Best Patrick James Lynch Podcasts (2024)

1
Clinical Trials, Caregiving, and NEW MUSIC!? 43:37

1d ago43:37

43:37

On this episode, Patrick James Lynch honors the late Neil Frick, Senior VP for Medical Programs at the National Bleeding Disorders Foundation, recognizing his invaluable two-decade contribution to the bleeding disorders community. We also discuss hemophilia B gene therapy with Dr. Mark Redding, focusing on unique clinical trial designs and the role…

1
The multi-faceted role of HTC social workers 1:02:23

15d ago1:02:23

1:02:23

Patrick sits down with HTC social workers, Kathaleen Schnur and Dianne Bartlett, about the ever-evolving role of social workers in the HTC comprehensive care system. Plus, on the latest I’m Fine, Patrick answers the question, What do clotting factor levels mean to me in this new age of hemophilia treatment? Show Notes: Subscribe: The BloodStream Po…

1
Life with an Invisible Disorder 28:15

29d ago28:15

28:15

Patrick sits down with Thomas Bartlett, Myasthenia Gravis patient and advocate, about the unique struggles of living with an invisible chronic disorder. Also, we all know if you want real answers — ask a nurse. We’ve got Andrea Buxton, Nurse Practitioner at the Hemophilia Outreach Center in Green Bay, WI, with her account of the first commercial do…

1
Mild Hemophilia Matters 56:20

2M ago56:20

56:20

Mild hemophilia truly does matter and we’re with Shellye Horowitz, formally with HFA, to hear about HFA’s Mild Matters program. Plus the final Elite Athletes segment with Paul McLaughlin and I’m Fine with Luke Pembroke. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. I’m Fine and…

1
UK Blood Inquiry Clive Smith & Laurence Woollard 52:26

2M ago52:26

52:26

Our blood brother buds, Clive Smith & Laurence Woollard join us today to share the latest from the ongoing saga of UK Blood Inquiry, plus our latest Gene Therapy segment has Mason Buxton’s story (the first hemophilia B patient to be commercially dosed with gene therapy!). Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, vi…

1
Navigating the Currents: Interferons in the Treatment of Polycythemia Vera 25:45

2M ago25:45

25:45

On this special episode of the BloodStream Podcast, we explore interferons in the treatment of polycythemia vera (or PV). This episode is brought to you by PharmaEssentia. If you’d like to learn more about polycythemia vera, check out our sister show PV Pod: Stories from the Marrow (brought to you by BloodStream Media and PharmaEssentia). Connect w…

1
On the Shoulders of Giants is a hit (!) and I’m Fine is back 38:37

3M ago38:37

38:37

Hear about the premiere of the On the Shoulders of Giants film from HFA Symposium with Patrick and Amy. Plus the I’m Fine segment is back with Luke Pembroke and Hazri Aris is featured on the latest Elite Athletes segment. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. On the Sho…

1
New NBDF CEO, Phil Gattone 38:55

3M ago38:55

38:55

We have newly appointed NBDF CEO, Phil Gattone with us sharing his background and his vision for the organization and community. And, we have the story of the first commercially dosed patient of hemophilia B gene therapy. Hear from Jamison Buxton, the father of the patient…who also happens to be the director of the HTC. Show Notes: Subscribe: The B…

1
Dr. Glenn Pierce on the upcoming WFH Congress + CEO of Plasma Protein Therapeutics Association, Anita Brikman 45:09

4M ago45:09

45:09

Dr. Glenn Pierce is with us to share what to expect from the upcoming WFH Congress in Madrid, and Amy sits down with President and CCEO of the Plasma Protein Therapeutics Association (PPTA), Anita Brikman. FLOW co-host Jessica Richmond sits in for Patrick and we’ll finish up with an Elite Athletes segments will feature bleeding disorder community m…

1
Highlights from ASH with Dr. Akshat Jain 44:04

4M ago44:04

44:04

We’re back with Dr. Akshat Jain who shares highlights in bleeding disorder research from ASH 2023, plus the differences between hemophilia A vs hemophilia B gene therapies with Dr. Mark Redding. We close out with our latest Elite Athletes segments featuring bleeding disorder community legend, Perry Parker. Don’t miss it! Show Notes: Subscribe: The …

1
HFA CEO Dan Kelsey and Rare Disease Day tribute 1:08:50

5M ago1:08:50

1:08:50

HFA CEO Dan Kelsey joins Patrick and Amy to respond to recent organizational changes, followed by Blood Brother, Carl Weixler, who shares a bit about HFA’s history, mission, and current state. Also, a tribute to Rare Disease Day, led by voices from BloodStream Media. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit b…

1
Unlocking Our Creativity with Gwen Constantino 34:28

5M ago34:28

34:28

In this captivating episode of The Self-Growth Train Podcast, listeners are invited on a journey of self-expression and emotional exploration alongside guest Gwen Constantino. As a fervent advocate for creativity and mental health, Constantino shares profound insights and experiences, emphasizing creativity's role in personal growth, problem-solvin…

1
NBDF welcomes new CEO; HFA responds 28:50

5M ago28:50

28:50

NBFD landed a new CEO, and HFA has responded to recent organizational changes; plus, we hear from Dr. Mark Reding and Dr. Steven Pipe about their excitement over gene therapy being added to the treatment landscape in hemophilia. We close with @theHemeNP, Maya Bloomberg talkin’ Rare Disease Day. Show Notes: Subscribe: The BloodStream Podcast Present…

1
Preserving Tainted Blood History and Bath Bleeds 49:35

6M ago49:35

49:35

We’ve got a terrific interview with Kathy MacKay and Dana Kuhn about the efforts the Committee of Ten Thousand (COTT) is taking to preserve documents from the tainted blood tragedy. And another Elite Athletes segment featuring blood brother and cyclist, Giovanny Pernudi. Oh …and Patrick had a bath bleed. Show Notes: Subscribe: The BloodStream Podca…

1
Archives: Celebrating Hope with Stephanie Sarazin 15:02

6M ago15:02

15:02

Today's mini-episode looks back into Season 5 Episode 3 with Stephanie Sarazin where we discuss the concept of Hope. Listen to the full episode here! Resources Used Today: N/A Support the Show.By Frances Marie Rivera Pacheco

1
Shakeup at HFA and a brand new Gene Therapy segment! 45:27

6M ago45:27

45:27

It’s a New Year and BloodStream is back with a terrific episode. Major changes at @HFA leave Patrick wondering about the future of one of our beloved national organizations and we have folks from the FAIR initiative and CHES to share their 2024 vision for the women in bleeding disorders movement (heck yeah!). Plus, a brand new segment this year on …

1
SNL screws up sickle cell. 40:35

6M ago40:35

40:35

We’ve got SNL screwups, the mainstream acronyms continue to butcher rare blood diseases. Plus, we’ve got a new ELITE ATHLETES segment with Anthony Pezzillo (who recently became an uncle; or expanded his uncledom) and I’m Fine, this time with a focus on the caregiver experience with Jessica Bombardier. We’ll get into it all, AND MORE, on this episod…

1
Real Talk About Healing With Ellen Mulholland 1:03:55

7M ago1:03:55

1:03:55

In this heartfelt and transformative episode of The Self-Growth Train Podcast, Ellen Mulholland takes center stage as the guest in a candid and compassionate conversation. The episode delves deep into the personal journey of healing, resilience, and the discovery of strength through vulnerability. Ellen shares her profound insights and personal exp…

1
Real Talk with Anthony Smith about Self-Discovery 1:16:29

7M ago1:16:29

1:16:29

In this candid episode of The Self-Growth Train Podcast, I talk with my friend Anthony Smith about the profound journey of self-discovery and personal growth. We shares our own experiences and insights from our personal explorations. Anthony emphasizes the importance of breaking down barriers, confronting challenges, and embracing vulnerability as …

1
The World Health Organization (WHO) gets it wrong 33:41

7M ago33:41

33:41

The World Health Organization made a decision that has heads scratching that could seriously impact hemophilia patients across the globe and a new I’m Fine segment with blood brother, Justin Levesque. Plus, Worlds AIDS Day with Maya Bloomberg and Patrick is pain-free (or close to pain-free) for the first time in a long (!!) time. Show Notes: Subscr…

1
Archives: Dealing With Body Dysmorphia with April Sunshine 13:21

8M ago13:21

13:21

Today's mini-episode looks back into Season 4 Episode 2 with April Sunshine where we discuss the concept of Body Dysmorphia. Listen to the full episode here! Resources Used Today: N/A Support the Show.By Frances Marie Rivera Pacheco

1
The Dark Side of Resilience + The Gratitude Game 44:10

8M ago44:10

44:10

Hear what Patrick and Amy are grateful for as we play The Gratitude Game, because ‘tis the season, y’all! Also, A new (and fantastic!) I’m Fine segment on the dark side of resilience and Ph.D. Olav Versloot on the latest Elite Athletes segment. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to…

1
Self-Care Through Safe Spaces with Lauren Henry 31:02

8M ago31:02

31:02

In this episode of The Self-Growth Train Podcast, the focus is on the transformative influence of self-care within safe spaces. The guest, Lauren Henry, a devoted advocate for mental health and self-care, guides listeners on a journey of self-discovery and healing through the nurturing environments of safe spaces. Throughout the discussion, the sig…

1
Resisting Change and Holiday Dynamics 22:08

8M ago22:08

22:08

Amy turns the table on the latest I’m Fine and puts Patrick in the hot seat as he shares how and why he resists change and the effect that has on his loved ones. Plus, Maya Bloomberg, @thehemenp, is back with a segment on family dynamics and holiday logistics with a bleeding disorder. Check it out on the latest episode of BloodStream. Show Notes: S…

1
Archives: Celebrating Motivation with LaSean Rice Jr. 9:36

9M ago9:36

9:36

Today's mini-episode looks back into Season 5 Episode 5 with Lasean Rice Jr. where we discuss the concept of Motivation. Listen to the full episode here! Resources Used Today: N/A Support the Show.By Frances Marie Rivera Pacheco

1
Introducing PNH: Facts, Fiction & FYI! 21:57

9M ago21:57

21:57

The BloodStream Podcast is off this week but we have something very special for you. Introducing PNH: Facts, Fiction & FYI. Dive deep into the critical history, medical background, and foundational insights of Paroxysmal Nocturnal Hemoglobinuria (PNH) in our inaugural episode. Join us as we set the stage for a comprehensive exploration of this rare…

1
Rugby & Hemophilia and Treatment Transitions w/ Mosi Williams 35:34

9M ago35:34

35:34

Mosi Williams, blood brother and social worker at an HTC in Northern California joins Patrick for the latest I’m Fine segment with a candid discussion about treatment transitions. And we have UK rugby player, Jess Page, who is living with hemophilia on our Elite Athletes with Hemophilia, the companion segment to the new film REDEFINING IMPOSSIBLE f…

1
How to be Fine With Kristen Meinzer 28:29

9M ago28:29

28:29

In this episode of The Self-Growth Train Podcast, Kristen Meinzer, co-author of "How to Be Fine" and co-host of the podcast by the same name, takes listeners on a journey of self-discovery and personal growth. She shares insights and experiences gained from her reading experiment, where she and her co-host lived by the rules of various self-help bo…

1
Sexual Intimacy, Artificial Intelligence in Healthcare, and Mindset 55:29

9M ago55:29

55:29

We’re back with another episode of BloodStream featuring Maya Bloomberg’s 5 tips for sexual health with a bleeding disorder and AI in Healthcare with Kevin Mills and Pat Mancini. Plus a new SHEmophilia segment and a I’m Fine segment with Mark Skinner. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders…

1
Archives: Understanding Surrender with Didi Davis 9:20

10M ago9:20

9:20

Today's mini-episode looks back into Season 2 Episode 2 with Didi Davis where we discuss the concept of Surrender. Listen to the full episode here! Resources Used Today: N/A Support the Show.By Frances Marie Rivera Pacheco

1
Educating Through Entertainment With Patrick James Lynch 59:20

10M ago59:20

59:20

In this captivating episode of The Self-Growth Train Podcast, host engages in a dynamic conversation with Patrick James Lynch, a visionary in the realm of education and entertainment. Patrick, the founder of Believe Limited, is at the forefront of utilizing media as a tool for educating and empowering communities. Throughout the episode, he shares …

1
Dr. Akshat Jain and NHL coach David Quinn 53:34

10M ago53:34

53:34

Dr. Akshat Jain, Director Inherited Bleeding Disorders at the Loma Linda University Children's Hospital, is here with a wide-ranging conversation, including gene therapy access and affordability in low resource areas. Plus, a new Elite Athletes segment featuring San Jose Sharks Head Coach, David Quinn and another installment of I’m Fine with a spot…

1
Archives: Celebrating Friendships with Alexandra Hutzler 8:26

11M ago8:26

8:26

Today's mini-episode looks back into Season 5 Episode 6 with Alexandra Hutzler where we discuss the concept of Friendships. Listen to the full episode here! Resources Used Today: N/A Support the Show.By Frances Marie Rivera Pacheco

1
Embracing Change in Hemophilia Care and Back to School 31:58

11M ago31:58

31:58

Amy is with guest co-host Joshua Sterling Bragg with Back to School & Sickle Cell Awareness Month resources and a new I’m Fine segment about embracing change in hemophilia care. Plus Maya (@theHEMENP!) is back with thoughts on sports and fitness and author Tim Ryan join us! Show Notes: Subscribe: The BloodStream Podcast Back to School Resources at …

1
Patrick and Amy’s BDC Recap! 36:14

11M ago36:14

36:14

Patrick and Amy recap all the happenings at the recent Bleeding Disorder Conference in DC live from The Science Fair! We’ll discuss the rebrand to The National Bleeding Disorder Foundation (NBDF) and several sessions that caused interest, including two gene therapy patients with wildly different experiences. Also, we’ll premiere the first Elite Ath…

1
Taylor Swift changes Amy’s life, plus a new segment, and other stuff. 27:25

12M ago27:25

27:25

Don’t worry, Amy was given only 3 minutes to share her experience of The Eras Tour and then we get to the good stuff! Maya Bloomberg, the @TheHemeNP, shares four specific pillars of successful disclosure and we debut our new segment, I’m Fine. This new segment aims to challenge our “normals” and truly consider the possibilities. Show Notes: Subscri…

1
NHF rebrand w/ Len Valentino & SHEmophilia w/ Priscilla Oren 35:48

12M ago35:48

35:48

The National Hemophilia Foundation has a major rebrand coming up and we spoke with outgoing CEO and President Len Valentino about that AND SHEmophilia is back with a story from community member Priscilla Oren. We also share some important Medicaid information - don’t miss this one! Show Notes: Subscribe: The BloodStream Podcast You can do three pra…

1
It’s here: Gene Therapy for Hemophilia A 44:09

1y ago44:09

44:09

Patrick calls in to discuss the first gene therapy for Hemophilia A approved in the United States, while Amy chats with Chris Bombardier and Dru Johnston about season 2 of The Final Summit and Maya Bloomberg shares 5 Tips for a Safe and Fun summer with a bleeding disorders. Show Notes: Subscribe: The BloodStream Podcast Listen to The Final Summit S…

1
Music w/ Max Feinstein and FLOW with Jessica Lauren Richmond 44:52

1y ago44:52

44:52

Jessica Lauren Richmond, co-host of the popular FLOW podcast, joins us to discuss all things menstrual health and Amy finally gets to ask –So, how’s your FLOW? We also have James Maple back with a music and self-expression segment that spotlights on community member, Max Feinstein. Show Notes: Subscribe: The BloodStream Podcast Listen and Subscribe…

1
ABC's of Self-Advocacy with Isabel Raisbeck Brown 54:02

1y ago54:02

54:02

In this enlightening episode of The Self-Growth Train Podcast, self-advocacy takes center stage as guest Isabel Raisbeck Brown shares her insights . The episode explores the art of advocating for oneself, emphasizing the importance of self-advocacy in fostering personal growth and empowerment. Isabel, a passionate advocate and rights champion, draw…

1
World Sickle Cell Day & Sing Me A Story 35:18

1y ago35:18

35:18

Join us as we celebrate World Sickle Cell day on June 19th with contributor Maya Bloomberg, the HemeNP and a conversation with hematologist Dr. Mike Callaghan. Great stuff about equity in healthcare, clinical trial participation, the Sing Me a Story organization, and the Denver Nuggets in the finals. Don’t miss it! Show Notes: Subscribe: The BloodS…

1
Archives: Understanding Emotions with Keary McCutchen 4:40

1y ago4:40

4:40

Today's mini-episode looks back into Season 2 Episode 3 with Keary McCutchen where we discuss the concept of Emotions. Listen to the full episode here! Resources Used Today: N/A Support the Show.By Frances Marie Rivera Pacheco

1
Climbing the 7 Summits with Chris Bombardier 58:45

1y ago58:45

58:45

In this riveting episode of The Self-Growth Train Podcast, we are treated to a captivating tale of extraordinary determination and resilience. Guest Chris Bombardier, the first hemophiliac to conquer the Seven Summits, shares his awe-inspiring journey of climbing the world's highest peaks while simultaneously raising awareness for a noble cause. Th…

1
SHEmophilia, Music, and Michael Bishop 41:06

1y ago41:06

41:06

We’ve got a new “SHEmophilia” audio segment brought to us by CHES, as well as Saverio Cimino featured in today’s music and expression segment. Then, Patricks catches up with community member, Michael Bishop. A great episode! Show Notes: Subscribe: The BloodStream Podcast Saverio Cimino’s Instagram Presenting Sponsor: Takeda, visit bleedingdisorders…

1
Archives: Understanding Value with Rebecca Thompson 4:05

1y ago4:05

4:05

Today's mini-episode looks back into Season 2 Episode 5 with Rebecca Thompson where we discuss the concept of Value. Listen to the full episode here! Resources Used Today: N/A Support the Show.By Frances Marie Rivera Pacheco

1
The Magic of Supporting Local Talent with The Madrids 1:05:53

1y ago1:05:53

1:05:53

In this heartwarming episode of The Self-Growth Train Podcast, the focus is on the enchanting world of supporting local talent, with special guests, the exceptionally talented couple The Madrids. This episode invites listeners on a journey infused passion and a deep-seated appreciation for the local arts scene. The Madrids emphasize the vital impor…

1
Fitusiran overview with Dr. Guy Young 54:26

1y ago54:26

54:26

Dr. Guy Young joins us for an overview on the newest non-factor replacement therapy for hemophilia A and B, still in clinical trials–Fitusiran. Maya Bloomberg, the HemeNP, is back and so is James Maple with a segment featuring community member and musical artist, Shelby Smoak. We’ll also get a sneak peak of a brand new documentary featuring members…

1
Archives: Understanding Loyalty with Anthony Smith 6:33

1y ago6:33

6:33

Today's mini-episode looks back into Season 2 Episode 4 with Anthony Smith where we discuss the concept of Loyalty.Listen to the full episode here! Resources Used Today: Loyalty Support the Show.By Frances Marie Rivera Pacheco

1
Real Talk About Self-Discipline with Frida Guerra 47:46

1y ago47:46

47:46

In this episode of The Self-Growth Train Podcast, I engage in a candid and insightful conversation with my friend, Frida Guerra, focusing on the vital skill of self-discipline and its role in personal development. The episode delves into various aspects of self-discipline, including its true meaning and its profound impact on personal growth. We ex…

1
The Ethics of Gene Therapy and a conversation with Gunnar Esiason 1:00:42

1y ago1:00:42

1:00:42

Gunnar Esiason, son of NFL legend Boomer Esiason, shares his story of living with cystic fibrosis and becoming the advocate he is today. We also speak with Rich Gorman: ethicist (!) on the ethics of gene therapy. Josh reflects on the connection between physical and mental health on Let’s Talk. A packed episode! Show Notes: Subscribe: The BloodStrea…

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Patrick James Lynch Podcasts

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