier https://a.co/d/2T9YetV

1
What’s it like to be an Adult Living with Juvenile Idiopathic Arthritis? Rebecca Beesley’s Story 1:10:55

4M ago1:10:55

1:10:55

Cheryl and Rebecca also share misconceptions and talk about the variability and fluctuations of symptoms, as well as reframing limitations and embracing flexibility. They explore the idea of living a "good life" with rheumatic diseases, acknowledging the challenges while emphasizing the possibility of thriving and pursuing one's dreams despite the …

1
Mindful Journaling for Chronic Pain with Amy 42:49

5M ago42:49

42:49

Amy Muscoplat, Writing Teacher, Creative Facilitator & Owner of Joyfestivalindustries.com, discusses how to use mindful journaling and expressive writing to manage chronic pain. www.Joyfestivalindustries.com

1
Dancing Through Deformities: Christine’s Rheumatoid Arthritis Story 1:15:39

4M ago1:15:39

1:15:39

Episode Summary ****Please see the episode trigger warning below. On episode 119 of the Arthritis Life Podcast, Christine Troyano shares her journey of living, traveling the world and dancing with rheumatoid arthritis. She also opens up about pressures she experienced as a young person to treat her arthritis without medication, and then shares her …

1
Your First Rheumatology Appointment: What to Expect 41:37

4M ago41:37

41:37

The lead-up to your first rheumatology appointment can be a little scary or overwhelming, if you don't know what to expect. What will your rheumatologist be like? What tests will they want to run? Are they going to push a certain medication onto you? But it can also be the start of something amazing and that's the focus of this podcast. In this epi…

1
Step Therapy: Navigating the Challenges of Step Therapy for Better Access to Treatment for Patients with SpA 31:34

5M ago31:34

31:34

Dr. Christina Downey, rheumatologist, and Chair of the Government Affairs Committee for the American College of Rheumatology, explains step therapy, its challenges for SpA patients, and strategies to get the medications you need. https://spondylitis.org/advocacy/ www.steptherapy.com

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