Best Jenny Huang Podcasts (2024)

1
128: An Interview With Jenny Huang, Mother of SMA Patient and MIT Math Whiz Benjamin Lou 15:00

16d ago15:00

15:00

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jenny Huang, whose son, Benjamin Lou, is an award-winning math major at MIT who also has spinal muscular atrophy.By Rare Care Podcast

1
Chloe Angyal On Why She's Cautiously Optimistic That Ballet Can Change 1:04:47

1h ago1:04:47

1:04:47

We're joined this week by Chloe Angyal, author of the widely regarded ballet book, Turning Pointe. Chloe addresses such issues as the "ballet brain" and how if affects dancers' willingness to accept problematic practices in the ballet world. We also discuss why she thinks ballet is in crisis, including how we tend to gloss over the authoritarian pa…

1
239: Overcoming the Invisible Challenges of Disability 45:32

8h ago45:32

45:32

Talking about the challenges of disability can be tough and delicate. For those living with disabilities and their caregivers, every day brings unique hurdles that demand patience, creativity, and resilience. It’s crucial to focus on person-centered planning and get creative to make sure disabled individuals have the support they need to thrive. In…

1
238: Empowering Individuals with Disabilities in Sexuality Education | Katherine McLaughlin 35:29

1h ago35:29

35:29

Sexuality education is a crucial aspect of personal development, but it often overlooks those with disabilities. These individuals deserve access to information that empowers them to make informed decisions about their bodies and relationships. Empowerment through education can be a shield against abuse and exploitation. In this episode, Annette Hi…

1
131: An Interview With Dr. Flavia Nelson of the University of Miami on Treatment Options for NMOSD 13:02

1h ago13:02

13:02

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Flavia Nelson, MD, director of the Multiple Sclerosis Center of Excellence at the University of Miami in Florida, on the difficulties of diagnosing neuromyelitis optica spectrum disorder.By Rare Care Podcast

1
Shane Wuerthner On What It Will Take For Ballet Schools To Change 1:30:53

2d ago1:30:53

1:30:53

Join us for a candid conversation with Shane Wuerthner, former professional ballet dancer and current master trainer and teacher to hear him talk about how wellness programs in ballet schools have evolved since he was in training. Shane also weighs in on what he thinks of coded language, the power imbalance that exists in ballet as well as how impr…

1
237: Disability & Divorce: Planning for a Secure Future | Circle of Care 35:54

3h ago35:54

35:54

How do you navigate the stormy waters of divorce when adult children with disabilities are involved? It's a tough situation that needs careful planning and thought to make sure everyone in the family is okay. In this episode, Annette Hines provides insights into the challenges faced by divorcing parents of adult children with disabilities, emphasiz…

1
130: An Interview With Kevin M. Flanigan, MD, Director of the Center for Gene Therapy at Nationwide Children's Hospital in Columbus, Ohio 10:06

2d ago10:06

10:06

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Kevin M. Flanigan, MD, director of the Center for Gene Therapy at the Abigail Wexner Research Instute of Nationwide Children’s Hospital in Columbus, Ohio. The subject of our talk is exon skipping therapies for Duchenne muscular dystrophy.…

1
236: Preserving Family Legacies | Angela Todd, Archivist, Historian, Activist 37:21

2d ago37:21

37:21

Preserving family history is like capturing a piece of time in a bottle. It allows us to pass down memories, stories, and experiences to future generations. Whether it's old photographs, letters, or even recipes, archiving family history is a meaningful way to honor our past and ensure that it lives on for years to come. In this episode, host Annet…

1
Ballet Boundaries: Nicole Perry and Sarah Lozoff on Effective Communication 1:16:51

3d ago1:16:51

1:16:51

Intimacy direction in dance. What the heck is it, why is it important and how can these practices be brought into ballet training? Our guests, Nicole Perry and Sarah Lozoff, respected intimacy coordinators who have consulted with RudduR Dance as well as American Ballet Theater, share their expertise on how effective communication between dancers ca…

1
235: Decoding Social Security: Navigating the Latest Updates 45:18

3d ago45:18

45:18

Are you missing out on your social security benefits? Social Security updates may not be the most riveting topic, but they’re a lifeline for those who depend on these benefits. Whether you’re already receiving Social Security or planning for the future, keeping up with the latest changes can make navigating the system a whole lot smoother. In this …

1
234: Fun with Taxes | Circle of Care Talk 46:26

9d ago46:26

46:26

Have you ever wondered how to ensure financial security for a disabled loved one after you're gone? Or perhaps you're looking for ways to navigate the complexities of estate planning when it comes to disability benefits. In either case, understanding the ins and outs of Qualified Disability Trusts (QDTs) is a game-changer. In this episode, host Ann…

1
233: You Are Not Alone 13:45

21d ago13:45

13:45

Having been a caregiver for a disabled loved one, I know firsthand how lonely it can feel. However, our communities are key to dispeling isolation and forging connections during these hard times. In this episode of Parenting Impossible, I share my motto 'create the things you wish existed,' and delve into how building a support network has been my …

1
129: An Interview With Durresamin Khan, Pakistani Mother of a Boy With Duchenne Muscular Dystrophy 8:31

12d ago8:31

8:31

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Durresamin Khan, the Pakistani mother of a boy with Duchenne muscular dystrophy, about the difficulties of obtaining treatment for DMD patients who are ineligible for gene therapy.By Rare Care Podcast

1
232: The Magic of Inclusivity | Debi Arsenault 44:35

16d ago44:35

44:35

While living in a society that can sometimes seem overwhelmingly critical and exclusive, creating an atmosphere of inclusivity and acceptance is vital, especially for individuals with disabilities. For a parent to a child with special needs, balancing feelings of guilt, the challenges of self-care, and the importance of fostering acceptance can be …

1
What We Would Have Done Differently as Dance Parents 26:33

17d ago26:33

26:33

In this episode, we revisit one of our earliest topics: "What would you have done differently as dance parents?" Join us as we reflect on our journey, sharing the mistakes we made and the invaluable lessons we learned along the way. Tune in for honest insights and practical advice for every ballet parent. We'll also tackle other listener questions …

1
231: There Will Be Butterflies in Alaska 8:52

17d ago8:52

8:52

Mantras and positive affirmations have become powerful tools in helping me find balance, harmony, and peace in my life. In this episode, I share a significant milestone for my family: my daughter Caroline is finishing college after a challenging journey. To celebrate, we're heading to Alaska for a family trip we've long dreamed of and saved for ove…

1
230: Thriving with Disabilities at MIT | Jenny Huang & Ben Lou 34:53

23d ago34:53

34:53

In a world where societal norms often dictate limitations based on physical abilities, Ben Lou, 20, an award-winning MIT physics and math wiz, and his mother, Jenny Huang, are beacons of hope in disability advocacy. Living with Spinal Muscular Atrophy (SMA), Ben has defied expectations and achieved remarkable success, including acceptance to MIT. W…

1
Dancer Stories: Abigail Huang, Pittsburgh Ballet Theatre 16:05

24d ago16:05

16:05

In our first episode of Dancer Stories, Jenny and her daughter Abbey share how Abbey got her first ballet contract. Tune in to hear how a meeting about dorm policy violations at a summer intensive turned into an apprenticeship offer with Pittsburgh Ballet Theatre. After a last-minute decision to attend the Pittsburgh Ballet Theatre Company Experien…

1
229: What My Daughter Taught Me About Life 28:07

24d ago28:07

28:07

In the quiet moments of caregiving, my daughter Elizabeth showed me that the essence of success is far deeper than material achievements. In this episode of Parenting Impossible, I share the journey of raising my daughter Elizabeth, who taught me the true meaning of success. From navigating her rare mitochondrial disease to founding Special Needs F…

1
127: An Interview With Omer Abdul Hamid, MD, of Nemours Children's Hospital in Orlando, Florida 14:02

26d ago14:02

14:02

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Omer Abdul Hamid, MD, a neurologist at Nemours Children's Hospital in Orlando, Florida, on gene therapy's potential to treat Duchenne muscular dystrophy.By Rare Care Podcast

1
228: Interior Design for Sensory-Friendly Homes | Beatrice Tokayer 30:59

1M ago30:59

30:59

Turning a bedroom into a creative studio was a deeply emotional journey for Annette following the loss of her daughter. On this episode of Parenting Impossible, this powerful experience sets the stage for Annette’s conversation with Beatrice Tokayer, an interior designer and mother of three, who brings her personal insights and professional experti…

1
RAs Spill The Tea On Ballet Summer Intensives 50:29

1M ago50:29

50:29

We're talking with Robert Fulton and Camille Kellems, both professional dancers and also RAs at ballet summer intensives. Get ready for a mix of insider info that's helpful for parents as well as hilarious anecdotes as Robert and Camille let us in on what really goes on behind the scenes. From dorm antics to practice mishaps, they’ve seen it all—an…

1
126: An Interview With Pamela Gavin, New CEO of the National Organization for Rare Disorders (NORD) 14:23

1M ago14:23

14:23

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Pamela Gavin, the newly appointed CEO of the National Organization for Rare Disorders (NORD).By Rare Care Podcast

1
227: Building Support Networks for Special Needs Families | Julie Foge 47:07

1M ago47:07

47:07

When Eliza was diagnosed with Prader-Willi syndrome, the flood of emotions from anger to isolation was overwhelming. On this episode of Parenting Impossible, join Annette as she opens up about her personal journey and the moments that shaped her path in special needs parenting. Annette welcomes Julie Foge, a fellow special needs mom and founder of …

1
Adam McKinney, Artistic Director Pittsburgh Ballet Theatre 1:02:19

1M ago1:02:19

1:02:19

Tune in as we chat with Adam McKinney who has just finished his first year as artistic director of Pittsburgh Ballet Theatre. Hear about McKinney's own background to learn how it impacted his career as a male ballet dancer and how it informs his leadership at PBT. We also got a sneak peek at McKinney's plans for the coming years, both in terms of p…

1
125: An Interview With Patricia Weltin, Founder and CEO of Beyond The Diagnosis 17:59

1M ago17:59

17:59

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Patricia Weltin,founder and CEO of Beyond the Diagnosis—a nonprofit that uses art to raise public awareness of children with ultra-rare diseases.By Rare Care Podcast

1
125: An Interview With Sarah Glass, PhD, of the n-Lorem Foundation 16:36

2M ago16:36

16:36

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sarah Glass, PhD, chief operating officer of the n-Lorem Foundation—and the mother of a boy with an ultra-rare disease.By Rare Care Podcast

1
Alicia Graf Mack, Dean & Director, Dance Division at Juilliard 58:53

2M ago58:53

58:53

Join us as we talk with Alicia Graf Mack, the first person of color and the youngest ever to head the Dance Department at Juilliard. Our conversation covered not only how the program is structured, but also the current state of the job market, what Juilliard dancers do once they graduate as well as the school's cross-over academic program that allo…

1
124: An Interview with Dimitrios Karussis, MD, PhD, on Stem Cell Therapy for Multiple Sclerosis 14:47

2M ago14:47

14:47

By Rare Care Podcast

1
Melonie Buchanan Murray, Director, University of Utah School of Dance 1:01:41

2M ago1:01:41

1:01:41

We're joined by Melonie Buchanan Murray, the Director of the School of Dance at the University of Utah. Our conversation covered a variety of areas, including the repertoire the dancers typically perform, admissions standards, the emphasis Ms. Murray puts on mental health awareness, how injuries affect grading and how students can get a BFA in Ball…

1
123: An Interview With Mary Morlino, Patient Navigator at the Undiagnosed Diseases Network Foundation 11:15

2M ago11:15

11:15

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Mary Morlino, who has sarcoidosis and is the patient navigator for the Undiagnosed Diseases Network Foundation.By Rare Care Podcast

1
Susan Stowe, Chair of the Dept. of Dance at Point Park University 54:30

2M ago54:30

54:30

We're joined by Susan Stowe, Chair of the Department of Dance at Point Park University in Pittsburgh, PA. Ms. Stowe discusses the various tracks students can follow in the dance department, including degrees in ballet, jazz or modern dance and gives us a sneak peek at their latest initiative. Beginning Fall 2024, Point Park University's dance progr…

1
Larry Attaway Chats With Us About Butler University's Dance Program 1:12:49

3M ago1:12:49

1:12:49

Join us as we explore Butler University's Department of Dance, with Larry Attaway, who serves as Chair and Executive Artistic Director. Consistently ranked as one of the top five collegiate ballet programs in the U.S., Mr. Attaway fills us in on its diverse study options—including a dedicated teaching track—as well as the exciting performance oppor…

1
122: An Interview WIth Tracy Sharp, a Patient With Lambert-Eaton Myasthenic Syndrome 13:46

2M ago13:46

13:46

By Rare Care Podcast

1
121: An Interview With University of Pennsylvania Neurologist and CIDP Expert Chafic Karam, MD 4:13

3M ago4:13

4:13

By Rare Care Podcast

1
Phil Chan, Co-Founder Final Bow For Yellowface 51:22

3M ago51:22

51:22

Tune in to our latest episode featuring Phil Chan, co-founder of Final Bow for Yellowface, as we discuss the issue of Orientalism in ballet. Phil talks us through how his organization is actively combating stereotypes and Orientalist tropes within the art form. We also hear how major ballet companies are joining the movement, signing the Final Bow …

1
120: An Interview with Avner Reshef, MD, Top Israeli Expert in Hereditary Angioedema 17:11

3M ago17:11

17:11

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Israeli expert Avner Reshef, MD, director of the Allergy, Immunology, and Angioedema Center at Barzilai University Medical Center in Ashkelon, only a few miles from the border with war-torn Gaza.By Rare Care Podcast

1
119: An Interview With Pediatric Neurologist Edward Smith, MD, on the FDA Approval of Vamorolone for Boys With Duchenne Muscular Dystrophy 15:58

3M ago15:58

15:58

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews pediatric neurologist Edward Smith, MD, about the recent approval of vamorolone, a synthetic corticosteroid, in boys with Duchenne muscular dystrophy.By Rare Care Podcast

1
Tim O'Keefe, Artistic Director, Texas Ballet Theater 48:01

3M ago48:01

48:01

In this episode, we sit down with Tim O'Keefe, Artistic Director of Texas Ballet Theater, for an insightful discussion on the company's repertoire and his approach to artistic direction. We also explore the Texas Ballet Theater Studio Training Company, which offers aspiring dancers a platform to hone their skills. Join us for a candid conversation …

1
226: CrossFit for Our Community with Karen Hurley 30:05

3M ago30:05

30:05

It can be difficult for families to find fitness classes oriented toward individuals with different abilities, whether neurodivergence or physical. However, an emerging fitness category is designed for those who need adaptive and inclusive therapy. On this episode of Parenting Impossible, Annette sits down with guest Karen Hurley, a physical therap…

1
Mavis Staines & Keith Morino Discuss The Company Life Experience at Canada's National Ballet School 1:02:35

3M ago1:02:35

1:02:35

Mavis Staines has been described as a visionary dance educator who has revolutionized the way dance is taught, performed, witnessed and shared across Canada and around the world. Over her 30-year tenure as Artistic Director of Canada’s National Ballet School, she has cemented the School’s reputation as the leading champion of programming excellence…

1
118: An Interview With Sharon Hesterlee, PhD, Chief Research Officer at the Muscular Dystrophy Association 7:58

3M ago7:58

7:58

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sharon Hesterlee, PhD, chief research officer at the Muscular Dystrophy Association, about the recent proliferation of gene therapies and other treatments for neuromuscular diseases.By Rare Care Podcast

1
Christopher Hird Takes Us Inside Sarasota Ballet's Studio Company 57:00

3M ago57:00

57:00

Christopher Hird, Director of Education for Sarasota Ballet joins us to discuss post-graduate training programs. Hird brings a wealth of experience and insight to the conversation, having dedicated his career to shaping the next generation of ballet artists. From fostering technical proficiency to encouraging artistic expression, Hird shares the se…

1
117: An Interview With Ira Walker, the Muscular Dystrophy Association's 2024 National Ambassador, About Living With Spinal Muscular Atrophy 12:02

3M ago12:02

12:02

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Ira Walker, the Muscular Dystrophy Association's 2024 National Ambassador, at the MDA's 2024 Clinical & Scientific Conference in Orlando, Florida. Walker, 39, has spinal muscular atrophy (SMA) type 2.By Rare Care Podcast

1
Chatting With Christopher Ruud, Second Company Manager & Rehearsal Director, Kansas City Ballet 49:44

4M ago49:44

49:44

Ballet Help Desk sat down with Christopher Ruud, Second Company Manager and Rehearsal Director at Kansas City Ballet. This wide-ranging conversation covered everything from how the post-graduate levels are structured to performance opportunities to how students typically move through the ranks of the school. Chris also touched on the channels throu…

1
116: An Interview With Seema Lalani, MD, Director of Project GIVE, a Pediatric Rare Disease Screening Program in the Rio Grande Valley of Texas 11:34

3M ago11:34

11:34

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Seema Lalani, MD, of Baylor College of Medicine in Houston, Texas. Dr. Lalani directs Project GIVE (Genetic Inclusion by Virtual Evaluation), a pediatric screening program in the impoverished 4-county Rio Grande Valley region of southern Texas.…

1
Inside Indiana University's Ballet Program with Sarah Wroth 1:10:42

4M ago1:10:42

1:10:42

We sat down with Sarah Wroth, Chair of the Department of Ballet at Indiana University's Jacobs School of Music, to hear all about IU's ballet program. University ballet programs are becoming an ever more viable means to a professional ballet career and IU is a leader is turning out well-trained and mature, employable dancers. Tune in to hear about …

1
115: An Interview With Matt Trudeau of ITF Therapeutics, on Givinostat as a Therapy for Duchenne Muscular Dystrophy 9:52

4M ago9:52

9:52

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Matt Trudeau, head of ITF Therapeutics—a division of Italy's Italfarmaco—on treating Duchenne muscular dystrophy with givinostat, a histone deacetylase inhibitor.By Rare Care Podcast

1
European Bridge Programs: Talking With Jean-Yves Esquerre, European School of Ballet 1:22:47

4M ago1:22:47

1:22:47

Jean-Yves Esquerre, Founder and Director of European School of Ballet, joins us to talk about his classical and contemporary trainee programs, the current state of the job market in Europe and why he thinks some schools need to rethink their post-graduate programs. Be sure to also listen for information on ESB's inaugural summer intensive taking pl…

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Jenny Huang Podcasts

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