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Life with an Invisible Disorder

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Manage episode 423518567 series 1105104
Content provided by BloodStream Media. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by BloodStream Media or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Patrick sits down with Thomas Bartlett, Myasthenia Gravis patient and advocate, about the unique struggles of living with an invisible chronic disorder. Also, we all know if you want real answers — ask a nurse. We’ve got Andrea Buxton, Nurse Practitioner at the Hemophilia Outreach Center in Green Bay, WI, with her account of the first commercial dosing of gene therapy for hemophiia B.

Show Notes:

Subscribe:

The BloodStream Podcast

Presenting Sponsor:

Takeda, visit bleedingdisorders.com to learn more.

It’s a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information.

On the Shoulders of Giants Film

Watch the movie and host a screening: ontheshouldersfilm.com

Beyond our Blood

Watch the short films and download the facilitation guide: beyondourblood.com

Connect with BloodStream Media:

BloodStreamMedia.com

BloodStream on Facebook

BloodStream on Twitter

  continue reading

105 episodes

Artwork

Life with an Invisible Disorder

BloodStream

12 subscribers

published

iconShare
 
Manage episode 423518567 series 1105104
Content provided by BloodStream Media. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by BloodStream Media or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Patrick sits down with Thomas Bartlett, Myasthenia Gravis patient and advocate, about the unique struggles of living with an invisible chronic disorder. Also, we all know if you want real answers — ask a nurse. We’ve got Andrea Buxton, Nurse Practitioner at the Hemophilia Outreach Center in Green Bay, WI, with her account of the first commercial dosing of gene therapy for hemophiia B.

Show Notes:

Subscribe:

The BloodStream Podcast

Presenting Sponsor:

Takeda, visit bleedingdisorders.com to learn more.

It’s a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information.

On the Shoulders of Giants Film

Watch the movie and host a screening: ontheshouldersfilm.com

Beyond our Blood

Watch the short films and download the facilitation guide: beyondourblood.com

Connect with BloodStream Media:

BloodStreamMedia.com

BloodStream on Facebook

BloodStream on Twitter

  continue reading

105 episodes

All episodes

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